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» I don't know what to do anymore
Yesterday at 5:05 am by SinclairSassy

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


contraception and the smear

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contraception and the smear

Post  cassyc5 on Fri Aug 19, 2011 7:45 am

Hi girls,

I really need some advice. after speaking at length with the lady i usually see about 'down there' we came to the conclusion that an IUD would be the best form of contraception for me. I have have side effects from several versions of both the combined pill and the other pill, The depo causes me to become low on estrogen which causes the vulvodynia to get worse, and due to very sensitive skin i cant use condoms. While I can't currently have sex, I am slightly paranoid about the high rape rates and if my partner and i decide to go further one night when it isnt so painful. However, she herself could not insert it and so she sent me to the family planning clinic. I was seen by a woman who spoke very poor english. I informed her of my vulvodynia, but she didnt seem to understand. I told her that i couldnt have sex as it caused quite intense pain and that i often get a stinging itch and burn. she didnt seem to understand completely and when on to inform me that in order for them to agree to put it in i had to have a vaginal swab done. she then went on to ask me about the smear. I told her that my doctor had advised against the smear as when the "duckbill" tool is opened it causes alot of pain. she didnt seem to understand and pressured me into having the vaginal swab done at least. she didnt inform me that this would involve the same tool, and when she inserted it i told her that it hurt and could we please take it out. she proceeded to open it and while i was crying in pain took not only the vaginal swab but the smear as well. I left feeling like id been attacked and raped. it felt like someone had honestly ripped me in two down there. I am currently trying to get ahold of the complaints procedure but cant seem to find a contact number or anything. I dont know what else to do. I feel horrible. I cant even look a myself down there at the moment and I constantly want to cry. I know I am probably sounding pathetic and whiny, im sorry, but please I need some advice.

cassyc5

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Re: contraception and the smear

Post  Chinchilla on Fri Aug 19, 2011 9:41 pm

Oh no, what a terrible experience! Sad You do not sound pathetic and whiny, you are very rightly upset! Keep trying to get ahold of whoever you need to to complain about this woman. Don't give up. Also you maybe should look down there a bit just so that if you do end up having to report this woman "doctor" you can say if you saw any damage or not....I'm sorry Sad *hugs*
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Chinchilla

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