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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

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Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


New here looking for advice

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New here looking for advice

Post  Kriskin on Wed Aug 17, 2011 1:11 pm

Hi,

I was just diagnosed with vulvodynia about 2 weeks ago although I've been experiencing it for years. I'm 22 and I'm finding it hard to deal with, especially when it comes to my boyfriend. It's turned sex into something I often don't want to even try and I feel like that's pretty unfair to him.

I'm having a pretty bad 'flare up' right now and I think it's because I was wearing pads that have scent in them while riding a bike. I'm very swollen and even using toilet paper after peeing hurts a lot. I'm not going to use these pads again.

Any advice on how to bring the swelling and pain down would be greatly appreciated. And what can be used during menstruation? I can't wear tampons or pads. Currently I'm using a clean pair of underwear that I cut up as a home-made pad.

Thanks


Last edited by Kriskin on Wed Aug 17, 2011 1:15 pm; edited 1 time in total (Reason for editing : Added something)

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Re: New here looking for advice

Post  Heidi on Thu Aug 18, 2011 3:35 am

Home-made pads can work pretty well. Try a more absorbent, soft fabric like flannel or cut-up cotten sweat-pants. You can put a slip of waxed paper between a home-made pad and your underwear, too, if you want a little more leakage protection. A sitz bath with epsom salts or baking soda can be soothing (use lukewarm water). You can use a squirt bottle with water to rinse off after urinating instead of TP. You can fill a condom with water and make an "ice pack," just don't let it contact your skin for very long or you can damage the tissue. You can also just run an ice cube over the outer skin. Stop using any product with dyes or fragrances. . . These won't cure you, but each can give temporary relief when you are really raw and inflamed. Oh, some women also use "barrier" creams like A&D ointment. I never had much luck with this but I have friends who have sworn by it.
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Re: New here looking for advice

Post  Mouse on Thu Aug 18, 2011 4:09 am

Hi Kriskin and welcome!

Sorry you have (ended up) started your V journey here Very Happy You are in good company!

Be kind to yourself. Your inability to have sex at the moment is not your fault. I'd suggest finding a therapist if you don't already have one. It can be helpful for your partner as well. I have a sex therapist, she gets it. I have a generalised unprovoked V so my issues are different but finding someone with specific knowledge it really helpful.

Have a look around, there are loads of great tips on here. Do you have a referral to a pain clinic? PT etc?

Any questions just sing out, we are all here to help.

Vicki

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Re: New here looking for advice

Post  Chinchilla on Fri Aug 19, 2011 8:54 pm

Hi Kriskin,

I find that different brands of pads are better than others. For example, I always use Kotex because they are more cloth-like, and I never use Always, because they are more plastic-like. Also I try to rarely use pantiliners, because I find they are worse than pads, and as soon as my period is winding down I quit the pads, too. I'd rather get my underwear a little dirty! tongue I also only wear white, cotton underwear.

When I am having a flare-up, I find that squirting some water (I keep a plastic squeeze bottle filled with water under the bathroom sink) on my skin after peeing really helps. Also, this doesn't always work for me, but it's worth a try when you have a flare-up: Mix a little Aveeno Soothing Bath Treatment powder with some water, keep in the fridge, and dab on to your skin. But keep in mind that if you are continually trying all sorts of different remedies, you could end up irritating the skin more and sometimes it is best to just leave the skin alone until it calms down on it's own (easier said than done, I know!).

Here are some other tips as far as preventing pain that work for me:
-Never use liquid laundry detergent. I use Norwex Ultra Power Plus powder detergent.
-Always wash panties separately from other laundry.
-I have to wear loose pants Mad No skinny jeans for me Sad
-I can't sit on any hard surfaces (like wooden chairs).
-Never drink/eat anything acidic, for example orange juice!!! Pop is also a no-no for me. I go easy on spicy food, too, and drink lots and lots of water with it.
-Sorry if TMI (but come on, this is a website about vulvas, lol) but use your hand and not a washcloth when showering. Washcloths can be very abrasive. For soap, I have found Dove Sensitive Skin to be the best.
-Go commando at night. It is good to let the area air out. This is especially helpful if you are prone to itching as well.

I wish I could give you more advice on calming down flare-ups, but I would say if you can just don't make too many commitments and if you can, just stay home and take it easy until it fades.
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Re: New here looking for advice

Post  Helpwithpain on Wed Aug 24, 2011 6:49 pm

hi there,

I'm new here as well and just posted my first blog. I'm right there with you that I feel terrible that sex is so painful that I almost fear it now. My fiance is so understanding but i still feel bad. I know it's not my fault but I also want him to feel like I want him. I try to suffer through it sometimes but honestly after it's over not only do i feel like i just got stabbed but I know it was terrible... can't do all the fun things I used to and really just want to get back to sex being fun!

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Re: New here looking for advice

Post  Zazu on Fri Aug 26, 2011 12:24 pm

Hi to both Kriskin and Helpwithpain,

Welcome to the forum Smile It's been a huge support to me and the ladies on here are just wonderful! I can relate to both your comments, especially about having sex with your partner/fiance. I'm 25 and have moved from vulvar vestibulitis (also called provoked vestibulodynia or localized vulvodynia) - the one where penetration feels like burning stabbing pain - to also having more generalized, unprovoked vulvodynia. We haven't been able to have sex for over a year now as the pain is too unbearable.
We saw a really great sex therapist/couples' counsellor together and here are some thoughts about it all that I learned. First, it's important to stop trying to have intercourse if it's painful - especially for a set period of time. Take it off the table for, let's say a couple of weeks or a month. Otherwise, you'll begin to associate intimacy with pain, crying and loss and this can have more than just a psychological impact - many women with vulvodynia end up with vaginismus if they repeatedly have painful sex. Your muscles seize up in anticipation of the pain - it only makes sense. Second, try to make specific time for intimacy. We have this myth in our society that if it's not spontaneous it's not genuine - but when you have chronic pain, it's the loving thing to do. Finally, when you are intimate, explore 'outercourse' (foreplay). Most men are perfectly happy with what hands and lips can do. More importantly, it's not really lovemaking if it's causing one person extreme pain, is it? Then, you can gradually reintroduce intercourse if you're able to - but only at those times when you're really aroused, not having a flare up and know it won't hurt. Finally, counseling is really helpful!!
A pelvic floor physiotherapist will help you the most with sex. Hope those thoughts were a bit helpful!
Best to you both!
Katie

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Re: New here looking for advice

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