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» What's next?
Today at 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


IC &Endometorisis&Vulvodynia

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IC &Endometorisis&Vulvodynia

Post  bluefish3 on Thu Jul 28, 2011 3:55 pm

Very Happy Hello everyone!!
I had IC for 9 yrs and then Endometroisis last xmas 2010 and then just found out April 2011 Vulvodynia, I couldnt beleive that I have all this craps and dealing with the pains..
The medcine that I have been taking for Ic Elimron 100mg and Elvial 10mg Vulvodynia for Estrace..
Ic was under control for 9 yrs until vulvodynia came along and then IC came back I was having alot of pains with IC and then finally the dr gave me Elvial 10mg and it works! Thanks to GOD and I got my life back and Vulvodynia was under control for while and until last week I did something wrong and one morning and I woke up& sitting up wrong on my bed and didnt realize it after while and then all of sudden a strange pains it not like vulvodynia throbbing pains it something else my urethra was so hot when I pee and pains like when I first sitting wrong it was still there .. so it took me a week to get better and then yesterday I was sitting at the court office chair it starting to bothersome the same pain where I was sitting wrong.. it like when you sprained it your ankle that how I feel it .. Last nite it was alot of throbbing pain that it vulvodynia and I took Ice Pack and I felt better and I cant sleep on both side only on my back .. I hopefully that strange pains will go away..Did anyone go thru that like I did?? Thanks for reading my message and It would be helpful for me to figure it out what the problem is.... and I m glad that I found this site because I really need to talk to someone who have the same problem . I m only one in the family who have a health problem. I just lost my mom a month ago and she & I are very close like best buddies and I live with her for only 9mths and then poof she gone... SO I moving on with my life .. Im getting there and I do miss her very much and miss talking to her but I do beleive she is around with me ..she was in my dreams so many times..ok that enough of that.. you dont have to feel sorry for me and I m okay. Like a Star @ heaven Thanks for reading my message..Smile

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Re: IC &Endometorisis&Vulvodynia

Post  Sarah001 on Thu Jul 28, 2011 7:48 pm

Hi and welcome, I suspect you need your pelvic floor checked out for tightness, it's common in IC and Vulvodynia and so find a women's health physio and ask to have it checked. Sorry about your Mum, I lost mine 8 years ago and still miss her every day.
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Re: IC &Endometorisis&Vulvodynia

Post  bluefish3 on Thu Jul 28, 2011 8:47 pm

Thanks and I will check it out when I see the Dr on Aug 4 th... it could be tightness will I get better ? I have a good friend who live in UK

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Re: IC &Endometorisis&Vulvodynia

Post  Sebby (Admin) on Sat Jul 30, 2011 7:10 pm


Welcome to the forum bluefish3, you have certainly had a lot going on. I do hope you can find the answers and support you need.

Deff a good idea to get your pelvic floor looked at, have you asked to be refered to a Vulval Clinic for the Vulvodynia?


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Re: IC &Endometorisis&Vulvodynia

Post  bluefish3 on Sat Jul 30, 2011 8:12 pm

Yes I do . Im feeling better now and I have to be careful with myself for now on and I will be seeing the dr on Aug 4 th . thanks for reply .. have a good day,,,

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Re: IC &Endometorisis&Vulvodynia

Post  Aussie on Mon Aug 01, 2011 6:01 am

The IC network may be able to offer some help with this. They have a section on PN too I have seen some women posting with simalar irritations. The reason I suggest PN is because certain positions seem to cause these woman pain, ie sleeping on ones side.

However I know IC can also hurt when lying down. (I have IC)

I get weird electric shock sensations in my clitoris if I catch it wrong, I deff think that is related to nerves.

Just wanted you to know I am not alone and glad you have had sucsess with Elavail - I didn't.

Oh and as the others said. Pelvic Floor assessment = best thing you can do!

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Re: IC &Endometorisis&Vulvodynia

Post  bluefish3 on Mon Aug 01, 2011 10:18 am

yes it feel like electirc shock that it I couldnt figure it out ..yes that where is clitoris and it works with elvail so I have to be very careful at this time for now on.. I hope this time few prescription will works for you.. what are you taking it now ..

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Re: IC &Endometorisis&Vulvodynia

Post  bluefish3 on Sun Aug 07, 2011 4:59 pm

I found out that I might have either one pudendal nerves entrapment or Fibromylgia
the dr still not sure yet but giving me higher dose now .. we will see how it oges but it help a little .. sitting dont hurt anymore only when I walking around or standing it hurts more ... at first it was alot of pain when Im sitting and now it gone but not standing or walking around ..
okhave a good one ladies

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Re: IC &Endometorisis&Vulvodynia

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