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» I don't know what to do anymore
Yesterday at 5:05 am by SinclairSassy

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Is There A Natural Cure For Volvodynia

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Is There A Natural Cure For Volvodynia

Post  viollette on Sun Aug 21, 2011 6:20 pm

Hi, just joined this forum today I was just wondering if there are more natural cures for volvodynia? I have tried taking St. John's Wort but it made my problem ''flare up '' even more.I just don't know how good it would be to keep taking antidepressants for the rest of my life science i don't see my problem going away any time soon.The Dr. that i see for this has never talk about alternatives to drugs? Has anyone had any luck with something other than drugs.Maybe vitamins or accupunture if so please give some suggestions.

viollette

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Age : 40
Location : Saginaw Mi.

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would suggest

Post  Melissa777 on Sun Aug 21, 2011 8:38 pm

seeing a really good acupuncturist- and many times the herbal supplements they give you do help
=)


Melissa777

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try acupuncture

Post  Melissa777 on Sun Aug 21, 2011 8:39 pm

find a good acupuncturist
honestly treatment depends on what caused your vv
and whats going on
a good vulvo vag specialist cant hurt either

Melissa777

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Re: Is There A Natural Cure For Volvodynia

Post  Heidi on Mon Aug 22, 2011 3:04 am

Bio feedback for pelvic floor dysfunction has helped a lot of women (see a physical therapist who specializes in pelvic floor dysfunction).
The low oxalate diet with calcium citrate supplementation has helped a lot of women also. It has been a huge help for me (about 80% reduction in pain with touch and almost 100% reduction in the burning/itching).
These are the most natural cures that I know of that really have helped a significant number of women through the Vulvar Pain Foundation.
Heidi
http://lowoxalatefamily.wordpress.com

Heidi

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Re: Is There A Natural Cure For Volvodynia

Post  BlondeLawyer on Mon Aug 22, 2011 12:51 pm

I have tried biofeedback and just about everything else. I just went and saw my gynocologist.
I know for me that it is SEX that aggravates it. So Im now using estrogen cream and not having sex for a month to really rule out that it just needs some time to heal.

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Re: Is There A Natural Cure For Volvodynia

Post  Heidi on Mon Aug 29, 2011 7:08 pm

I forgot to add that a lot of women are helped with skin stabilization therapies that were pioneered by Dr. Solomons and the Vulvar Pain Foundation's Pain Project. NAG (N-Acetyl-Glucos-amine) and HTO (hexadecyl tetradecenoyl oxtodecanoate) are supplements that many women have found helpful. If you click on the following link you'll find a short article on effective treatments and the order/time you are encouraged to try each one before adding the next treatment (you add it to the others, you don't stop it--only ox-absorb should be discontinued in this protocol if you do not see improvement over a month.) I will also add it took almost six years for me to reach my full relief, not 1 year as Dr. Solomons suggests in this article.

http://thevpfoundation.org/effective_treatment.htm

Hope this helpls.
Heidi
http://lowoxalatefamily.wordpress.com

Heidi

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acupuncture

Post  red on Tue Aug 30, 2011 2:00 am

Hi there

Peope have been saying on this blog that they get acupuncture for there pain relief? i would just like to know more about what this entails

Where do they stick the needles? how do you find an acupuncturist who has heard of V?

thanks

red

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Acupuncture

Post  let's kick this on Wed May 18, 2016 2:59 pm

Hi Red,

The needles are not inserted in your Vjj, I thought the same thing. I did 6 sessions it did not help my V.  I have tried lots of treatments the best so far for me is the vaginal probe used with tens machine. I'm still in pain but learning to cope.

let's kick this

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Re: Is There A Natural Cure For Volvodynia

Post  Minneapolis on Sat Jul 09, 2016 4:46 pm

I'm on a weekly acupuncture routine and my Pelvic Floor Dysfunction has been reduced significantly! I've only had 3 sessions but my pain went from a 6 to a 2. I can have sex for about 30 minutes now before I have to give up, whereas it used to be around 10. Granted, my most problematic pain now is my vulvodynia. I have redness that is stubborn as hell. For that, I apply coconut oil at least 3 times a day and ingest around 2 tablespoons daily. Redness has gone down slightly but not quite enough.
This week I'm adding pelvic floor exercises.
I've been dealing with this for almost 4 years and alternative methods have helped me significantly more than the estrogen cream.
Hope this helps!

Minneapolis

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Re: Is There A Natural Cure For Volvodynia

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