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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

Diet... what are the triggers???

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Diet... what are the triggers???

Post  Remi88 on Sat Aug 06, 2011 10:10 am

I was doing very well on amitriptyline, until i had my period 2 weeks ago. The pain had returned, I thought it may have just been irritation from using pads.. but a week after I'm still in pain. I am thinking it could possibly be something in my diet. I eat quite a healthy moderate diet, no refined sugar and no yeast, lots of protein (chicken, fish), fresh veggies and veggie juice, rice, but I do also have coffee and I have had a fair bit of salt in my diet for the last few weeks. Does anyone else find that salt, coffee, or any other foods could possibly cause flare-ups???


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Re: Diet... what are the triggers???

Post  Sarah001 on Sat Aug 06, 2011 4:42 pm

Depends on the individual, some things are triggers for some women and not for others. I tried cutting out coffee for a couple of months and it didn't make any difference so I went back on my 2 cups a day and again no increase in symptoms when I reintroduced it. You could try the low oxalate diet if you think that might help (again tried it and not a help for me but some women swear by it) or you could cut out a single item for a while and see how you get on.

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Re: Diet... what are the triggers???

Post  Chinchilla on Fri Aug 19, 2011 9:21 pm

Diet plays a very major part for me in my pain management!

I avoid the following things like the plague:
-orange juice, cranberrry juice, most fruit juices
-pop/carbonated drinks

I am very careful with the fruits I eat. Almost all are too acidic. The worst are:
-citric fruits (oranges, lemons, limes, grapefruit)
The riper they are the less acidic they are. I eat bananas, pears, blueberries, watermelon. Apples depends on the kind. McIntosh are worse, Golden Delicious are better.

Be careful of anything tomato-based:

And avoid spicy food! Or with vinegar. If you end up eating any of the above (sometimes I just can't resist a little) drink LOTS and LOTS of WATER with it!!

Apparently caffeine is also bad but I am not a coffee drinker so I can't tell you on that one.

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Post  Melissa777 on Fri Aug 19, 2011 11:49 pm

I find when my menstrual cycle starts- i tend to have vestibule flare ups

its so annoying
and this month it seems worse
mainly on one side

my right side this far seems okay

well- took some Excedrin and my herbal from my acupuncture
and praying it kicks in
i cant really use my estro cream while on my period..

ahh i wish us women didnt have to deal with this


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Re: Diet... what are the triggers???

Post  Remi88 on Sat Aug 20, 2011 3:33 am

well maybe thats it Melissa, I was convinced it was something i was doing that stopped my meds from working, but it could very well be to do with my menstrual cycle, that is the time when i noticed my pain returning.


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Re: Diet... what are the triggers???

Post  julesywoolsy on Wed Aug 24, 2011 10:04 am

My pain seems to be worse in the week leading up to my period. As for diet, the only thing that I have managed to identify as a trigger so far is Orange Juice!


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Re: Diet... what are the triggers???

Post  Heidi on Wed Aug 24, 2011 7:06 pm

When I was really raw and in bad shape my triggers were:

All High Oxalate Foods (especially chocolate, spinach, nuts and rhubarb, but also whole wheat, potatoes, carrots, etc.)
Eating too many "medium" oxalate foods in one day
All high acid foods, but especially tomatoes and tomato products, vinegar and orange juice

I usually had a bad flare-up 6-24 hours after high acid foods and 24-48 hours after high oxalate foods. I found this out by keeping a food journal and starting to see patterns over the years. When I cheated on the low oxalate diet I would also have flare-ups which allowed me to see how oxalates also triggered my pain (and especially burning sensations).

After following a low oxalate diet for a number of years, my pain levels improved by about 80% and I no longer had the raw/burning feeling and severe pain. I also no longer am sensitive to high acid foods. I now eat tomatoes and vinegar A LOT in the summer with very little problem. I also can tolerate most medium oxalate foods if I don't go crazy and eat too many in one day. My thinking is that the high acid foods were triggers because they made my raw, painful tissues hurt even more (they make a bad situation worse), but that high acid foods and drinks are not the reason I had vulvar pain in the first place (for me, this was an oxalate metabolism issue).

Hope this helps.


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Post  Tamara on Tue Oct 18, 2011 11:59 am

Hello to all! Well i agree with chinchilla! You can try to avoid juices, instead drink a lot of water this is really helpful for me! Smile


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Re: Diet... what are the triggers???

Post  naomi on Wed Oct 19, 2011 2:59 am

im not sure on allergies or triggers but i just forked out 200quid on IGG testing (delayed reactions to foods) to see if that shows up anything. 113 foods which are common in todays diet.

will let u know if that helps.

i think it was from York Testing, in the uk


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Re: Diet... what are the triggers???

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