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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Doctors...Where to Start?

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Doctors...Where to Start?

Post  InPain on Thu Sep 29, 2011 9:41 pm

Hi all!

[Skip ahead to the bottom for my question; the rest is just background.]

I've had vulvar vestibulitis for over five years (I'm 26), and have had the ups, downs, and further downs that I'm sure all of you can relate to. At the moment, my only treatment plan is lifestyle adjustment:
- the Mister and I haven't had sex in five years, and lately, ANY sexual activity is just too scary for me
- I don't (nor have I ever!) use any scented products (laundry detergents, personal cleansers, hand soap, etc, etc)
- I no longer use tampons (just cotton-based pads)
- I gave up panties (save for those times when the pads are in use), and instead wear boxer-briefs (no touching, and when they do, it's 100% cotton)
- I don't bike or engage in much exercise, and I sit awkwardly and re-position myself often
- Lidocaine (2% gel) for the times when I really need it
- (there are probably lots more things I'm not thinking of; it's mostly second-nature at this point)
*I followed the low oxalate diet strictly for a year, with no noticeable change, so I stopped (limiting oneself to so few foods proved damaging to my well-being, and with no beneficial effect, I had no reason to stick with it).

So here I am now, in particular pain because of what I believe is a post-menstrual yeast infection on top of the vulvodynia, and I feel just utter hopelessness and despair over what to do next (I'm overwhelmed, and the pain itself is overwhelming, leaving me feeling paralyzed). I have a referral to a dermatologist who apparently specializes in vulvar pain, but all of my gyn. appointments have yielded little visible irritation, and I'm worried I'll be dropping a ton of money to just hear "Well, it's not x, y, or z dermatological condition." I've heard many of you mention pelvic floor muscle physical therapy, so I suppose I should try that next? (I'm also looking into seeing a neurologist, and maybe trying Neurontin; I have Raynaud's and Erythromelalgia, so it would be a "three birds with one stone" kind of deal.) In the meantime, though, what can I do about the [potential] yeast infection? Usually, I do nothing, and grit my teeth and wait for a week or two for things to settle down, because
a) much of the time, the doc just says, "No yeast. No bacteria. I guess it's just the vulvodynia," and
b) is there any way to get an exam without getting "an exam"? Especially in this increased pain, there is NO WAY I can handle an exam -- speculum or not. (And it's not just during, but AFTER. If it was only "during" that I felt pain, I'd take some pain meds and grit my teeth. But since the pain from an exam lasts for DAYS afterwards, I just can't deal with that.)

Any suggestions for a desperate sufferer?

InPain

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Re: Doctors...Where to Start?

Post  Sarah001 on Fri Sep 30, 2011 5:14 pm

Hi and welcome, if you suspect yeast simply buy an over the counter oral treatment and take it, if it is a yeast infection that will help and if not it won't hurt, it's the easy way to figure that problem out without having swabs etc. There isn't a way to get an exam without having an exam unfortunately, can't help you much with that one! Physical therapy is a great idea, the pelvic floor is usually dysfunctional in women with V so biofeedback is a good start but also all the muscles around the pelvis should be examined and the position of the pelvis too in case there's any misalignment. Meds can help some women, I'm on Ami and Lyrica but not having much success with either but it's worth a try. It sounds like you've not tried alot of things so far so don't give up hope, get an oral yeast treatment, try the meds and get your pelvic floor checked as a starting point. Let us know how you get on.
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