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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Can't find anything positive

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Can't find anything positive

Post  mmorgan on Wed Sep 28, 2011 4:12 pm

Why is it when you search "Vulvodynia" you can't find any success stories? I only found one and of course that person is selling a product. I want real success stories!

Sure my pain has stumbled down to a tolerable level but it's still a punch to the ego! I catch myself analyzing women around me thinking "how lucky is she that her crouch isn't on fire". Of course I'm noted terribly for doing that since when I first found out I had HSV-1 I would count 5 people and think "Well there's 1 person in that group just like me". Sure this is manageable and thankfully I'm not knocked out with the pain I dealt with at the beginning but I can't help but think how it felt to feel nothing at all and also sort of "forget" you have a lady part.

Another doctor's appointment Monday, new doctor, new start. I'm going to go crazy if this one can't shed light! Tired of being pushed to the side, I need relief, this problem is real, this pain is real, listen to me! & sometimes your going to have to think outside the box, you should want to fix me not push me along and let me suffer!

I feel for every single lady and their significant other. This condition is hell!
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Re: Can't find anything positive

Post  ilovebaxter1 on Wed Sep 28, 2011 6:43 pm

I completely agree with you!!! I look for sucess stories all the time and can never find anything. I am always saying to my best friend how lucky she is because she is comfortable..but I dont think she understands my situation that much Shocked I get cold sores from time to time and seriously thought that is the worst thing that could happen to me. I complain so much when I get them...i would honestly LOVE to get rid of this problem I have and I would never complain about a cold sore again lol. When i'm at work I always am looking around thinking..hmm i wonder if anyone else here has a condition like me? I feel like such an outcast -_- and the worst part is not being able to talk openly about it since it's in such an awkward area.

GOOD LUCK at your appointment and post how it went:)

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Re: Can't find anything positive

Post  Sarah001 on Fri Sep 30, 2011 5:20 pm

I've found some in the past, you do have to really look for them though but think about it, you get your life back and the V is gone so how many women in that position would report back the success? Not many, they'd be too busy getting on with things. It really depends on the source of the problem as to how it should be treated, remember Vulvodynia isn't really a diagnosis it's just a description of symptoms so search for the cause is my advice.
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Re: Can't find anything positive

Post  mmorgan on Tue Oct 04, 2011 3:03 pm

ilovebaxter1 wrote:I completely agree with you!!! I look for sucess stories all the time and can never find anything. I am always saying to my best friend how lucky she is because she is comfortable..but I dont think she understands my situation that much Shocked I get cold sores from time to time and seriously thought that is the worst thing that could happen to me. I complain so much when I get them...i would honestly LOVE to get rid of this problem I have and I would never complain about a cold sore again lol. When i'm at work I always am looking around thinking..hmm i wonder if anyone else here has a condition like me? I feel like such an outcast -_- and the worst part is not being able to talk openly about it since it's in such an awkward area.

GOOD LUCK at your appointment and post how it went:)

I'm glad you understand how I feel, even though it's a sucky thing to feel. Razz
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Re: Can't find anything positive

Post  mmorgan on Tue Oct 04, 2011 3:55 pm

Just went through my e-mail from QualityHealth - Women's Health. Awkwardly there was a link to an article of Vulvodynia.
http://www.qualityhealth.com/news/genital-pain-not-uncommon-among-women-survey-23821?rf=59050&mc=MzY0MDg0Mjc.&emailPID=109999&ct=36921

A recent clinical trial found that one antidepressant, called desipramine (Norpramin), and lidocaine -- used either alone or together -- appeared no better than inactive placebo pills and ointments. On average, women's pain improved over three months whether they got the real treatment or not.

There's hope and I'm thankful that at least someone is writing an article to get this condition out there so I will be sending a thank you note to them asap.
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Re: Can't find anything positive

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