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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Amitriptyline!

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Amitriptyline!

Post  ilovebaxter1 on Tue Sep 20, 2011 12:49 am

My gyno just prescribed me Estrace cream that I have been using for 2 nights now with no burning but a little itching after I apply it. Her office called me today saying that if I did not want to wait to see a specialist (my appointment will be in december or later) and wanted to try out Amitriptyline to see if it will help me out. I have not been diagnosed with vulvodynia yet and I'm still not 100% sure if I have it. I have irritation/itching when walking at the top of my vulva and around my vagina. I also have a dull pain/ache in my vulva a few times a day for a few seconds. Other than that my vulva looks normal except after I walk it becomes a little red.

I've read good and bad feedback on this antidepressant and it seems to be hit or miss with it. Has any one used this? What were the results? Should I wait to see the specialist to see what's really going on with me? My gyno hasn't really ruled out much besides stds, bv, yeast. I've seen a derm who ruled out eczema, contact dermatitis, psoriasis. Thanks everyone! Razz

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Re: Amitriptyline!

Post  Sarah001 on Tue Sep 20, 2011 7:11 pm

I say give it a go, if you've had stds and dermatology problems ruled out Ami is the next step. I take 50 mg and it doesn't work much for me as far as V goes but it helps me sleep which was a Fibro problem I was having. 10mg is a tiny dose but it can make you feel woozy initially, the wooziness will pass over time but give it a full month before you decide if you can take it or not. It also tends to increase appetite and you may find you eat more (I'm always hungry and I used to be a light eater) so watch out for that but some women get great results with it and there's little point delaying until you see a specialist because they tend to let your usual Dr decide on dosage etc of this anyway so you've not got anything to lose by trying it now, if it doesn't suit you then the specialist can try something else so it essentially speeds up the process by getting on it now.
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Re: Amitriptyline!

Post  Mette on Wed Sep 21, 2011 8:57 am

I've been on amitriptylin for 5-6 years now and it's the reason I can lead a normal life.
I only have pain when provoked, so my case might be different from yours, but I definately think you should give it a try.
It's important that you take your time with it. It took a couple of months for me to feel the difference. For me it had really heavy side effects for the first couple of days-weeks. I wasn't actually physically able to be at school for a few days, because I was so drugged up. I also had some mood swings, which is the reason why I when down from 25 to 10 mg.
It's important that you know that most of the side effects will go away after some time and that it takes more than a month to take effect in a positive way. Plan to start it at a time when it's possible for you to take some days off work if you need it and stay optimistic. It has really been a cure for me and I haven't had any side effects for years now.

I hope it works out for you!
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Re: Amitriptyline!

Post  ilovebaxter1 on Thu Sep 22, 2011 2:13 am

thanks girls <3 ill have to give it a shot Smile ill update on the results!

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Quick Question!

Post  ilovebaxter1 on Thu Sep 22, 2011 4:34 am

I'm also wondering...Are you able to drink alcohol on ami? I've read it can just make you more tired and kick in the sedation effect more. I drink occasionally when I go out with friends so it kinda bums me out I might have to give up having a few drinks once in awhile No

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Re: Amitriptyline!

Post  Sarah001 on Thu Sep 22, 2011 10:01 am

You're not supposed to but I do and I can still drink the same amount I could before even though I'm on Ami and Pregabalin Embarassed lush!! Some people can't drink on it though and others are like me and don't get any different effects, depends on your tolerance to alcohol before the Ami I think.
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Re: Amitriptyline!

Post  Mette on Thu Sep 22, 2011 10:27 am

I don't feel a difference now, but in the beginning I got drunk really really fast (one beer would do it). After a couple of months I didn't give it a thought though.
I recently discovered that I'm not able to take motion-sickness pills (Postafen). They interact with the ami and just makes me more sick.
But like Sarah001 says it probably depends on how your body reacts to the drugs.

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Re: Amitriptyline!

Post  ilovebaxter1 on Thu Sep 22, 2011 6:52 pm

oh good Smile phew! drunken lol I mean i'm only 19 turning 20 in a few days so i didn't want to not be able to party once in awhile haha ill keep everyone posted on my results! i'm probably going to try it in the next few weeks because I'm have to take time off from work to start it just incase the side effects are bad!

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Re: Amitriptyline!

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