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    » What's next?
    Yesterday at 4:01 pm by jennyk2

    » Pain management - what works for me
    Yesterday at 3:41 pm by Jo44

    » Share your Vulvodynia Story and become a member of the Global Anthology!
    Mon Apr 23, 2018 10:44 pm by smyerskelley

    » If it helps anyone else
    Mon Apr 23, 2018 6:36 pm by VH7797

    » Cured, cyst in foot
    Mon Apr 23, 2018 4:06 pm by Guest

    » HELP!! Topical cream?
    Sun Apr 22, 2018 5:44 pm by emalita

    » The pain CAN get better - What's worked for me
    Sun Apr 22, 2018 5:32 pm by emalita

    » Custom made leggings?
    Sun Apr 22, 2018 4:52 am by CatJones

    » Please tell me this can get better
    Sun Apr 15, 2018 11:31 am by amf329

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25

    Hello!

    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 4

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured

    Hi,

    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 3

    Hi Im from Australia :)

    Sat Jan 08, 2011 1:08 am by emma

    Hi girls... I live in Australia.
    I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
    Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

    Comments: 35

    Somebody please help me...

    Fri Nov 24, 2017 8:05 am by Andlag

    Hey everyone,

    since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

    Comments: 14

    Lidocaine with condoms?

    Wed Mar 21, 2018 10:44 pm by AEM1

    Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
    Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

    Comments: 1

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 23

    Recently Diagnosed which has motivated my research study

    Tue Mar 06, 2018 4:54 pm by ebclose2free

    Hi everyone,

    My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

    Comments: 0

    MAY HAVE FOUND A CURE- PLEASE READ

    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    Dear all,

    Today has been the day I've been waiting for. The day something FINALLY makes sense.
    I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


    after having a vestibulectomy with no success, I decided to visit …

    Comments: 3

    New and desperate for advice

    Sat Mar 03, 2018 2:37 pm by srbry

    Hi everyone,

    I'm new here and was told to find a support group because this is all getting a bit much really...

    I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

    Comments: 3


    Any other 'burners' out there?

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    Any other 'burners' out there?

    Post  VaxilRae on Tue Sep 06, 2011 7:40 pm

    Sad My only vulvodynia symptoms are a burning sensation around the opening of my vagina and labia minor (vestibule), NOT my urethra. Vagisil and other feminine creams have no affect on the burning. Its not my muscles, its my skin, as i can have sex and use tampons normally. The only things that ever help me find relief are A.) Baths B.) Icepack against crotch C. Narcotic Pain Killer (ugth) and I normally start with a bath, which gets rid of the burning 50% of the time, than to icepack, and if nothing else brings relief, Vicadin.

    Is there anyone else out there who just burns??? I do not have a bladder infection, although the odd thing is 90% of the time the burning starts right after I pee! I have considered seeing a dermatologist to take a skin sample off the opening of my minora. I am being driven CRAZY! The burning comes often, up to 4-5 nights a week!

    Please help, I have no STDs, infection, but my opening just seeths with pain! Sad

    VaxilRae

    Posts : 6
    Join date : 2011-08-31

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    me, i'm a burner

    Post  grassy on Wed Sep 07, 2011 8:46 pm

    me, me. I burn. I think its my skin too. I burn, after I pee, and burn in the same **exact spots** as you do. The v hole opening, and the labia minor, one side and up the v crease. I tell you what i have been doing. I have a tube of clob.(cortisone) I have been experimenting. Its the ointment, NOT the cream. Its potent and dangerous so a person has to use a teeny amount. When i use it, i use the size of a pin head. So i'm playing with that and being careful. so far i think its helping. They say you have to taper down off it. I also feel like something is stuck in there somewhere. weird sensation. do you get that? cindy

    grassy

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    Re: Any other 'burners' out there?

    Post  VaxilRae on Wed Sep 07, 2011 10:40 pm

    Vagisil Satin has hydrocortizone too. It use to work wonders but now it hardly helps, all the creams just ad to te burning!!!!
    I dont ever have any feels of anything being stuck in there now, just the burning. One time the burning was onesided and worked all the way up to my labia major! I was so horrified, and not in Narcotics got rid of it, I was so angry.

    VaxilRae

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    Re: Any other 'burners' out there?

    Post  jules on Fri Sep 09, 2011 3:11 am

    Hello from one burning vulva to another. I have burning pain all over the vulva. What works for me? Before i went on medication for this I used a spray bottle after i peed and i used Vaseline to protect the skin from my urine...like creating a barrier. Then i found meds that helped cut out the burning. the meds helped for awhile, but the burning is still there. it is nothing like it used to be, well at least not all the time. I recommend that you get a skin biopsy to rule out skin conditions. most likely it's nerve pain. My doctor recommended A & D ointment to moisturize and protect the skin. This is located in the baby sections in stores. it's used to protect baby's bottoms. i was recently prescribed lidocaine 5% ointment. I can tolerate it about 2 times a day. when i do use the ointment, after a little bit of burning initially, i have complete relief for about 1-2 hours. i am on a variety of meds: Gabepentin, Lyrica (was on Cymbalta-didn't help), and i just started Ami 2 days ago. I also take Percocet. I had a period of several months of relief about 6 months ago...now i'm going backwards. i'm hoping the Ami works for me. I truly believe these meds can make a difference in the pain. good luck! Smile

    jules

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    Re: Any other 'burners' out there?

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