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» Anyone been to see Dr.Claire Bailey in Birmingham?
Yesterday at 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Yesterday at 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Amitriptyline!

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Amitriptyline!

Post  ilovebaxter1 on Tue Sep 20, 2011 12:49 am

My gyno just prescribed me Estrace cream that I have been using for 2 nights now with no burning but a little itching after I apply it. Her office called me today saying that if I did not want to wait to see a specialist (my appointment will be in december or later) and wanted to try out Amitriptyline to see if it will help me out. I have not been diagnosed with vulvodynia yet and I'm still not 100% sure if I have it. I have irritation/itching when walking at the top of my vulva and around my vagina. I also have a dull pain/ache in my vulva a few times a day for a few seconds. Other than that my vulva looks normal except after I walk it becomes a little red.

I've read good and bad feedback on this antidepressant and it seems to be hit or miss with it. Has any one used this? What were the results? Should I wait to see the specialist to see what's really going on with me? My gyno hasn't really ruled out much besides stds, bv, yeast. I've seen a derm who ruled out eczema, contact dermatitis, psoriasis. Thanks everyone! Razz

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Re: Amitriptyline!

Post  Sarah001 on Tue Sep 20, 2011 7:11 pm

I say give it a go, if you've had stds and dermatology problems ruled out Ami is the next step. I take 50 mg and it doesn't work much for me as far as V goes but it helps me sleep which was a Fibro problem I was having. 10mg is a tiny dose but it can make you feel woozy initially, the wooziness will pass over time but give it a full month before you decide if you can take it or not. It also tends to increase appetite and you may find you eat more (I'm always hungry and I used to be a light eater) so watch out for that but some women get great results with it and there's little point delaying until you see a specialist because they tend to let your usual Dr decide on dosage etc of this anyway so you've not got anything to lose by trying it now, if it doesn't suit you then the specialist can try something else so it essentially speeds up the process by getting on it now.
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Re: Amitriptyline!

Post  Mette on Wed Sep 21, 2011 8:57 am

I've been on amitriptylin for 5-6 years now and it's the reason I can lead a normal life.
I only have pain when provoked, so my case might be different from yours, but I definately think you should give it a try.
It's important that you take your time with it. It took a couple of months for me to feel the difference. For me it had really heavy side effects for the first couple of days-weeks. I wasn't actually physically able to be at school for a few days, because I was so drugged up. I also had some mood swings, which is the reason why I when down from 25 to 10 mg.
It's important that you know that most of the side effects will go away after some time and that it takes more than a month to take effect in a positive way. Plan to start it at a time when it's possible for you to take some days off work if you need it and stay optimistic. It has really been a cure for me and I haven't had any side effects for years now.

I hope it works out for you!
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Re: Amitriptyline!

Post  ilovebaxter1 on Thu Sep 22, 2011 2:13 am

thanks girls <3 ill have to give it a shot Smile ill update on the results!

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Quick Question!

Post  ilovebaxter1 on Thu Sep 22, 2011 4:34 am

I'm also wondering...Are you able to drink alcohol on ami? I've read it can just make you more tired and kick in the sedation effect more. I drink occasionally when I go out with friends so it kinda bums me out I might have to give up having a few drinks once in awhile No

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Re: Amitriptyline!

Post  Sarah001 on Thu Sep 22, 2011 10:01 am

You're not supposed to but I do and I can still drink the same amount I could before even though I'm on Ami and Pregabalin Embarassed lush!! Some people can't drink on it though and others are like me and don't get any different effects, depends on your tolerance to alcohol before the Ami I think.
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Re: Amitriptyline!

Post  Mette on Thu Sep 22, 2011 10:27 am

I don't feel a difference now, but in the beginning I got drunk really really fast (one beer would do it). After a couple of months I didn't give it a thought though.
I recently discovered that I'm not able to take motion-sickness pills (Postafen). They interact with the ami and just makes me more sick.
But like Sarah001 says it probably depends on how your body reacts to the drugs.

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Re: Amitriptyline!

Post  ilovebaxter1 on Thu Sep 22, 2011 6:52 pm

oh good Smile phew! drunken lol I mean i'm only 19 turning 20 in a few days so i didn't want to not be able to party once in awhile haha ill keep everyone posted on my results! i'm probably going to try it in the next few weeks because I'm have to take time off from work to start it just incase the side effects are bad!

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Re: Amitriptyline!

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