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Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Estrace Cream...

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Estrace Cream...

Post  ilovebaxter1 on Sun Sep 18, 2011 4:47 pm

Has anyone tried using estrace cream? How did it work for you? This is the first time i'll be using it tonight for the next two weeks to see if it will help with my irritation and itching. Shocked

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Re: Estrace Cream...

Post  Sarah001 on Sun Sep 18, 2011 7:45 pm

I really want to try it but my Dr won't prescribe it. I have heard it can burn a bit when you apply it and can make you more prone to yeast infections but some women have excellent results from it so keep us posted.
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Re: Estrace Cream...

Post  ilovebaxter1 on Mon Sep 19, 2011 11:32 pm

I will deffinately keep you posted Smile I tried it for the first time last night and there was no burning so that's good! hopefully it helps im crossing my fingers!

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Re: Estrace Cream...

Post  Sarah001 on Tue Sep 20, 2011 7:22 pm

Good luck! Very Happy
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Re: Estrace Cream...

Post  Aussie on Thu Sep 22, 2011 3:04 am

I speek with people over on the Ic network that swear by this stuff for vv.

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Re: Estrace Cream...

Post  ilovebaxter1 on Thu Sep 22, 2011 4:31 am

I'm glad to hear good things! Smile My doctor told me to apply it around my vagina and put a little in the opening and that tends to burn (on the inside). She also told me to apply it to the top of my vulva too (these are the places that bother me the most.) However, I have irritation on the inside of my vulva lips as well...I'm wondering if i should add a little cream there too? I'm not really sure what this cream could do to me besides make my skin stronger.

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Re: Estrace Cream...

Post  Sarah001 on Thu Sep 22, 2011 10:05 am

The concern with oestrogen cream and the reason doctors are often reluctant to prescribe it is it's linked to breast cancer, one type of breast cancer is fed by oestrogen so if you're prone to it obviously your body absorbing extra oestrogen could cause problems. The Dr should have asked if there was any history of breast cancer in you or your family when prescribing the cream. It doesn't happen to the majority of women but it does to some, there's a man called Frank on Dr Glazer's guestbooks whose wife developed breast cancer after using oestrogen cream for V but obviously that isn't the normal scenario.
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Re: Estrace Cream...

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