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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Is There A Natural Cure For Volvodynia

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Is There A Natural Cure For Volvodynia

Post  viollette on Sun Aug 21, 2011 6:20 pm

Hi, just joined this forum today I was just wondering if there are more natural cures for volvodynia? I have tried taking St. John's Wort but it made my problem ''flare up '' even more.I just don't know how good it would be to keep taking antidepressants for the rest of my life science i don't see my problem going away any time soon.The Dr. that i see for this has never talk about alternatives to drugs? Has anyone had any luck with something other than drugs.Maybe vitamins or accupunture if so please give some suggestions.

viollette

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would suggest

Post  Melissa777 on Sun Aug 21, 2011 8:38 pm

seeing a really good acupuncturist- and many times the herbal supplements they give you do help
=)


Melissa777

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try acupuncture

Post  Melissa777 on Sun Aug 21, 2011 8:39 pm

find a good acupuncturist
honestly treatment depends on what caused your vv
and whats going on
a good vulvo vag specialist cant hurt either

Melissa777

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Re: Is There A Natural Cure For Volvodynia

Post  Heidi on Mon Aug 22, 2011 3:04 am

Bio feedback for pelvic floor dysfunction has helped a lot of women (see a physical therapist who specializes in pelvic floor dysfunction).
The low oxalate diet with calcium citrate supplementation has helped a lot of women also. It has been a huge help for me (about 80% reduction in pain with touch and almost 100% reduction in the burning/itching).
These are the most natural cures that I know of that really have helped a significant number of women through the Vulvar Pain Foundation.
Heidi
http://lowoxalatefamily.wordpress.com

Heidi

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Re: Is There A Natural Cure For Volvodynia

Post  BlondeLawyer on Mon Aug 22, 2011 12:51 pm

I have tried biofeedback and just about everything else. I just went and saw my gynocologist.
I know for me that it is SEX that aggravates it. So Im now using estrogen cream and not having sex for a month to really rule out that it just needs some time to heal.

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Re: Is There A Natural Cure For Volvodynia

Post  Heidi on Mon Aug 29, 2011 7:08 pm

I forgot to add that a lot of women are helped with skin stabilization therapies that were pioneered by Dr. Solomons and the Vulvar Pain Foundation's Pain Project. NAG (N-Acetyl-Glucos-amine) and HTO (hexadecyl tetradecenoyl oxtodecanoate) are supplements that many women have found helpful. If you click on the following link you'll find a short article on effective treatments and the order/time you are encouraged to try each one before adding the next treatment (you add it to the others, you don't stop it--only ox-absorb should be discontinued in this protocol if you do not see improvement over a month.) I will also add it took almost six years for me to reach my full relief, not 1 year as Dr. Solomons suggests in this article.

http://thevpfoundation.org/effective_treatment.htm

Hope this helpls.
Heidi
http://lowoxalatefamily.wordpress.com

Heidi

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acupuncture

Post  red on Tue Aug 30, 2011 2:00 am

Hi there

Peope have been saying on this blog that they get acupuncture for there pain relief? i would just like to know more about what this entails

Where do they stick the needles? how do you find an acupuncturist who has heard of V?

thanks

red

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Acupuncture

Post  let's kick this on Wed May 18, 2016 2:59 pm

Hi Red,

The needles are not inserted in your Vjj, I thought the same thing. I did 6 sessions it did not help my V.  I have tried lots of treatments the best so far for me is the vaginal probe used with tens machine. I'm still in pain but learning to cope.

let's kick this

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Re: Is There A Natural Cure For Volvodynia

Post  Minneapolis on Sat Jul 09, 2016 4:46 pm

I'm on a weekly acupuncture routine and my Pelvic Floor Dysfunction has been reduced significantly! I've only had 3 sessions but my pain went from a 6 to a 2. I can have sex for about 30 minutes now before I have to give up, whereas it used to be around 10. Granted, my most problematic pain now is my vulvodynia. I have redness that is stubborn as hell. For that, I apply coconut oil at least 3 times a day and ingest around 2 tablespoons daily. Redness has gone down slightly but not quite enough.
This week I'm adding pelvic floor exercises.
I've been dealing with this for almost 4 years and alternative methods have helped me significantly more than the estrogen cream.
Hope this helps!

Minneapolis

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Re: Is There A Natural Cure For Volvodynia

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