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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Has anyone given birth with vulvodynia?

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Has anyone given birth with vulvodynia?

Post  Melanie on Thu Jul 21, 2011 1:06 pm

I have had vulvodynia since I was 16, I turn 30 next month. I still suffer with pain during sex. I seen doctor after doctor for years and my only help has been Xylocaine cream which is use as a local anaesthetic before intercourse. I had pain everyday for about 6 years, now it is only when my diet is bad ( Doctors say that food can change the PH of the vagina) It was a naturopath who helped me to change my diet to treat my Candida(vaginal thrush) and IBS which actually over time diminished my vulva pain, which comes on now when I have eaten too much gluten or dairy or chocolate. I assume that these foods change the PH of the vagina and they are actually mucous forming, so in excess irritate the vagina. My worry now that I am getting older is that I still can't have sex without a local anaesthetic(so problem not solved) cream, HOW am i supposed to give birth? My doctor has said that a caesarian section is an option, however doesn't seem like much fun either. Has anyone given birth whilst still suffering?

Melanie

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Re: Has anyone given birth with vulvodynia?

Post  Sarah001 on Thu Jul 21, 2011 1:24 pm

Hi Melanie, I can't speak from personal experience but I belong to another health website where a couple of the women have vulvodynia and they said it improved after giving birth as the pelvic floor and vaginal opening got stretched out during the whole process, if you have pelvic floor spasm it may actually help.
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Re: Has anyone given birth with vulvodynia?

Post  Sebby (Admin) on Thu Jul 21, 2011 7:24 pm


Good to hear that giving birth has actually helped some women Smile

Im scared of giving birth anyway to be honest so I would prob opt for a c section. Wont be thinking of having a baby just yet, especially with the meds im on but maybe if I got pregnant I would change my mind?

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Re: Has anyone given birth with vulvodynia?

Post  Melanie on Fri Jul 22, 2011 9:50 am

Sebby (Admin) wrote:
Good to hear that giving birth has actually helped some women Smile

Im scared of giving birth anyway to be honest so I would prob opt for a c section. Wont be thinking of having a baby just yet, especially with the meds im on but maybe if I got pregnant I would change my mind?



Yeah I am thinking at this stage I will opt for c section, however even this doesn't seem like a better option. I'm not ready yet for a baby either however my partner probably thinks 2 years however I think more like 5.

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Has anyone given birth with vulvodynia?

Post  Joolibee on Fri Jul 22, 2011 11:50 am

Hi there. I can't speak from personal experience, but someone I met told me that her vulvodynia disappeared for 3 months after she gave birth. Giving birth requires the pelvic muscles to relax. I have given birth twice, before getting vulvodynia and although I don't know, I think that the intensity of labour would probably drown out any vulval pain, regardless of the type of delivery. I do not wish to put you off having children, I assume everyone knows that labour is painful. But when you are ready to start a family, I would try not to let the vulvodynia hold you back. IF necessary, there is always the option of a C section.

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I have given birth . . .

Post  Heidi on Sat Jul 23, 2011 2:57 am

I've had vulvar pain since I was about 13. I am now 42. I reduced my symptoms by about 80% during my 20's with diet, calcium citrate, and Estrace cream (low oxalate diet, also watched acidity of foods and occasionally did the anti-fungal diet when I seemed to be having yeast issues). Although my most severe symptoms are under control (I have gone weeks at a time without thinking about my vagina or feeling pain), I have never been able to have intercourse without pain. (During a particularly good period, I was able to have very gentle intercourse for a short duration but it wasn't nearly as much fun as "other" sexual activities.)
At 38, I decided I was ready to have a baby. I opted for inter-uterine insemination from a fertility doctor. Some parts of fertility treatment were mildly painful but overall it was a positive experience and a lot less painful than intercourse would have been. I became pregnant with twins a year later. My vulvar pain completely disappeared during the last 5 months of the pregnancy. It was fabulous. Because my presenting twin was breach, I had to have a c-section, although my doctor and I decided that a c-section was in my best interest anyway. She said that giving birth vaginally can cause really bad flare-ups in women with chronic vulvar pain and she thought that was the last thing I needed while taking care of twins. The c-section wasn't bad. I mean, it definitely wasn't great, but it was relatively painless compared to natural childbirth and it healed within 6 weeks (a lot sooner than some women who give birth vaginally). My vulvar pain came back a few weeks after their birth. Breastfeeding hormones can cause flare-ups in a lot of women and I guess I was one of the lucky ones :-> I also didn't follow my diet well and stopped my calcium citrate and Estrace cream because I was so exhausted taking care of twin infants, so that was a big part of my problem too. Now I'm doing better again, but still trying to learn how to follow my diet while cooking for a family.
Good luck. Motherhood is an amazing journey. I hope you feel confident enough to pursue it when you ready.
Heidi
http://lowoxalatefamily.wordpress.com

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Re: Has anyone given birth with vulvodynia?

Post  Heidi on Sat Jul 23, 2011 5:22 am

Hey,Melanie.
One more thing. You might check out the literature on "leaky gut" syndrome. (The Autism Research Institute's website has a good overview). Many people with "leaky guts" are sensitive to gluten, dairy, and oxalate (chocolate is about as high oxalate as it gets). Many of the people on their "Trying Low Oxalates" board are on a low oxalate, gluten-free, dairy-free diet and are seeing a lot of great results for IBS, vulvar and penis pain, urinary symptoms, and various skin, muscles and joint symptoms. (Most came to the board because of gluten-related intestinal symptoms, but added the low oxalate diet to combat burning sensations and pain in their genitals or bladder.) It sounds like you found this diet on your own, but maybe you could get a few more ideas or clues that would help you become pain-free? I've found a few good resources there and am trying to piece together the next treatment that will get me to pain-free.
Good luck.
Heidi

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Re: Has anyone given birth with vulvodynia?

Post  Melanie on Sun Jul 24, 2011 7:40 am

Heidi wrote:I've had vulvar pain since I was about 13. I am now 42. I reduced my symptoms by about 80% during my 20's with diet, calcium citrate, and Estrace cream (low oxalate diet, also watched acidity of foods and occasionally did the anti-fungal diet when I seemed to be having yeast issues). Although my most severe symptoms are under control (I have gone weeks at a time without thinking about my vagina or feeling pain), I have never been able to have intercourse without pain. (During a particularly good period, I was able to have very gentle intercourse for a short duration but it wasn't nearly as much fun as "other" sexual activities.)
At 38, I decided I was ready to have a baby. I opted for inter-uterine insemination from a fertility doctor. Some parts of fertility treatment were mildly painful but overall it was a positive experience and a lot less painful than intercourse would have been. I became pregnant with twins a year later. My vulvar pain completely disappeared during the last 5 months of the pregnancy. It was fabulous. Because my presenting twin was breach, I had to have a c-section, although my doctor and I decided that a c-section was in my best interest anyway. She said that giving birth vaginally can cause really bad flare-ups in women with chronic vulvar pain and she thought that was the last thing I needed while taking care of twins. The c-section wasn't bad. I mean, it definitely wasn't great, but it was relatively painless compared to natural childbirth and it healed within 6 weeks (a lot sooner than some women who give birth vaginally). My vulvar pain came back a few weeks after their birth. Breastfeeding hormones can cause flare-ups in a lot of women and I guess I was one of the lucky ones :-> I also didn't follow my diet well and stopped my calcium citrate and Estrace cream because I was so exhausted taking care of twin infants, so that was a big part of my problem too. Now I'm doing better again, but still trying to learn how to follow my diet while cooking for a family.
Good luck. Motherhood is an amazing journey. I hope you feel confident enough to pursue it when you ready.
Heidi
http://lowoxalatefamily.wordpress.com



Kind Regards for this info. Funny you had twins as my partner is under the impression and made the decision that I am apparently having twins. I haven't tried calcium citrate but will research more now. Do you use Xylocaine cream for intercourse as it sounds like you can't have sex at all? Thankyou so much feel quite happy now.

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Re: Has anyone given birth with vulvodynia?

Post  Sebby (Admin) on Sun Jul 24, 2011 5:42 pm


Congrats Heidi on having your twins. Good to know that fertility treatment worked for you. Gives us hope.

I do feel that I would prob opt for a C Section but to be honest I would do more research before I ever made a decision. Im deff not ready for a baby yet. Im 30, I do worry that I'm leaving it late but I need to sort out my pain levels and hopefully to not have to rely on meds so much.

Im in a relationship but its far to early to get myself knocked up lol I do need to also sort out myself mentally so I am stronger.

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Re: Has anyone given birth with vulvodynia?

Post  Aussie on Tue Jul 26, 2011 2:44 am

Hi Melanie,

There is another lady on here who got to 80% with PT and then after her viginal birth is at 95% or something like that, don't quote me on the figures.

The stretching of muscles seems to make sense. I would get as pain free as possible prior to trying. Ie: diet, meditation, yoga, physical therapy etc etc and if you are on drugs try to ween off prior to trying for a baby. This is what I will be doing. We are planning in about 2 years.

there was an atricle on www.vulvodynia.com.au about women with v and childbirth practices but it seems they are re doing the website and have put the wrong titles on the articles. You may find the article I am talking about on there though, there are a few.

Hope this helps. Claire

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Re: Has anyone given birth with vulvodynia?

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