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» I'm sorry im rambling
Today at 5:49 am by Jet227

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 0

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0


Smear Tests

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Smear Tests

Post  MysteryMe on Sat Aug 13, 2011 9:05 pm

Forgive me for my ignorance, but like I said in my other post I have only just been diagnosed and feel that there is so much I don't know. I have read through a lot of posts on here and have noticed that in a lot of cases people's symptoms have been triggered by something such as an infection or bad experience. I don't think this is true in my case as I can never remember a time when it wasn't painful to touch or be touched down there.

I also noticed that lots of you mentioned having Smear Tests/Pap Tests to see what the cause of pain was. Does this mean you do not also suffer from vaginismus/clamping up? I attempted a smear but it was so painful I was in tears and it was completely impossible because I was involuntarily clamping up. Has anyone else experienced this? My doctor has told me a smear test will have to be done and is recommending a general anaesthetic which I am incredibly thankful for, though I understand it's pretty unusual.

I think I am still coming to terms with how unusual my condition is, as even here I haven't read anyone elses' story and thought "That sounds exactly like me" which is a bit disappointing. Still, I guess I'm very lucky I have a doctor who diagnosed me immediately as I can only imagine the distress that not knowing would cause.

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Re: Smear Tests

Post  Mouse on Sun Aug 14, 2011 2:34 am

Hey there and welcome!

A smear test is just that and I don't think they are used for any other purpose. Most of the women on here are unable to have them without extreme pain, if at all. I have generalised unprovoked V. which is pain all day every day without provocation so smear tests aren't an issue. I'm fairly much in the minority. Are you maybe referring to the the cotton tip test? This a mapping of painful areas using a cue tip/cotton bud.

It's would also be unusual to find someone with exactly the same condition. Or at least that's what we've found on here. There are some similarities. We share information to find out what works and I guess because we are all so different it's a bit trial and error.

Good luck with your journey. I know we are a looking for answers.

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Re: Smear Tests

Post  MysteryMe on Sun Aug 14, 2011 9:55 am

Hi! Thank you so much for your reply. Because of my age I had never attempted a Smear until last week, I didn't know what it entailed aside from the basis details. They tried a small speculum (sp?) but that didn't work at all because of the pain, they then tried a much smaller one but not no avail. The gel itself was very painful too.

A cotton swab didn't work either, I think because I just don't trust anyone to touch me there and a cotton swab would probably be one of the worst things anyone could use quite honestly!

I'm glad that my doctor is recommending a smear under general anaesthetic - I do think it's the only way it'll get done. I am so lucky to be an NHS patient. The reason I was having a smear in the first place was to establish why I was bleeding at strange times of the month and why my periods were so irregular; I still need to know why that is. It's a bit scary not knowing what's wrong with you and not being able to talk to anyone about it. I'm so glad I found this site.

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Re: Smear Tests

Post  Sebby (Admin) on Mon Aug 15, 2011 12:00 pm


Hi there and welcolme to the forum

I have had pain with examinations, intercourse and tampons as well as vaginismus all my life, well since I tried tampons at 13 and ended up in tears

I always found it difficult to get smears done and even had to take a valium beforehand. I ended up getting more constant pain about 2 1/2 years ago now and put off my smear. Eventually the Gynea asked me to try when I had my appointment as the pain was low that day.

What he let me do was to insert (with his guidance) the instrument myself (I dont know what its called lol) and also press the lever when it opens a bit inside you. I found this easier as I had more control. Yes it hurt but I breathed and knew that it was only temporary.

If you need to get it done under general anaesthetic then do this as if I had not been able to do it the last time I would have asked to be put under anaesthetic

Good luck

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Mysteryme

Post  Aussie on Tue Aug 16, 2011 1:39 am

There are many women who have had pain with sex their whole lives. Read the case studys on www.vulvodynia.com.au. Most on there suffered pain from day one.

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Re: Smear Tests

Post  Sarah001 on Tue Aug 16, 2011 7:32 pm

I'm actually overdue for a smear test and keep getting bombarded with letters about it but I can't face the pain it would cause so I'm leaving it for a while until I (hopefully) have some better days.
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Re: Smear Tests

Post  lisadoc on Tue Aug 16, 2011 9:32 pm

i am also due a smear and am trying to get sorted out to having it as its so important, especially if anyone else is watching eastenders at the minute. have started pyhsio to sort out my pelvic floor so hoping to get that smear sooner rather than later xx

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Re: Smear Tests

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