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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

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you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


suffering for three years.

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suffering for three years.

Post  lisadoc on Wed Aug 03, 2011 8:55 am

hi i am a new member and so glad i found this website as it has given me hope, this is my story.
.
About three years ago i had thrush or so i thought, after using every threatment possible and going to the gum clinic and having all the tests done, everything was clear but i still had this burning stinging pain. I think my gp didn't know what to do with me so they referred me to a dermatoligist. they diagnosed possible ezcema as i have psoriasis elsewhere on body but no matter how many times i told them i felt the pain internally ( where i don't think u can get ezcema!!) they just prescribed one steriod cream after another, eventually i just stopped using them as they weren't helping anyway. anyway at this time i was so distressed as i had just go engaged and this was hardly a great start. I abstained from sex for a while but then felt so guilty about my partner i just carried on having sex even though most of the time it was so so painful. and to be honest i was pretty sore all the time even when there was no sex. one year later and we got married, the pain is still there and eventually i can't stand the pain anylonger. after sex sometimes i could hardly stand up and the pain would just lasts for up to three days. evenutually got seen by gyne only to be told there was nothing to see and would test me for thush, again i tried to tell them it was not thrush, ( swab clear!) but to no avail,. i came out of that app in tears and so frustrated, why would no one listen and why did no one seem to know anything about this. next thing i am pregnant thankfully, a great excuse for no sex, but during the pregancy the pain was so bad at times, i wondered how i would ever have this baby if i couldn't let anyone touch me, as it turned out i had to have section as my cervix wouldnt open, i often wonder if this was a physological thing to do with the pain?? now my baby is 4mths and i went private to see gyne( money talks in the uk!!!) i have been prescribed gabapentin, as yet i don't see great results but am currently upping the dose so here's hoping. if this doesn't work i don't know what else to do. i am still in pain most of the time, intercourse is still at times excruiciating and afterwards the same. this has taken over my life and worry so much like the rest of you about my relationship, my husband is great but he shouldn't have to live this this either. sometimes i just sit and cry and then i worry about my mental health, sometimes it's hard to stay strong, sorry if i have just rambled on, so good to write this all down as i don't really have anyone to talk to, i look forward to hearing from some of u
lisa

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Re: suffering for three years.

Post  Sarah001 on Wed Aug 03, 2011 7:40 pm

Hi and welcome. I don't know if it's possible for the pelvic floor to prevent the cervix dilating but if it is I'd definitely say go and get your pelvic floor tested for tightness. You need a womens health physio and a biofeedback machine for this so check they have the machine before you go as it's the only sure way to know what's going on. Please don't have painful sex either, your husband obviously loves you as he married you so it's not necessary to put yourself through hell just for penetrative sex, there are other ways to satisfy him. It also keeps the muscles tight if ou keep doing it when it hurts so take a break while you sort out what your cause is. Have you got any other health problems or musculoskeletal pain?
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Re: suffering for three years.

Post  lisadoc on Wed Aug 03, 2011 8:50 pm

hi no, no other complaints at all, perfectly healthly in every way thankfully, this just all started out of the blue

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Re: suffering for three years.

Post  Joolibee on Wed Aug 03, 2011 10:28 pm

Hi Lisa. Welcome to the forum. Many of us have stories similar to yours and we understand how frustrating and distressing it can be. I don't know how much research you have done, but there are several books worth looking at, e.g. When Sex Hurts, by Andrew Goldstein et al; Healing Pelvic Pain, by Amy Stein; The V Book (can't remember the author); Ending Female Pain, by Isa Hererra and The Vulvodynia Survival Guide, by Howard Glazer. They all give various suggestions re treatment and self help, particularly with regard to the pelvic floor muscles, which tend to tighten when we are in pain. I would not recommend having intercourse when it is so painful; it could make the pain worse and is likely to lead to psychological problems. Have you told your husband how much intercourse hurts you? I'm sure he would not want to be causing you pain. If you don't feel comfortable about sex without intercourse, it might be worth you seeing a sex therapist. Some of us have found that relaxation exercises such as yoga or meditation can help to manage the pain and negative emotions. With regard to medication, it can take quite a while to find out what works best. It isn't easy, but there is hope. Good luck.

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Re: suffering for three years.

Post  lisadoc on Thu Aug 04, 2011 8:36 am

hi
thanks for your reply. have ordered the, when sex hurts book to see if it helps in any way and thinking of going to a physio to see about my pelvic floor. so glad to have found this website. i had no idea so many people suffered from this as it's never talked about. my husband is great and he always says to stop if it hurts but it's usually me who says keep going as feel guilty if dont, but had a talk with him last night about all the advice i have found on here so we will lay off intercourse for a while, and no i don't mind other ways of keeping him happy, he maybe prefers that anyway lol. just hope i find some relief as really want to try for another baby next year, will be a bit hard if we can't have intercourse but i suppose time enough worrying about that then. thanks again
lisa

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Re: suffering for three years.

Post  Joolibee on Thu Aug 04, 2011 9:30 pm

So glad you spoke with your husband Lisa. I'm sure he appreciates your honesty. I made the mistake of continuing to have intercourse and didn't tell my partner properly, because I didn't want him to blame himself for my pain and I thought I could deal with it. It was a big mistake. In the end it became so painful that intercourse was impossible for quite a long time. This led to us both avoiding any contact that could be interpreted as a prelude to sex. Fortunately, we were able to talk about it and our relationship is as strong as ever. Just recently I have been able to have pain free intercourse a couple of times, but he is terrified of hurting me, so I have promised him that I will speak up immediately if I feel any pain at all. I hope you are able to find a way of managing this horrible condition and hopefully you will be able to have your second baby as planned. Smile Smile

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Re: suffering for three years.

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