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» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


topical creams

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topical creams

Post  kateelizabeth on Thu Aug 11, 2011 8:23 pm

I really want to try topical Gabapentin, however English doctors aren't willing to contact compounding pharmacies to make such a cream.
I have searched high and low for it, as it has such great reviews on the internet.
Does anyone know where I can purchase it?
Also I am using topical Lidocaine 2% (vagisil) at the moment, it does help numb but I really want to try the 5% as it doesn't do much for the pain.

I have heard people use this internally, however I am scared that vagisil cannot be used this way and I will cause more damage.
How do people here apply it?
I read about the cotton ball theory, but I think thats a recipe for bv.

If anyone has had any success with topical creams, please share with us lovely ladies Smile

I am only 21, so I don't think estrace is the right choice for me, but who knows.

Wishing you all much health and happiness

Kate x

kateelizabeth

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Re: topical creams

Post  lolainslacks on Thu Aug 11, 2011 9:38 pm

I'm in the UK too, and I use lidocaine 2%, although it's called 'Instillagel'. You need a prescription for it. It comes in a syringe. You insert the tiny tip off the syringe, and push down on the plunger, and it squeezes the gel inside you. If you need to, and if it's not too painful, you can use your fingers to rub the gel onto the places that hurt the most for you. I have to do this, because my pain is just inside the entrance, and just squeezing the gel inside doesn't work, I have to sort of push the product into the right places. It can be uncomfortable and it's a very messy process, but it's worth it for the pain relief.

I was originally prescribed 5% but I was then told that it's no longer available in the UK at such a strong dosage. You can always ask your GP though.

I'm also taking Gabapentin in pill form, but it's too soon to tell whether or not it's working. However, if that's the medicine you were initially looking for, you could always try using the pill with the gel.

This gel has been a miracle product for me, I really recommend you try it. If so, I hope it works as well for you as it does for me.


Last edited by lolainslacks on Sun Aug 14, 2011 4:29 pm; edited 1 time in total

lolainslacks

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Re: topical creams

Post  kateelizabeth on Sat Aug 13, 2011 1:07 pm

Thank you ever so much, that is really helpful.
I will ask for that gel on tuesday when I get my next appointment.
I am currently on amitriptyline, have been on it for 3 weeks but apparently it can take months to come into effect.
Let me know how you find Gabapentin! I am interested in trying this.

x

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Re: topical creams

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