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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 2

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Hi - New Member - GF has V and looking to support her

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Hi - New Member - GF has V and looking to support her

Post  asaphx on Tue Aug 16, 2011 7:08 pm

Hi new member here...

I am joining this site in hopes of learning ways to support my new girl friend... We have been dating only a couple of months; and not yet been intimate...

I look forward to hearing some advice and ideas that may be helpful...

Thanks in Advance!


asaphx

Posts : 2
Join date : 2011-08-16
Age : 53
Location : Delaware, USA

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Re: Hi - New Member - GF has V and looking to support her

Post  MysteryMe on Tue Aug 16, 2011 7:36 pm

Good on you! I'm afraid I'm a very new member myself so I cannot offer much in the way of advice but I really wanted to say how much I admire you for signing up and wanting to support your partner.

MysteryMe

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Re: Hi - New Member - GF has V and looking to support her

Post  asaphx on Tue Aug 16, 2011 7:54 pm

Certainly... I view this as a minor issue that we can work on together and hopefully learn together.

She was scared to death to tell me about it; and I really did not understand it until I did some research today. She desparately wants to have intercourse (as do I), I think in part to please me... but I do not want her to be in any pain. I told her there is no hurry... which I truly mean... We will get there...

I hope there are some posts that discuss ways to enjoy intimacy without intercourse... Some of the obvious ones I know... oral; but I just read that this was also painful for one of the members..

Well... thanks... I look forward to learning about this horrid illness and offering support to my gf.


asaphx

Posts : 2
Join date : 2011-08-16
Age : 53
Location : Delaware, USA

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Re: Hi - New Member - GF has V and looking to support her

Post  Kate on Wed Aug 17, 2011 6:41 am

Hi,
In terms of intimacy, showers together have been the best thing for my boyfriend and I. Touching and kissing is as far as we go, and sometimes I'll do things to please him, but I personally do not like to receive... and he has no issues with any of this. Every now and then we will have intercourse, but what has worked for us is copious amounts of non-sexual intimacy. Lots of hugs, kisses, holding hands etc. Hope that helps.

Kate

Posts : 11
Join date : 2011-07-05
Age : 30
Location : Auckland, New Zealand

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Re: Hi - New Member - GF has V and looking to support her

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