IC &Endometorisis&Vulvodynia

Hello everyone!!
I had IC for 9 yrs and then Endometroisis last xmas 2010 and then just found out April 2011 Vulvodynia, I couldnt beleive that I have all this craps and dealing with the pains..
The medcine that I have been taking for Ic Elimron 100mg and Elvial 10mg Vulvodynia for Estrace..
Ic was under control for 9 yrs until vulvodynia came along and then IC came back I was having alot of pains with IC and then finally the dr gave me Elvial 10mg and it works! Thanks to GOD and I got my life back and Vulvodynia was under control for while and until last week I did something wrong and one morning and I woke up& sitting up wrong on my bed and didnt realize it after while and then all of sudden a strange pains it not like vulvodynia throbbing pains it something else my urethra was so hot when I pee and pains like when I first sitting wrong it was still there .. so it took me a week to get better and then yesterday I was sitting at the court office chair it starting to bothersome the same pain where I was sitting wrong.. it like when you sprained it your ankle that how I feel it .. Last nite it was alot of throbbing pain that it vulvodynia and I took Ice Pack and I felt better and I cant sleep on both side only on my back .. I hopefully that strange pains will go away..Did anyone go thru that like I did?? Thanks for reading my message and It would be helpful for me to figure it out what the problem is.... and I m glad that I found this site because I really need to talk to someone who have the same problem . I m only one in the family who have a health problem. I just lost my mom a month ago and she & I are very close like best buddies and I live with her for only 9mths and then poof she gone... SO I moving on with my life .. Im getting there and I do miss her very much and miss talking to her but I do beleive she is around with me ..she was in my dreams so many times..ok that enough of that.. you dont have to feel sorry for me and I m okay. Thanks for reading my message..

Hi and welcome, I suspect you need your pelvic floor checked out for tightness, it's common in IC and Vulvodynia and so find a women's health physio and ask to have it checked. Sorry about your Mum, I lost mine 8 years ago and still miss her every day.

Thanks and I will check it out when I see the Dr on Aug 4 th... it could be tightness will I get better ? I have a good friend who live in UK

Welcome to the forum bluefish3, you have certainly had a lot going on. I do hope you can find the answers and support you need.

Deff a good idea to get your pelvic floor looked at, have you asked to be refered to a Vulval Clinic for the Vulvodynia?

Yes I do . Im feeling better now and I have to be careful with myself for now on and I will be seeing the dr on Aug 4 th . thanks for reply .. have a good day,,,

The IC network may be able to offer some help with this. They have a section on PN too I have seen some women posting with simalar irritations. The reason I suggest PN is because certain positions seem to cause these woman pain, ie sleeping on ones side.

However I know IC can also hurt when lying down. (I have IC)

I get weird electric shock sensations in my clitoris if I catch it wrong, I deff think that is related to nerves.

Just wanted you to know I am not alone and glad you have had sucsess with Elavail - I didn't.

Oh and as the others said. Pelvic Floor assessment = best thing you can do!

yes it feel like electirc shock that it I couldnt figure it out ..yes that where is clitoris and it works with elvail so I have to be very careful at this time for now on.. I hope this time few prescription will works for you.. what are you taking it now ..

I found out that I might have either one pudendal nerves entrapment or Fibromylgia
the dr still not sure yet but giving me higher dose now .. we will see how it oges but it help a little .. sitting dont hurt anymore only when I walking around or standing it hurts more ... at first it was alot of pain when Im sitting and now it gone but not standing or walking around ..
okhave a good one ladies