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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


9 years of pain

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9 years of pain

Post  Guest on Mon Aug 29, 2011 6:28 am

I haven't been on this site for a while. I was going through couple therapy because of the lack of sex (vulvodynia) and other problems and my husband not being about to cope with it. We did the couple therapy for a while but he has decided he doesn't want to try anymore. Hope this doesn't scare anyone with a partner just hanging on. My husband has other problems contributing to it. The couple therapist has told me to see my gynaecologist again and ask for further therapy. Plus she has asked me to see my local doctor to try Antidepressants. Don't know what for now. Not much use now. Why does this horrible thing happen to us. Besides my best friends partner is recovering from Prostate cancer and sex is off the books now for two years but my friend isn't even considering leaving him. Sex is only one part of a relationship. I don't understand why he has to go. My 12 year old son is devastated.
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Re: 9 years of pain

Post  Sarah001 on Tue Aug 30, 2011 7:49 pm

I know exactly how you feel, my partner of 13 years dumped me for someone else 6 months into my V problems because he couldn't take the lack of sex. However when he was having some erectile dysfunction problems it never occured to me to leave him. I think we've been very unlucky and it doesn't seem to be the norm as there are girls on here starting new relationships with V. I say if they want to go let them, we're both much much more than just sex objects and if they turn out that shallow then let some other unlucky woman end up with them. Attempt to get on top of your pain for yourself, so you feel like you again and try not to worry too much about your son, kids are very adaptable and he'll bounce back with time and love. So will you. x
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Re: 9 years of pain

Post  Trying on Tue Aug 30, 2011 8:09 pm

I'm just going through a break-up myself, my partner of four years didn't know how to deal with this condition and couldn't stand the fact that we couldn't have sex, and that the vulvodynia (and lack of empathy and support from him) has killed my sex drive. He wouldn't talk to me about my condition. We tried couples counselling for 6 months, and then he stopped coming. Sounds like a similar story to yours.

It has been a horrible and traumatic experience to go through, and I can't even imagine how you must feel since you also have a child together. I hope your man will realize that vulvodynia is a problem that is way more common than people think, and realize that you are more than worth the time and effort required to find how to manage your pain.

And if he doesn't realize it, he is not worthy of your love. Yes, sex is part of a relationship, but really it is just a tiny part. It must be put on hold and adapted when one partner has problems come up.

All I can say is, don't stop loving yourself and know that you are not alone.

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9 YEARS OF PAIN

Post  Guest on Fri Sep 09, 2011 8:09 am

Well my husband has left and has found himself a place to live. I suppose all the women are throwing themselves at him now. lol! He says he has depression because of our lack of sex. Unless he is seeing prostitutes I can't see him linking up with anyone. Who's fault is it then. He says he has been suicidal. Who has ever heard of a suicide letter saying it is because he wasn't getting sex. It was the lack of communication on his part that caused the marriage breakdown. Not lack of sex. Anyway I will have to stay focused on fixing the V even though doesn't seem a need for it but maybe one day I might find someone else who is really into me and I want to be healthy for him.

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Re: 9 years of pain

Post  mmorgan on Sun Sep 11, 2011 7:46 pm

Just wanted to say that I admire you. Very Happy
Karma will come around on his end and meanwhile you'll be working on bettering you health-wise and you so deserve someone wayyyy better!

Keep positive! Surprised
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Re: 9 years of pain

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