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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Amitriptyline!

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Amitriptyline!

Post  ilovebaxter1 on Tue Sep 20, 2011 12:49 am

My gyno just prescribed me Estrace cream that I have been using for 2 nights now with no burning but a little itching after I apply it. Her office called me today saying that if I did not want to wait to see a specialist (my appointment will be in december or later) and wanted to try out Amitriptyline to see if it will help me out. I have not been diagnosed with vulvodynia yet and I'm still not 100% sure if I have it. I have irritation/itching when walking at the top of my vulva and around my vagina. I also have a dull pain/ache in my vulva a few times a day for a few seconds. Other than that my vulva looks normal except after I walk it becomes a little red.

I've read good and bad feedback on this antidepressant and it seems to be hit or miss with it. Has any one used this? What were the results? Should I wait to see the specialist to see what's really going on with me? My gyno hasn't really ruled out much besides stds, bv, yeast. I've seen a derm who ruled out eczema, contact dermatitis, psoriasis. Thanks everyone! Razz

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Re: Amitriptyline!

Post  Sarah001 on Tue Sep 20, 2011 7:11 pm

I say give it a go, if you've had stds and dermatology problems ruled out Ami is the next step. I take 50 mg and it doesn't work much for me as far as V goes but it helps me sleep which was a Fibro problem I was having. 10mg is a tiny dose but it can make you feel woozy initially, the wooziness will pass over time but give it a full month before you decide if you can take it or not. It also tends to increase appetite and you may find you eat more (I'm always hungry and I used to be a light eater) so watch out for that but some women get great results with it and there's little point delaying until you see a specialist because they tend to let your usual Dr decide on dosage etc of this anyway so you've not got anything to lose by trying it now, if it doesn't suit you then the specialist can try something else so it essentially speeds up the process by getting on it now.
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Re: Amitriptyline!

Post  Mette on Wed Sep 21, 2011 8:57 am

I've been on amitriptylin for 5-6 years now and it's the reason I can lead a normal life.
I only have pain when provoked, so my case might be different from yours, but I definately think you should give it a try.
It's important that you take your time with it. It took a couple of months for me to feel the difference. For me it had really heavy side effects for the first couple of days-weeks. I wasn't actually physically able to be at school for a few days, because I was so drugged up. I also had some mood swings, which is the reason why I when down from 25 to 10 mg.
It's important that you know that most of the side effects will go away after some time and that it takes more than a month to take effect in a positive way. Plan to start it at a time when it's possible for you to take some days off work if you need it and stay optimistic. It has really been a cure for me and I haven't had any side effects for years now.

I hope it works out for you!
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Re: Amitriptyline!

Post  ilovebaxter1 on Thu Sep 22, 2011 2:13 am

thanks girls <3 ill have to give it a shot Smile ill update on the results!

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Quick Question!

Post  ilovebaxter1 on Thu Sep 22, 2011 4:34 am

I'm also wondering...Are you able to drink alcohol on ami? I've read it can just make you more tired and kick in the sedation effect more. I drink occasionally when I go out with friends so it kinda bums me out I might have to give up having a few drinks once in awhile No

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Re: Amitriptyline!

Post  Sarah001 on Thu Sep 22, 2011 10:01 am

You're not supposed to but I do and I can still drink the same amount I could before even though I'm on Ami and Pregabalin Embarassed lush!! Some people can't drink on it though and others are like me and don't get any different effects, depends on your tolerance to alcohol before the Ami I think.
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Re: Amitriptyline!

Post  Mette on Thu Sep 22, 2011 10:27 am

I don't feel a difference now, but in the beginning I got drunk really really fast (one beer would do it). After a couple of months I didn't give it a thought though.
I recently discovered that I'm not able to take motion-sickness pills (Postafen). They interact with the ami and just makes me more sick.
But like Sarah001 says it probably depends on how your body reacts to the drugs.

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Re: Amitriptyline!

Post  ilovebaxter1 on Thu Sep 22, 2011 6:52 pm

oh good Smile phew! drunken lol I mean i'm only 19 turning 20 in a few days so i didn't want to not be able to party once in awhile haha ill keep everyone posted on my results! i'm probably going to try it in the next few weeks because I'm have to take time off from work to start it just incase the side effects are bad!

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Re: Amitriptyline!

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