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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Estrace Cream...

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Estrace Cream...

Post  ilovebaxter1 on Sun Sep 18, 2011 4:47 pm

Has anyone tried using estrace cream? How did it work for you? This is the first time i'll be using it tonight for the next two weeks to see if it will help with my irritation and itching. Shocked

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Re: Estrace Cream...

Post  Sarah001 on Sun Sep 18, 2011 7:45 pm

I really want to try it but my Dr won't prescribe it. I have heard it can burn a bit when you apply it and can make you more prone to yeast infections but some women have excellent results from it so keep us posted.
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Re: Estrace Cream...

Post  ilovebaxter1 on Mon Sep 19, 2011 11:32 pm

I will deffinately keep you posted Smile I tried it for the first time last night and there was no burning so that's good! hopefully it helps im crossing my fingers!

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Re: Estrace Cream...

Post  Sarah001 on Tue Sep 20, 2011 7:22 pm

Good luck! Very Happy
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Re: Estrace Cream...

Post  Aussie on Thu Sep 22, 2011 3:04 am

I speek with people over on the Ic network that swear by this stuff for vv.

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Re: Estrace Cream...

Post  ilovebaxter1 on Thu Sep 22, 2011 4:31 am

I'm glad to hear good things! Smile My doctor told me to apply it around my vagina and put a little in the opening and that tends to burn (on the inside). She also told me to apply it to the top of my vulva too (these are the places that bother me the most.) However, I have irritation on the inside of my vulva lips as well...I'm wondering if i should add a little cream there too? I'm not really sure what this cream could do to me besides make my skin stronger.

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Re: Estrace Cream...

Post  Sarah001 on Thu Sep 22, 2011 10:05 am

The concern with oestrogen cream and the reason doctors are often reluctant to prescribe it is it's linked to breast cancer, one type of breast cancer is fed by oestrogen so if you're prone to it obviously your body absorbing extra oestrogen could cause problems. The Dr should have asked if there was any history of breast cancer in you or your family when prescribing the cream. It doesn't happen to the majority of women but it does to some, there's a man called Frank on Dr Glazer's guestbooks whose wife developed breast cancer after using oestrogen cream for V but obviously that isn't the normal scenario.
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Re: Estrace Cream...

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