Vulvodynia Support
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» Hope to all my suffering ladies
I'm new and have no idea if what i'm feeling is normal? help! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
I'm new and have no idea if what i'm feeling is normal? help! EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
I'm new and have no idea if what i'm feeling is normal? help! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
I'm new and have no idea if what i'm feeling is normal? help! EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
I'm new and have no idea if what i'm feeling is normal? help! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
I'm new and have no idea if what i'm feeling is normal? help! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
I'm new and have no idea if what i'm feeling is normal? help! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
I'm new and have no idea if what i'm feeling is normal? help! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
I'm new and have no idea if what i'm feeling is normal? help! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


I'm new and have no idea if what i'm feeling is normal? help!

4 posters

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Post  Helpwithpain Wed Aug 24, 2011 4:47 pm

I have been with my fiance (getting married next month!) for over 3.5 years - we used to have an amazing sex life and then all of a sudden 2 years ago sex went from fun to almost excruciating. I didn't know if something was wrong or if I just was being wierd...

I went to my gyno and since I had no idea what was going on or really honestly how to describe it I agreed with him that it was pelvic pain. He found endometrisosis and we did lap surgery and I thought all would be good in the world again. 1.5 years later things are definitely not better and in fact are getting worse... lately i've even noticed pain putting in a tampon (which I've been doing fine for 20+years)

I just went to a new gyno this morning and she mentioned VV and I scheduled an appointment with a specialist... I honestly had never even heard of it before this morning. I really just want to get back to enjoying my fiance and sex - he's so understanding but I feel terrible because it's now at a point where I somewhat fear sex... is this normal? Does it ever go away?

Helpwithpain

Posts : 3
Join date : 2011-08-24

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Post  Sarah001 Thu Aug 25, 2011 11:58 am

Hi and welcome. It does sound like VV and if you haven't already stumbled across it there's a great site called www.vulvarvestibulitisrelief.com where lots of ladies have posted their case studies and treatments tried. Anyway have a good read of the threads here and feel free to chat to us about anything.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  Melissa777 Thu Aug 25, 2011 5:48 pm

please be careful with some of the info on that site. such as BORIC ACID
it states on that site that if you have cylcic VV than to use boric acid suppositories 2 times a day for up to four months
NO NO NO
thats what caused my VV

it completely gave me dermatitis.

so just be careful following peoples advice

Melissa777

Posts : 55
Join date : 2011-07-10

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Post  Zazu Fri Aug 26, 2011 12:32 pm

Hi hon
I also have vulvar vestibulitis, endometriosis and am getting symptoms of generalized vulvodynia now. My fiance and I also had great sex at the beginning and haven't been able to for the last year. If it hurts you (aka burning, searing pain every time you try penetration), of COURSE you're afraid of it!
Please don't continue trying if it hurts. This seems to be the day where I post all my sex advice on every thread, but I'm going to put it again here. I just hope that all these hard-learned lessons might help someone else, although I expect you probably already know most of it!
We saw a really great sex therapist/couples' counsellor together and here are some thoughts about it all that I learned. First, it's important to stop trying to have intercourse if it's painful - especially for a set period of time. Take it off the table for, let's say a couple of weeks or a month. Otherwise, you'll begin to associate intimacy with pain, crying and loss and this can have more than just a psychological impact - many women with vulvodynia end up with vaginismus if they repeatedly have painful sex. Your muscles seize up in anticipation of the pain - it only makes sense. Second, try to make specific time for intimacy. We have this myth in our society that if it's not spontaneous it's not genuine - but when you have chronic pain, it's the loving thing to do. Finally, when you are intimate, explore 'outercourse' (foreplay). Most men are perfectly happy with what hands and lips can do. More importantly, it's not really lovemaking if it's causing one person extreme pain, is it? Then, you can gradually reintroduce intercourse if you're able to - but only at those times when you're really aroused, not having a flare up and know it won't hurt. Finally, counseling is really helpful!!
A pelvic floor physiotherapist will help you the most with sex. You can also try the usual medical treatments: Lidocaine, then gabapentin or amitriptyline compound creams, and then taking gaba or ami in tablet form to find pain relief.
Best to you!
Katie

Zazu

Posts : 64
Join date : 2011-04-05
Location : Canada

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