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    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 19

    Clitoris Issues

    Tue Apr 28, 2015 8:17 pm by January

    I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

    Comments: 1

    New member

    Sat Mar 18, 2017 7:37 pm by Lisa1627

    Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

    Comments: 12

    Post Full Vestibulectomy - 5 Years Later - Please Read

    Tue May 02, 2017 6:18 pm by jen007

    Hi All,

    It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

    For 4 years post …

    Comments: 3

    Recovered from Vulvodynia

    Thu May 04, 2017 9:42 pm by chancesunny

    Hey everyone,

    Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

    I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

    Comments: 2

    New here, my story and looking for advice

    Wed Apr 26, 2017 9:02 am by rachiecakes

    Hi All!

    I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

    Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

    Comments: 4

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 2

    Male visitor

    Wed Jan 18, 2017 11:19 pm by outsider

    Hello!

    I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
    So I am interested in learning more about female sexual disorders. Do young …

    Comments: 3

    New Here: Question/My Story

    Mon Apr 03, 2017 2:00 am by overit14

    Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

    This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

    Comments: 6


    Any other 'burners' out there?

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    Any other 'burners' out there?

    Post  VaxilRae on Tue Sep 06, 2011 7:40 pm

    Sad My only vulvodynia symptoms are a burning sensation around the opening of my vagina and labia minor (vestibule), NOT my urethra. Vagisil and other feminine creams have no affect on the burning. Its not my muscles, its my skin, as i can have sex and use tampons normally. The only things that ever help me find relief are A.) Baths B.) Icepack against crotch C. Narcotic Pain Killer (ugth) and I normally start with a bath, which gets rid of the burning 50% of the time, than to icepack, and if nothing else brings relief, Vicadin.

    Is there anyone else out there who just burns??? I do not have a bladder infection, although the odd thing is 90% of the time the burning starts right after I pee! I have considered seeing a dermatologist to take a skin sample off the opening of my minora. I am being driven CRAZY! The burning comes often, up to 4-5 nights a week!

    Please help, I have no STDs, infection, but my opening just seeths with pain! Sad

    VaxilRae

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    Join date : 2011-08-31

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    me, i'm a burner

    Post  grassy on Wed Sep 07, 2011 8:46 pm

    me, me. I burn. I think its my skin too. I burn, after I pee, and burn in the same **exact spots** as you do. The v hole opening, and the labia minor, one side and up the v crease. I tell you what i have been doing. I have a tube of clob.(cortisone) I have been experimenting. Its the ointment, NOT the cream. Its potent and dangerous so a person has to use a teeny amount. When i use it, i use the size of a pin head. So i'm playing with that and being careful. so far i think its helping. They say you have to taper down off it. I also feel like something is stuck in there somewhere. weird sensation. do you get that? cindy

    grassy

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    Re: Any other 'burners' out there?

    Post  VaxilRae on Wed Sep 07, 2011 10:40 pm

    Vagisil Satin has hydrocortizone too. It use to work wonders but now it hardly helps, all the creams just ad to te burning!!!!
    I dont ever have any feels of anything being stuck in there now, just the burning. One time the burning was onesided and worked all the way up to my labia major! I was so horrified, and not in Narcotics got rid of it, I was so angry.

    VaxilRae

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    Re: Any other 'burners' out there?

    Post  jules on Fri Sep 09, 2011 3:11 am

    Hello from one burning vulva to another. I have burning pain all over the vulva. What works for me? Before i went on medication for this I used a spray bottle after i peed and i used Vaseline to protect the skin from my urine...like creating a barrier. Then i found meds that helped cut out the burning. the meds helped for awhile, but the burning is still there. it is nothing like it used to be, well at least not all the time. I recommend that you get a skin biopsy to rule out skin conditions. most likely it's nerve pain. My doctor recommended A & D ointment to moisturize and protect the skin. This is located in the baby sections in stores. it's used to protect baby's bottoms. i was recently prescribed lidocaine 5% ointment. I can tolerate it about 2 times a day. when i do use the ointment, after a little bit of burning initially, i have complete relief for about 1-2 hours. i am on a variety of meds: Gabepentin, Lyrica (was on Cymbalta-didn't help), and i just started Ami 2 days ago. I also take Percocet. I had a period of several months of relief about 6 months ago...now i'm going backwards. i'm hoping the Ami works for me. I truly believe these meds can make a difference in the pain. good luck! Smile

    jules

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    Re: Any other 'burners' out there?

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