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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Estrace Cream...

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Estrace Cream...

Post  ilovebaxter1 on Sun Sep 18, 2011 4:47 pm

Has anyone tried using estrace cream? How did it work for you? This is the first time i'll be using it tonight for the next two weeks to see if it will help with my irritation and itching. Shocked

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Re: Estrace Cream...

Post  Sarah001 on Sun Sep 18, 2011 7:45 pm

I really want to try it but my Dr won't prescribe it. I have heard it can burn a bit when you apply it and can make you more prone to yeast infections but some women have excellent results from it so keep us posted.
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Re: Estrace Cream...

Post  ilovebaxter1 on Mon Sep 19, 2011 11:32 pm

I will deffinately keep you posted Smile I tried it for the first time last night and there was no burning so that's good! hopefully it helps im crossing my fingers!

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Re: Estrace Cream...

Post  Sarah001 on Tue Sep 20, 2011 7:22 pm

Good luck! Very Happy
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Re: Estrace Cream...

Post  Aussie on Thu Sep 22, 2011 3:04 am

I speek with people over on the Ic network that swear by this stuff for vv.

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Re: Estrace Cream...

Post  ilovebaxter1 on Thu Sep 22, 2011 4:31 am

I'm glad to hear good things! Smile My doctor told me to apply it around my vagina and put a little in the opening and that tends to burn (on the inside). She also told me to apply it to the top of my vulva too (these are the places that bother me the most.) However, I have irritation on the inside of my vulva lips as well...I'm wondering if i should add a little cream there too? I'm not really sure what this cream could do to me besides make my skin stronger.

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Re: Estrace Cream...

Post  Sarah001 on Thu Sep 22, 2011 10:05 am

The concern with oestrogen cream and the reason doctors are often reluctant to prescribe it is it's linked to breast cancer, one type of breast cancer is fed by oestrogen so if you're prone to it obviously your body absorbing extra oestrogen could cause problems. The Dr should have asked if there was any history of breast cancer in you or your family when prescribing the cream. It doesn't happen to the majority of women but it does to some, there's a man called Frank on Dr Glazer's guestbooks whose wife developed breast cancer after using oestrogen cream for V but obviously that isn't the normal scenario.
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Re: Estrace Cream...

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