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» Looking for a friend..... and new problems
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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


suffering for three years.

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suffering for three years.

Post  lisadoc on Wed Aug 03, 2011 8:55 am

hi i am a new member and so glad i found this website as it has given me hope, this is my story.
.
About three years ago i had thrush or so i thought, after using every threatment possible and going to the gum clinic and having all the tests done, everything was clear but i still had this burning stinging pain. I think my gp didn't know what to do with me so they referred me to a dermatoligist. they diagnosed possible ezcema as i have psoriasis elsewhere on body but no matter how many times i told them i felt the pain internally ( where i don't think u can get ezcema!!) they just prescribed one steriod cream after another, eventually i just stopped using them as they weren't helping anyway. anyway at this time i was so distressed as i had just go engaged and this was hardly a great start. I abstained from sex for a while but then felt so guilty about my partner i just carried on having sex even though most of the time it was so so painful. and to be honest i was pretty sore all the time even when there was no sex. one year later and we got married, the pain is still there and eventually i can't stand the pain anylonger. after sex sometimes i could hardly stand up and the pain would just lasts for up to three days. evenutually got seen by gyne only to be told there was nothing to see and would test me for thush, again i tried to tell them it was not thrush, ( swab clear!) but to no avail,. i came out of that app in tears and so frustrated, why would no one listen and why did no one seem to know anything about this. next thing i am pregnant thankfully, a great excuse for no sex, but during the pregancy the pain was so bad at times, i wondered how i would ever have this baby if i couldn't let anyone touch me, as it turned out i had to have section as my cervix wouldnt open, i often wonder if this was a physological thing to do with the pain?? now my baby is 4mths and i went private to see gyne( money talks in the uk!!!) i have been prescribed gabapentin, as yet i don't see great results but am currently upping the dose so here's hoping. if this doesn't work i don't know what else to do. i am still in pain most of the time, intercourse is still at times excruiciating and afterwards the same. this has taken over my life and worry so much like the rest of you about my relationship, my husband is great but he shouldn't have to live this this either. sometimes i just sit and cry and then i worry about my mental health, sometimes it's hard to stay strong, sorry if i have just rambled on, so good to write this all down as i don't really have anyone to talk to, i look forward to hearing from some of u
lisa

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Re: suffering for three years.

Post  Sarah001 on Wed Aug 03, 2011 7:40 pm

Hi and welcome. I don't know if it's possible for the pelvic floor to prevent the cervix dilating but if it is I'd definitely say go and get your pelvic floor tested for tightness. You need a womens health physio and a biofeedback machine for this so check they have the machine before you go as it's the only sure way to know what's going on. Please don't have painful sex either, your husband obviously loves you as he married you so it's not necessary to put yourself through hell just for penetrative sex, there are other ways to satisfy him. It also keeps the muscles tight if ou keep doing it when it hurts so take a break while you sort out what your cause is. Have you got any other health problems or musculoskeletal pain?
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Re: suffering for three years.

Post  lisadoc on Wed Aug 03, 2011 8:50 pm

hi no, no other complaints at all, perfectly healthly in every way thankfully, this just all started out of the blue

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Re: suffering for three years.

Post  Joolibee on Wed Aug 03, 2011 10:28 pm

Hi Lisa. Welcome to the forum. Many of us have stories similar to yours and we understand how frustrating and distressing it can be. I don't know how much research you have done, but there are several books worth looking at, e.g. When Sex Hurts, by Andrew Goldstein et al; Healing Pelvic Pain, by Amy Stein; The V Book (can't remember the author); Ending Female Pain, by Isa Hererra and The Vulvodynia Survival Guide, by Howard Glazer. They all give various suggestions re treatment and self help, particularly with regard to the pelvic floor muscles, which tend to tighten when we are in pain. I would not recommend having intercourse when it is so painful; it could make the pain worse and is likely to lead to psychological problems. Have you told your husband how much intercourse hurts you? I'm sure he would not want to be causing you pain. If you don't feel comfortable about sex without intercourse, it might be worth you seeing a sex therapist. Some of us have found that relaxation exercises such as yoga or meditation can help to manage the pain and negative emotions. With regard to medication, it can take quite a while to find out what works best. It isn't easy, but there is hope. Good luck.

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Re: suffering for three years.

Post  lisadoc on Thu Aug 04, 2011 8:36 am

hi
thanks for your reply. have ordered the, when sex hurts book to see if it helps in any way and thinking of going to a physio to see about my pelvic floor. so glad to have found this website. i had no idea so many people suffered from this as it's never talked about. my husband is great and he always says to stop if it hurts but it's usually me who says keep going as feel guilty if dont, but had a talk with him last night about all the advice i have found on here so we will lay off intercourse for a while, and no i don't mind other ways of keeping him happy, he maybe prefers that anyway lol. just hope i find some relief as really want to try for another baby next year, will be a bit hard if we can't have intercourse but i suppose time enough worrying about that then. thanks again
lisa

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Re: suffering for three years.

Post  Joolibee on Thu Aug 04, 2011 9:30 pm

So glad you spoke with your husband Lisa. I'm sure he appreciates your honesty. I made the mistake of continuing to have intercourse and didn't tell my partner properly, because I didn't want him to blame himself for my pain and I thought I could deal with it. It was a big mistake. In the end it became so painful that intercourse was impossible for quite a long time. This led to us both avoiding any contact that could be interpreted as a prelude to sex. Fortunately, we were able to talk about it and our relationship is as strong as ever. Just recently I have been able to have pain free intercourse a couple of times, but he is terrified of hurting me, so I have promised him that I will speak up immediately if I feel any pain at all. I hope you are able to find a way of managing this horrible condition and hopefully you will be able to have your second baby as planned. Smile Smile

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Re: suffering for three years.

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