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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Diet... what are the triggers???

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Diet... what are the triggers???

Post  Remi88 on Sat Aug 06, 2011 10:10 am

I was doing very well on amitriptyline, until i had my period 2 weeks ago. The pain had returned, I thought it may have just been irritation from using pads.. but a week after I'm still in pain. I am thinking it could possibly be something in my diet. I eat quite a healthy moderate diet, no refined sugar and no yeast, lots of protein (chicken, fish), fresh veggies and veggie juice, rice, but I do also have coffee and I have had a fair bit of salt in my diet for the last few weeks. Does anyone else find that salt, coffee, or any other foods could possibly cause flare-ups???


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Re: Diet... what are the triggers???

Post  Sarah001 on Sat Aug 06, 2011 4:42 pm

Depends on the individual, some things are triggers for some women and not for others. I tried cutting out coffee for a couple of months and it didn't make any difference so I went back on my 2 cups a day and again no increase in symptoms when I reintroduced it. You could try the low oxalate diet if you think that might help (again tried it and not a help for me but some women swear by it) or you could cut out a single item for a while and see how you get on.

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Re: Diet... what are the triggers???

Post  Chinchilla on Fri Aug 19, 2011 9:21 pm

Diet plays a very major part for me in my pain management!

I avoid the following things like the plague:
-orange juice, cranberrry juice, most fruit juices
-pop/carbonated drinks

I am very careful with the fruits I eat. Almost all are too acidic. The worst are:
-citric fruits (oranges, lemons, limes, grapefruit)
The riper they are the less acidic they are. I eat bananas, pears, blueberries, watermelon. Apples depends on the kind. McIntosh are worse, Golden Delicious are better.

Be careful of anything tomato-based:

And avoid spicy food! Or with vinegar. If you end up eating any of the above (sometimes I just can't resist a little) drink LOTS and LOTS of WATER with it!!

Apparently caffeine is also bad but I am not a coffee drinker so I can't tell you on that one.

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Post  Melissa777 on Fri Aug 19, 2011 11:49 pm

I find when my menstrual cycle starts- i tend to have vestibule flare ups

its so annoying
and this month it seems worse
mainly on one side

my right side this far seems okay

well- took some Excedrin and my herbal from my acupuncture
and praying it kicks in
i cant really use my estro cream while on my period..

ahh i wish us women didnt have to deal with this


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Re: Diet... what are the triggers???

Post  Remi88 on Sat Aug 20, 2011 3:33 am

well maybe thats it Melissa, I was convinced it was something i was doing that stopped my meds from working, but it could very well be to do with my menstrual cycle, that is the time when i noticed my pain returning.


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Re: Diet... what are the triggers???

Post  julesywoolsy on Wed Aug 24, 2011 10:04 am

My pain seems to be worse in the week leading up to my period. As for diet, the only thing that I have managed to identify as a trigger so far is Orange Juice!


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Re: Diet... what are the triggers???

Post  Heidi on Wed Aug 24, 2011 7:06 pm

When I was really raw and in bad shape my triggers were:

All High Oxalate Foods (especially chocolate, spinach, nuts and rhubarb, but also whole wheat, potatoes, carrots, etc.)
Eating too many "medium" oxalate foods in one day
All high acid foods, but especially tomatoes and tomato products, vinegar and orange juice

I usually had a bad flare-up 6-24 hours after high acid foods and 24-48 hours after high oxalate foods. I found this out by keeping a food journal and starting to see patterns over the years. When I cheated on the low oxalate diet I would also have flare-ups which allowed me to see how oxalates also triggered my pain (and especially burning sensations).

After following a low oxalate diet for a number of years, my pain levels improved by about 80% and I no longer had the raw/burning feeling and severe pain. I also no longer am sensitive to high acid foods. I now eat tomatoes and vinegar A LOT in the summer with very little problem. I also can tolerate most medium oxalate foods if I don't go crazy and eat too many in one day. My thinking is that the high acid foods were triggers because they made my raw, painful tissues hurt even more (they make a bad situation worse), but that high acid foods and drinks are not the reason I had vulvar pain in the first place (for me, this was an oxalate metabolism issue).

Hope this helps.


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Post  Tamara on Tue Oct 18, 2011 11:59 am

Hello to all! Well i agree with chinchilla! You can try to avoid juices, instead drink a lot of water this is really helpful for me! Smile


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Re: Diet... what are the triggers???

Post  naomi on Wed Oct 19, 2011 2:59 am

im not sure on allergies or triggers but i just forked out 200quid on IGG testing (delayed reactions to foods) to see if that shows up anything. 113 foods which are common in todays diet.

will let u know if that helps.

i think it was from York Testing, in the uk


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Re: Diet... what are the triggers???

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