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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


I'm scared

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I'm scared

Post  Lynn on Wed Sep 28, 2011 3:41 am

I'm 15 years old. My grandma and her sisters all had this, my step mom and her sisters, my step sister. They all had it. But they don't offer the same comfort as my own mother would... My symptoms started a few months ago, but I've had PTSD for over a year. History of sexual abuse. Is there anyway to stop this permanently? Anything, kill all nerves in me if I have to. I just got married a month ago... My husband was just starting to show me that sex didn't have to be violent, or controlling, or painful... and now this. Please, I don't care how, but there has to be a way. Does anyone know of a permanent solution to this problem?

Lynn

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Re: I'm scared

Post  Mette on Wed Sep 28, 2011 11:09 am

Hi Lynn
First of all I'd like to tell you that I feel for you. It's not easy having this condition at such a young age (I was 17 myself when it started) and it sounds like you had a very difficult life so far.

There are lots of treatments for vulvodynia, but it's difficult to say which one is right for you, because every case is different.
Have you seen a doctor? If so what did she/he tell you?
The first thing you need to rule out is yeast or another kind of infection. If you have an infection it can be very easy to treat, but you need to get a doctor to take the tests.
If it turns out you don't have an infection there are lots of treatments you can try.

One thing I think this forces you to do is to take your own feelings seriously. There is a very powerful emotional componant to this and it is important to be comfortable and relaxed when you have sex otherwise it will hurt. To me this means that I have to make myself say no, if I don't feel like it eventhough I'm scared that my boyfriend will be angry or disappointed. Most of the time he understands, but even if he didn't it's still my body and I need to trust that whatever I feel is okay. That's important for all women to realise, but it's especially important to us, because it will worsen our condition if we don't.

How does your husband feel about this?

There is a way and I'm confident that you will not suffer from this always, but there's no easy answer and it is going to take som time.


Mette

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Re: I'm scared

Post  Lynn on Wed Sep 28, 2011 1:17 pm

My husband is really good about this. Very good, an odd duck you might say seeing as he's just a year older than I am. I saw a few doctors, but people keep talking about tests and things and no one really did anything... it says that I have PTSD in my file, they're probably worried more contact would require sedation. That's what the doctors and counselors said the first time I went. Isn't there a way to just deaden all your vaginal nerves?

Lynn

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Re: I'm scared

Post  Mette on Sat Oct 01, 2011 1:00 pm

I'm really glad to hear that your husband is so great about all this. He sounds like a great guy Smile

If you want to try to numb your nerves, try to use some lidocaine creme before sex (and any other time it hurts). You can get it over the counter at the pharmacy. It takes 30-45 minutes to work, so what worked really well for me was to put it on and then have foreplay for a little over half an hour. By the time the creme worked I would also be really turned on, which made everything a lot easier.
It's also really good to try and touch yourself (not in a sexual way) to explore where the pain is and how your body reacts. Also try to have sex in ways that doesn't hurt you (without penetration). That was really important to me since all the pain really killed my sex drive and it's nice to get in touch with that side of yourself.

Let me know how it works out for you and tell me if you need to talk about anything...

Mette

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Re: I'm scared

Post  Lynn on Sun Oct 02, 2011 7:55 pm

It hurts all the time though... how long does it last? And isn't there a way to do that permanently? Nerve taps and such, I've heard of permanent ones. I just want this to stop NOW. I know there are surgical nerve blocks, done by removing tissues or permanently damaging the nerves therein. ...My pain causes my panic attacks, and my panic attacks cause my pain... I can't function normally anymore

Lynn

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Re: I'm scared

Post  Mette on Mon Oct 03, 2011 8:41 am

I understand your desperation. I think every woman on this forum has felt that way at some point.
But you have to be patient. It's true that there are surgeries, which might help, but there is also a very high risk that it will just make your problem a lot worse.
There are lots of little things you can try. The lidocaine creme is a good one. The only side effect is some stinging in the beginning and there is no way of overdosing it, so you can use it as much as you need. If you do it 5-6 times a day you should be covered. You can also put some on a piece of cotton and sleep with it in your underwear. Some women are helped permanently by this, but it will take some time (3-6 months at least). My gyno suggested me to touch the area where it hurts for about ten minutes a day (not in a way that it really hurts). It is supposed to deaden the nerves because it gets rid of the association between touch and pain. But all of it will take some time.

I'm not a doctor, but it seems to me that your vulvodynia is very closely linked to your PTSD. Are you seeing a psychologist to help you with your panic attacks?
Maybe if you overcome some of your traumas it will also help with your vulvodynia. Lots of women who have been through sexual abuse get problems with cramps in the vagina for a long time afterwards. It's a perfectly natural reaction, because your body associates that area with something traumatic.
I know that this is not what you want to hear, because this is not a quick solution either. It takes a lot of courage to deal with PTSD, but I think it's the only really permanent solution for you.



Mette

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Re: I'm scared

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