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    » Vestibulectomy today and no pain
    Today at 3:28 pm by Dsrt16

    » vestibulectomy success
    Yesterday at 12:41 am by Hopeitworks

    » MY STORY & Vestibulectomy 2/8/17
    Yesterday at 12:06 am by Jgreen81

    » Pain aftee vestibulectimy
    Yesterday at 12:03 am by Jgreen81

    » Freaking out because I don't think surgery worked HELP!!!!
    Yesterday at 12:01 am by Jgreen81

    » Vulvodynia help
    Wed Nov 15, 2017 1:04 pm by ekaterina1996

    » FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
    Tue Nov 14, 2017 9:53 pm by Dsrt16

    » Needing some reassurance
    Sun Nov 12, 2017 3:04 pm by Nicmay

    » Vulvodynia burning mouth and bladder discomfort
    Fri Nov 10, 2017 7:26 pm by Zbrown

    Vulvodynia help

    Tue Nov 14, 2017 4:27 pm by Katiej

    Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

    Comments: 3

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 1

    New diagnosis, any advice whilst I wait for a specialist

    Wed Oct 25, 2017 1:47 pm by Julesyjules

    Hi,

    I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

    After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

    Comments: 0

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 4

    Newly diagnosed

    Tue Oct 10, 2017 8:37 pm by Brevispink

    Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

    Comments: 9

    Recent "Poke" Pain - So Confused/Losing My Mind

    Thu Oct 12, 2017 9:26 am by kelseybeth23

    Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

    Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

    Comments: 5

    Does anyone else experience this?

    Sat Oct 14, 2017 5:21 pm by Angelmegs

    Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

    Comments: 0

    Post Full Vestibulectomy - 5 Years Later - Please Read

    Tue May 02, 2017 6:18 pm by jen007

    Hi All,

    It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

    For 4 years post …

    Comments: 4

    Do you ever worry that you're making it up?

    Fri May 27, 2016 6:50 am by Lucci

    Hello,

    I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

    A few years into treatment, I had the diagnosis of PTSD added on for …

    Comments: 7


    Any other 'burners' out there?

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    Any other 'burners' out there?

    Post  VaxilRae on Tue Sep 06, 2011 7:40 pm

    Sad My only vulvodynia symptoms are a burning sensation around the opening of my vagina and labia minor (vestibule), NOT my urethra. Vagisil and other feminine creams have no affect on the burning. Its not my muscles, its my skin, as i can have sex and use tampons normally. The only things that ever help me find relief are A.) Baths B.) Icepack against crotch C. Narcotic Pain Killer (ugth) and I normally start with a bath, which gets rid of the burning 50% of the time, than to icepack, and if nothing else brings relief, Vicadin.

    Is there anyone else out there who just burns??? I do not have a bladder infection, although the odd thing is 90% of the time the burning starts right after I pee! I have considered seeing a dermatologist to take a skin sample off the opening of my minora. I am being driven CRAZY! The burning comes often, up to 4-5 nights a week!

    Please help, I have no STDs, infection, but my opening just seeths with pain! Sad

    VaxilRae

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    Join date : 2011-08-31

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    me, i'm a burner

    Post  grassy on Wed Sep 07, 2011 8:46 pm

    me, me. I burn. I think its my skin too. I burn, after I pee, and burn in the same **exact spots** as you do. The v hole opening, and the labia minor, one side and up the v crease. I tell you what i have been doing. I have a tube of clob.(cortisone) I have been experimenting. Its the ointment, NOT the cream. Its potent and dangerous so a person has to use a teeny amount. When i use it, i use the size of a pin head. So i'm playing with that and being careful. so far i think its helping. They say you have to taper down off it. I also feel like something is stuck in there somewhere. weird sensation. do you get that? cindy

    grassy

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    Re: Any other 'burners' out there?

    Post  VaxilRae on Wed Sep 07, 2011 10:40 pm

    Vagisil Satin has hydrocortizone too. It use to work wonders but now it hardly helps, all the creams just ad to te burning!!!!
    I dont ever have any feels of anything being stuck in there now, just the burning. One time the burning was onesided and worked all the way up to my labia major! I was so horrified, and not in Narcotics got rid of it, I was so angry.

    VaxilRae

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    Re: Any other 'burners' out there?

    Post  jules on Fri Sep 09, 2011 3:11 am

    Hello from one burning vulva to another. I have burning pain all over the vulva. What works for me? Before i went on medication for this I used a spray bottle after i peed and i used Vaseline to protect the skin from my urine...like creating a barrier. Then i found meds that helped cut out the burning. the meds helped for awhile, but the burning is still there. it is nothing like it used to be, well at least not all the time. I recommend that you get a skin biopsy to rule out skin conditions. most likely it's nerve pain. My doctor recommended A & D ointment to moisturize and protect the skin. This is located in the baby sections in stores. it's used to protect baby's bottoms. i was recently prescribed lidocaine 5% ointment. I can tolerate it about 2 times a day. when i do use the ointment, after a little bit of burning initially, i have complete relief for about 1-2 hours. i am on a variety of meds: Gabepentin, Lyrica (was on Cymbalta-didn't help), and i just started Ami 2 days ago. I also take Percocet. I had a period of several months of relief about 6 months ago...now i'm going backwards. i'm hoping the Ami works for me. I truly believe these meds can make a difference in the pain. good luck! Smile

    jules

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    Re: Any other 'burners' out there?

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