Log in

I forgot my password

Latest topics
» Anyone been to see Dr.Claire Bailey in Birmingham?
Yesterday at 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Yesterday at 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


physio????

View previous topic View next topic Go down

physio????

Post  lisadoc on Thu Aug 11, 2011 6:47 pm

am starting physio on monday, scared and excited about it. scared of being touched but so hopeful of the relief it might bring, has it worked for any of u? also i get burning sensation in my inner thighs and down my leg as far as my knee, usually worse on right side and usually worse in the evening time, any one else have this symptom??

lisadoc

Posts : 22
Join date : 2011-08-01

View user profile

Back to top Go down

Re: physio????

Post  Sarah001 on Sun Aug 14, 2011 7:09 pm

Hi there, don't be scared of having physio, it will involve an examination of your vulva and one finger inserted to assess the pelvic floor as you're told to contract it but it's nothing to be frightened or worried about. I would think your pelvic alignment would be looked at too probably in standing and possibly in laying too, your leg lengths should be checked and hip mobility is a possibility too, depends on the therapist. They may feel your spine and get you to bend in different directions to see how well it moves and your feet will be mentoned if you have fallen arches, it really depends on whether the physio is going to look at the whole picture or just the pelvic floor. Some women's health physios do internal massage and if it's too painful tell them. I've managed to get my resting tone from 20 to 12-14 with the help of a physio and my SI joints are a bit more stable than they previously were even if they're still very wobbly compared to everyone elses! It's a positive thing and may even be your solution. I also get burning down my legs, sometimes the front and sometimes the inner thighs but I have trigger points all over so it's no surprise really! If your pelvic floor is tight your adductors probably will be too as they work together. Good luck and let us all know how you get on.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: physio????

Post  lisadoc on Sun Aug 14, 2011 7:20 pm

thanks sarah, after speaking briefly to physio on phone and a quick chat about symptoms she sais she will probably be doing internal work, i hope it helps. sorry if a bit stupid about this, what are resting tones?

lisadoc

Posts : 22
Join date : 2011-08-01

View user profile

Back to top Go down

Re: physio????

Post  Sarah001 on Sun Aug 14, 2011 7:32 pm

Your resting tone is the measurement on the biofeedback machine so most women with V have a high resting tone as their muscles are in spasm and the physio should talk you through some exercises while you watch the machine and can see when you relax the muscles and the resting tone gets lower. It does involve an internal sensor however and for me getting the sensor out of my clenched muscles at the end is the painful part! The resting tone is the most important part, the aim is to get it low and staying at a near constant level all the time you are doing nothing rather than spasming and clenching all the time.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: physio????

Post  lisadoc on Sun Aug 14, 2011 7:40 pm

ok thanks, hope u don't me asking, do u have a partner and has it helped in that department. i find it extremely difficult for penetration as muscles just tense up

lisadoc

Posts : 22
Join date : 2011-08-01

View user profile

Back to top Go down

Re: physio????

Post  Sarah001 on Tue Aug 16, 2011 7:21 pm

No I don't have a partner he left me for someone else 6 months after the V started stating it was "one problem too many" and "holding him back" etc. I'm still in far too much pain to consider sex so up to now it wouldn't have been possible anyway, but remember I started at a totally ridiculous level of 20 as my resting tone whereas most people start at about 9-12 range so what I've basically achieved is to get to the point where most people start from so still shit loads of pain but at least I've got my resting tone down a bit. I also have the complication of Fibro but moe importantly Hypermobility Syndrome which affects my pelvis badly so relaxing the pelvic floor leads to more pelvic instability which in turn leads to spasm of the pelvic floor so I'm not really a typical case and lots of women with no pelvic instability can relax the PF quite quickly. Keep us posted.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: physio????

Post  lisadoc on Tue Aug 16, 2011 9:23 pm

got on great with the physio, she couldnt believe how tense all the muscles are, obviously will have to go more than once but i really think it will help, i hope anyhow. sorry to hear how much pain you are still in, hopefully you will get relief somehow too.

lisadoc

Posts : 22
Join date : 2011-08-01

View user profile

Back to top Go down

Re: physio????

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum