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Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
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Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


I'm scared

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I'm scared

Post  Lynn on Wed Sep 28, 2011 3:41 am

I'm 15 years old. My grandma and her sisters all had this, my step mom and her sisters, my step sister. They all had it. But they don't offer the same comfort as my own mother would... My symptoms started a few months ago, but I've had PTSD for over a year. History of sexual abuse. Is there anyway to stop this permanently? Anything, kill all nerves in me if I have to. I just got married a month ago... My husband was just starting to show me that sex didn't have to be violent, or controlling, or painful... and now this. Please, I don't care how, but there has to be a way. Does anyone know of a permanent solution to this problem?

Lynn

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Re: I'm scared

Post  Mette on Wed Sep 28, 2011 11:09 am

Hi Lynn
First of all I'd like to tell you that I feel for you. It's not easy having this condition at such a young age (I was 17 myself when it started) and it sounds like you had a very difficult life so far.

There are lots of treatments for vulvodynia, but it's difficult to say which one is right for you, because every case is different.
Have you seen a doctor? If so what did she/he tell you?
The first thing you need to rule out is yeast or another kind of infection. If you have an infection it can be very easy to treat, but you need to get a doctor to take the tests.
If it turns out you don't have an infection there are lots of treatments you can try.

One thing I think this forces you to do is to take your own feelings seriously. There is a very powerful emotional componant to this and it is important to be comfortable and relaxed when you have sex otherwise it will hurt. To me this means that I have to make myself say no, if I don't feel like it eventhough I'm scared that my boyfriend will be angry or disappointed. Most of the time he understands, but even if he didn't it's still my body and I need to trust that whatever I feel is okay. That's important for all women to realise, but it's especially important to us, because it will worsen our condition if we don't.

How does your husband feel about this?

There is a way and I'm confident that you will not suffer from this always, but there's no easy answer and it is going to take som time.


Mette

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Re: I'm scared

Post  Lynn on Wed Sep 28, 2011 1:17 pm

My husband is really good about this. Very good, an odd duck you might say seeing as he's just a year older than I am. I saw a few doctors, but people keep talking about tests and things and no one really did anything... it says that I have PTSD in my file, they're probably worried more contact would require sedation. That's what the doctors and counselors said the first time I went. Isn't there a way to just deaden all your vaginal nerves?

Lynn

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Re: I'm scared

Post  Mette on Sat Oct 01, 2011 1:00 pm

I'm really glad to hear that your husband is so great about all this. He sounds like a great guy Smile

If you want to try to numb your nerves, try to use some lidocaine creme before sex (and any other time it hurts). You can get it over the counter at the pharmacy. It takes 30-45 minutes to work, so what worked really well for me was to put it on and then have foreplay for a little over half an hour. By the time the creme worked I would also be really turned on, which made everything a lot easier.
It's also really good to try and touch yourself (not in a sexual way) to explore where the pain is and how your body reacts. Also try to have sex in ways that doesn't hurt you (without penetration). That was really important to me since all the pain really killed my sex drive and it's nice to get in touch with that side of yourself.

Let me know how it works out for you and tell me if you need to talk about anything...

Mette

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Re: I'm scared

Post  Lynn on Sun Oct 02, 2011 7:55 pm

It hurts all the time though... how long does it last? And isn't there a way to do that permanently? Nerve taps and such, I've heard of permanent ones. I just want this to stop NOW. I know there are surgical nerve blocks, done by removing tissues or permanently damaging the nerves therein. ...My pain causes my panic attacks, and my panic attacks cause my pain... I can't function normally anymore

Lynn

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Re: I'm scared

Post  Mette on Mon Oct 03, 2011 8:41 am

I understand your desperation. I think every woman on this forum has felt that way at some point.
But you have to be patient. It's true that there are surgeries, which might help, but there is also a very high risk that it will just make your problem a lot worse.
There are lots of little things you can try. The lidocaine creme is a good one. The only side effect is some stinging in the beginning and there is no way of overdosing it, so you can use it as much as you need. If you do it 5-6 times a day you should be covered. You can also put some on a piece of cotton and sleep with it in your underwear. Some women are helped permanently by this, but it will take some time (3-6 months at least). My gyno suggested me to touch the area where it hurts for about ten minutes a day (not in a way that it really hurts). It is supposed to deaden the nerves because it gets rid of the association between touch and pain. But all of it will take some time.

I'm not a doctor, but it seems to me that your vulvodynia is very closely linked to your PTSD. Are you seeing a psychologist to help you with your panic attacks?
Maybe if you overcome some of your traumas it will also help with your vulvodynia. Lots of women who have been through sexual abuse get problems with cramps in the vagina for a long time afterwards. It's a perfectly natural reaction, because your body associates that area with something traumatic.
I know that this is not what you want to hear, because this is not a quick solution either. It takes a lot of courage to deal with PTSD, but I think it's the only really permanent solution for you.



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Re: I'm scared

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