Wed Dec 11, 2013 12:58 am by Intrestn1
Mon Feb 20, 2012 9:17 am by missuswells
You see, I don't actually experience pain in my vulva. I experience it inside my vagina. All the descriptions I've read of vulvodynia say …
Tue Dec 03, 2013 3:43 pm by Molly_
It started when i kept getting UTIs and cystitis frequently which I had become used to until I met my current partner and started experiencing really painful intercourse too.
I'd never had problems before and after visiting the doctors several times they told me nothing was wrong psychically. I decided to see a gynaecologist …
Thu Dec 05, 2013 2:29 am by young.sufferer
Tue Oct 02, 2012 7:06 pm by BerylH
My mother who is 70 was diagnosed with Vulvadynia last October 2011 after a bout of pneumona, it appears some of the medication she was given for this can cause Vulvadynia and I …
Wed Dec 04, 2013 5:33 pm by JT
I've been diagnosed with a mild form of vaginal vestibulitis. I've tried various things which have helped a bit. I'm just thrilled to find a support group! Thanks for creating this! Â
Sun Aug 01, 2010 5:36 pm by Sebby (Admin)
Tue Dec 03, 2013 11:22 pm by Delilah1
My burning pain comes and goes now...Thanks for any info!
Mon Feb 04, 2013 6:12 am by carby148
Sitting here, knowing I have just registered to a vulvodynia support forum, is almost bringing me to tears. Maybe over the frustration of what I've been going through, but also maybe because I'll finally be able to talk about this with people who understand.
I feel like my husband doesn't really grasp how this has been affecting me, I have no close women friends, my mother has long …
He seems to be saying that it is not yet possible to register Neogyn in Europe, but I need time to translate the rest of the e-mail.
It would only be polite for me to reply in French, as I don't know how well he speaks English, so I will need to allow some time to construct my reply, as my French is far from fluent.
Anyway, I am heartened to have received such a prompt reply and from the CEO. It does at least indicate that they care about their customers.
I will keep you posted.
- Posts: 36
Join date: 2011-03-09
Location: France / UK
The money we have all payed out is so annoying,and all of us are still not getting the answers and help we need. I feel the ladies on here who have experince over the years with V like myself pretty much heal themselves with whatever we can.
You would die laughing if I told you some of the whacky things I have done to get rid of this.
So at the moment still using the cream, biofeedback, estradiol with emu oil, Gabapentin.
Take care all xx
- Posts: 99
Join date: 2010-07-21
I've been using the cream for 3 weeks now and I haven't noticed any difference yet. As for the actual cream, I wouldn't exactly say it's easily absorbed so it takes a while to rub it in, are you finding this? Not really a problem though, as long as i'm actually getting enough on there. So I haven't noticed any improvement yet, but I will try it for the full 8 weeks. I know it takes a while for the creation of new dermal cells, so i'm not writing it off. I'm not using any other treatments at the moment so if it works i'll be able to say it was the cream and not something else.
Hope it's going ok for you!
Yeah i've also checked the ingredients. They are all frequently used in cosmetics, apart from cutaneous lysate, which is a fairly new creation developed for wound healing. It's the ingredient that causes the creation of new dermal cells. As for Ceteareth-12, it is used in cosmetics too. With regard to the cancer link, so many things are that i'm not particularly concerned! I mean estrogen cream is too, and so many of us ladies on here use that! I'll keep you posted if there is or isn't an improvement after 8 weeks though.
- Posts: 225
Join date: 2010-03-17
Yeah I have used the lidocaine 5% nightly as suggested in the research study that investigated it. Unfortunately, it didn't help me. It did numb things obviously, but then once it wore off it would be the same level of pain. The constant moist feeling at night made things a bit itchy during the daytime too! The research suggests using it every night for 7 weeks on a cotton ball, and also applying it liberally in the mornings I think. As I said I didn't notice a difference, but it may help you! Do you have generalised or localised V though? I have localised. I've been using the Neogyn for 4 weeks now and still no change. I haven't noticed any burning, but no improvement either. I'll keep going for the full 8 weeks though just in case it hasn't had time to take effect yet.
I also checked their Scientific Advisory Board on their web site neogyn.us: it is also very impressing.
finally have a look at the VNR on youtube where Dr. Goldstein speacks about vulvodynia and neogyn.
We have something there ladies! It seems also working on Lichen Scelorosus see: slideshare.net/Neogyn/goldstein-issvd-2011
- Posts: 18
Join date: 2011-07-10
I've been using the cream for 8 weeks now. At the moment i'm having a slight flare up (due being just before my period and having recently started using dilators again), so I can't say whether there has been an improvement. I'll use it for another 4 weeks and see. It definitely hasn't been a cure. But looking at the study stats, no patients were cured by it, in fact although there was a statistically 'significant' improvement, it was minimal. I didn't have any irritation though, and if anything by using the cream 3 times a day i've become a lot more comfortable using my fingers in that area, so that can't be a bad thing. But the jury is still out as to whether there has been an improvement, but it definitely hasn't made anything worse.
Melissa, can I ask what other message board women are discussing neogyn on? I'd be interested to read others' experiences of it.
I have also used a number of different types of suppositories that were supposed to sooth the area and those failed. Tried Amatryptyline (sp) tablets and Gabbapentin tablets but they failed too. Was given Lidocaine ointment but that was another failure. Bought something called terrasil but it failed like the others. Then I started experimenting with every oil that I could think of but nothing seemed to help. Ive used Clobetasol for a year now and although I tell the Dr.s that its not working, they all insist that its the best thing for it. *rolling eyes*. All day and all night long I use A and D ointment and thats the only thing that keeps me from going absolutely crazy. Im still on the look out for that fix-it-all magic treatment. Good luck to you all and I hope you find relief soon.
- Posts: 168
Join date: 2012-01-25
I wish to buy neogyn cream and i saw on the website that they don't have shipping for Europe. Please do anyone knowa from where i can buy it?
i saw that some of you tried the neogyn cream and you are happy with it and i hope it will work for me to.... i have vulvodynia for 7 years a had a 4 years relationship which ended because of this probleme but i think you all know that.
i don't have the power to tell you how depressive i am because of vulvodynia i actually think sometimes that i will never get better:(. Still i want to try neogyn....maybe......i don't know.... i just hope
Please help me with an answer.
Big hugs for you all><
- Posts: 1
Join date: 2013-06-02