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» 7 months since the diagnosis
Thu Aug 16, 2018 9:09 am by Gaby

» Did going off antidepressants cause this?
Wed Aug 15, 2018 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Is There A Natural Cure For Volvodynia

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Is There A Natural Cure For Volvodynia

Post  viollette on Sun Aug 21, 2011 6:20 pm

Hi, just joined this forum today I was just wondering if there are more natural cures for volvodynia? I have tried taking St. John's Wort but it made my problem ''flare up '' even more.I just don't know how good it would be to keep taking antidepressants for the rest of my life science i don't see my problem going away any time soon.The Dr. that i see for this has never talk about alternatives to drugs? Has anyone had any luck with something other than drugs.Maybe vitamins or accupunture if so please give some suggestions.


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would suggest

Post  Melissa777 on Sun Aug 21, 2011 8:38 pm

seeing a really good acupuncturist- and many times the herbal supplements they give you do help


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try acupuncture

Post  Melissa777 on Sun Aug 21, 2011 8:39 pm

find a good acupuncturist
honestly treatment depends on what caused your vv
and whats going on
a good vulvo vag specialist cant hurt either


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Re: Is There A Natural Cure For Volvodynia

Post  Heidi on Mon Aug 22, 2011 3:04 am

Bio feedback for pelvic floor dysfunction has helped a lot of women (see a physical therapist who specializes in pelvic floor dysfunction).
The low oxalate diet with calcium citrate supplementation has helped a lot of women also. It has been a huge help for me (about 80% reduction in pain with touch and almost 100% reduction in the burning/itching).
These are the most natural cures that I know of that really have helped a significant number of women through the Vulvar Pain Foundation.


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Re: Is There A Natural Cure For Volvodynia

Post  BlondeLawyer on Mon Aug 22, 2011 12:51 pm

I have tried biofeedback and just about everything else. I just went and saw my gynocologist.
I know for me that it is SEX that aggravates it. So Im now using estrogen cream and not having sex for a month to really rule out that it just needs some time to heal.


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Re: Is There A Natural Cure For Volvodynia

Post  Heidi on Mon Aug 29, 2011 7:08 pm

I forgot to add that a lot of women are helped with skin stabilization therapies that were pioneered by Dr. Solomons and the Vulvar Pain Foundation's Pain Project. NAG (N-Acetyl-Glucos-amine) and HTO (hexadecyl tetradecenoyl oxtodecanoate) are supplements that many women have found helpful. If you click on the following link you'll find a short article on effective treatments and the order/time you are encouraged to try each one before adding the next treatment (you add it to the others, you don't stop it--only ox-absorb should be discontinued in this protocol if you do not see improvement over a month.) I will also add it took almost six years for me to reach my full relief, not 1 year as Dr. Solomons suggests in this article.


Hope this helpls.


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Post  red on Tue Aug 30, 2011 2:00 am

Hi there

Peope have been saying on this blog that they get acupuncture for there pain relief? i would just like to know more about what this entails

Where do they stick the needles? how do you find an acupuncturist who has heard of V?



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Post  let's kick this on Wed May 18, 2016 2:59 pm

Hi Red,

The needles are not inserted in your Vjj, I thought the same thing. I did 6 sessions it did not help my V.  I have tried lots of treatments the best so far for me is the vaginal probe used with tens machine. I'm still in pain but learning to cope.

let's kick this

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Re: Is There A Natural Cure For Volvodynia

Post  Minneapolis on Sat Jul 09, 2016 4:46 pm

I'm on a weekly acupuncture routine and my Pelvic Floor Dysfunction has been reduced significantly! I've only had 3 sessions but my pain went from a 6 to a 2. I can have sex for about 30 minutes now before I have to give up, whereas it used to be around 10. Granted, my most problematic pain now is my vulvodynia. I have redness that is stubborn as hell. For that, I apply coconut oil at least 3 times a day and ingest around 2 tablespoons daily. Redness has gone down slightly but not quite enough.
This week I'm adding pelvic floor exercises.
I've been dealing with this for almost 4 years and alternative methods have helped me significantly more than the estrogen cream.
Hope this helps!


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Re: Is There A Natural Cure For Volvodynia

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