Vulvodynia Support
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» Hope to all my suffering ladies
free trial neogyn.us - Page 2 EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
free trial neogyn.us - Page 2 EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
free trial neogyn.us - Page 2 EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
free trial neogyn.us - Page 2 EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
free trial neogyn.us - Page 2 EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
free trial neogyn.us - Page 2 EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
free trial neogyn.us - Page 2 EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
free trial neogyn.us - Page 2 EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
free trial neogyn.us - Page 2 EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


free trial neogyn.us

+5
Joolibee
Sarah001
Rose86
Melissa777
ria
9 posters

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Post  florence1009 Tue Oct 04, 2011 9:11 am

Neogyn changed my life! So I can understand it doesn't work for everybody but it really made a huge difference for me. Ria seemed also happy with it... And the clinical results are there: see vulvodyniatreatment.com! My OB told me they just started a huge multicentric study in the US and he seems comfortable with the potential results...
I also checked their Scientific Advisory Board on their web site neogyn.us: it is also very impressing.
finally have a look at the VNR on youtube where Dr. Goldstein speacks about vulvodynia and neogyn.
We have something there ladies! It seems also working on Lichen Scelorosus see: slideshare.net/Neogyn/goldstein-issvd-2011
Smile Smile Smile

florence1009

Posts : 18
Join date : 2011-07-10

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Post  Rose86 Tue Oct 04, 2011 9:50 am

Hi Melissa,

I've been using the cream for 8 weeks now. At the moment i'm having a slight flare up (due being just before my period and having recently started using dilators again), so I can't say whether there has been an improvement. I'll use it for another 4 weeks and see. It definitely hasn't been a cure. But looking at the study stats, no patients were cured by it, in fact although there was a statistically 'significant' improvement, it was minimal. I didn't have any irritation though, and if anything by using the cream 3 times a day i've become a lot more comfortable using my fingers in that area, so that can't be a bad thing. But the jury is still out as to whether there has been an improvement, but it definitely hasn't made anything worse.

Melissa, can I ask what other message board women are discussing neogyn on? I'd be interested to read others' experiences of it.

Thanks!

Rose86

Posts : 51
Join date : 2011-06-23

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Post  Sarah001 Tue Oct 04, 2011 6:43 pm

I'm glad you girls are keeping us updated about neogyn, I decided to give it a miss as like jules any cream seems to make me worse, I also thought somewhere it said neogyn was aimed at women with lichen sclerosus so it would help women whoes V is skin condition based but not those with other causes. Keep giving us the info girls.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  BpCookie Tue Feb 07, 2012 4:18 pm

Hello Ladies, I bought a tube of Neogyn and used it twice a day for about 2 and a half months now but I have not seen any improvement. I also bought Emu oil and used that for over a month and that didnt help either. I dont want to discourage anyone. It may work for some ppl, which is great.

I have also used a number of different types of suppositories that were supposed to sooth the area and those failed. Tried Amatryptyline (sp) tablets and Gabbapentin tablets but they failed too. Was given Lidocaine ointment but that was another failure. Bought something called terrasil but it failed like the others. Then I started experimenting with every oil that I could think of but nothing seemed to help. Ive used Clobetasol for a year now and although I tell the Dr.s that its not working, they all insist that its the best thing for it. *rolling eyes*. All day and all night long I use A and D ointment and thats the only thing that keeps me from going absolutely crazy. Im still on the look out for that fix-it-all magic treatment. Good luck to you all and I hope you find relief soon.
BpCookie
BpCookie

Posts : 209
Join date : 2012-01-25
Location : Arizona

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Post  vyoleta Sun Jun 02, 2013 10:54 pm

Hy everyone,

I wish to buy neogyn cream and i saw on the website that they don't have shipping for Europe. Please do anyone knowa from where i can buy it?

i saw that some of you tried the neogyn cream and you are happy with it and i hope it will work for me to.... i have vulvodynia for 7 years a had a 4 years relationship which ended because of this probleme Crying or Very sad but i think you all know that.

i don't have the power to tell you how depressive i am because of vulvodynia i actually think sometimes that i will never get better:(. Still i want to try neogyn....maybe......i don't know.... i just hope

Please help me with an answer.
Big hugs for you all>Very Happy<

vyoleta

Posts : 1
Join date : 2013-06-02

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