Vulvodynia Support
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» Hope to all my suffering ladies
9 years of pain EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
9 years of pain EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
9 years of pain EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
9 years of pain EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
9 years of pain EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
9 years of pain EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
9 years of pain EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
9 years of pain EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
9 years of pain EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


9 years of pain

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9 years of pain Empty 9 years of pain

Post  Guest Mon Aug 29, 2011 6:28 am

I haven't been on this site for a while. I was going through couple therapy because of the lack of sex (vulvodynia) and other problems and my husband not being about to cope with it. We did the couple therapy for a while but he has decided he doesn't want to try anymore. Hope this doesn't scare anyone with a partner just hanging on. My husband has other problems contributing to it. The couple therapist has told me to see my gynaecologist again and ask for further therapy. Plus she has asked me to see my local doctor to try Antidepressants. Don't know what for now. Not much use now. Why does this horrible thing happen to us. Besides my best friends partner is recovering from Prostate cancer and sex is off the books now for two years but my friend isn't even considering leaving him. Sex is only one part of a relationship. I don't understand why he has to go. My 12 year old son is devastated.
Jewelsistas

Guest
Guest


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9 years of pain Empty Re: 9 years of pain

Post  Sarah001 Tue Aug 30, 2011 7:49 pm

I know exactly how you feel, my partner of 13 years dumped me for someone else 6 months into my V problems because he couldn't take the lack of sex. However when he was having some erectile dysfunction problems it never occured to me to leave him. I think we've been very unlucky and it doesn't seem to be the norm as there are girls on here starting new relationships with V. I say if they want to go let them, we're both much much more than just sex objects and if they turn out that shallow then let some other unlucky woman end up with them. Attempt to get on top of your pain for yourself, so you feel like you again and try not to worry too much about your son, kids are very adaptable and he'll bounce back with time and love. So will you. x
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  Trying Tue Aug 30, 2011 8:09 pm

I'm just going through a break-up myself, my partner of four years didn't know how to deal with this condition and couldn't stand the fact that we couldn't have sex, and that the vulvodynia (and lack of empathy and support from him) has killed my sex drive. He wouldn't talk to me about my condition. We tried couples counselling for 6 months, and then he stopped coming. Sounds like a similar story to yours.

It has been a horrible and traumatic experience to go through, and I can't even imagine how you must feel since you also have a child together. I hope your man will realize that vulvodynia is a problem that is way more common than people think, and realize that you are more than worth the time and effort required to find how to manage your pain.

And if he doesn't realize it, he is not worthy of your love. Yes, sex is part of a relationship, but really it is just a tiny part. It must be put on hold and adapted when one partner has problems come up.

All I can say is, don't stop loving yourself and know that you are not alone.

Trying

Posts : 3
Join date : 2011-08-08

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9 years of pain Empty 9 YEARS OF PAIN

Post  Guest Fri Sep 09, 2011 8:09 am

Well my husband has left and has found himself a place to live. I suppose all the women are throwing themselves at him now. lol! He says he has depression because of our lack of sex. Unless he is seeing prostitutes I can't see him linking up with anyone. Who's fault is it then. He says he has been suicidal. Who has ever heard of a suicide letter saying it is because he wasn't getting sex. It was the lack of communication on his part that caused the marriage breakdown. Not lack of sex. Anyway I will have to stay focused on fixing the V even though doesn't seem a need for it but maybe one day I might find someone else who is really into me and I want to be healthy for him.

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9 years of pain Empty Re: 9 years of pain

Post  mmorgan Sun Sep 11, 2011 7:46 pm

Just wanted to say that I admire you. Very Happy
Karma will come around on his end and meanwhile you'll be working on bettering you health-wise and you so deserve someone wayyyy better!

Keep positive! Surprised
mmorgan
mmorgan

Posts : 65
Join date : 2011-07-14
Age : 35
Location : Texas

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