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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


topical creams

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topical creams

Post  kateelizabeth on Thu Aug 11, 2011 8:23 pm

I really want to try topical Gabapentin, however English doctors aren't willing to contact compounding pharmacies to make such a cream.
I have searched high and low for it, as it has such great reviews on the internet.
Does anyone know where I can purchase it?
Also I am using topical Lidocaine 2% (vagisil) at the moment, it does help numb but I really want to try the 5% as it doesn't do much for the pain.

I have heard people use this internally, however I am scared that vagisil cannot be used this way and I will cause more damage.
How do people here apply it?
I read about the cotton ball theory, but I think thats a recipe for bv.

If anyone has had any success with topical creams, please share with us lovely ladies Smile

I am only 21, so I don't think estrace is the right choice for me, but who knows.

Wishing you all much health and happiness

Kate x

kateelizabeth

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Re: topical creams

Post  lolainslacks on Thu Aug 11, 2011 9:38 pm

I'm in the UK too, and I use lidocaine 2%, although it's called 'Instillagel'. You need a prescription for it. It comes in a syringe. You insert the tiny tip off the syringe, and push down on the plunger, and it squeezes the gel inside you. If you need to, and if it's not too painful, you can use your fingers to rub the gel onto the places that hurt the most for you. I have to do this, because my pain is just inside the entrance, and just squeezing the gel inside doesn't work, I have to sort of push the product into the right places. It can be uncomfortable and it's a very messy process, but it's worth it for the pain relief.

I was originally prescribed 5% but I was then told that it's no longer available in the UK at such a strong dosage. You can always ask your GP though.

I'm also taking Gabapentin in pill form, but it's too soon to tell whether or not it's working. However, if that's the medicine you were initially looking for, you could always try using the pill with the gel.

This gel has been a miracle product for me, I really recommend you try it. If so, I hope it works as well for you as it does for me.


Last edited by lolainslacks on Sun Aug 14, 2011 4:29 pm; edited 1 time in total

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Re: topical creams

Post  kateelizabeth on Sat Aug 13, 2011 1:07 pm

Thank you ever so much, that is really helpful.
I will ask for that gel on tuesday when I get my next appointment.
I am currently on amitriptyline, have been on it for 3 weeks but apparently it can take months to come into effect.
Let me know how you find Gabapentin! I am interested in trying this.

x

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Re: topical creams

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