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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 6

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Ovestin Cream

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Ovestin Cream

Post  Vulvosaurus on Fri Jul 22, 2011 11:21 pm

Hi all,

I've been prescribed Ovestin (Oestriol) cream for my Vulvodynia symptoms. My Gynae thought it would be worth trying a topical estrogen because my problems began when I came off a combined contraceptive pill and started taking a progestogen only pill.

Has anybody else tried this stuff?

The cream comes with a giant applicatior and I'm not sure if I'm supposed to use it or just apply the cream locally to the affected areas.
What do you guys think?

Thanks

Vulvosaurus

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Re: Ovestin Cream

Post  Sebby (Admin) on Sun Jul 24, 2011 6:33 pm


Ive not used it so if I were you I would give your dr a quick call to find out how to use it

My guess is that if you have mainly pain on the outer skin and maybe just within the entrance to the vagina then there does not seem much need for a giant applicator?

Check it out with your doc tho as you want to make sure you use it correctly




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Ovestin Cream

Post  Joolibee on Sun Jul 24, 2011 8:51 pm

I haven't used Ovestin, but I use Trophicreme, prescribed in France. I think the two are similar. My understanding is that you should use the cream internally if you are menopausal, but just use on your vulva if you are pre-menopausal. If you are not sure of the instructions, you should check with either the pharmacist or the doctor.

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Re: Ovestin Cream

Post  Aussie on Mon Aug 01, 2011 5:40 am

I used a simalar cream it wasnt the brand name but it was Oestriol. My gyne just told me to put it on the outside and a little inside. This was when it all first started though and the Gyne was just filling in for the usual one, when she came back (she was completely incompetant) she said there was nothing wrong with my hormones because I was on the pill (when in actual fact the pill screws your homones up!) so I stopped using it. After much reasearch I found the pill could have contributed to my pain in the first place and now I have more of an idea about this conditation oestriol doesn't seem like a bad idea now that I am off the pill.

Hope this helps.

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