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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Hi - New Member - GF has V and looking to support her

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Hi - New Member - GF has V and looking to support her

Post  asaphx on Tue Aug 16, 2011 7:08 pm

Hi new member here...

I am joining this site in hopes of learning ways to support my new girl friend... We have been dating only a couple of months; and not yet been intimate...

I look forward to hearing some advice and ideas that may be helpful...

Thanks in Advance!


asaphx

Posts : 2
Join date : 2011-08-16
Age : 53
Location : Delaware, USA

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Re: Hi - New Member - GF has V and looking to support her

Post  MysteryMe on Tue Aug 16, 2011 7:36 pm

Good on you! I'm afraid I'm a very new member myself so I cannot offer much in the way of advice but I really wanted to say how much I admire you for signing up and wanting to support your partner.

MysteryMe

Posts : 5
Join date : 2011-08-13

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Re: Hi - New Member - GF has V and looking to support her

Post  asaphx on Tue Aug 16, 2011 7:54 pm

Certainly... I view this as a minor issue that we can work on together and hopefully learn together.

She was scared to death to tell me about it; and I really did not understand it until I did some research today. She desparately wants to have intercourse (as do I), I think in part to please me... but I do not want her to be in any pain. I told her there is no hurry... which I truly mean... We will get there...

I hope there are some posts that discuss ways to enjoy intimacy without intercourse... Some of the obvious ones I know... oral; but I just read that this was also painful for one of the members..

Well... thanks... I look forward to learning about this horrid illness and offering support to my gf.


asaphx

Posts : 2
Join date : 2011-08-16
Age : 53
Location : Delaware, USA

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Re: Hi - New Member - GF has V and looking to support her

Post  Kate on Wed Aug 17, 2011 6:41 am

Hi,
In terms of intimacy, showers together have been the best thing for my boyfriend and I. Touching and kissing is as far as we go, and sometimes I'll do things to please him, but I personally do not like to receive... and he has no issues with any of this. Every now and then we will have intercourse, but what has worked for us is copious amounts of non-sexual intimacy. Lots of hugs, kisses, holding hands etc. Hope that helps.

Kate

Posts : 11
Join date : 2011-07-05
Age : 30
Location : Auckland, New Zealand

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Re: Hi - New Member - GF has V and looking to support her

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