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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


9 years of pain

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9 years of pain

Post  Guest on Mon Aug 29, 2011 6:28 am

I haven't been on this site for a while. I was going through couple therapy because of the lack of sex (vulvodynia) and other problems and my husband not being about to cope with it. We did the couple therapy for a while but he has decided he doesn't want to try anymore. Hope this doesn't scare anyone with a partner just hanging on. My husband has other problems contributing to it. The couple therapist has told me to see my gynaecologist again and ask for further therapy. Plus she has asked me to see my local doctor to try Antidepressants. Don't know what for now. Not much use now. Why does this horrible thing happen to us. Besides my best friends partner is recovering from Prostate cancer and sex is off the books now for two years but my friend isn't even considering leaving him. Sex is only one part of a relationship. I don't understand why he has to go. My 12 year old son is devastated.
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Re: 9 years of pain

Post  Sarah001 on Tue Aug 30, 2011 7:49 pm

I know exactly how you feel, my partner of 13 years dumped me for someone else 6 months into my V problems because he couldn't take the lack of sex. However when he was having some erectile dysfunction problems it never occured to me to leave him. I think we've been very unlucky and it doesn't seem to be the norm as there are girls on here starting new relationships with V. I say if they want to go let them, we're both much much more than just sex objects and if they turn out that shallow then let some other unlucky woman end up with them. Attempt to get on top of your pain for yourself, so you feel like you again and try not to worry too much about your son, kids are very adaptable and he'll bounce back with time and love. So will you. x
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Re: 9 years of pain

Post  Trying on Tue Aug 30, 2011 8:09 pm

I'm just going through a break-up myself, my partner of four years didn't know how to deal with this condition and couldn't stand the fact that we couldn't have sex, and that the vulvodynia (and lack of empathy and support from him) has killed my sex drive. He wouldn't talk to me about my condition. We tried couples counselling for 6 months, and then he stopped coming. Sounds like a similar story to yours.

It has been a horrible and traumatic experience to go through, and I can't even imagine how you must feel since you also have a child together. I hope your man will realize that vulvodynia is a problem that is way more common than people think, and realize that you are more than worth the time and effort required to find how to manage your pain.

And if he doesn't realize it, he is not worthy of your love. Yes, sex is part of a relationship, but really it is just a tiny part. It must be put on hold and adapted when one partner has problems come up.

All I can say is, don't stop loving yourself and know that you are not alone.

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9 YEARS OF PAIN

Post  Guest on Fri Sep 09, 2011 8:09 am

Well my husband has left and has found himself a place to live. I suppose all the women are throwing themselves at him now. lol! He says he has depression because of our lack of sex. Unless he is seeing prostitutes I can't see him linking up with anyone. Who's fault is it then. He says he has been suicidal. Who has ever heard of a suicide letter saying it is because he wasn't getting sex. It was the lack of communication on his part that caused the marriage breakdown. Not lack of sex. Anyway I will have to stay focused on fixing the V even though doesn't seem a need for it but maybe one day I might find someone else who is really into me and I want to be healthy for him.

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Re: 9 years of pain

Post  mmorgan on Sun Sep 11, 2011 7:46 pm

Just wanted to say that I admire you. Very Happy
Karma will come around on his end and meanwhile you'll be working on bettering you health-wise and you so deserve someone wayyyy better!

Keep positive! Surprised
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Re: 9 years of pain

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