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» I don't know what to do anymore
Today at 5:05 am by SinclairSassy

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
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» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Place to talk about Physio etc

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Place to talk about Physio etc

Post  Sebby (Admin) on Wed Sep 14, 2011 8:54 am


As suggested by one of our members I have added a separate category for Physio and Biofeedback

Chat away

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Re: Place to talk about Physio etc

Post  Sarah001 on Thu Sep 15, 2011 12:37 pm

Thanks Sebby, it will be great to see all the physio stuff collected together to browse through.
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Re: Place to talk about Physio etc

Post  lolainslacks on Thu Sep 15, 2011 10:53 pm

Yes, I look forward to reading about it, as I don't know a lot, and I hope be signed up in December.

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Re: Place to talk about Physio etc

Post  KatieDitty138 on Sat Dec 24, 2011 6:24 pm

By physio therapy do you mean physical therapy? If so... I am a wealth of PT info for the norther New Jersey/New York area so hit me up ladies.
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Re: Place to talk about Physio etc

Post  pepper7 on Sun Feb 05, 2012 1:35 am

Hi,


Newbie here, Iv not heard much about the physio/pelvic exercises can someone fill me in?
Thank you Laughing

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Re: Place to talk about Physio etc

Post  ButterflyLiz on Wed Feb 08, 2012 7:16 pm

Hi Pepper,

Physiotherapy is basically designed to help you re-educate the pelvic floor muscles. Us ladies who are in pain down there often have extra tight pelvic floor muscles because that’s a natural reaction against pain. So the physio helps us to be more aware of what those muscles are doing and teaches us how to relax them. This hopefully reduces the pain & makes penetration easier. There are exercises that you learn & repeat.

There is also a device that you can put in your vagina that’s linked up to a machine & it shows how tight your muscles are. This is called biofeedback. It can be handy as it is a visual demonstration of how you’re progressing.

The VPS page on physio has several links:

http://vulvalpainsociety.org/index.php?page=pelvic-floor-excercises

And this is a site my physio gave me:

http://pelvicphysiotherapy.com/

There’s also some good explanation in Amy Stein’s book “Heal Pelvic Pain”.
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Re: Place to talk about Physio etc

Post  pepper7 on Wed Feb 08, 2012 10:49 pm

Thanks Butterflyliz! I'll definitely check them out

P x

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Place to talk about Physio etc

Post  Panuccio on Sat May 26, 2012 8:33 am

if you are talking about physio and Are you in pain and not sure where to turn? Your Health Solutions have Highly trained Physiotherapists and Osteopaths that treat different injuries ranging from common Neck and Back pain through to complex Sporting Injuries:
All Sports Injuries
Neck pain and Headaches
Back pain and Sciatica
Knee pain including Post op Rehabilitation

Your initial consultation will take approximately 45 minutes to an hour. During this time your Wetherill Park physiotherapist will assess and diagnose your injury, providing you with a Recommended Action Plan.

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Re: Place to talk about Physio etc

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