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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


contraception and the smear

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contraception and the smear

Post  cassyc5 on Fri Aug 19, 2011 7:45 am

Hi girls,

I really need some advice. after speaking at length with the lady i usually see about 'down there' we came to the conclusion that an IUD would be the best form of contraception for me. I have have side effects from several versions of both the combined pill and the other pill, The depo causes me to become low on estrogen which causes the vulvodynia to get worse, and due to very sensitive skin i cant use condoms. While I can't currently have sex, I am slightly paranoid about the high rape rates and if my partner and i decide to go further one night when it isnt so painful. However, she herself could not insert it and so she sent me to the family planning clinic. I was seen by a woman who spoke very poor english. I informed her of my vulvodynia, but she didnt seem to understand. I told her that i couldnt have sex as it caused quite intense pain and that i often get a stinging itch and burn. she didnt seem to understand completely and when on to inform me that in order for them to agree to put it in i had to have a vaginal swab done. she then went on to ask me about the smear. I told her that my doctor had advised against the smear as when the "duckbill" tool is opened it causes alot of pain. she didnt seem to understand and pressured me into having the vaginal swab done at least. she didnt inform me that this would involve the same tool, and when she inserted it i told her that it hurt and could we please take it out. she proceeded to open it and while i was crying in pain took not only the vaginal swab but the smear as well. I left feeling like id been attacked and raped. it felt like someone had honestly ripped me in two down there. I am currently trying to get ahold of the complaints procedure but cant seem to find a contact number or anything. I dont know what else to do. I feel horrible. I cant even look a myself down there at the moment and I constantly want to cry. I know I am probably sounding pathetic and whiny, im sorry, but please I need some advice.

cassyc5

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Re: contraception and the smear

Post  Chinchilla on Fri Aug 19, 2011 9:41 pm

Oh no, what a terrible experience! Sad You do not sound pathetic and whiny, you are very rightly upset! Keep trying to get ahold of whoever you need to to complain about this woman. Don't give up. Also you maybe should look down there a bit just so that if you do end up having to report this woman "doctor" you can say if you saw any damage or not....I'm sorry Sad *hugs*
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Chinchilla

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