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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Diet... what are the triggers???

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Diet... what are the triggers???

Post  Remi88 on Sat Aug 06, 2011 10:10 am

I was doing very well on amitriptyline, until i had my period 2 weeks ago. The pain had returned, I thought it may have just been irritation from using pads.. but a week after I'm still in pain. I am thinking it could possibly be something in my diet. I eat quite a healthy moderate diet, no refined sugar and no yeast, lots of protein (chicken, fish), fresh veggies and veggie juice, rice, but I do also have coffee and I have had a fair bit of salt in my diet for the last few weeks. Does anyone else find that salt, coffee, or any other foods could possibly cause flare-ups???


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Re: Diet... what are the triggers???

Post  Sarah001 on Sat Aug 06, 2011 4:42 pm

Depends on the individual, some things are triggers for some women and not for others. I tried cutting out coffee for a couple of months and it didn't make any difference so I went back on my 2 cups a day and again no increase in symptoms when I reintroduced it. You could try the low oxalate diet if you think that might help (again tried it and not a help for me but some women swear by it) or you could cut out a single item for a while and see how you get on.

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Re: Diet... what are the triggers???

Post  Chinchilla on Fri Aug 19, 2011 9:21 pm

Diet plays a very major part for me in my pain management!

I avoid the following things like the plague:
-orange juice, cranberrry juice, most fruit juices
-pop/carbonated drinks

I am very careful with the fruits I eat. Almost all are too acidic. The worst are:
-citric fruits (oranges, lemons, limes, grapefruit)
The riper they are the less acidic they are. I eat bananas, pears, blueberries, watermelon. Apples depends on the kind. McIntosh are worse, Golden Delicious are better.

Be careful of anything tomato-based:

And avoid spicy food! Or with vinegar. If you end up eating any of the above (sometimes I just can't resist a little) drink LOTS and LOTS of WATER with it!!

Apparently caffeine is also bad but I am not a coffee drinker so I can't tell you on that one.

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Post  Melissa777 on Fri Aug 19, 2011 11:49 pm

I find when my menstrual cycle starts- i tend to have vestibule flare ups

its so annoying
and this month it seems worse
mainly on one side

my right side this far seems okay

well- took some Excedrin and my herbal from my acupuncture
and praying it kicks in
i cant really use my estro cream while on my period..

ahh i wish us women didnt have to deal with this


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Re: Diet... what are the triggers???

Post  Remi88 on Sat Aug 20, 2011 3:33 am

well maybe thats it Melissa, I was convinced it was something i was doing that stopped my meds from working, but it could very well be to do with my menstrual cycle, that is the time when i noticed my pain returning.


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Re: Diet... what are the triggers???

Post  julesywoolsy on Wed Aug 24, 2011 10:04 am

My pain seems to be worse in the week leading up to my period. As for diet, the only thing that I have managed to identify as a trigger so far is Orange Juice!


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Re: Diet... what are the triggers???

Post  Heidi on Wed Aug 24, 2011 7:06 pm

When I was really raw and in bad shape my triggers were:

All High Oxalate Foods (especially chocolate, spinach, nuts and rhubarb, but also whole wheat, potatoes, carrots, etc.)
Eating too many "medium" oxalate foods in one day
All high acid foods, but especially tomatoes and tomato products, vinegar and orange juice

I usually had a bad flare-up 6-24 hours after high acid foods and 24-48 hours after high oxalate foods. I found this out by keeping a food journal and starting to see patterns over the years. When I cheated on the low oxalate diet I would also have flare-ups which allowed me to see how oxalates also triggered my pain (and especially burning sensations).

After following a low oxalate diet for a number of years, my pain levels improved by about 80% and I no longer had the raw/burning feeling and severe pain. I also no longer am sensitive to high acid foods. I now eat tomatoes and vinegar A LOT in the summer with very little problem. I also can tolerate most medium oxalate foods if I don't go crazy and eat too many in one day. My thinking is that the high acid foods were triggers because they made my raw, painful tissues hurt even more (they make a bad situation worse), but that high acid foods and drinks are not the reason I had vulvar pain in the first place (for me, this was an oxalate metabolism issue).

Hope this helps.


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Post  Tamara on Tue Oct 18, 2011 11:59 am

Hello to all! Well i agree with chinchilla! You can try to avoid juices, instead drink a lot of water this is really helpful for me! Smile


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Re: Diet... what are the triggers???

Post  naomi on Wed Oct 19, 2011 2:59 am

im not sure on allergies or triggers but i just forked out 200quid on IGG testing (delayed reactions to foods) to see if that shows up anything. 113 foods which are common in todays diet.

will let u know if that helps.

i think it was from York Testing, in the uk


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Re: Diet... what are the triggers???

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