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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7


Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Diet... what are the triggers???

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Diet... what are the triggers???

Post  Remi88 on Sat Aug 06, 2011 10:10 am

I was doing very well on amitriptyline, until i had my period 2 weeks ago. The pain had returned, I thought it may have just been irritation from using pads.. but a week after I'm still in pain. I am thinking it could possibly be something in my diet. I eat quite a healthy moderate diet, no refined sugar and no yeast, lots of protein (chicken, fish), fresh veggies and veggie juice, rice, but I do also have coffee and I have had a fair bit of salt in my diet for the last few weeks. Does anyone else find that salt, coffee, or any other foods could possibly cause flare-ups???


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Re: Diet... what are the triggers???

Post  Sarah001 on Sat Aug 06, 2011 4:42 pm

Depends on the individual, some things are triggers for some women and not for others. I tried cutting out coffee for a couple of months and it didn't make any difference so I went back on my 2 cups a day and again no increase in symptoms when I reintroduced it. You could try the low oxalate diet if you think that might help (again tried it and not a help for me but some women swear by it) or you could cut out a single item for a while and see how you get on.

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Re: Diet... what are the triggers???

Post  Chinchilla on Fri Aug 19, 2011 9:21 pm

Diet plays a very major part for me in my pain management!

I avoid the following things like the plague:
-orange juice, cranberrry juice, most fruit juices
-pop/carbonated drinks

I am very careful with the fruits I eat. Almost all are too acidic. The worst are:
-citric fruits (oranges, lemons, limes, grapefruit)
The riper they are the less acidic they are. I eat bananas, pears, blueberries, watermelon. Apples depends on the kind. McIntosh are worse, Golden Delicious are better.

Be careful of anything tomato-based:

And avoid spicy food! Or with vinegar. If you end up eating any of the above (sometimes I just can't resist a little) drink LOTS and LOTS of WATER with it!!

Apparently caffeine is also bad but I am not a coffee drinker so I can't tell you on that one.

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Post  Melissa777 on Fri Aug 19, 2011 11:49 pm

I find when my menstrual cycle starts- i tend to have vestibule flare ups

its so annoying
and this month it seems worse
mainly on one side

my right side this far seems okay

well- took some Excedrin and my herbal from my acupuncture
and praying it kicks in
i cant really use my estro cream while on my period..

ahh i wish us women didnt have to deal with this


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Re: Diet... what are the triggers???

Post  Remi88 on Sat Aug 20, 2011 3:33 am

well maybe thats it Melissa, I was convinced it was something i was doing that stopped my meds from working, but it could very well be to do with my menstrual cycle, that is the time when i noticed my pain returning.


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Re: Diet... what are the triggers???

Post  julesywoolsy on Wed Aug 24, 2011 10:04 am

My pain seems to be worse in the week leading up to my period. As for diet, the only thing that I have managed to identify as a trigger so far is Orange Juice!


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Re: Diet... what are the triggers???

Post  Heidi on Wed Aug 24, 2011 7:06 pm

When I was really raw and in bad shape my triggers were:

All High Oxalate Foods (especially chocolate, spinach, nuts and rhubarb, but also whole wheat, potatoes, carrots, etc.)
Eating too many "medium" oxalate foods in one day
All high acid foods, but especially tomatoes and tomato products, vinegar and orange juice

I usually had a bad flare-up 6-24 hours after high acid foods and 24-48 hours after high oxalate foods. I found this out by keeping a food journal and starting to see patterns over the years. When I cheated on the low oxalate diet I would also have flare-ups which allowed me to see how oxalates also triggered my pain (and especially burning sensations).

After following a low oxalate diet for a number of years, my pain levels improved by about 80% and I no longer had the raw/burning feeling and severe pain. I also no longer am sensitive to high acid foods. I now eat tomatoes and vinegar A LOT in the summer with very little problem. I also can tolerate most medium oxalate foods if I don't go crazy and eat too many in one day. My thinking is that the high acid foods were triggers because they made my raw, painful tissues hurt even more (they make a bad situation worse), but that high acid foods and drinks are not the reason I had vulvar pain in the first place (for me, this was an oxalate metabolism issue).

Hope this helps.


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Post  Tamara on Tue Oct 18, 2011 11:59 am

Hello to all! Well i agree with chinchilla! You can try to avoid juices, instead drink a lot of water this is really helpful for me! Smile


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Re: Diet... what are the triggers???

Post  naomi on Wed Oct 19, 2011 2:59 am

im not sure on allergies or triggers but i just forked out 200quid on IGG testing (delayed reactions to foods) to see if that shows up anything. 113 foods which are common in todays diet.

will let u know if that helps.

i think it was from York Testing, in the uk


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Re: Diet... what are the triggers???

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