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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


9 years of pain

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9 years of pain

Post  Guest on Mon Aug 29, 2011 6:28 am

I haven't been on this site for a while. I was going through couple therapy because of the lack of sex (vulvodynia) and other problems and my husband not being about to cope with it. We did the couple therapy for a while but he has decided he doesn't want to try anymore. Hope this doesn't scare anyone with a partner just hanging on. My husband has other problems contributing to it. The couple therapist has told me to see my gynaecologist again and ask for further therapy. Plus she has asked me to see my local doctor to try Antidepressants. Don't know what for now. Not much use now. Why does this horrible thing happen to us. Besides my best friends partner is recovering from Prostate cancer and sex is off the books now for two years but my friend isn't even considering leaving him. Sex is only one part of a relationship. I don't understand why he has to go. My 12 year old son is devastated.
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Re: 9 years of pain

Post  Sarah001 on Tue Aug 30, 2011 7:49 pm

I know exactly how you feel, my partner of 13 years dumped me for someone else 6 months into my V problems because he couldn't take the lack of sex. However when he was having some erectile dysfunction problems it never occured to me to leave him. I think we've been very unlucky and it doesn't seem to be the norm as there are girls on here starting new relationships with V. I say if they want to go let them, we're both much much more than just sex objects and if they turn out that shallow then let some other unlucky woman end up with them. Attempt to get on top of your pain for yourself, so you feel like you again and try not to worry too much about your son, kids are very adaptable and he'll bounce back with time and love. So will you. x
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Re: 9 years of pain

Post  Trying on Tue Aug 30, 2011 8:09 pm

I'm just going through a break-up myself, my partner of four years didn't know how to deal with this condition and couldn't stand the fact that we couldn't have sex, and that the vulvodynia (and lack of empathy and support from him) has killed my sex drive. He wouldn't talk to me about my condition. We tried couples counselling for 6 months, and then he stopped coming. Sounds like a similar story to yours.

It has been a horrible and traumatic experience to go through, and I can't even imagine how you must feel since you also have a child together. I hope your man will realize that vulvodynia is a problem that is way more common than people think, and realize that you are more than worth the time and effort required to find how to manage your pain.

And if he doesn't realize it, he is not worthy of your love. Yes, sex is part of a relationship, but really it is just a tiny part. It must be put on hold and adapted when one partner has problems come up.

All I can say is, don't stop loving yourself and know that you are not alone.

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9 YEARS OF PAIN

Post  Guest on Fri Sep 09, 2011 8:09 am

Well my husband has left and has found himself a place to live. I suppose all the women are throwing themselves at him now. lol! He says he has depression because of our lack of sex. Unless he is seeing prostitutes I can't see him linking up with anyone. Who's fault is it then. He says he has been suicidal. Who has ever heard of a suicide letter saying it is because he wasn't getting sex. It was the lack of communication on his part that caused the marriage breakdown. Not lack of sex. Anyway I will have to stay focused on fixing the V even though doesn't seem a need for it but maybe one day I might find someone else who is really into me and I want to be healthy for him.

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Re: 9 years of pain

Post  mmorgan on Sun Sep 11, 2011 7:46 pm

Just wanted to say that I admire you. Very Happy
Karma will come around on his end and meanwhile you'll be working on bettering you health-wise and you so deserve someone wayyyy better!

Keep positive! Surprised
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Re: 9 years of pain

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