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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


IC &Endometorisis&Vulvodynia

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IC &Endometorisis&Vulvodynia

Post  bluefish3 on Thu Jul 28, 2011 3:55 pm

Very Happy Hello everyone!!
I had IC for 9 yrs and then Endometroisis last xmas 2010 and then just found out April 2011 Vulvodynia, I couldnt beleive that I have all this craps and dealing with the pains..
The medcine that I have been taking for Ic Elimron 100mg and Elvial 10mg Vulvodynia for Estrace..
Ic was under control for 9 yrs until vulvodynia came along and then IC came back I was having alot of pains with IC and then finally the dr gave me Elvial 10mg and it works! Thanks to GOD and I got my life back and Vulvodynia was under control for while and until last week I did something wrong and one morning and I woke up& sitting up wrong on my bed and didnt realize it after while and then all of sudden a strange pains it not like vulvodynia throbbing pains it something else my urethra was so hot when I pee and pains like when I first sitting wrong it was still there .. so it took me a week to get better and then yesterday I was sitting at the court office chair it starting to bothersome the same pain where I was sitting wrong.. it like when you sprained it your ankle that how I feel it .. Last nite it was alot of throbbing pain that it vulvodynia and I took Ice Pack and I felt better and I cant sleep on both side only on my back .. I hopefully that strange pains will go away..Did anyone go thru that like I did?? Thanks for reading my message and It would be helpful for me to figure it out what the problem is.... and I m glad that I found this site because I really need to talk to someone who have the same problem . I m only one in the family who have a health problem. I just lost my mom a month ago and she & I are very close like best buddies and I live with her for only 9mths and then poof she gone... SO I moving on with my life .. Im getting there and I do miss her very much and miss talking to her but I do beleive she is around with me ..she was in my dreams so many times..ok that enough of that.. you dont have to feel sorry for me and I m okay. Like a Star @ heaven Thanks for reading my message..Smile

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Re: IC &Endometorisis&Vulvodynia

Post  Sarah001 on Thu Jul 28, 2011 7:48 pm

Hi and welcome, I suspect you need your pelvic floor checked out for tightness, it's common in IC and Vulvodynia and so find a women's health physio and ask to have it checked. Sorry about your Mum, I lost mine 8 years ago and still miss her every day.
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Re: IC &Endometorisis&Vulvodynia

Post  bluefish3 on Thu Jul 28, 2011 8:47 pm

Thanks and I will check it out when I see the Dr on Aug 4 th... it could be tightness will I get better ? I have a good friend who live in UK

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Re: IC &Endometorisis&Vulvodynia

Post  Sebby (Admin) on Sat Jul 30, 2011 7:10 pm


Welcome to the forum bluefish3, you have certainly had a lot going on. I do hope you can find the answers and support you need.

Deff a good idea to get your pelvic floor looked at, have you asked to be refered to a Vulval Clinic for the Vulvodynia?


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Re: IC &Endometorisis&Vulvodynia

Post  bluefish3 on Sat Jul 30, 2011 8:12 pm

Yes I do . Im feeling better now and I have to be careful with myself for now on and I will be seeing the dr on Aug 4 th . thanks for reply .. have a good day,,,

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Re: IC &Endometorisis&Vulvodynia

Post  Aussie on Mon Aug 01, 2011 6:01 am

The IC network may be able to offer some help with this. They have a section on PN too I have seen some women posting with simalar irritations. The reason I suggest PN is because certain positions seem to cause these woman pain, ie sleeping on ones side.

However I know IC can also hurt when lying down. (I have IC)

I get weird electric shock sensations in my clitoris if I catch it wrong, I deff think that is related to nerves.

Just wanted you to know I am not alone and glad you have had sucsess with Elavail - I didn't.

Oh and as the others said. Pelvic Floor assessment = best thing you can do!

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Re: IC &Endometorisis&Vulvodynia

Post  bluefish3 on Mon Aug 01, 2011 10:18 am

yes it feel like electirc shock that it I couldnt figure it out ..yes that where is clitoris and it works with elvail so I have to be very careful at this time for now on.. I hope this time few prescription will works for you.. what are you taking it now ..

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Re: IC &Endometorisis&Vulvodynia

Post  bluefish3 on Sun Aug 07, 2011 4:59 pm

I found out that I might have either one pudendal nerves entrapment or Fibromylgia
the dr still not sure yet but giving me higher dose now .. we will see how it oges but it help a little .. sitting dont hurt anymore only when I walking around or standing it hurts more ... at first it was alot of pain when Im sitting and now it gone but not standing or walking around ..
okhave a good one ladies

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Re: IC &Endometorisis&Vulvodynia

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