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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

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New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

cold laser therapy seems to be working

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cold laser therapy seems to be working

Post  Melissa777 on Tue Aug 23, 2011 8:46 pm

so some exciting news (except i had a slight flare up on L side that lasted a few days)
the cold laser therapy seems to be working.. Ive only had 3 so far
but almost all the RED areas are gone
and my right side is starting to feel NORMAL.

I am not sure if this therapy is avail where you live, but I know they make the laser my Chiropractor uses in Sweden. I live in USA

basically how the treatment works
doc sets up laser for me and leaves room
I undress waist down, lay on the table, and use a pillow under my hips
let the laser beams directly hit my areas that need to be improved on
and whalaaaa its working

at the same time i do acupuncture
take phellostatin and si miao wan

But dont take those supplements unless your diagnosed with damp heat in lower area

I also am doing candida diet
coconut oil
mineral supplement
vit d-3
fem dophilus
and probiotic for vaginal support with no FOS from renew life

finally noticing improvement... thank you jesus

of course- and prayer and healing through prayer
so stay positive

Im not really using anything topical
i find most dont work
except maybe my estroil topical compunded cream.... but thats really just to thicken skin


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Re: cold laser therapy seems to be working

Post  Sarah001 on Thu Aug 25, 2011 12:01 pm

That's great, I'm not sure if what I had done around my hips is the same thing but I used to have some for of treatment on the lumps of knotted tissue behind my hips and it was designed to break it up a bit and reduce inflammation. In my case the results were short lived but I never got rid of the perpetuating factors so it couldn't possibly last long. Good luck and keep us all posted.

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Age : 44
Location : UK

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Re: cold laser therapy seems to be working

Post  Melissa777 on Thu Aug 25, 2011 5:45 pm

Cold laser or Low laser therapy can work. There are many lasers out there.
It depends though on HOW deep the laser has to penetrate and how strong the laser is. There are all levels out there. My chiros laser was VERY expensive and a very strong one.
I used it in the past when I broke my toe- and it healed my broken toe in 2 weeks - normally broken toes take 6 weeks- a few months to heal.

here is the catch
if you have a lot of MUSCLE mass on the area your getting cold laser- it may not work... because the light can't penetrate through that as well.

But since its my Vulva- wow I noticed a difference in only a few short treatments. I need at least 12 treatments to see most improvement, i have had 4

I looked with my mirror- redness is almost all gone

NOW here is the thing if your VV is caused by possibly bacteria or yeast even if they can't diagnose it- this type of laser- at a strong strength will work.

Its proven to work on killing- hard to kill toe nail fungus.

and its also shown to calm down nerve endings...
so all and all its def working- but you have to do a LOT of treatments before seeing results


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10th treatment and feel so much better

Post  Melissa777 on Mon Sep 05, 2011 12:20 am

So yesterday (Sat) was my 10th cold laser treatment. Guess what I feel and look so much better. In fact, I went in for a check up with my NP and she said I am not as RED or INFLAMED as I was in July. I can actually touch my vestibule area now without it really bothering me... and able to use tampons! =)

Also acupuncture and the herbal Phellostatin is def working. Im also doing Adya Clarity for heavy metal detox =)

Ill keep you all posted- but so far so good

I also ordered my free sample of neogyn, ill give it a try to see if it helps
Im not using my estra cream as much anymore

=) yaya


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Re: cold laser therapy seems to be working

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