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» I don't know what to do anymore
Today at 5:05 am by SinclairSassy

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Any success with this?

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Re: Any success with this?

Post  Sarah001 on Sun Feb 19, 2012 11:45 am

I can just imagine that conversation with my already baffled doctor! Rolling Eyes Seriously though I would only consider it if learning to relax the PF and having trigger points removed didn't do the job because botox doesn't deactivate trigger points so it's another band aid kind of solution with a short life span plus it doesn't retrain the brain to stop clenching so the second the botox started to wear off I'd be clenching again and back to square one. I've read posts all over online from women who've tried botox and never seen anything positive, I think a lady on here tried them and it didn't work because it's more for localised provoked pain as opposed to generalised unprovoked so probably not a great option for me anyway. Another things that would worry me is injection sites can easily turn into yet more trigger points and I really don't need any help in producing trigger points! Are you thinking about having some done?

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Re: Any success with this?

Post  Rose86 on Sun Feb 19, 2012 6:07 pm

Hi Sarah,

Yeah I am considering it. Just need to find a doctor in London who does it. The research in the area is pretty good for localised provoked V, which is what I have. I know it's short term, but that's probably a positive. I think it might help me find out if the muscles are really causing the VV. If I have it done and things even slightly improve, even in the short term, then i'll know the muscles are part or all of the problem. I'm just not able to stop clenching them. I just cannot seem to remember to relax them often enough for it to make a difference at the moment. Botox has such a high success rate for vagismus too. I know it's a new treatment in the UK, so i'm not sure how easy it is going to be to find someone to do it. I don't even know where to start! I don't want to ask my GP. I'd rather find a doctor and make contact with them, then once I have a name approach my GP. I might not even tell her it's botox, just that this Dr is a a specialist in V. I'm fed up with my GP at the moment to be honest! She doesn't have a bloody clue!


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Re: Any success with this?

Post  Sarah001 on Tue Feb 21, 2012 7:13 pm

My doctor is the same, referring me for stress incontinence when I have the opposite problem just says it all really. I don't really know what to suggest, I'm not sure what kind of doctor it would have to be either. Anyway keep us posted and remember if you check in every minute or so what you're doing with the pelvic floor and then relax it every time eventually it will stay relaxed for longer and longer. It's not easy, I've got probably a year or more of retraining everything to work correctly because I'm such a mess so I know how daunting it seems. Good luck with your botox search.

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Re: Any success with this?

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