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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


9 years of pain

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9 years of pain

Post  Guest on Mon Aug 29, 2011 6:28 am

I haven't been on this site for a while. I was going through couple therapy because of the lack of sex (vulvodynia) and other problems and my husband not being about to cope with it. We did the couple therapy for a while but he has decided he doesn't want to try anymore. Hope this doesn't scare anyone with a partner just hanging on. My husband has other problems contributing to it. The couple therapist has told me to see my gynaecologist again and ask for further therapy. Plus she has asked me to see my local doctor to try Antidepressants. Don't know what for now. Not much use now. Why does this horrible thing happen to us. Besides my best friends partner is recovering from Prostate cancer and sex is off the books now for two years but my friend isn't even considering leaving him. Sex is only one part of a relationship. I don't understand why he has to go. My 12 year old son is devastated.
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Re: 9 years of pain

Post  Sarah001 on Tue Aug 30, 2011 7:49 pm

I know exactly how you feel, my partner of 13 years dumped me for someone else 6 months into my V problems because he couldn't take the lack of sex. However when he was having some erectile dysfunction problems it never occured to me to leave him. I think we've been very unlucky and it doesn't seem to be the norm as there are girls on here starting new relationships with V. I say if they want to go let them, we're both much much more than just sex objects and if they turn out that shallow then let some other unlucky woman end up with them. Attempt to get on top of your pain for yourself, so you feel like you again and try not to worry too much about your son, kids are very adaptable and he'll bounce back with time and love. So will you. x
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Re: 9 years of pain

Post  Trying on Tue Aug 30, 2011 8:09 pm

I'm just going through a break-up myself, my partner of four years didn't know how to deal with this condition and couldn't stand the fact that we couldn't have sex, and that the vulvodynia (and lack of empathy and support from him) has killed my sex drive. He wouldn't talk to me about my condition. We tried couples counselling for 6 months, and then he stopped coming. Sounds like a similar story to yours.

It has been a horrible and traumatic experience to go through, and I can't even imagine how you must feel since you also have a child together. I hope your man will realize that vulvodynia is a problem that is way more common than people think, and realize that you are more than worth the time and effort required to find how to manage your pain.

And if he doesn't realize it, he is not worthy of your love. Yes, sex is part of a relationship, but really it is just a tiny part. It must be put on hold and adapted when one partner has problems come up.

All I can say is, don't stop loving yourself and know that you are not alone.

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9 YEARS OF PAIN

Post  Guest on Fri Sep 09, 2011 8:09 am

Well my husband has left and has found himself a place to live. I suppose all the women are throwing themselves at him now. lol! He says he has depression because of our lack of sex. Unless he is seeing prostitutes I can't see him linking up with anyone. Who's fault is it then. He says he has been suicidal. Who has ever heard of a suicide letter saying it is because he wasn't getting sex. It was the lack of communication on his part that caused the marriage breakdown. Not lack of sex. Anyway I will have to stay focused on fixing the V even though doesn't seem a need for it but maybe one day I might find someone else who is really into me and I want to be healthy for him.

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Re: 9 years of pain

Post  mmorgan on Sun Sep 11, 2011 7:46 pm

Just wanted to say that I admire you. Very Happy
Karma will come around on his end and meanwhile you'll be working on bettering you health-wise and you so deserve someone wayyyy better!

Keep positive! Surprised
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Re: 9 years of pain

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