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Yesterday at 5:05 am by SinclairSassy

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» Cleveland Clinic - Pain Management, Weston, FL
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» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


cold laser therapy seems to be working

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cold laser therapy seems to be working

Post  Melissa777 on Tue Aug 23, 2011 8:46 pm

so some exciting news (except i had a slight flare up on L side that lasted a few days)
the cold laser therapy seems to be working.. Ive only had 3 so far
but almost all the RED areas are gone
and my right side is starting to feel NORMAL.

I am not sure if this therapy is avail where you live, but I know they make the laser my Chiropractor uses in Sweden. I live in USA

basically how the treatment works
doc sets up laser for me and leaves room
I undress waist down, lay on the table, and use a pillow under my hips
let the laser beams directly hit my areas that need to be improved on
and whalaaaa its working

at the same time i do acupuncture
take phellostatin and si miao wan

But dont take those supplements unless your diagnosed with damp heat in lower area

I also am doing candida diet
agrisept
coconut oil
mineral supplement
vit d-3
fem dophilus
and probiotic for vaginal support with no FOS from renew life

finally noticing improvement... thank you jesus

of course- and prayer and healing through prayer
so stay positive

Im not really using anything topical
i find most dont work
except maybe my estroil topical compunded cream.... but thats really just to thicken skin


Melissa777

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Re: cold laser therapy seems to be working

Post  Sarah001 on Thu Aug 25, 2011 12:01 pm

That's great, I'm not sure if what I had done around my hips is the same thing but I used to have some for of treatment on the lumps of knotted tissue behind my hips and it was designed to break it up a bit and reduce inflammation. In my case the results were short lived but I never got rid of the perpetuating factors so it couldn't possibly last long. Good luck and keep us all posted.
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Sarah001

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Age : 44
Location : UK

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Re: cold laser therapy seems to be working

Post  Melissa777 on Thu Aug 25, 2011 5:45 pm

Cold laser or Low laser therapy can work. There are many lasers out there.
It depends though on HOW deep the laser has to penetrate and how strong the laser is. There are all levels out there. My chiros laser was VERY expensive and a very strong one.
I used it in the past when I broke my toe- and it healed my broken toe in 2 weeks - normally broken toes take 6 weeks- a few months to heal.

here is the catch
if you have a lot of MUSCLE mass on the area your getting cold laser- it may not work... because the light can't penetrate through that as well.

But since its my Vulva- wow I noticed a difference in only a few short treatments. I need at least 12 treatments to see most improvement, i have had 4

I looked with my mirror- redness is almost all gone

NOW here is the thing if your VV is caused by possibly bacteria or yeast even if they can't diagnose it- this type of laser- at a strong strength will work.

Its proven to work on killing- hard to kill toe nail fungus.

and its also shown to calm down nerve endings...
so all and all its def working- but you have to do a LOT of treatments before seeing results

Melissa777

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10th treatment and feel so much better

Post  Melissa777 on Mon Sep 05, 2011 12:20 am

So yesterday (Sat) was my 10th cold laser treatment. Guess what I feel and look so much better. In fact, I went in for a check up with my NP and she said I am not as RED or INFLAMED as I was in July. I can actually touch my vestibule area now without it really bothering me... and able to use tampons! =)

Also acupuncture and the herbal Phellostatin is def working. Im also doing Adya Clarity for heavy metal detox =)

Ill keep you all posted- but so far so good

I also ordered my free sample of neogyn, ill give it a try to see if it helps
Im not using my estra cream as much anymore

=) yaya

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Re: cold laser therapy seems to be working

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