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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

topical creams

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topical creams

Post  kateelizabeth on Thu Aug 11, 2011 8:23 pm

I really want to try topical Gabapentin, however English doctors aren't willing to contact compounding pharmacies to make such a cream.
I have searched high and low for it, as it has such great reviews on the internet.
Does anyone know where I can purchase it?
Also I am using topical Lidocaine 2% (vagisil) at the moment, it does help numb but I really want to try the 5% as it doesn't do much for the pain.

I have heard people use this internally, however I am scared that vagisil cannot be used this way and I will cause more damage.
How do people here apply it?
I read about the cotton ball theory, but I think thats a recipe for bv.

If anyone has had any success with topical creams, please share with us lovely ladies Smile

I am only 21, so I don't think estrace is the right choice for me, but who knows.

Wishing you all much health and happiness

Kate x


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Re: topical creams

Post  lolainslacks on Thu Aug 11, 2011 9:38 pm

I'm in the UK too, and I use lidocaine 2%, although it's called 'Instillagel'. You need a prescription for it. It comes in a syringe. You insert the tiny tip off the syringe, and push down on the plunger, and it squeezes the gel inside you. If you need to, and if it's not too painful, you can use your fingers to rub the gel onto the places that hurt the most for you. I have to do this, because my pain is just inside the entrance, and just squeezing the gel inside doesn't work, I have to sort of push the product into the right places. It can be uncomfortable and it's a very messy process, but it's worth it for the pain relief.

I was originally prescribed 5% but I was then told that it's no longer available in the UK at such a strong dosage. You can always ask your GP though.

I'm also taking Gabapentin in pill form, but it's too soon to tell whether or not it's working. However, if that's the medicine you were initially looking for, you could always try using the pill with the gel.

This gel has been a miracle product for me, I really recommend you try it. If so, I hope it works as well for you as it does for me.

Last edited by lolainslacks on Sun Aug 14, 2011 4:29 pm; edited 1 time in total


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Re: topical creams

Post  kateelizabeth on Sat Aug 13, 2011 1:07 pm

Thank you ever so much, that is really helpful.
I will ask for that gel on tuesday when I get my next appointment.
I am currently on amitriptyline, have been on it for 3 weeks but apparently it can take months to come into effect.
Let me know how you find Gabapentin! I am interested in trying this.



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