Log in

I forgot my password

Latest topics
New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


physio????

View previous topic View next topic Go down

physio????

Post  lisadoc on Thu Aug 11, 2011 6:47 pm

am starting physio on monday, scared and excited about it. scared of being touched but so hopeful of the relief it might bring, has it worked for any of u? also i get burning sensation in my inner thighs and down my leg as far as my knee, usually worse on right side and usually worse in the evening time, any one else have this symptom??

lisadoc

Posts : 22
Join date : 2011-08-01

View user profile

Back to top Go down

Re: physio????

Post  Sarah001 on Sun Aug 14, 2011 7:09 pm

Hi there, don't be scared of having physio, it will involve an examination of your vulva and one finger inserted to assess the pelvic floor as you're told to contract it but it's nothing to be frightened or worried about. I would think your pelvic alignment would be looked at too probably in standing and possibly in laying too, your leg lengths should be checked and hip mobility is a possibility too, depends on the therapist. They may feel your spine and get you to bend in different directions to see how well it moves and your feet will be mentoned if you have fallen arches, it really depends on whether the physio is going to look at the whole picture or just the pelvic floor. Some women's health physios do internal massage and if it's too painful tell them. I've managed to get my resting tone from 20 to 12-14 with the help of a physio and my SI joints are a bit more stable than they previously were even if they're still very wobbly compared to everyone elses! It's a positive thing and may even be your solution. I also get burning down my legs, sometimes the front and sometimes the inner thighs but I have trigger points all over so it's no surprise really! If your pelvic floor is tight your adductors probably will be too as they work together. Good luck and let us all know how you get on.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: physio????

Post  lisadoc on Sun Aug 14, 2011 7:20 pm

thanks sarah, after speaking briefly to physio on phone and a quick chat about symptoms she sais she will probably be doing internal work, i hope it helps. sorry if a bit stupid about this, what are resting tones?

lisadoc

Posts : 22
Join date : 2011-08-01

View user profile

Back to top Go down

Re: physio????

Post  Sarah001 on Sun Aug 14, 2011 7:32 pm

Your resting tone is the measurement on the biofeedback machine so most women with V have a high resting tone as their muscles are in spasm and the physio should talk you through some exercises while you watch the machine and can see when you relax the muscles and the resting tone gets lower. It does involve an internal sensor however and for me getting the sensor out of my clenched muscles at the end is the painful part! The resting tone is the most important part, the aim is to get it low and staying at a near constant level all the time you are doing nothing rather than spasming and clenching all the time.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: physio????

Post  lisadoc on Sun Aug 14, 2011 7:40 pm

ok thanks, hope u don't me asking, do u have a partner and has it helped in that department. i find it extremely difficult for penetration as muscles just tense up

lisadoc

Posts : 22
Join date : 2011-08-01

View user profile

Back to top Go down

Re: physio????

Post  Sarah001 on Tue Aug 16, 2011 7:21 pm

No I don't have a partner he left me for someone else 6 months after the V started stating it was "one problem too many" and "holding him back" etc. I'm still in far too much pain to consider sex so up to now it wouldn't have been possible anyway, but remember I started at a totally ridiculous level of 20 as my resting tone whereas most people start at about 9-12 range so what I've basically achieved is to get to the point where most people start from so still shit loads of pain but at least I've got my resting tone down a bit. I also have the complication of Fibro but moe importantly Hypermobility Syndrome which affects my pelvis badly so relaxing the pelvic floor leads to more pelvic instability which in turn leads to spasm of the pelvic floor so I'm not really a typical case and lots of women with no pelvic instability can relax the PF quite quickly. Keep us posted.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: physio????

Post  lisadoc on Tue Aug 16, 2011 9:23 pm

got on great with the physio, she couldnt believe how tense all the muscles are, obviously will have to go more than once but i really think it will help, i hope anyhow. sorry to hear how much pain you are still in, hopefully you will get relief somehow too.

lisadoc

Posts : 22
Join date : 2011-08-01

View user profile

Back to top Go down

Re: physio????

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum