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    » Just Diagnosed with Vulvadynia
    Today at 1:57 am by angelique2016

    » Vulvadynia
    Yesterday at 7:45 am by mary jane

    » Constant pain, I want to die.
    Sat Jul 22, 2017 9:41 pm by Meggiemay

    » What is Vulvodynia?
    Sat Jul 22, 2017 9:21 pm by mary jane

    » Will I ever be able to wear jeans?
    Wed Jul 19, 2017 11:02 pm by jungleclover

    » Looking for a friend IRL; LA/OC
    Wed Jul 19, 2017 10:58 pm by jungleclover

    » Anyone else get this from yeast infections? (new member)
    Wed Jul 19, 2017 10:37 pm by jungleclover

    » Owner of vulvodyniSuppoet.com
    Wed Jul 19, 2017 10:28 pm by LaurenVV

    » anyone from southern california in here?
    Tue Jul 18, 2017 2:38 am by crypticcalico

    Just Diagnosed with Vulvadynia

    Tue Aug 02, 2016 9:11 pm by CherryTree23

    Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

    Comments: 7


    Fri Jul 21, 2017 11:53 pm by Linda Williams

    I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

    Comments: 3

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 21

    Looking for a friend IRL; LA/OC

    Tue Jul 18, 2017 2:51 am by crypticcalico


    I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

    Comments: 1

    Owner of vulvodyniSuppoet.com

    Wed Jul 19, 2017 10:28 pm by LaurenVV

    Hi, I started vulvodyniasupport.com at the age of 28.
    I was a leader when there was no help, no forums etc.

    As I went on my path, I found acupuncture, herbs and time helped me recover.
    Most never do.

    I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

    I have moved on from the support world and found a career that allowed
    Me to bring my …

    Comments: 0

    anyone from southern california in here?

    Tue Jul 12, 2011 6:43 pm by Melissa777

    Hi Im just wondering if anyone here is from so cal- USA
    I am in san diego- but from LA!!!

    Comments: 6

    Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

    Tue Jul 04, 2017 9:01 am by Tired89

    Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

    Comments: 2

    Clitoris Issues

    Tue Apr 28, 2015 8:17 pm by January

    I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

    Comments: 1

    New member

    Sat Mar 18, 2017 7:37 pm by Lisa1627

    Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

    Comments: 12

    what about this? chiro

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    what about this? chiro

    Post  grassy on Thu Jul 21, 2011 8:48 pm

    I go to the chiro three times a week for a bad neck. So everytime i go he adjusts my low back, pelvis sacrum, everything. Ten years, three times a week. Can anyone be more looked after then me? how could i have a pelvic floor thing? so i asked him, and he said No, he didnt think so. Not that he is right either. But if anyone ever wants to know anything about chiropractic, ask away. I know alot and practically live there at the chiro's. But i can say one thing. It doesnt help with v pain. Or he would fix it, to shut me up! cindy


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    Re: what about this? chiro

    Post  Sarah001 on Fri Jul 22, 2011 12:25 pm

    Firstly Cindy a Chiro saying you don't have PF spasm without looking isn't going to know the answer! Nor is a chiro likely to know even if he looked as it's the territory of a womens health physio, physios deal more with muscles and soft tissue than chiros so I wouldn't just take that as your answer. Secondly I was actually in physio doing exercises given to me by this physio when my pelvic floor reached total spasm and I developed V, I asked this physio about it and she told me to get some weighted cones to strengthen my pelvic floor which was the total opposite of what I needed. Again it's the territory of a women's health physio not a bog standard physio, chiro or osteopath. I don't see why there's a problem in going and getting your pelvic floor checked out? No-one can tell you for certain if it's tight or not without testing it but I have just read another of your posts where you describe UTI type symptoms with no infection present and that can be a tight pelvic floor irritating the bladder and urethra. You have nothing to lose by going and getting checked out and as the neck and sacrum are connected in lots of ways this might turn out to be why you've been in chiro for so long. Give it a go, if it's not tight then you'll know for sure and if it is it might be the answer to getting rid of your V.

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