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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


New from Australia.

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New from Australia.

Post  casper on Mon Sep 19, 2011 3:54 am

Hi, I'm Casper. I'm from Melbourne Australia and I haven't officially been diagnosed with vulvodynia, but I fear it's the only thing that could explain it.

I've seen countless doctors and gynos, all they have done is put me on the antibiotic 'flagyl' and tell me that I need to relax more and that it's probably all in my head. My sister is the one who suggested I search up this condition, and after reading through as much as I can find, its the only thing that explains the pain. I'm trying to find a doctor or someone who specializes in this, but I'm having little luck. My partner has been great with all this, but I really just need to put a name or a condition to whats wrong with me, you know?

I just, I mostly want to know what is wrong with me, and know that I'm not alone in what I have?

casper

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Re: New from Australia.

Post  Sarah001 on Mon Sep 19, 2011 5:44 pm

Hi Casper and welcome. The reason vulvodynia explains your pain is because it isn't really a diagnosis, it literally just means "pain in the vulvar" and doesn't explain why. The secret to improving is to try and establish why the pain is there. Is there an infection present? Are you being given flagyl for BV? If you're being prescribed flagyl without having swabs done to check if you need it I suggest insisting on having a swab taken. If you can't get your Dr to agree go to your nearest GUM clinic and ask them to take a swab and check it. Ruling out any infections should be the first step and a "diagnosis" of vulvodynia can only be given once infections have been ruled out and skin conditions have been checked for. Get a swab done soon as you can so you can at least stop the flagyl if there's no reason for it.

Drs who tell you it's in your head need to be avoided, your GUM clinic can tell you who your nearest vulval pain specialist is, it's often a vulval dermatologist. You could also search online for vulval clinics and arrange to go to one.
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Sarah001

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Re: New from Australia.

Post  Aussie on Thu Sep 22, 2011 3:14 am

www.vulvodynia.com.au.... talk with Marek or Sherie on the phone. Sherie suffered for 8 years and now works with Marek. They are so kind and know their stuff. xx

Aussie

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Re: New from Australia.

Post  Aussie on Thu Sep 22, 2011 5:25 am

They will also put you in contact with the right specialist / gyno in your area.

Aussie

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Re: New from Australia.

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