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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


physio????

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physio????

Post  lisadoc on Thu Aug 11, 2011 6:47 pm

am starting physio on monday, scared and excited about it. scared of being touched but so hopeful of the relief it might bring, has it worked for any of u? also i get burning sensation in my inner thighs and down my leg as far as my knee, usually worse on right side and usually worse in the evening time, any one else have this symptom??

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Re: physio????

Post  Sarah001 on Sun Aug 14, 2011 7:09 pm

Hi there, don't be scared of having physio, it will involve an examination of your vulva and one finger inserted to assess the pelvic floor as you're told to contract it but it's nothing to be frightened or worried about. I would think your pelvic alignment would be looked at too probably in standing and possibly in laying too, your leg lengths should be checked and hip mobility is a possibility too, depends on the therapist. They may feel your spine and get you to bend in different directions to see how well it moves and your feet will be mentoned if you have fallen arches, it really depends on whether the physio is going to look at the whole picture or just the pelvic floor. Some women's health physios do internal massage and if it's too painful tell them. I've managed to get my resting tone from 20 to 12-14 with the help of a physio and my SI joints are a bit more stable than they previously were even if they're still very wobbly compared to everyone elses! It's a positive thing and may even be your solution. I also get burning down my legs, sometimes the front and sometimes the inner thighs but I have trigger points all over so it's no surprise really! If your pelvic floor is tight your adductors probably will be too as they work together. Good luck and let us all know how you get on.
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Re: physio????

Post  lisadoc on Sun Aug 14, 2011 7:20 pm

thanks sarah, after speaking briefly to physio on phone and a quick chat about symptoms she sais she will probably be doing internal work, i hope it helps. sorry if a bit stupid about this, what are resting tones?

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Re: physio????

Post  Sarah001 on Sun Aug 14, 2011 7:32 pm

Your resting tone is the measurement on the biofeedback machine so most women with V have a high resting tone as their muscles are in spasm and the physio should talk you through some exercises while you watch the machine and can see when you relax the muscles and the resting tone gets lower. It does involve an internal sensor however and for me getting the sensor out of my clenched muscles at the end is the painful part! The resting tone is the most important part, the aim is to get it low and staying at a near constant level all the time you are doing nothing rather than spasming and clenching all the time.
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Re: physio????

Post  lisadoc on Sun Aug 14, 2011 7:40 pm

ok thanks, hope u don't me asking, do u have a partner and has it helped in that department. i find it extremely difficult for penetration as muscles just tense up

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Re: physio????

Post  Sarah001 on Tue Aug 16, 2011 7:21 pm

No I don't have a partner he left me for someone else 6 months after the V started stating it was "one problem too many" and "holding him back" etc. I'm still in far too much pain to consider sex so up to now it wouldn't have been possible anyway, but remember I started at a totally ridiculous level of 20 as my resting tone whereas most people start at about 9-12 range so what I've basically achieved is to get to the point where most people start from so still shit loads of pain but at least I've got my resting tone down a bit. I also have the complication of Fibro but moe importantly Hypermobility Syndrome which affects my pelvis badly so relaxing the pelvic floor leads to more pelvic instability which in turn leads to spasm of the pelvic floor so I'm not really a typical case and lots of women with no pelvic instability can relax the PF quite quickly. Keep us posted.
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Re: physio????

Post  lisadoc on Tue Aug 16, 2011 9:23 pm

got on great with the physio, she couldnt believe how tense all the muscles are, obviously will have to go more than once but i really think it will help, i hope anyhow. sorry to hear how much pain you are still in, hopefully you will get relief somehow too.

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