Log in

I forgot my password

Latest topics
» New Member - Looking for Advice an Support
Today at 1:17 am by MLily92

» which meds for what?
Yesterday at 11:30 pm by yoginimom

» MY VULVODYNIA IS COMPLETELY CURED - PLEASE READ!!!!!
Yesterday at 4:29 pm by meelie

» PAIN FREE WITH DR ROBERT MORSE
Tue Oct 21, 2014 9:34 pm by Nichlas B.

» Anyone tried botox?
Tue Oct 21, 2014 8:32 pm by yoginimom

» I cant take it anymore!! Thinking of ending my life, I dont know what to do :((((
Mon Oct 20, 2014 10:40 pm by Sparkle

» Any advice on with amitrytline?
Mon Oct 20, 2014 9:32 am by Sparkle

» essential oils
Mon Oct 20, 2014 5:41 am by bluejean

» At war with my own body
Sun Oct 19, 2014 2:06 am by zarli

which meds for what?

Tue Oct 21, 2014 3:51 am by yoginimom

I have been reading through this forum and finding a lot of threads that mention various medications, but do not list what they are for. Is there a list of meds anywhere on this forum with a description of what they are for? Or matching certain symptoms with certain meds?

My Dr. has not suggested any meds aside from Fluconzole which is the no name for Diflucan, (a yeast treatment).

Can anyone …

Comments: 4

PAIN FREE WITH DR ROBERT MORSE

Sat Dec 03, 2011 6:19 pm by ria

Hello everyone,

I am now pain free no medication. Please look up Dr Robert Morse on youtube he has helped me with my constant pain he is a Naturopathic doctor in America. I did not go and see him I had a telephone consultation, but please feel free to call the clinic advice is there for free can you beleive it Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy

If you need any advice please contact me I …

Comments: 66

I cant take it anymore!! Thinking of ending my life, I dont know what to do :((((

Thu Oct 09, 2014 10:51 pm by LeonieFlower

Hi, I'm a new lady here. Found this forum yesterday.

I am 26 and have been suffering with this hell of a disease for 8 years (diagnosed 2006) and it has only gotten worse year after year... I am on pain meds and tricyclic antidepressant (amitriptyline) which isnt helping. I get erratic when taking the meds. I have tried antibiotic creams, lions mane (supplement), zinc oxide, cold packs, …

Comments: 17

Any advice on with amitrytline?

Mon Oct 06, 2014 10:00 am by Sparkle

Hello,

Anyone tried this in pill form? What's it's like? What side effects have you had? This is next on the list for doc to percribe me for my vestibular vulvadynia but I'm worried about the side effects.

Also did it work with anyone with provoked pain?

Any advice is much appreciated. X



Comments: 13

NEWBIE UNCERTAIN

Wed Aug 20, 2014 11:48 am by QueenLatifahzw

Hi I am a newbie glad to join your site can already see it going to be much help.
I am 52 years old going through menopause. This has been going on for close to 3 years. It all started when my periods began to be irregular and for the first time in my life I came down with a UTI which was treated with antibiotics but I started to experience frequent urination and burning thereafter not all the …

Comments: 3

Vulvar pain documentary!!

Mon Oct 13, 2014 4:42 pm by lovingmelon

Hi all,
new to this forum, and boy am I glad to have found it. Just browsing through, it seems like so much good information is being shared.
I wanted to post a link to my IndieGoGo campaign for the documentary I am making. Even if you can't contribute, I'd love it if you'd pass along my link, if you feel so inclined.

EDIT: Just tried to post my link, and I was prohibited. If you'd like to find …

Comments: 1

Would love support

Thu Oct 02, 2014 11:04 pm by katn7

I have been living with vulvodynia for a long as I can remember. I didn't get officially diagnosed until I was 17 and it has been getting worse ever since. I am 19 now and unable to have sex with my boyfriend of 4 years. I also suffer from endometriosis since I was in my early teens so I've been living with pelvic pain for a long time now. No one really understands how vulvodynia effects you …

Comments: 17

How did this happen so suddenly?

Thu Sep 25, 2014 8:32 pm by Meggiemay

Hi all! I'm 29 years old and I live in the states. A few weeks ago I was absolutely fine "down there". I had protected sex one evening with my partner, nothing out of the ordinary but I noticed I was feeling a bit more sensitive (not in a good way) than usual so we stopped. The next day I felt a bit irritated but wasn't to concerned. The day after that my vulva started to burn. It was a …

Comments: 3

New here and trying to find more girls that live in Brisbane or Australia

Mon Apr 01, 2013 7:05 am by keepdreaming

Hi All,

I am new here and I would really like to get in contact with people from Brisbane, Australia.

I was recently diagnosis (2 months ago) with Provoked Vestibulodynia (Vulvar Vestibulitis) and reactive vaginismus due to the Vestibulodynia, after such a long time of massive pain, suffering and feeling completely hopeless.

I just want to start by saying that this forum have helped me SO …

Comments: 6


free trial neogyn.us

Page 2 of 2 Previous  1, 2

View previous topic View next topic Go down

free trial neogyn.us

Post  Joolibee on Wed Aug 10, 2011 11:58 am

I have received an e-mail from the Chairman / CEO of Neogyn in Switzerland. He obviously thinks I am French and has written to me in French, so I have not yet managed to translate all of the message. However, the gist of it is that he doesn't understand why I was charged 33 euros. He calculates that the tax should have been 19% of the cost of the product, therefore the equivalent of $18.62. I don't know exactly how much that would be in euros, but it would certainly be much less than 33 euros. He has asked me to send him the tax documents.
He seems to be saying that it is not yet possible to register Neogyn in Europe, but I need time to translate the rest of the e-mail.
It would only be polite for me to reply in French, as I don't know how well he speaks English, so I will need to allow some time to construct my reply, as my French is far from fluent.
Anyway, I am heartened to have received such a prompt reply and from the CEO. It does at least indicate that they care about their customers.
I will keep you posted.

Joolibee

Posts: 36
Join date: 2011-03-09
Location: France / UK

View user profile

Back to top Go down

Re: free trial neogyn.us

Post  Sarah001 on Wed Aug 10, 2011 12:20 pm

Well that's good Joolibee, at least they bothered to reply. I'm in a situation where as much as I would agree with Ria that I would pay anything to have this gone it's really about what I can actually afford and taxes on top of the cream would make it completely out of my price range even if it's a wonder cream. Since I got V I've spent a fortune I couldn't really afford to on ointments, oils, supplements and physio, but my money was all eaten up previously trying to find someone to stabilise my pelvic joints so I haven't got any savings left after all that to draw on now. I'm not sure about the product too because anything in a cream base usually makes me alot worse so I'll just hang around awaiting results before I look at it again!

Sarah001

Posts: 1159
Join date: 2010-06-11
Age: 41
Location: UK

View user profile

Back to top Go down

hows it working so far

Post  Melissa777 on Fri Aug 19, 2011 11:12 pm

any noticeable improvements yet?

Melissa777

Posts: 55
Join date: 2011-07-10

View user profile

Back to top Go down

free trial neogyn.us

Post  ria on Fri Aug 19, 2011 11:53 pm

Using the cream twice a day no stinging or burning with it. Did we find out what the ingredients are? I think we have to give it at least 8 weeks to see if any difference.


The money we have all payed out is so annoying,and all of us are still not getting the answers and help we need. I feel the ladies on here who have experince over the years with V like myself pretty much heal themselves with whatever we can.

You would die laughing if I told you some of the whacky things I have done to get rid of this.


So at the moment still using the cream, biofeedback, estradiol with emu oil, Gabapentin.

Take care all xx Smile

















ria

Posts: 99
Join date: 2010-07-21

View user profile

Back to top Go down

Re: free trial neogyn.us

Post  Rose86 on Sun Aug 28, 2011 9:45 am

Hi!

I've been using the cream for 3 weeks now and I haven't noticed any difference yet. As for the actual cream, I wouldn't exactly say it's easily absorbed so it takes a while to rub it in, are you finding this? Not really a problem though, as long as i'm actually getting enough on there. So I haven't noticed any improvement yet, but I will try it for the full 8 weeks. I know it takes a while for the creation of new dermal cells, so i'm not writing it off. I'm not using any other treatments at the moment so if it works i'll be able to say it was the cream and not something else.

Hope it's going ok for you!

Rose x

Rose86

Posts: 51
Join date: 2011-06-23

View user profile

Back to top Go down

Re: free trial neogyn.us

Post  Sarah001 on Sun Aug 28, 2011 2:07 pm

Hi, just remembered about this thread! Embarassed The pharmacist I sent the list of ingredients to said it was fairly standard cosmetics cream kind of stuff except one or two which she would be careful with applying to a delicate area like the vulva, the main one that concerned her a bit was Ceteareth-12 which apparently makes it easier for the skin to absorb chemicals and there's speculation it might be linked to breast cancer but it hasn't been definitely proved without doubt. That's about all she said, she wasn't sure it would help with V but understood we all try anything we can and was interested in the outcome. So that didn't get me far! I might show the list to my sister-in-law who works in the cosmetic industry and see what she thinks. I'll get back to you all if I remember to do this! Embarassed

Sarah001

Posts: 1159
Join date: 2010-06-11
Age: 41
Location: UK

View user profile

Back to top Go down

Re: free trial neogyn.us

Post  Rose86 on Sun Aug 28, 2011 4:12 pm

Hi Sarah,

Yeah i've also checked the ingredients. They are all frequently used in cosmetics, apart from cutaneous lysate, which is a fairly new creation developed for wound healing. It's the ingredient that causes the creation of new dermal cells. As for Ceteareth-12, it is used in cosmetics too. With regard to the cancer link, so many things are that i'm not particularly concerned! I mean estrogen cream is too, and so many of us ladies on here use that! I'll keep you posted if there is or isn't an improvement after 8 weeks though.

x

Rose86

Posts: 51
Join date: 2011-06-23

View user profile

Back to top Go down

Re: free trial neogyn.us

Post  jules on Mon Sep 05, 2011 5:12 pm

Hey ladies, I haven't been on for a couple of months. I ordered the NeoGyn awhile back. I live in the US., so i only had to pay for shipping which was only 5.00 dollars. Like Sebby and probably most of you, i have spent tons of money on this damn disorder! I used this cream a few times and noticed an increase in burning. Anything that says "cream" is going to burn for those who have very sensitive skin on their vulva. I stopped using it immediately. I'll be interested to see if it helps any of you. Do any of you use Lidocaine 5% ointment? I just got a prescription for this. One of the expert docs believes that women w/ V should use the Lidocaine 5% every night before bed. it may break the cycle of pain. I can really only tolerate it twice a day. but, it completely erases the pain for a good 1-2 hours. ahhhh, relief! Good luck ladies, let me know how the NeoGyn works out. Sorry you had to pay so much for it!

jules

Posts: 225
Join date: 2010-03-17

View user profile

Back to top Go down

Re: free trial neogyn.us

Post  Rose86 on Mon Sep 05, 2011 6:53 pm

Hi Jules,

Yeah I have used the lidocaine 5% nightly as suggested in the research study that investigated it. Unfortunately, it didn't help me. It did numb things obviously, but then once it wore off it would be the same level of pain. The constant moist feeling at night made things a bit itchy during the daytime too! The research suggests using it every night for 7 weeks on a cotton ball, and also applying it liberally in the mornings I think. As I said I didn't notice a difference, but it may help you! Do you have generalised or localised V though? I have localised. I've been using the Neogyn for 4 weeks now and still no change. I haven't noticed any burning, but no improvement either. I'll keep going for the full 8 weeks though just in case it hasn't had time to take effect yet.

Rose x

Rose86

Posts: 51
Join date: 2011-06-23

View user profile

Back to top Go down

neogyn

Post  Melissa777 on Sun Oct 02, 2011 10:58 pm

so has anyone using neogyn notice any improvement or ill effects?

I only used it for a few weeks and noticed nothing at all

a few ladies on another msg board said neogyn irritated them

Melissa777

Posts: 55
Join date: 2011-07-10

View user profile

Back to top Go down

neogyn trial

Post  florence1009 on Tue Oct 04, 2011 10:11 am

Neogyn changed my life! So I can understand it doesn't work for everybody but it really made a huge difference for me. Ria seemed also happy with it... And the clinical results are there: see vulvodyniatreatment.com! My OB told me they just started a huge multicentric study in the US and he seems comfortable with the potential results...
I also checked their Scientific Advisory Board on their web site neogyn.us: it is also very impressing.
finally have a look at the VNR on youtube where Dr. Goldstein speacks about vulvodynia and neogyn.
We have something there ladies! It seems also working on Lichen Scelorosus see: slideshare.net/Neogyn/goldstein-issvd-2011
Smile Smile Smile

florence1009

Posts: 18
Join date: 2011-07-10

View user profile

Back to top Go down

Re: free trial neogyn.us

Post  Rose86 on Tue Oct 04, 2011 10:50 am

Hi Melissa,

I've been using the cream for 8 weeks now. At the moment i'm having a slight flare up (due being just before my period and having recently started using dilators again), so I can't say whether there has been an improvement. I'll use it for another 4 weeks and see. It definitely hasn't been a cure. But looking at the study stats, no patients were cured by it, in fact although there was a statistically 'significant' improvement, it was minimal. I didn't have any irritation though, and if anything by using the cream 3 times a day i've become a lot more comfortable using my fingers in that area, so that can't be a bad thing. But the jury is still out as to whether there has been an improvement, but it definitely hasn't made anything worse.

Melissa, can I ask what other message board women are discussing neogyn on? I'd be interested to read others' experiences of it.

Thanks!

Rose86

Posts: 51
Join date: 2011-06-23

View user profile

Back to top Go down

Re: free trial neogyn.us

Post  Sarah001 on Tue Oct 04, 2011 7:43 pm

I'm glad you girls are keeping us updated about neogyn, I decided to give it a miss as like jules any cream seems to make me worse, I also thought somewhere it said neogyn was aimed at women with lichen sclerosus so it would help women whoes V is skin condition based but not those with other causes. Keep giving us the info girls.

Sarah001

Posts: 1159
Join date: 2010-06-11
Age: 41
Location: UK

View user profile

Back to top Go down

Re: free trial neogyn.us

Post  BpCookie on Tue Feb 07, 2012 4:18 pm

Hello Ladies, I bought a tube of Neogyn and used it twice a day for about 2 and a half months now but I have not seen any improvement. I also bought Emu oil and used that for over a month and that didnt help either. I dont want to discourage anyone. It may work for some ppl, which is great.

I have also used a number of different types of suppositories that were supposed to sooth the area and those failed. Tried Amatryptyline (sp) tablets and Gabbapentin tablets but they failed too. Was given Lidocaine ointment but that was another failure. Bought something called terrasil but it failed like the others. Then I started experimenting with every oil that I could think of but nothing seemed to help. Ive used Clobetasol for a year now and although I tell the Dr.s that its not working, they all insist that its the best thing for it. *rolling eyes*. All day and all night long I use A and D ointment and thats the only thing that keeps me from going absolutely crazy. Im still on the look out for that fix-it-all magic treatment. Good luck to you all and I hope you find relief soon.

BpCookie

Posts: 174
Join date: 2012-01-25
Location: Arizona

View user profile

Back to top Go down

neogyn shipping

Post  vyoleta on Sun Jun 02, 2013 11:54 pm

Hy everyone,

I wish to buy neogyn cream and i saw on the website that they don't have shipping for Europe. Please do anyone knowa from where i can buy it?

i saw that some of you tried the neogyn cream and you are happy with it and i hope it will work for me to.... i have vulvodynia for 7 years a had a 4 years relationship which ended because of this probleme Crying or Very sad but i think you all know that.

i don't have the power to tell you how depressive i am because of vulvodynia i actually think sometimes that i will never get better:(. Still i want to try neogyn....maybe......i don't know.... i just hope

Please help me with an answer.
Big hugs for you all>Very Happy<

vyoleta

Posts: 1
Join date: 2013-06-02

View user profile

Back to top Go down

Page 2 of 2 Previous  1, 2

View previous topic View next topic Back to top


Permissions in this forum:
You cannot reply to topics in this forum