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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Hi - New Member - GF has V and looking to support her

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Hi - New Member - GF has V and looking to support her

Post  asaphx on Tue Aug 16, 2011 7:08 pm

Hi new member here...

I am joining this site in hopes of learning ways to support my new girl friend... We have been dating only a couple of months; and not yet been intimate...

I look forward to hearing some advice and ideas that may be helpful...

Thanks in Advance!


asaphx

Posts : 2
Join date : 2011-08-16
Age : 53
Location : Delaware, USA

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Re: Hi - New Member - GF has V and looking to support her

Post  MysteryMe on Tue Aug 16, 2011 7:36 pm

Good on you! I'm afraid I'm a very new member myself so I cannot offer much in the way of advice but I really wanted to say how much I admire you for signing up and wanting to support your partner.

MysteryMe

Posts : 5
Join date : 2011-08-13

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Re: Hi - New Member - GF has V and looking to support her

Post  asaphx on Tue Aug 16, 2011 7:54 pm

Certainly... I view this as a minor issue that we can work on together and hopefully learn together.

She was scared to death to tell me about it; and I really did not understand it until I did some research today. She desparately wants to have intercourse (as do I), I think in part to please me... but I do not want her to be in any pain. I told her there is no hurry... which I truly mean... We will get there...

I hope there are some posts that discuss ways to enjoy intimacy without intercourse... Some of the obvious ones I know... oral; but I just read that this was also painful for one of the members..

Well... thanks... I look forward to learning about this horrid illness and offering support to my gf.


asaphx

Posts : 2
Join date : 2011-08-16
Age : 53
Location : Delaware, USA

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Re: Hi - New Member - GF has V and looking to support her

Post  Kate on Wed Aug 17, 2011 6:41 am

Hi,
In terms of intimacy, showers together have been the best thing for my boyfriend and I. Touching and kissing is as far as we go, and sometimes I'll do things to please him, but I personally do not like to receive... and he has no issues with any of this. Every now and then we will have intercourse, but what has worked for us is copious amounts of non-sexual intimacy. Lots of hugs, kisses, holding hands etc. Hope that helps.

Kate

Posts : 11
Join date : 2011-07-05
Age : 30
Location : Auckland, New Zealand

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Re: Hi - New Member - GF has V and looking to support her

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