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» Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia
Yesterday at 8:15 pm by WVR00

» What helped (and practically cured) my Vulvodynia
Yesterday at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Yesterday at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


New Member Here

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New Member Here

Post  Shortbird on Thu Sep 15, 2011 8:39 pm

Hello everyone,

Finally after about 15 years of suffering from this condition I have found a support forum. Very Happy

As far as my story goes when I suffered the symptoms of the condition it didn't even have a name and the doctors knew nothing about it, hence I had years and years of tests, swabs, you name it, I went round thinking I must have the most horrendous infection.

I have to say for much of those years it was something that I put up with and learned to live with because nobody knew about it back then but not now, after a few bad attacks I decided enough was enough and having read the book by Howard I Glazier I realized that I need to be relentless in my quest for finding relief from the acute, burning and raw pain I feel and I also had the realization that I was not alone. I am having a particularly bad attack at the moment and feel drugged up to the eyeballs and a bit depressed as the pain is relentless which is why it's nice to actually write it down here.

I have since had a skin biopsy which was the most painful thing I have been through and completely knocked me off my feet for a wee quite literally but I needed to do that for me to be referred to a specialist.

I have been on various drugs and at the moment have just started a course of Pregabalin (75mg), strangely enough this has coincided with this very bad attack and I ended up at the doctors in tears because sometimes I just don't feel I can function day to day with the pain and now the drugs I'm taking. The doctor has prescribed me a mixture of Ibuprofen and Cocodamal to try and ease the pain, she is also going to talk to my specialist about a pain clinic and pelvic exercise, I may even increase the dose of Pregabalin.

So I continue on my road to try and find some relief from this condition, I just want to add that most of the time I just feel a mild burning but this attack has made me remember how bad this condition can get at times, I guess the other frustrating thing is that I don't know what has caused it.

Anyway just wanted to tell you a bit about my story and I'm looking forward having a look around the site getting and hopefully giving some helpful advise.

SB

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Re: New Member Here

Post  Sarah001 on Fri Sep 16, 2011 11:47 am

Hi and welcome, you're in good company here! I notice you don't mention having your pelvic floor checked out so that's a good thing to do next, in my opinion it's something every woman with V should have done. High resting tones and clenching the muscles through the day are things we V sufferers often find.

I'm on Pregabalin and I know a few others here are too, I'm finding it helps a bit for a while then stops working and I need to up the dose then it does the same thing again and stops after a period of time so I'm not convinced it's going to be the answer for me. I'm also on Ami which didn't help much at all and I stopped the dose increases at 50mg because I was sure it would be pointless to keep adding more. I have seen a few women online say Pregabalin made their V worse while they were on it but I don't know why so if it doesn't calm down it might be an idea to swap it for something else.

Anyway, have a look around and feel free to chat to us about anything.
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Re: New Member Here

Post  Shortbird on Fri Sep 16, 2011 5:39 pm

Thanks Sarah, so nice to know there is somewhere to come for support and I actually feel much better today

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Re: New Member Here

Post  Aussie on Thu Sep 22, 2011 3:12 am

Is Pregab Lyrica? If so Lyrica made me flare like crazy. (bladder and v) the week after I got off it pain shot down a few pegs, I now take no medication for v, I hated that drugged feeling and it was doing nothing for me for the pain.

Claire

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Re: New Member Here

Post  Shortbird on Fri Sep 23, 2011 8:25 pm

Hi Aussie,

Funny you should mention that because my pain has been really bad since I have been on Pregablin, wonder if I should stop taking it or at least maybe call the specialist on Monday Crying or Very sad

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Re: New Member Here

Post  Aussie on Mon Sep 26, 2011 1:56 am

I weaned off over a week. My Neurologist said that Lyrica would make my bladder symptoms worse but eveyone eles said the opposite. I wish I had listened to him in the first place....

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Re: New Member Here

Post  Shortbird on Mon Sep 26, 2011 2:29 pm

Hi,

I am waiting for my specialist to call me back today (still waiting)...I need to talk to her about this and also if she can put me forward for the pain clinic and also the pelvic floor, I have just been thinking that in all this time I have never been referred for any of these.

My pain is slightly better today, I went and bought a water spray for after I have gone to the loo which is lovely, takes the burning off for a while, I also took advise from another poster who said to imagine fresh blood cleansing the nerve endings (sorry can't remember who it was) but it actually does ease things a little.

I am also very nervous as I am going on a date on Saturday for the first time in years, my brain keeps telling me that I must be an idiot for even contemplating this with all my issues but at the same time I don't want to stop living my life, I guess all these things go through your mind which doesn't help if I'm honest. Question

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Re: New Member Here

Post  Sarah001 on Mon Sep 26, 2011 6:37 pm

Glad to hear the water bottle is helping, just be careful not to overwash the area though, I found rinsing after every pee was too much and made me even more sore so I just rinse after a few now.

As for the date, it's only the first one so no reason to wonder where it's heading, some of the girls on here have started new relationships despite having V but I have to admit I'd be like you and wondering if it was worth the effort. However saying that I don't think all men would run a mile about it (unlike my ex) so it's probably worth at least going on the one date, let us know how you get on! Wink
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Re: New Member Here

Post  Shortbird on Sun Oct 02, 2011 2:52 pm

Update

Well there is good news and bad news.

The bad news is my date cancelled on me which was a kind of a relief in a way and I noticed that my pain did get better once it was cancelled, maybe there is something in that. Shocked

The good news is I spoke to my specialist who has now written to me and has referred me to the pelvic pain clinic and also for pelvic floor physiotherapy, I spoke to her about my concerns about the Pregabalin but she advised that I need to be on it for at least 6 months, after that she has recommended SSRI Fluoxetine, has anyone tried this and has it improved things.

I actually feel quite positive now that things are finally getting sorted Very Happy

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Re: New Member Here

Post  Sarah001 on Sun Oct 02, 2011 7:01 pm

You do sound like a clencher if the anxiety about the date was making matters worse! Still at least it's one less thing to have to worry about right now. Good luck with your appointments and let us know how you get on.
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Re: New Member Here

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