Log in

I forgot my password

Latest topics
I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


IC &Endometorisis&Vulvodynia

Go down

IC &Endometorisis&Vulvodynia

Post  bluefish3 on Thu Jul 28, 2011 3:55 pm

Very Happy Hello everyone!!
I had IC for 9 yrs and then Endometroisis last xmas 2010 and then just found out April 2011 Vulvodynia, I couldnt beleive that I have all this craps and dealing with the pains..
The medcine that I have been taking for Ic Elimron 100mg and Elvial 10mg Vulvodynia for Estrace..
Ic was under control for 9 yrs until vulvodynia came along and then IC came back I was having alot of pains with IC and then finally the dr gave me Elvial 10mg and it works! Thanks to GOD and I got my life back and Vulvodynia was under control for while and until last week I did something wrong and one morning and I woke up& sitting up wrong on my bed and didnt realize it after while and then all of sudden a strange pains it not like vulvodynia throbbing pains it something else my urethra was so hot when I pee and pains like when I first sitting wrong it was still there .. so it took me a week to get better and then yesterday I was sitting at the court office chair it starting to bothersome the same pain where I was sitting wrong.. it like when you sprained it your ankle that how I feel it .. Last nite it was alot of throbbing pain that it vulvodynia and I took Ice Pack and I felt better and I cant sleep on both side only on my back .. I hopefully that strange pains will go away..Did anyone go thru that like I did?? Thanks for reading my message and It would be helpful for me to figure it out what the problem is.... and I m glad that I found this site because I really need to talk to someone who have the same problem . I m only one in the family who have a health problem. I just lost my mom a month ago and she & I are very close like best buddies and I live with her for only 9mths and then poof she gone... SO I moving on with my life .. Im getting there and I do miss her very much and miss talking to her but I do beleive she is around with me ..she was in my dreams so many times..ok that enough of that.. you dont have to feel sorry for me and I m okay. Like a Star @ heaven Thanks for reading my message..Smile

bluefish3

Posts : 5
Join date : 2011-07-28
Location : PA

View user profile

Back to top Go down

Re: IC &Endometorisis&Vulvodynia

Post  Sarah001 on Thu Jul 28, 2011 7:48 pm

Hi and welcome, I suspect you need your pelvic floor checked out for tightness, it's common in IC and Vulvodynia and so find a women's health physio and ask to have it checked. Sorry about your Mum, I lost mine 8 years ago and still miss her every day.
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 45
Location : UK

View user profile

Back to top Go down

Re: IC &Endometorisis&Vulvodynia

Post  bluefish3 on Thu Jul 28, 2011 8:47 pm

Thanks and I will check it out when I see the Dr on Aug 4 th... it could be tightness will I get better ? I have a good friend who live in UK

bluefish3

Posts : 5
Join date : 2011-07-28
Location : PA

View user profile

Back to top Go down

Re: IC &Endometorisis&Vulvodynia

Post  Sebby (Admin) on Sat Jul 30, 2011 7:10 pm


Welcome to the forum bluefish3, you have certainly had a lot going on. I do hope you can find the answers and support you need.

Deff a good idea to get your pelvic floor looked at, have you asked to be refered to a Vulval Clinic for the Vulvodynia?


_________________
Sebby
XxX

admin@vulvodyniasupportforum.com
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: IC &Endometorisis&Vulvodynia

Post  bluefish3 on Sat Jul 30, 2011 8:12 pm

Yes I do . Im feeling better now and I have to be careful with myself for now on and I will be seeing the dr on Aug 4 th . thanks for reply .. have a good day,,,

bluefish3

Posts : 5
Join date : 2011-07-28
Location : PA

View user profile

Back to top Go down

Re: IC &Endometorisis&Vulvodynia

Post  Aussie on Mon Aug 01, 2011 6:01 am

The IC network may be able to offer some help with this. They have a section on PN too I have seen some women posting with simalar irritations. The reason I suggest PN is because certain positions seem to cause these woman pain, ie sleeping on ones side.

However I know IC can also hurt when lying down. (I have IC)

I get weird electric shock sensations in my clitoris if I catch it wrong, I deff think that is related to nerves.

Just wanted you to know I am not alone and glad you have had sucsess with Elavail - I didn't.

Oh and as the others said. Pelvic Floor assessment = best thing you can do!

Aussie

Posts : 230
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

View user profile

Back to top Go down

Re: IC &Endometorisis&Vulvodynia

Post  bluefish3 on Mon Aug 01, 2011 10:18 am

yes it feel like electirc shock that it I couldnt figure it out ..yes that where is clitoris and it works with elvail so I have to be very careful at this time for now on.. I hope this time few prescription will works for you.. what are you taking it now ..

bluefish3

Posts : 5
Join date : 2011-07-28
Location : PA

View user profile

Back to top Go down

Re: IC &Endometorisis&Vulvodynia

Post  bluefish3 on Sun Aug 07, 2011 4:59 pm

I found out that I might have either one pudendal nerves entrapment or Fibromylgia
the dr still not sure yet but giving me higher dose now .. we will see how it oges but it help a little .. sitting dont hurt anymore only when I walking around or standing it hurts more ... at first it was alot of pain when Im sitting and now it gone but not standing or walking around ..
okhave a good one ladies

bluefish3

Posts : 5
Join date : 2011-07-28
Location : PA

View user profile

Back to top Go down

Re: IC &Endometorisis&Vulvodynia

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum