Vulvodynia Support
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» Hope to all my suffering ladies
Has anyone given birth with vulvodynia? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Has anyone given birth with vulvodynia? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Has anyone given birth with vulvodynia? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Has anyone given birth with vulvodynia? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Has anyone given birth with vulvodynia? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Has anyone given birth with vulvodynia? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Has anyone given birth with vulvodynia? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Has anyone given birth with vulvodynia? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Has anyone given birth with vulvodynia? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Has anyone given birth with vulvodynia?

+2
Sarah001
Melanie
6 posters

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Has anyone given birth with vulvodynia? Empty Has anyone given birth with vulvodynia?

Post  Melanie Thu Jul 21, 2011 1:06 pm

I have had vulvodynia since I was 16, I turn 30 next month. I still suffer with pain during sex. I seen doctor after doctor for years and my only help has been Xylocaine cream which is use as a local anaesthetic before intercourse. I had pain everyday for about 6 years, now it is only when my diet is bad ( Doctors say that food can change the PH of the vagina) It was a naturopath who helped me to change my diet to treat my Candida(vaginal thrush) and IBS which actually over time diminished my vulva pain, which comes on now when I have eaten too much gluten or dairy or chocolate. I assume that these foods change the PH of the vagina and they are actually mucous forming, so in excess irritate the vagina. My worry now that I am getting older is that I still can't have sex without a local anaesthetic(so problem not solved) cream, HOW am i supposed to give birth? My doctor has said that a caesarian section is an option, however doesn't seem like much fun either. Has anyone given birth whilst still suffering?

Melanie

Posts : 11
Join date : 2011-07-21

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Post  Sarah001 Thu Jul 21, 2011 1:24 pm

Hi Melanie, I can't speak from personal experience but I belong to another health website where a couple of the women have vulvodynia and they said it improved after giving birth as the pelvic floor and vaginal opening got stretched out during the whole process, if you have pelvic floor spasm it may actually help.
Sarah001
Sarah001

Posts : 1164
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Age : 50
Location : UK

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Post  Sebby (Admin) Thu Jul 21, 2011 7:24 pm


Good to hear that giving birth has actually helped some women Smile

Im scared of giving birth anyway to be honest so I would prob opt for a c section. Wont be thinking of having a baby just yet, especially with the meds im on but maybe if I got pregnant I would change my mind?
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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Post  Melanie Fri Jul 22, 2011 9:50 am

Sebby (Admin) wrote:
Good to hear that giving birth has actually helped some women Smile

Im scared of giving birth anyway to be honest so I would prob opt for a c section. Wont be thinking of having a baby just yet, especially with the meds im on but maybe if I got pregnant I would change my mind?



Yeah I am thinking at this stage I will opt for c section, however even this doesn't seem like a better option. I'm not ready yet for a baby either however my partner probably thinks 2 years however I think more like 5.

Melanie

Posts : 11
Join date : 2011-07-21

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Post  Joolibee Fri Jul 22, 2011 11:50 am

Hi there. I can't speak from personal experience, but someone I met told me that her vulvodynia disappeared for 3 months after she gave birth. Giving birth requires the pelvic muscles to relax. I have given birth twice, before getting vulvodynia and although I don't know, I think that the intensity of labour would probably drown out any vulval pain, regardless of the type of delivery. I do not wish to put you off having children, I assume everyone knows that labour is painful. But when you are ready to start a family, I would try not to let the vulvodynia hold you back. IF necessary, there is always the option of a C section.

Joolibee

Posts : 36
Join date : 2011-03-09
Location : France / UK

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Post  Heidi Sat Jul 23, 2011 2:57 am

I've had vulvar pain since I was about 13. I am now 42. I reduced my symptoms by about 80% during my 20's with diet, calcium citrate, and Estrace cream (low oxalate diet, also watched acidity of foods and occasionally did the anti-fungal diet when I seemed to be having yeast issues). Although my most severe symptoms are under control (I have gone weeks at a time without thinking about my vagina or feeling pain), I have never been able to have intercourse without pain. (During a particularly good period, I was able to have very gentle intercourse for a short duration but it wasn't nearly as much fun as "other" sexual activities.)
At 38, I decided I was ready to have a baby. I opted for inter-uterine insemination from a fertility doctor. Some parts of fertility treatment were mildly painful but overall it was a positive experience and a lot less painful than intercourse would have been. I became pregnant with twins a year later. My vulvar pain completely disappeared during the last 5 months of the pregnancy. It was fabulous. Because my presenting twin was breach, I had to have a c-section, although my doctor and I decided that a c-section was in my best interest anyway. She said that giving birth vaginally can cause really bad flare-ups in women with chronic vulvar pain and she thought that was the last thing I needed while taking care of twins. The c-section wasn't bad. I mean, it definitely wasn't great, but it was relatively painless compared to natural childbirth and it healed within 6 weeks (a lot sooner than some women who give birth vaginally). My vulvar pain came back a few weeks after their birth. Breastfeeding hormones can cause flare-ups in a lot of women and I guess I was one of the lucky ones :-> I also didn't follow my diet well and stopped my calcium citrate and Estrace cream because I was so exhausted taking care of twin infants, so that was a big part of my problem too. Now I'm doing better again, but still trying to learn how to follow my diet while cooking for a family.
Good luck. Motherhood is an amazing journey. I hope you feel confident enough to pursue it when you ready.
Heidi
http://lowoxalatefamily.wordpress.com

Heidi

Posts : 28
Join date : 2011-07-17
Age : 55
Location : Missouri, USA

http://lowoxalatefamily.wordpress.com

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Post  Heidi Sat Jul 23, 2011 5:22 am

Hey,Melanie.
One more thing. You might check out the literature on "leaky gut" syndrome. (The Autism Research Institute's website has a good overview). Many people with "leaky guts" are sensitive to gluten, dairy, and oxalate (chocolate is about as high oxalate as it gets). Many of the people on their "Trying Low Oxalates" board are on a low oxalate, gluten-free, dairy-free diet and are seeing a lot of great results for IBS, vulvar and penis pain, urinary symptoms, and various skin, muscles and joint symptoms. (Most came to the board because of gluten-related intestinal symptoms, but added the low oxalate diet to combat burning sensations and pain in their genitals or bladder.) It sounds like you found this diet on your own, but maybe you could get a few more ideas or clues that would help you become pain-free? I've found a few good resources there and am trying to piece together the next treatment that will get me to pain-free.
Good luck.
Heidi

Heidi

Posts : 28
Join date : 2011-07-17
Age : 55
Location : Missouri, USA

http://lowoxalatefamily.wordpress.com

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Post  Melanie Sun Jul 24, 2011 7:40 am

Heidi wrote:I've had vulvar pain since I was about 13. I am now 42. I reduced my symptoms by about 80% during my 20's with diet, calcium citrate, and Estrace cream (low oxalate diet, also watched acidity of foods and occasionally did the anti-fungal diet when I seemed to be having yeast issues). Although my most severe symptoms are under control (I have gone weeks at a time without thinking about my vagina or feeling pain), I have never been able to have intercourse without pain. (During a particularly good period, I was able to have very gentle intercourse for a short duration but it wasn't nearly as much fun as "other" sexual activities.)
At 38, I decided I was ready to have a baby. I opted for inter-uterine insemination from a fertility doctor. Some parts of fertility treatment were mildly painful but overall it was a positive experience and a lot less painful than intercourse would have been. I became pregnant with twins a year later. My vulvar pain completely disappeared during the last 5 months of the pregnancy. It was fabulous. Because my presenting twin was breach, I had to have a c-section, although my doctor and I decided that a c-section was in my best interest anyway. She said that giving birth vaginally can cause really bad flare-ups in women with chronic vulvar pain and she thought that was the last thing I needed while taking care of twins. The c-section wasn't bad. I mean, it definitely wasn't great, but it was relatively painless compared to natural childbirth and it healed within 6 weeks (a lot sooner than some women who give birth vaginally). My vulvar pain came back a few weeks after their birth. Breastfeeding hormones can cause flare-ups in a lot of women and I guess I was one of the lucky ones :-> I also didn't follow my diet well and stopped my calcium citrate and Estrace cream because I was so exhausted taking care of twin infants, so that was a big part of my problem too. Now I'm doing better again, but still trying to learn how to follow my diet while cooking for a family.
Good luck. Motherhood is an amazing journey. I hope you feel confident enough to pursue it when you ready.
Heidi
http://lowoxalatefamily.wordpress.com



Kind Regards for this info. Funny you had twins as my partner is under the impression and made the decision that I am apparently having twins. I haven't tried calcium citrate but will research more now. Do you use Xylocaine cream for intercourse as it sounds like you can't have sex at all? Thankyou so much feel quite happy now.

Melanie

Posts : 11
Join date : 2011-07-21

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Post  Sebby (Admin) Sun Jul 24, 2011 5:42 pm


Congrats Heidi on having your twins. Good to know that fertility treatment worked for you. Gives us hope.

I do feel that I would prob opt for a C Section but to be honest I would do more research before I ever made a decision. Im deff not ready for a baby yet. Im 30, I do worry that I'm leaving it late but I need to sort out my pain levels and hopefully to not have to rely on meds so much.

Im in a relationship but its far to early to get myself knocked up lol I do need to also sort out myself mentally so I am stronger.
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
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Post  Aussie Tue Jul 26, 2011 2:44 am

Hi Melanie,

There is another lady on here who got to 80% with PT and then after her viginal birth is at 95% or something like that, don't quote me on the figures.

The stretching of muscles seems to make sense. I would get as pain free as possible prior to trying. Ie: diet, meditation, yoga, physical therapy etc etc and if you are on drugs try to ween off prior to trying for a baby. This is what I will be doing. We are planning in about 2 years.

there was an atricle on www.vulvodynia.com.au about women with v and childbirth practices but it seems they are re doing the website and have put the wrong titles on the articles. You may find the article I am talking about on there though, there are a few.

Hope this helps. Claire

Aussie

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