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» Please tell me this can get better
Today at 2:10 am by anon99

» Acupuncture advice please
Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

Any success with this?

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Re: Any success with this?

Post  Sarah001 on Sun Feb 19, 2012 11:45 am

I can just imagine that conversation with my already baffled doctor! Rolling Eyes Seriously though I would only consider it if learning to relax the PF and having trigger points removed didn't do the job because botox doesn't deactivate trigger points so it's another band aid kind of solution with a short life span plus it doesn't retrain the brain to stop clenching so the second the botox started to wear off I'd be clenching again and back to square one. I've read posts all over online from women who've tried botox and never seen anything positive, I think a lady on here tried them and it didn't work because it's more for localised provoked pain as opposed to generalised unprovoked so probably not a great option for me anyway. Another things that would worry me is injection sites can easily turn into yet more trigger points and I really don't need any help in producing trigger points! Are you thinking about having some done?

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Re: Any success with this?

Post  Rose86 on Sun Feb 19, 2012 6:07 pm

Hi Sarah,

Yeah I am considering it. Just need to find a doctor in London who does it. The research in the area is pretty good for localised provoked V, which is what I have. I know it's short term, but that's probably a positive. I think it might help me find out if the muscles are really causing the VV. If I have it done and things even slightly improve, even in the short term, then i'll know the muscles are part or all of the problem. I'm just not able to stop clenching them. I just cannot seem to remember to relax them often enough for it to make a difference at the moment. Botox has such a high success rate for vagismus too. I know it's a new treatment in the UK, so i'm not sure how easy it is going to be to find someone to do it. I don't even know where to start! I don't want to ask my GP. I'd rather find a doctor and make contact with them, then once I have a name approach my GP. I might not even tell her it's botox, just that this Dr is a a specialist in V. I'm fed up with my GP at the moment to be honest! She doesn't have a bloody clue!


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Re: Any success with this?

Post  Sarah001 on Tue Feb 21, 2012 7:13 pm

My doctor is the same, referring me for stress incontinence when I have the opposite problem just says it all really. I don't really know what to suggest, I'm not sure what kind of doctor it would have to be either. Anyway keep us posted and remember if you check in every minute or so what you're doing with the pelvic floor and then relax it every time eventually it will stay relaxed for longer and longer. It's not easy, I've got probably a year or more of retraining everything to work correctly because I'm such a mess so I know how daunting it seems. Good luck with your botox search.

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Re: Any success with this?

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