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Yesterday at 6:08 pm by fairlight10

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Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Does anyone else get this?

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Does anyone else get this?

Post  Aussie on Thu Jul 28, 2011 5:25 am

After trigger point work (especially when physio does it) I get awful burning, lasting about an hour before going back to daily pain level. Can anyone give any indicaiton as to why something classed as 'theraputic' and 'good' for this condition cause me such pain? It causes the same amout of pain as sex.

Thanks,

Claire

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Re: Does anyone else get this?

Post  Sarah001 on Thu Jul 28, 2011 12:15 pm

Any type of manual work can increase pain for up to 3 days, it's really good that it only lasts a brief time for you. Basically you're pressing and stretching irritated areas which is going to irritate them further temporarily and sometimes, especially with the stretching, will cause microtrauma to the muscle which is the way muscles both heal and can become dysfunctional in the first place so that causes pain. It's a necessary evil with trigger points unfortunately but obviously feels like it's not doing what it should if the trigger points have to be repeatedly worked on, I totally understand why you're thinking this because I'm head to toe trigger points and spasm and have to work on all of these daily to keep myself at the level I'm at and I'm sure if I did some trigger point work and experienced long lasting results it would be less of a bother than having to do it daily and seemingly get nowhere. As for V work, sometimes that flares things up for 12 hours for me and other times for several days so I have to be careful.
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Re: Does anyone else get this?

Post  Aussie on Fri Jul 29, 2011 1:00 am

Thanks Sarah,

it just seems as though it is doing me more harm than good. I go for trigger point work and I get more pain not less. Very frustrating. I don't know if I should be contiuning or not. My daily pain is at a 2 providing I don't wear jeans or sit for too long and then after physio it goes up to a 5. The burning that was there yesterday is still at the same intensity today. Sad

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Re: Does anyone else get this?

Post  Sarah001 on Fri Jul 29, 2011 1:06 pm

Maybe the physio is being a bit too enthusiastic? Sometimes they work a bit too hard on areas in my experience. Does she have any ideas about why the trigger points aren't resolving long term? Are you still clenching the pelvic floor at times? Or is there another muscle group that isn't pulling its weight so the pelvic floor has to compensate? How are your SI joints doing now, could they need stabilising more to prevent these trigger points from popping right back in?

I use arnica ointment after I've done a bit of work on the PF muscles, it seems to reduce the soreness and get me back to my usual pain level faster. You could always try skipping a session and see what happens, perhaps you could drop down the amount of sessions you have rather than stop altogether.
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Re: Does anyone else get this?

Post  Aussie on Mon Aug 01, 2011 2:43 am

Sarah,

Spoke with my pt and she asked how often we were having sex. I said well at the moment my daily pain is not too bad so 3 times a week ish. She said to just do the trigger point work before sex.

I have a theory; let me know what you think:

The daily pain and the sex pain are from two different origins, or at least the muscles tightening are making things much worse during sex. I think the daily pain is nerve related, which can make the muscles tighten. The sex pain, most if not all is related to muscles, this explains why I had pain free sex for a period of time. I was constantly working the muscles.

I believe however, that the trigger point work angers the nerves which tightens the pelvic floor.

My physio said my trigger points are the best she has ever seen them. Which seems strange because I have not done trigger point work or seen a physio for 1 month prior to this appointment, you would think if the pain was purely muscular it would be the exact opposite situation.


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Re: Does anyone else get this?

Post  Sarah001 on Mon Aug 01, 2011 12:51 pm

Well it could be but you'd think if it was nerve pain and your pelvic floor is now the best it's ever been that wouldn't be the case, surely if it was nerves tightening the muscles up it would be pretty tight recently? I may have misunderstood of course. I actually think alot of my diffuse constant pain is coming from the problems in the external muscles, how are your adductors? I find if I press into some of the many trigger points on mine it reduces the constant pain. As far as I know the muscles that could be contributing to diffuse constant pain are abdominals, adductors, hip rotators especially the piriformis and obturator internus, iliopsoas and sometimes the quadratus lumborum which are all associated with pelvic stability. The SI joint can refer directly to the vulvar and a very tight hip can also refer pain there so if you haven't already maybe it's time to get the old tennis ball out and start sticking it into muscles to see if they're sore and pressing all the way down the adductors to see if there's any knots, don't forget the adductor high on the leg at the back as that refers directly to the genitals. Also spinal mobility can cause V pain, the tennis ball should alert you to any stiff sore areas if you lay on it and work up your back both sides. I think as you did so well with the intensive course it's probably still a muscular problem and the focus maybe needs to be external as well as internal. And yes I know it will take a long time to do all these muscles, I spend about an hour and a half on all those areas each day but I break it up into bits so I'm not trying to do them all at once. Let me know what you find!
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Re: Does anyone else get this?

Post  Sarah001 on Mon Aug 01, 2011 12:55 pm

I forgot to say, I think you mentioned you have flat feet? If so start with the piriformis as it tends to get overworked and full of trigger points when the feet don't function correctly and also is perfectly capable of trapping the pudendal nerve.
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Re: Does anyone else get this?

Post  Aussie on Tue Aug 02, 2011 12:11 am

Sarah,

I think you may have missed what I was trying to get at. I meant that the trigger point work sets off the nerves which makes me flare. - Ie tightens the muscles. It appears my muscles are tighter when doing constant pt (3 times a week) as apposed to not at all (best she has ever seen them)

After many massages the trigger points in my adductors settled and I have very few now aside from just in my hips. The massages seemed to nock it out. I don't feel sore anywhere except my v, perhaps I will try the tennis ball again just to make sure.

All of this doesn't explain why I came back from Adalaide so well though. Very confused!!

How are you doing?

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Re: Does anyone else get this?

Post  Sarah001 on Tue Aug 02, 2011 12:02 pm

In that case I'd guess the trigger point work is making them tense up because it increases pain for a while so perhaps less often might well be the answer, you can always try it and see how you go. I'm currently trying to loosen up my left hip as it's so tight from muscle spasm it's dragging my pelvis along with it every time I move it! Rolling Eyes I was trying to work out my finances to go back to physio but realised I'd be better off having an attempt at this hip myself beforehand so we don't waste weeks on that while I'm payng for it.

As for your hips, I noticed in another thread you mentioned they were out and I assume you were referring to your SI joints (some people mistakenly call the pelvis their hips but I know you know the difference Wink ) so there's definitely going to be trigger points in the area somewhere. Check your hip mobility too, get your husband to hold your pelvis as you do some hip stretches in all directions and tell you if it moves as you do them, tightness around the hips can refer directly to the vulva so it's well worth doing and the tennis ball is definitely going to reveal something if you have flat feet, SI joint dysfunction and TMJ. It's also worth remembering the upper back is relevant too, any stiffness there will put extra stress on the pelvis and the lats are part of the stabilising slings for the SI joints so they may well be dysfunctional and knotty too. If you have tight upper traps work to release them too and try and keep your shoulder blades down and in on your back as the lower lats tense the thoracolumbar fascia as part of the stability for the pelvis, you don't use the lower ones it won't tense properly. I think the trigger points around your hips are a good place to start and I also think you may be like me and need your motor control tuning so you fire the deep stabilisers (including the pelvic floor) at the correct time. Posture is also a big deal and with flat feet people often either have the pelvis in anterior rotation as a whole or use the swayback posture and lock the hips into extension and "hang" from ligaments. I'd love to see what your posture is like I'm a total nerd about this and often get totally distracted following someone with bad posture down the street listing all their muscle imbalances in my head as I watch them! Rolling Eyes Laughing

One other thing is the neck muscles, there a few muscles there that can give you TMJ so it may all be part of the whole postural problem.
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Re: Does anyone else get this?

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