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    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 3

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25

    Hello!

    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 8

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 1

    What has been helping ME (much less pain over time!!)

    Wed May 16, 2018 3:43 am by leoscc

    Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

    1. I …

    Comments: 0

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured

    Hi,

    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 4

    Condoms Less Painful?

    Mon May 07, 2018 3:35 am by stillinpain

    I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

    Comments: 0

    Will there be an end?

    Fri Apr 27, 2018 12:06 am by Krista2828

    I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

    I am in my 20's.. it shouldn't be this way.

    Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

    Comments: 6

    you can be healed so easy and quite fast.

    Thu Apr 26, 2018 11:46 pm by pussycat

    Hello everyone,
    i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

    Comments: 4

    Hi Im from Australia :)

    Sat Jan 08, 2011 1:08 am by emma

    Hi girls... I live in Australia.
    I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
    Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

    Comments: 35


    Any other 'burners' out there?

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    Any other 'burners' out there?

    Post  VaxilRae on Tue Sep 06, 2011 7:40 pm

    Sad My only vulvodynia symptoms are a burning sensation around the opening of my vagina and labia minor (vestibule), NOT my urethra. Vagisil and other feminine creams have no affect on the burning. Its not my muscles, its my skin, as i can have sex and use tampons normally. The only things that ever help me find relief are A.) Baths B.) Icepack against crotch C. Narcotic Pain Killer (ugth) and I normally start with a bath, which gets rid of the burning 50% of the time, than to icepack, and if nothing else brings relief, Vicadin.

    Is there anyone else out there who just burns??? I do not have a bladder infection, although the odd thing is 90% of the time the burning starts right after I pee! I have considered seeing a dermatologist to take a skin sample off the opening of my minora. I am being driven CRAZY! The burning comes often, up to 4-5 nights a week!

    Please help, I have no STDs, infection, but my opening just seeths with pain! Sad

    VaxilRae

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    Join date : 2011-08-31

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    me, i'm a burner

    Post  grassy on Wed Sep 07, 2011 8:46 pm

    me, me. I burn. I think its my skin too. I burn, after I pee, and burn in the same **exact spots** as you do. The v hole opening, and the labia minor, one side and up the v crease. I tell you what i have been doing. I have a tube of clob.(cortisone) I have been experimenting. Its the ointment, NOT the cream. Its potent and dangerous so a person has to use a teeny amount. When i use it, i use the size of a pin head. So i'm playing with that and being careful. so far i think its helping. They say you have to taper down off it. I also feel like something is stuck in there somewhere. weird sensation. do you get that? cindy

    grassy

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    Re: Any other 'burners' out there?

    Post  VaxilRae on Wed Sep 07, 2011 10:40 pm

    Vagisil Satin has hydrocortizone too. It use to work wonders but now it hardly helps, all the creams just ad to te burning!!!!
    I dont ever have any feels of anything being stuck in there now, just the burning. One time the burning was onesided and worked all the way up to my labia major! I was so horrified, and not in Narcotics got rid of it, I was so angry.

    VaxilRae

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    Re: Any other 'burners' out there?

    Post  jules on Fri Sep 09, 2011 3:11 am

    Hello from one burning vulva to another. I have burning pain all over the vulva. What works for me? Before i went on medication for this I used a spray bottle after i peed and i used Vaseline to protect the skin from my urine...like creating a barrier. Then i found meds that helped cut out the burning. the meds helped for awhile, but the burning is still there. it is nothing like it used to be, well at least not all the time. I recommend that you get a skin biopsy to rule out skin conditions. most likely it's nerve pain. My doctor recommended A & D ointment to moisturize and protect the skin. This is located in the baby sections in stores. it's used to protect baby's bottoms. i was recently prescribed lidocaine 5% ointment. I can tolerate it about 2 times a day. when i do use the ointment, after a little bit of burning initially, i have complete relief for about 1-2 hours. i am on a variety of meds: Gabepentin, Lyrica (was on Cymbalta-didn't help), and i just started Ami 2 days ago. I also take Percocet. I had a period of several months of relief about 6 months ago...now i'm going backwards. i'm hoping the Ami works for me. I truly believe these meds can make a difference in the pain. good luck! Smile

    jules

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    Re: Any other 'burners' out there?

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