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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

Place to talk about Physio etc

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Place to talk about Physio etc

Post  Sebby (Admin) on Wed Sep 14, 2011 8:54 am

As suggested by one of our members I have added a separate category for Physio and Biofeedback

Chat away



Sebby (Admin)

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Re: Place to talk about Physio etc

Post  Sarah001 on Thu Sep 15, 2011 12:37 pm

Thanks Sebby, it will be great to see all the physio stuff collected together to browse through.

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Re: Place to talk about Physio etc

Post  lolainslacks on Thu Sep 15, 2011 10:53 pm

Yes, I look forward to reading about it, as I don't know a lot, and I hope be signed up in December.


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Re: Place to talk about Physio etc

Post  KatieDitty138 on Sat Dec 24, 2011 6:24 pm

By physio therapy do you mean physical therapy? If so... I am a wealth of PT info for the norther New Jersey/New York area so hit me up ladies.

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Re: Place to talk about Physio etc

Post  pepper7 on Sun Feb 05, 2012 1:35 am


Newbie here, Iv not heard much about the physio/pelvic exercises can someone fill me in?
Thank you Laughing


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Re: Place to talk about Physio etc

Post  ButterflyLiz on Wed Feb 08, 2012 7:16 pm

Hi Pepper,

Physiotherapy is basically designed to help you re-educate the pelvic floor muscles. Us ladies who are in pain down there often have extra tight pelvic floor muscles because that’s a natural reaction against pain. So the physio helps us to be more aware of what those muscles are doing and teaches us how to relax them. This hopefully reduces the pain & makes penetration easier. There are exercises that you learn & repeat.

There is also a device that you can put in your vagina that’s linked up to a machine & it shows how tight your muscles are. This is called biofeedback. It can be handy as it is a visual demonstration of how you’re progressing.

The VPS page on physio has several links:


And this is a site my physio gave me:


There’s also some good explanation in Amy Stein’s book “Heal Pelvic Pain”.

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Re: Place to talk about Physio etc

Post  pepper7 on Wed Feb 08, 2012 10:49 pm

Thanks Butterflyliz! I'll definitely check them out

P x


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Place to talk about Physio etc

Post  Panuccio on Sat May 26, 2012 8:33 am

if you are talking about physio and Are you in pain and not sure where to turn? Your Health Solutions have Highly trained Physiotherapists and Osteopaths that treat different injuries ranging from common Neck and Back pain through to complex Sporting Injuries:
All Sports Injuries
Neck pain and Headaches
Back pain and Sciatica
Knee pain including Post op Rehabilitation

Your initial consultation will take approximately 45 minutes to an hour. During this time your Wetherill Park physiotherapist will assess and diagnose your injury, providing you with a Recommended Action Plan.


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Re: Place to talk about Physio etc

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