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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Just a depressing rant

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Just a depressing rant

Post  lolainslacks on Tue Sep 27, 2011 12:22 pm

I'm feeling so bad about this lately. I already have real problems with anxiety that I've had to deal with for years, and now that this disorder is a part of my life it seems to be the epicenter of my anxiety.

The pain medication I've been taking since July has not helped at all. I know it's just the first one and there are others for me to try, but I pinned a lot of hope on this and it's a huge disappointment.

It's just, these dilators, they work sometimes. If I use lidocaine I can get all the way up to the largest, which is average penis size, so sex is definately possible now. But I have to take my time each session, and I can't use the largest for about forty minutes. Over half an hour of foreplay every single time I have sex in the future. And after I use them, the pain lasts a day, so I won't be able to have sex two days in a row. And some days are worse than others so some days the lidocaine doesn't help me, which means that some days sex just won't be possible. And the week of my period, from the second it starts to about four days after it's ended, any penetration is impossible. Which means that really, sex will hardly ever be possible, and when it is, it will never be spontaneous or romantic. Instead it will be long and slow and clinical.

And I'll never be able to have casual sex with a guy I don't know that well, or with someone I just meet and want to sleep with. I know that this kind of sex is frowned upon, or is thought of as 'slutty', but other women have this option, and I don't. It's something I want to at least be able to do. It's my choice who I sleep with. But I can't even consider it, because guys who want casual sex won't be willing to wait half an hour with me, and I can't very well carry a lidocaine syringe everywhere I go.

Right now I am just in a state of rage and depression and resentment. And every fucking movie I try to watch to take my mind off things has a sex scene that makes me feel like shit. I feel hopeless, I can't imagine ever finding any man who will be okay with my situation.

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Re: Just a depressing rant

Post  Sarah001 on Tue Sep 27, 2011 4:38 pm

I feel exactly the same right now, I got asked out a couple of weeks ago by a guy I've known for a while and I said no because I can't have sex at this point ever so it just wasn't worth getting into it. I also live in an area where I couldn't gaurantee if I told one person other than my closest friends it wouldn't become common knowledge and I don't want strangers knowing about my vulvar! I too think it must be fantastic for these women to be able to have spontaneous sex with whoever they choose and feel cheated I can't, and I just don't want to even go there with any man so I'm feeling like I'm resigned to be alone forever. I really know how you feel as the meds aren't working well for me either, I've just had my Lyrica increased to 450mg a day on top of 50mg of Ami and I too thought medication would be my last resort so I'm really worried and disappointed it isn't working. I didn't get on with the lidocaine and mine is generalised V anyway but I did see plenty of women on other sites saying it lost effectiveness over time as the body becomes used to it, much the way the meds do. I'm pinning alot of hope on physio and I'm very worried it won't work because if it doesn't there's no other option for me. I honestly don't know what I'll do if it doesn't help, the thought of it frightens me. So I totally understand and empathise with you, I can't make you feel any better but I can show you you're not on your own with this. x
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Re: Just a depressing rant

Post  lolainslacks on Tue Sep 27, 2011 6:26 pm

Thank you so much. It really is a great comfort to be able to talk to someone who knows what this is like.

I have my very first physio appointment on the 12 of October, and I'm so scared about it because, like you, I consider this a last resort. I am sure it will help with my muscle control, but really, I can't see how it's going to be anything other than unbearable, because any physical examination is excruciating for me. There are just some days where I feel like there's no point getting out of bed because this makes me feel so depressed. Thank you for empathising. x x x

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Re: Just a depressing rant

Post  Mette on Tue Sep 27, 2011 10:38 pm

I just want to tell you both that I've been where you are. I know that hopeless feeling you get when the treatments aren't working. I was told several times that I had an incurable condition. But since they told me that new treatments have been developed and I keep hearing about new things. Right now I'm on ami and it made me able to continue my life. The first couple of doctors I saw didn't know that was even a possibility.

About sex I just want to tell you not to give up hope. Just because you are not able to use the dilator does not mean that you won't be able to have sex with a man with the same size penis. If you're turned on it's a totally different thing. Your vagina opens up and gets ready naturally. I'm not able to have a gyno exam without screaming and crying, but I'm able to really enjoy sex with my boyfriend. It hurts a little, but it's still really nice.

What I'm trying to say is: don't give up hope. You never know if life is going to change until it does.

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Re: Just a depressing rant

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