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Sat May 26, 2018 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

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» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


physio????

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physio????

Post  lisadoc on Thu Aug 11, 2011 6:47 pm

am starting physio on monday, scared and excited about it. scared of being touched but so hopeful of the relief it might bring, has it worked for any of u? also i get burning sensation in my inner thighs and down my leg as far as my knee, usually worse on right side and usually worse in the evening time, any one else have this symptom??

lisadoc

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Re: physio????

Post  Sarah001 on Sun Aug 14, 2011 7:09 pm

Hi there, don't be scared of having physio, it will involve an examination of your vulva and one finger inserted to assess the pelvic floor as you're told to contract it but it's nothing to be frightened or worried about. I would think your pelvic alignment would be looked at too probably in standing and possibly in laying too, your leg lengths should be checked and hip mobility is a possibility too, depends on the therapist. They may feel your spine and get you to bend in different directions to see how well it moves and your feet will be mentoned if you have fallen arches, it really depends on whether the physio is going to look at the whole picture or just the pelvic floor. Some women's health physios do internal massage and if it's too painful tell them. I've managed to get my resting tone from 20 to 12-14 with the help of a physio and my SI joints are a bit more stable than they previously were even if they're still very wobbly compared to everyone elses! It's a positive thing and may even be your solution. I also get burning down my legs, sometimes the front and sometimes the inner thighs but I have trigger points all over so it's no surprise really! If your pelvic floor is tight your adductors probably will be too as they work together. Good luck and let us all know how you get on.
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Re: physio????

Post  lisadoc on Sun Aug 14, 2011 7:20 pm

thanks sarah, after speaking briefly to physio on phone and a quick chat about symptoms she sais she will probably be doing internal work, i hope it helps. sorry if a bit stupid about this, what are resting tones?

lisadoc

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Re: physio????

Post  Sarah001 on Sun Aug 14, 2011 7:32 pm

Your resting tone is the measurement on the biofeedback machine so most women with V have a high resting tone as their muscles are in spasm and the physio should talk you through some exercises while you watch the machine and can see when you relax the muscles and the resting tone gets lower. It does involve an internal sensor however and for me getting the sensor out of my clenched muscles at the end is the painful part! The resting tone is the most important part, the aim is to get it low and staying at a near constant level all the time you are doing nothing rather than spasming and clenching all the time.
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Re: physio????

Post  lisadoc on Sun Aug 14, 2011 7:40 pm

ok thanks, hope u don't me asking, do u have a partner and has it helped in that department. i find it extremely difficult for penetration as muscles just tense up

lisadoc

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Re: physio????

Post  Sarah001 on Tue Aug 16, 2011 7:21 pm

No I don't have a partner he left me for someone else 6 months after the V started stating it was "one problem too many" and "holding him back" etc. I'm still in far too much pain to consider sex so up to now it wouldn't have been possible anyway, but remember I started at a totally ridiculous level of 20 as my resting tone whereas most people start at about 9-12 range so what I've basically achieved is to get to the point where most people start from so still shit loads of pain but at least I've got my resting tone down a bit. I also have the complication of Fibro but moe importantly Hypermobility Syndrome which affects my pelvis badly so relaxing the pelvic floor leads to more pelvic instability which in turn leads to spasm of the pelvic floor so I'm not really a typical case and lots of women with no pelvic instability can relax the PF quite quickly. Keep us posted.
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Re: physio????

Post  lisadoc on Tue Aug 16, 2011 9:23 pm

got on great with the physio, she couldnt believe how tense all the muscles are, obviously will have to go more than once but i really think it will help, i hope anyhow. sorry to hear how much pain you are still in, hopefully you will get relief somehow too.

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