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    Do you ever worry that you're making it up?

    Fri May 27, 2016 6:50 am by Lucci

    Hello,

    I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

    A few years into treatment, I had the diagnosis of PTSD added on for …

    Comments: 7

    Clitoris Issues

    Tue Apr 28, 2015 8:17 pm by January

    I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

    Comments: 2

    Cured of Vulvodynia

    Wed Aug 17, 2016 1:39 am by angelique2016

    I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

    Comments: 10

    Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

    Sun Jul 30, 2017 1:03 am by Carolyn4

    Hi everyone,

    I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

    Comments: 1

    Partial Vestibulectomy

    Mon Jul 31, 2017 6:44 pm by JGD13

    Hi all i am new here.
    I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
    After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

    Comments: 6

    Post Vestibulectomy

    Thu Aug 03, 2017 6:15 pm by infinitelywondering

    Heya,

    I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

    However, today I came home and have done the following things:

    -washed with warm water
    -applied manuka honey to the area
    -ensured I wash at least 3 times a day and dab the area dry gently
    -use frozen peas to stop the swelling

    As of now I am …

    Comments: 1

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 3

    Anyone from the PNW?

    Sat Aug 05, 2017 7:54 am by jungleclover

    I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

    Comments: 0

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 22


    Any other 'burners' out there?

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    Any other 'burners' out there?

    Post  VaxilRae on Tue Sep 06, 2011 7:40 pm

    Sad My only vulvodynia symptoms are a burning sensation around the opening of my vagina and labia minor (vestibule), NOT my urethra. Vagisil and other feminine creams have no affect on the burning. Its not my muscles, its my skin, as i can have sex and use tampons normally. The only things that ever help me find relief are A.) Baths B.) Icepack against crotch C. Narcotic Pain Killer (ugth) and I normally start with a bath, which gets rid of the burning 50% of the time, than to icepack, and if nothing else brings relief, Vicadin.

    Is there anyone else out there who just burns??? I do not have a bladder infection, although the odd thing is 90% of the time the burning starts right after I pee! I have considered seeing a dermatologist to take a skin sample off the opening of my minora. I am being driven CRAZY! The burning comes often, up to 4-5 nights a week!

    Please help, I have no STDs, infection, but my opening just seeths with pain! Sad

    VaxilRae

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    Join date : 2011-08-31

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    me, i'm a burner

    Post  grassy on Wed Sep 07, 2011 8:46 pm

    me, me. I burn. I think its my skin too. I burn, after I pee, and burn in the same **exact spots** as you do. The v hole opening, and the labia minor, one side and up the v crease. I tell you what i have been doing. I have a tube of clob.(cortisone) I have been experimenting. Its the ointment, NOT the cream. Its potent and dangerous so a person has to use a teeny amount. When i use it, i use the size of a pin head. So i'm playing with that and being careful. so far i think its helping. They say you have to taper down off it. I also feel like something is stuck in there somewhere. weird sensation. do you get that? cindy

    grassy

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    Re: Any other 'burners' out there?

    Post  VaxilRae on Wed Sep 07, 2011 10:40 pm

    Vagisil Satin has hydrocortizone too. It use to work wonders but now it hardly helps, all the creams just ad to te burning!!!!
    I dont ever have any feels of anything being stuck in there now, just the burning. One time the burning was onesided and worked all the way up to my labia major! I was so horrified, and not in Narcotics got rid of it, I was so angry.

    VaxilRae

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    Re: Any other 'burners' out there?

    Post  jules on Fri Sep 09, 2011 3:11 am

    Hello from one burning vulva to another. I have burning pain all over the vulva. What works for me? Before i went on medication for this I used a spray bottle after i peed and i used Vaseline to protect the skin from my urine...like creating a barrier. Then i found meds that helped cut out the burning. the meds helped for awhile, but the burning is still there. it is nothing like it used to be, well at least not all the time. I recommend that you get a skin biopsy to rule out skin conditions. most likely it's nerve pain. My doctor recommended A & D ointment to moisturize and protect the skin. This is located in the baby sections in stores. it's used to protect baby's bottoms. i was recently prescribed lidocaine 5% ointment. I can tolerate it about 2 times a day. when i do use the ointment, after a little bit of burning initially, i have complete relief for about 1-2 hours. i am on a variety of meds: Gabepentin, Lyrica (was on Cymbalta-didn't help), and i just started Ami 2 days ago. I also take Percocet. I had a period of several months of relief about 6 months ago...now i'm going backwards. i'm hoping the Ami works for me. I truly believe these meds can make a difference in the pain. good luck! Smile

    jules

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    Re: Any other 'burners' out there?

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