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» Struggling
Yesterday at 3:19 am by doublej

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Wed Dec 13, 2017 5:17 pm by Katiej

» Amitriptyline Success and new-found love
Mon Dec 11, 2017 2:47 am by hannah22

» Went Away and Came Back
Sun Dec 10, 2017 8:48 pm by lindsey_taylor

» Somebody please help me...
Sat Dec 09, 2017 5:46 pm by PainBlogger

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 09, 2017 4:40 pm by mary jane

» 7 years later and life looks bleak :(
Thu Dec 07, 2017 12:37 am by sarisbaris

» Laser or Botox Injections for treating vulvodynia
Wed Dec 06, 2017 6:04 am by sarisbaris

» difficult to treat vaginal infections, un-understanding docotrs
Wed Dec 06, 2017 2:52 am by RainyShay77

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Doctors...Where to Start?

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Doctors...Where to Start?

Post  InPain on Thu Sep 29, 2011 9:41 pm

Hi all!

[Skip ahead to the bottom for my question; the rest is just background.]

I've had vulvar vestibulitis for over five years (I'm 26), and have had the ups, downs, and further downs that I'm sure all of you can relate to. At the moment, my only treatment plan is lifestyle adjustment:
- the Mister and I haven't had sex in five years, and lately, ANY sexual activity is just too scary for me
- I don't (nor have I ever!) use any scented products (laundry detergents, personal cleansers, hand soap, etc, etc)
- I no longer use tampons (just cotton-based pads)
- I gave up panties (save for those times when the pads are in use), and instead wear boxer-briefs (no touching, and when they do, it's 100% cotton)
- I don't bike or engage in much exercise, and I sit awkwardly and re-position myself often
- Lidocaine (2% gel) for the times when I really need it
- (there are probably lots more things I'm not thinking of; it's mostly second-nature at this point)
*I followed the low oxalate diet strictly for a year, with no noticeable change, so I stopped (limiting oneself to so few foods proved damaging to my well-being, and with no beneficial effect, I had no reason to stick with it).

So here I am now, in particular pain because of what I believe is a post-menstrual yeast infection on top of the vulvodynia, and I feel just utter hopelessness and despair over what to do next (I'm overwhelmed, and the pain itself is overwhelming, leaving me feeling paralyzed). I have a referral to a dermatologist who apparently specializes in vulvar pain, but all of my gyn. appointments have yielded little visible irritation, and I'm worried I'll be dropping a ton of money to just hear "Well, it's not x, y, or z dermatological condition." I've heard many of you mention pelvic floor muscle physical therapy, so I suppose I should try that next? (I'm also looking into seeing a neurologist, and maybe trying Neurontin; I have Raynaud's and Erythromelalgia, so it would be a "three birds with one stone" kind of deal.) In the meantime, though, what can I do about the [potential] yeast infection? Usually, I do nothing, and grit my teeth and wait for a week or two for things to settle down, because
a) much of the time, the doc just says, "No yeast. No bacteria. I guess it's just the vulvodynia," and
b) is there any way to get an exam without getting "an exam"? Especially in this increased pain, there is NO WAY I can handle an exam -- speculum or not. (And it's not just during, but AFTER. If it was only "during" that I felt pain, I'd take some pain meds and grit my teeth. But since the pain from an exam lasts for DAYS afterwards, I just can't deal with that.)

Any suggestions for a desperate sufferer?

InPain

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Re: Doctors...Where to Start?

Post  Sarah001 on Fri Sep 30, 2011 5:14 pm

Hi and welcome, if you suspect yeast simply buy an over the counter oral treatment and take it, if it is a yeast infection that will help and if not it won't hurt, it's the easy way to figure that problem out without having swabs etc. There isn't a way to get an exam without having an exam unfortunately, can't help you much with that one! Physical therapy is a great idea, the pelvic floor is usually dysfunctional in women with V so biofeedback is a good start but also all the muscles around the pelvis should be examined and the position of the pelvis too in case there's any misalignment. Meds can help some women, I'm on Ami and Lyrica but not having much success with either but it's worth a try. It sounds like you've not tried alot of things so far so don't give up hope, get an oral yeast treatment, try the meds and get your pelvic floor checked as a starting point. Let us know how you get on.
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Sarah001

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