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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 2

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Know the Reasons why we should take exercise

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Know the Reasons why we should take exercise

Post  chirosportscogee on Tue Sep 27, 2011 11:59 am

How you move, exercise and stretch can have a dynamic impact on your health. To give you some advice on why you need to move I’m here, Dr. Michael Cohen a chiropractor from New South Wales Australia.
Reasons why we need to move and take an exercise:
-Exercise and daily movement reduces Cortisol in the body, your stress hormone! Therefore the more you move the less you stress!
-Our ancestors used to walk over 10kms each day minimum and had relatively now incidence of lifestyle illness, now in the USA 20% of the population move less than 200 metres in day- they also have the largest percentage of lifestyle related illness in the world- heart disease, diabetes, obesity etc
-People who exercise and move daily whilst burning energy actually create more efficient metabolisms and as such have significantly more energy for their day- bigger and better engines!
-People who exercise, look more attractive, have on average clearer skin, brighter perspectives on life and enjoy greater sex! What do you want?
-Exercise is best performed in the morning because this prevents the unexpected daily events from interrupting your exercise routine and has a “fire up” mechanism for your metabolism which leaves you more alert for the day and better yet burning calories throughout your workday!
-Building lean muscle mass will actually increase your metabolism- that is weight / resistance training can help you lose weight and increase energy for your day.
-Your body needs movement to remove waste products. The discs which lay between the bones of your spine only get nutrients when they move, sitting all day and not exercise see these decay away over time.
-Exercise helps prevent lifestyle illnesses like Diabetes, Heart disease, Obesity, Osteoporosis, Depression even Cancer
-Osteoporosis is more a movement deficiency disease that a Calcium deficiency disease. Bones that do not move and bear weight become brittle.
-A dog stretches more than 10 times a day, how often do you?
-Yoga and Pilates are great ways to improve flexibility. They take your body into ranges you might otherwise ignore. Each day you should try to take each joint in your body through as many ranges as possible.
-Daily exercise can increase your life expectancy and more importantly improve the quality of that time!

This site seems to be an interesting forum site and a nice place to share and learn ideas from somebody else. I’m looking forward for a good stay ahead and have and establish an interesting discussion with all of you here. Thanks and have a wonderful day!


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Join date : 2011-09-27

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