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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Hi - New Member - GF has V and looking to support her

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Hi - New Member - GF has V and looking to support her

Post  asaphx on Tue Aug 16, 2011 7:08 pm

Hi new member here...

I am joining this site in hopes of learning ways to support my new girl friend... We have been dating only a couple of months; and not yet been intimate...

I look forward to hearing some advice and ideas that may be helpful...

Thanks in Advance!


asaphx

Posts : 2
Join date : 2011-08-16
Age : 54
Location : Delaware, USA

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Re: Hi - New Member - GF has V and looking to support her

Post  MysteryMe on Tue Aug 16, 2011 7:36 pm

Good on you! I'm afraid I'm a very new member myself so I cannot offer much in the way of advice but I really wanted to say how much I admire you for signing up and wanting to support your partner.

MysteryMe

Posts : 5
Join date : 2011-08-13

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Re: Hi - New Member - GF has V and looking to support her

Post  asaphx on Tue Aug 16, 2011 7:54 pm

Certainly... I view this as a minor issue that we can work on together and hopefully learn together.

She was scared to death to tell me about it; and I really did not understand it until I did some research today. She desparately wants to have intercourse (as do I), I think in part to please me... but I do not want her to be in any pain. I told her there is no hurry... which I truly mean... We will get there...

I hope there are some posts that discuss ways to enjoy intimacy without intercourse... Some of the obvious ones I know... oral; but I just read that this was also painful for one of the members..

Well... thanks... I look forward to learning about this horrid illness and offering support to my gf.


asaphx

Posts : 2
Join date : 2011-08-16
Age : 54
Location : Delaware, USA

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Re: Hi - New Member - GF has V and looking to support her

Post  Kate on Wed Aug 17, 2011 6:41 am

Hi,
In terms of intimacy, showers together have been the best thing for my boyfriend and I. Touching and kissing is as far as we go, and sometimes I'll do things to please him, but I personally do not like to receive... and he has no issues with any of this. Every now and then we will have intercourse, but what has worked for us is copious amounts of non-sexual intimacy. Lots of hugs, kisses, holding hands etc. Hope that helps.

Kate

Posts : 11
Join date : 2011-07-05
Age : 31
Location : Auckland, New Zealand

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Re: Hi - New Member - GF has V and looking to support her

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