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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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IC &Endometorisis&Vulvodynia

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IC &Endometorisis&Vulvodynia

Post  bluefish3 on Thu Jul 28, 2011 3:55 pm

Very Happy Hello everyone!!
I had IC for 9 yrs and then Endometroisis last xmas 2010 and then just found out April 2011 Vulvodynia, I couldnt beleive that I have all this craps and dealing with the pains..
The medcine that I have been taking for Ic Elimron 100mg and Elvial 10mg Vulvodynia for Estrace..
Ic was under control for 9 yrs until vulvodynia came along and then IC came back I was having alot of pains with IC and then finally the dr gave me Elvial 10mg and it works! Thanks to GOD and I got my life back and Vulvodynia was under control for while and until last week I did something wrong and one morning and I woke up& sitting up wrong on my bed and didnt realize it after while and then all of sudden a strange pains it not like vulvodynia throbbing pains it something else my urethra was so hot when I pee and pains like when I first sitting wrong it was still there .. so it took me a week to get better and then yesterday I was sitting at the court office chair it starting to bothersome the same pain where I was sitting wrong.. it like when you sprained it your ankle that how I feel it .. Last nite it was alot of throbbing pain that it vulvodynia and I took Ice Pack and I felt better and I cant sleep on both side only on my back .. I hopefully that strange pains will go away..Did anyone go thru that like I did?? Thanks for reading my message and It would be helpful for me to figure it out what the problem is.... and I m glad that I found this site because I really need to talk to someone who have the same problem . I m only one in the family who have a health problem. I just lost my mom a month ago and she & I are very close like best buddies and I live with her for only 9mths and then poof she gone... SO I moving on with my life .. Im getting there and I do miss her very much and miss talking to her but I do beleive she is around with me ..she was in my dreams so many times..ok that enough of that.. you dont have to feel sorry for me and I m okay. Like a Star @ heaven Thanks for reading my message..Smile

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Re: IC &Endometorisis&Vulvodynia

Post  Sarah001 on Thu Jul 28, 2011 7:48 pm

Hi and welcome, I suspect you need your pelvic floor checked out for tightness, it's common in IC and Vulvodynia and so find a women's health physio and ask to have it checked. Sorry about your Mum, I lost mine 8 years ago and still miss her every day.
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Re: IC &Endometorisis&Vulvodynia

Post  bluefish3 on Thu Jul 28, 2011 8:47 pm

Thanks and I will check it out when I see the Dr on Aug 4 th... it could be tightness will I get better ? I have a good friend who live in UK

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Re: IC &Endometorisis&Vulvodynia

Post  Sebby (Admin) on Sat Jul 30, 2011 7:10 pm


Welcome to the forum bluefish3, you have certainly had a lot going on. I do hope you can find the answers and support you need.

Deff a good idea to get your pelvic floor looked at, have you asked to be refered to a Vulval Clinic for the Vulvodynia?


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Re: IC &Endometorisis&Vulvodynia

Post  bluefish3 on Sat Jul 30, 2011 8:12 pm

Yes I do . Im feeling better now and I have to be careful with myself for now on and I will be seeing the dr on Aug 4 th . thanks for reply .. have a good day,,,

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Re: IC &Endometorisis&Vulvodynia

Post  Aussie on Mon Aug 01, 2011 6:01 am

The IC network may be able to offer some help with this. They have a section on PN too I have seen some women posting with simalar irritations. The reason I suggest PN is because certain positions seem to cause these woman pain, ie sleeping on ones side.

However I know IC can also hurt when lying down. (I have IC)

I get weird electric shock sensations in my clitoris if I catch it wrong, I deff think that is related to nerves.

Just wanted you to know I am not alone and glad you have had sucsess with Elavail - I didn't.

Oh and as the others said. Pelvic Floor assessment = best thing you can do!

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Re: IC &Endometorisis&Vulvodynia

Post  bluefish3 on Mon Aug 01, 2011 10:18 am

yes it feel like electirc shock that it I couldnt figure it out ..yes that where is clitoris and it works with elvail so I have to be very careful at this time for now on.. I hope this time few prescription will works for you.. what are you taking it now ..

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Re: IC &Endometorisis&Vulvodynia

Post  bluefish3 on Sun Aug 07, 2011 4:59 pm

I found out that I might have either one pudendal nerves entrapment or Fibromylgia
the dr still not sure yet but giving me higher dose now .. we will see how it oges but it help a little .. sitting dont hurt anymore only when I walking around or standing it hurts more ... at first it was alot of pain when Im sitting and now it gone but not standing or walking around ..
okhave a good one ladies

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Re: IC &Endometorisis&Vulvodynia

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