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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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New member - Glad to find this connection

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New member - Glad to find this connection

Post  Laura on Wed Aug 24, 2011 7:41 pm

I discovered this site yesterday and like most people here, feel so reassured that I'm not the only person in the world trying to live around this pain. My symptoms started after I was diagnosed with interstitial cystitis almost 20 years ago. Since then, the I.C. smptoms have abated but i have Vulvodynia flare-ups for no apparent reason lasting from a few days to months. So many comments here have resonated with me. Did I do something to cause this? How do I prevent my life from revolving around this? How do I stay engaged in the world when I just want to curl up, not talk to anyone, and stop hurting? Have seen many doctors, received varying diagnoses. Tried lidocaine ointment, biofeedback, diet changes all with no effect. Exercise helps mentally, but when I need it most it's the last thing I feel like doing. I'm 52, live in Arizona. This group feels like a lifeline.

Laura

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Re: New member - Glad to find this connection

Post  Sarah001 on Thu Aug 25, 2011 11:56 am

Hi Laura and welcome. Hopefully you'll find some interesting threads on here and feel free to discuss anything and everything with us all, we're like one big family on here!
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Re: New member - Glad to find this connection

Post  Zazu on Fri Aug 26, 2011 12:11 pm

Hi Laura and welcome Smile
I hope you find lots of support and advice on here - and that it helps you feel connected. I identify with a lot of the questions you mentioned, too. In terms of what you've tried - it doesn't sound like you've taken the 'drugs' route yet. A lot of women understandably are hesitant to start taking amitriptyline, gabapentin, etc. etc. One thing you might want to talk to your doctor about is a compound cream where they put one of the nerve calming drugs into an ointment or gel. Right now I'm using a 6% gabapentin, 5% lidocaine in diffusimax gel It's a good intermediate option.
Best to you! Be well!
Katie

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Katie + Laura

Post  Aussie on Mon Aug 29, 2011 3:17 am

Could you please tell me the base that is in your cream. Is it compounded with something non irritating like parrafin wax? I want to try this but not yet available in Aus. My doc said he will do up the script if I can find what base others are using. I also am interested in the Ami/Balofcen (sp) gel. Nerve med/muscle relaxant compound.

Laura, you have come to the right place. I suffer with IC too. How did you resolve your symptoms? at the moment I am doing IC diet, oxytrol patch, heaps of water and heat and have ordered cystoprotek and prelief for meals.

Glad to hear this part has subsided for you (remission?! Smile) dealing with both IC and V is tough, very tough!

Claire

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Re: New member - Glad to find this connection

Post  thiemli on Wed Sep 21, 2011 6:39 pm

I am new here too and am looking to see if anyone had success with the neogyn cream? I have seen several docs and all say to stay away from all creams. I have tried them all i feel like. I do think my symptons subside when I use nothing but sometimes unbearable. I am a mother of 4 small children and feel like i can't take care of them when I am in pain. It is terrible. I know it is worse for some of you. Mine (vestibulitis) comes and goes. I actually had it gone for over a year and a half and it returned. I thought the birth of my children is what brought it on and when pregnant or nursing i would get inflamed. AUUUUGGHHH. just looking for something to survive right now. Surgery is not an option with my small children that is my doctors next step.

Please advice if you have used neogyn or found any temporary relieve


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Re: New member - Glad to find this connection

Post  Sarah001 on Thu Sep 22, 2011 10:10 am

We've actually got some ladies trying neogyn at the moment but I don't think any of them have reached the end of the recommended trial period yet, I'm sure they'll update us all when they do so keep coming and checking.
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Re: New member - Glad to find this connection

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