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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Is There A Natural Cure For Volvodynia

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Is There A Natural Cure For Volvodynia

Post  viollette on Sun Aug 21, 2011 6:20 pm

Hi, just joined this forum today I was just wondering if there are more natural cures for volvodynia? I have tried taking St. John's Wort but it made my problem ''flare up '' even more.I just don't know how good it would be to keep taking antidepressants for the rest of my life science i don't see my problem going away any time soon.The Dr. that i see for this has never talk about alternatives to drugs? Has anyone had any luck with something other than drugs.Maybe vitamins or accupunture if so please give some suggestions.

viollette

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Age : 39
Location : Saginaw Mi.

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would suggest

Post  Melissa777 on Sun Aug 21, 2011 8:38 pm

seeing a really good acupuncturist- and many times the herbal supplements they give you do help
=)


Melissa777

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try acupuncture

Post  Melissa777 on Sun Aug 21, 2011 8:39 pm

find a good acupuncturist
honestly treatment depends on what caused your vv
and whats going on
a good vulvo vag specialist cant hurt either

Melissa777

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Re: Is There A Natural Cure For Volvodynia

Post  Heidi on Mon Aug 22, 2011 3:04 am

Bio feedback for pelvic floor dysfunction has helped a lot of women (see a physical therapist who specializes in pelvic floor dysfunction).
The low oxalate diet with calcium citrate supplementation has helped a lot of women also. It has been a huge help for me (about 80% reduction in pain with touch and almost 100% reduction in the burning/itching).
These are the most natural cures that I know of that really have helped a significant number of women through the Vulvar Pain Foundation.
Heidi
http://lowoxalatefamily.wordpress.com

Heidi

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Re: Is There A Natural Cure For Volvodynia

Post  BlondeLawyer on Mon Aug 22, 2011 12:51 pm

I have tried biofeedback and just about everything else. I just went and saw my gynocologist.
I know for me that it is SEX that aggravates it. So Im now using estrogen cream and not having sex for a month to really rule out that it just needs some time to heal.

BlondeLawyer

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Re: Is There A Natural Cure For Volvodynia

Post  Heidi on Mon Aug 29, 2011 7:08 pm

I forgot to add that a lot of women are helped with skin stabilization therapies that were pioneered by Dr. Solomons and the Vulvar Pain Foundation's Pain Project. NAG (N-Acetyl-Glucos-amine) and HTO (hexadecyl tetradecenoyl oxtodecanoate) are supplements that many women have found helpful. If you click on the following link you'll find a short article on effective treatments and the order/time you are encouraged to try each one before adding the next treatment (you add it to the others, you don't stop it--only ox-absorb should be discontinued in this protocol if you do not see improvement over a month.) I will also add it took almost six years for me to reach my full relief, not 1 year as Dr. Solomons suggests in this article.

http://thevpfoundation.org/effective_treatment.htm

Hope this helpls.
Heidi
http://lowoxalatefamily.wordpress.com

Heidi

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acupuncture

Post  red on Tue Aug 30, 2011 2:00 am

Hi there

Peope have been saying on this blog that they get acupuncture for there pain relief? i would just like to know more about what this entails

Where do they stick the needles? how do you find an acupuncturist who has heard of V?

thanks

red

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Acupuncture

Post  let's kick this on Wed May 18, 2016 2:59 pm

Hi Red,

The needles are not inserted in your Vjj, I thought the same thing. I did 6 sessions it did not help my V.  I have tried lots of treatments the best so far for me is the vaginal probe used with tens machine. I'm still in pain but learning to cope.

let's kick this

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Re: Is There A Natural Cure For Volvodynia

Post  Minneapolis on Sat Jul 09, 2016 4:46 pm

I'm on a weekly acupuncture routine and my Pelvic Floor Dysfunction has been reduced significantly! I've only had 3 sessions but my pain went from a 6 to a 2. I can have sex for about 30 minutes now before I have to give up, whereas it used to be around 10. Granted, my most problematic pain now is my vulvodynia. I have redness that is stubborn as hell. For that, I apply coconut oil at least 3 times a day and ingest around 2 tablespoons daily. Redness has gone down slightly but not quite enough.
This week I'm adding pelvic floor exercises.
I've been dealing with this for almost 4 years and alternative methods have helped me significantly more than the estrogen cream.
Hope this helps!

Minneapolis

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Re: Is There A Natural Cure For Volvodynia

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