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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Smear Tests

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Smear Tests

Post  MysteryMe on Sat Aug 13, 2011 9:05 pm

Forgive me for my ignorance, but like I said in my other post I have only just been diagnosed and feel that there is so much I don't know. I have read through a lot of posts on here and have noticed that in a lot of cases people's symptoms have been triggered by something such as an infection or bad experience. I don't think this is true in my case as I can never remember a time when it wasn't painful to touch or be touched down there.

I also noticed that lots of you mentioned having Smear Tests/Pap Tests to see what the cause of pain was. Does this mean you do not also suffer from vaginismus/clamping up? I attempted a smear but it was so painful I was in tears and it was completely impossible because I was involuntarily clamping up. Has anyone else experienced this? My doctor has told me a smear test will have to be done and is recommending a general anaesthetic which I am incredibly thankful for, though I understand it's pretty unusual.

I think I am still coming to terms with how unusual my condition is, as even here I haven't read anyone elses' story and thought "That sounds exactly like me" which is a bit disappointing. Still, I guess I'm very lucky I have a doctor who diagnosed me immediately as I can only imagine the distress that not knowing would cause.


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Re: Smear Tests

Post  Mouse on Sun Aug 14, 2011 2:34 am

Hey there and welcome!

A smear test is just that and I don't think they are used for any other purpose. Most of the women on here are unable to have them without extreme pain, if at all. I have generalised unprovoked V. which is pain all day every day without provocation so smear tests aren't an issue. I'm fairly much in the minority. Are you maybe referring to the the cotton tip test? This a mapping of painful areas using a cue tip/cotton bud.

It's would also be unusual to find someone with exactly the same condition. Or at least that's what we've found on here. There are some similarities. We share information to find out what works and I guess because we are all so different it's a bit trial and error.

Good luck with your journey. I know we are a looking for answers.


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Re: Smear Tests

Post  MysteryMe on Sun Aug 14, 2011 9:55 am

Hi! Thank you so much for your reply. Because of my age I had never attempted a Smear until last week, I didn't know what it entailed aside from the basis details. They tried a small speculum (sp?) but that didn't work at all because of the pain, they then tried a much smaller one but not no avail. The gel itself was very painful too.

A cotton swab didn't work either, I think because I just don't trust anyone to touch me there and a cotton swab would probably be one of the worst things anyone could use quite honestly!

I'm glad that my doctor is recommending a smear under general anaesthetic - I do think it's the only way it'll get done. I am so lucky to be an NHS patient. The reason I was having a smear in the first place was to establish why I was bleeding at strange times of the month and why my periods were so irregular; I still need to know why that is. It's a bit scary not knowing what's wrong with you and not being able to talk to anyone about it. I'm so glad I found this site.


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Re: Smear Tests

Post  Sebby (Admin) on Mon Aug 15, 2011 12:00 pm

Hi there and welcolme to the forum

I have had pain with examinations, intercourse and tampons as well as vaginismus all my life, well since I tried tampons at 13 and ended up in tears

I always found it difficult to get smears done and even had to take a valium beforehand. I ended up getting more constant pain about 2 1/2 years ago now and put off my smear. Eventually the Gynea asked me to try when I had my appointment as the pain was low that day.

What he let me do was to insert (with his guidance) the instrument myself (I dont know what its called lol) and also press the lever when it opens a bit inside you. I found this easier as I had more control. Yes it hurt but I breathed and knew that it was only temporary.

If you need to get it done under general anaesthetic then do this as if I had not been able to do it the last time I would have asked to be put under anaesthetic

Good luck


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Post  Aussie on Tue Aug 16, 2011 1:39 am

There are many women who have had pain with sex their whole lives. Read the case studys on www.vulvodynia.com.au. Most on there suffered pain from day one.



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Re: Smear Tests

Post  Sarah001 on Tue Aug 16, 2011 7:32 pm

I'm actually overdue for a smear test and keep getting bombarded with letters about it but I can't face the pain it would cause so I'm leaving it for a while until I (hopefully) have some better days.

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Re: Smear Tests

Post  lisadoc on Tue Aug 16, 2011 9:32 pm

i am also due a smear and am trying to get sorted out to having it as its so important, especially if anyone else is watching eastenders at the minute. have started pyhsio to sort out my pelvic floor so hoping to get that smear sooner rather than later xx


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Re: Smear Tests

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