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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


I'm scared

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I'm scared

Post  Lynn on Wed Sep 28, 2011 3:41 am

I'm 15 years old. My grandma and her sisters all had this, my step mom and her sisters, my step sister. They all had it. But they don't offer the same comfort as my own mother would... My symptoms started a few months ago, but I've had PTSD for over a year. History of sexual abuse. Is there anyway to stop this permanently? Anything, kill all nerves in me if I have to. I just got married a month ago... My husband was just starting to show me that sex didn't have to be violent, or controlling, or painful... and now this. Please, I don't care how, but there has to be a way. Does anyone know of a permanent solution to this problem?

Lynn

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Re: I'm scared

Post  Mette on Wed Sep 28, 2011 11:09 am

Hi Lynn
First of all I'd like to tell you that I feel for you. It's not easy having this condition at such a young age (I was 17 myself when it started) and it sounds like you had a very difficult life so far.

There are lots of treatments for vulvodynia, but it's difficult to say which one is right for you, because every case is different.
Have you seen a doctor? If so what did she/he tell you?
The first thing you need to rule out is yeast or another kind of infection. If you have an infection it can be very easy to treat, but you need to get a doctor to take the tests.
If it turns out you don't have an infection there are lots of treatments you can try.

One thing I think this forces you to do is to take your own feelings seriously. There is a very powerful emotional componant to this and it is important to be comfortable and relaxed when you have sex otherwise it will hurt. To me this means that I have to make myself say no, if I don't feel like it eventhough I'm scared that my boyfriend will be angry or disappointed. Most of the time he understands, but even if he didn't it's still my body and I need to trust that whatever I feel is okay. That's important for all women to realise, but it's especially important to us, because it will worsen our condition if we don't.

How does your husband feel about this?

There is a way and I'm confident that you will not suffer from this always, but there's no easy answer and it is going to take som time.


Mette

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Re: I'm scared

Post  Lynn on Wed Sep 28, 2011 1:17 pm

My husband is really good about this. Very good, an odd duck you might say seeing as he's just a year older than I am. I saw a few doctors, but people keep talking about tests and things and no one really did anything... it says that I have PTSD in my file, they're probably worried more contact would require sedation. That's what the doctors and counselors said the first time I went. Isn't there a way to just deaden all your vaginal nerves?

Lynn

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Re: I'm scared

Post  Mette on Sat Oct 01, 2011 1:00 pm

I'm really glad to hear that your husband is so great about all this. He sounds like a great guy Smile

If you want to try to numb your nerves, try to use some lidocaine creme before sex (and any other time it hurts). You can get it over the counter at the pharmacy. It takes 30-45 minutes to work, so what worked really well for me was to put it on and then have foreplay for a little over half an hour. By the time the creme worked I would also be really turned on, which made everything a lot easier.
It's also really good to try and touch yourself (not in a sexual way) to explore where the pain is and how your body reacts. Also try to have sex in ways that doesn't hurt you (without penetration). That was really important to me since all the pain really killed my sex drive and it's nice to get in touch with that side of yourself.

Let me know how it works out for you and tell me if you need to talk about anything...

Mette

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Re: I'm scared

Post  Lynn on Sun Oct 02, 2011 7:55 pm

It hurts all the time though... how long does it last? And isn't there a way to do that permanently? Nerve taps and such, I've heard of permanent ones. I just want this to stop NOW. I know there are surgical nerve blocks, done by removing tissues or permanently damaging the nerves therein. ...My pain causes my panic attacks, and my panic attacks cause my pain... I can't function normally anymore

Lynn

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Re: I'm scared

Post  Mette on Mon Oct 03, 2011 8:41 am

I understand your desperation. I think every woman on this forum has felt that way at some point.
But you have to be patient. It's true that there are surgeries, which might help, but there is also a very high risk that it will just make your problem a lot worse.
There are lots of little things you can try. The lidocaine creme is a good one. The only side effect is some stinging in the beginning and there is no way of overdosing it, so you can use it as much as you need. If you do it 5-6 times a day you should be covered. You can also put some on a piece of cotton and sleep with it in your underwear. Some women are helped permanently by this, but it will take some time (3-6 months at least). My gyno suggested me to touch the area where it hurts for about ten minutes a day (not in a way that it really hurts). It is supposed to deaden the nerves because it gets rid of the association between touch and pain. But all of it will take some time.

I'm not a doctor, but it seems to me that your vulvodynia is very closely linked to your PTSD. Are you seeing a psychologist to help you with your panic attacks?
Maybe if you overcome some of your traumas it will also help with your vulvodynia. Lots of women who have been through sexual abuse get problems with cramps in the vagina for a long time afterwards. It's a perfectly natural reaction, because your body associates that area with something traumatic.
I know that this is not what you want to hear, because this is not a quick solution either. It takes a lot of courage to deal with PTSD, but I think it's the only really permanent solution for you.



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