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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


cold laser therapy seems to be working

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cold laser therapy seems to be working

Post  Melissa777 on Tue Aug 23, 2011 8:46 pm

so some exciting news (except i had a slight flare up on L side that lasted a few days)
the cold laser therapy seems to be working.. Ive only had 3 so far
but almost all the RED areas are gone
and my right side is starting to feel NORMAL.

I am not sure if this therapy is avail where you live, but I know they make the laser my Chiropractor uses in Sweden. I live in USA

basically how the treatment works
doc sets up laser for me and leaves room
I undress waist down, lay on the table, and use a pillow under my hips
let the laser beams directly hit my areas that need to be improved on
and whalaaaa its working

at the same time i do acupuncture
take phellostatin and si miao wan

But dont take those supplements unless your diagnosed with damp heat in lower area

I also am doing candida diet
agrisept
coconut oil
mineral supplement
vit d-3
fem dophilus
and probiotic for vaginal support with no FOS from renew life

finally noticing improvement... thank you jesus

of course- and prayer and healing through prayer
so stay positive

Im not really using anything topical
i find most dont work
except maybe my estroil topical compunded cream.... but thats really just to thicken skin


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Re: cold laser therapy seems to be working

Post  Sarah001 on Thu Aug 25, 2011 12:01 pm

That's great, I'm not sure if what I had done around my hips is the same thing but I used to have some for of treatment on the lumps of knotted tissue behind my hips and it was designed to break it up a bit and reduce inflammation. In my case the results were short lived but I never got rid of the perpetuating factors so it couldn't possibly last long. Good luck and keep us all posted.
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Sarah001

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Re: cold laser therapy seems to be working

Post  Melissa777 on Thu Aug 25, 2011 5:45 pm

Cold laser or Low laser therapy can work. There are many lasers out there.
It depends though on HOW deep the laser has to penetrate and how strong the laser is. There are all levels out there. My chiros laser was VERY expensive and a very strong one.
I used it in the past when I broke my toe- and it healed my broken toe in 2 weeks - normally broken toes take 6 weeks- a few months to heal.

here is the catch
if you have a lot of MUSCLE mass on the area your getting cold laser- it may not work... because the light can't penetrate through that as well.

But since its my Vulva- wow I noticed a difference in only a few short treatments. I need at least 12 treatments to see most improvement, i have had 4

I looked with my mirror- redness is almost all gone

NOW here is the thing if your VV is caused by possibly bacteria or yeast even if they can't diagnose it- this type of laser- at a strong strength will work.

Its proven to work on killing- hard to kill toe nail fungus.

and its also shown to calm down nerve endings...
so all and all its def working- but you have to do a LOT of treatments before seeing results

Melissa777

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10th treatment and feel so much better

Post  Melissa777 on Mon Sep 05, 2011 12:20 am

So yesterday (Sat) was my 10th cold laser treatment. Guess what I feel and look so much better. In fact, I went in for a check up with my NP and she said I am not as RED or INFLAMED as I was in July. I can actually touch my vestibule area now without it really bothering me... and able to use tampons! =)

Also acupuncture and the herbal Phellostatin is def working. Im also doing Adya Clarity for heavy metal detox =)

Ill keep you all posted- but so far so good

I also ordered my free sample of neogyn, ill give it a try to see if it helps
Im not using my estra cream as much anymore

=) yaya

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Re: cold laser therapy seems to be working

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