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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Not a good day
3 posters
Page 1 of 1
Not a good day
Ugh. Today was not a good day. I'm just laying in my bed thinking about how uncomfortable I was all day long Also I was just thinking about how the cold weather is going to be a challenge since I always wear layers to keep warm
I am really just wondering if anyone on here has the same problem as me or knows anyone who does? I am just so irritated/itchy whenever my clothes rub. Also an occasional dull pain in my vulva that really doesn't bother me much. Sometimes it becomes really red I've noticed after it is rubbing all day but sometimes it isn't. A tampon doesn't bother me. I tried putting my finger in the entry of the vagina to see if there was pain and there wasn't. I haven't had sex since this has all been happening, I kind of just want to find out what the problem is before I do. I've tried all the creams, all the meds, blah blah that same old story.
I received great news yesterday that i've been waiting for. I FINALLY have an appt. with a specialist on halloween ! (happy halloween to me lol) I read The V Book by Elizabeth Stewart (The specialist i'm seeing is one in her office!!) and realized theres soo many thinngs that could be wrong with me that I had NO idea about and realized my gyno really hasn't done much ruling out like she should be. She literally has only checked me for infections/stds/bv with a culture and checked for herpes. My dermatologist helped me more than my GYN did. But my derm. also told me she doesn't think this will be a long term thing but my gyno mentioned vulvodynia to me. My gyn also told me she could start me on ami but I think i'm just going to wait to see what the specialist has to offer because what if it's not even vulvodynia?? But ugh i dont know. I just want comfort!!!
So, i'm just waiting patiently but i'm confused/lost/annoyed/frustrated/sad/hopeless. Halloween cannot come soon enough.
I am really just wondering if anyone on here has the same problem as me or knows anyone who does? I am just so irritated/itchy whenever my clothes rub. Also an occasional dull pain in my vulva that really doesn't bother me much. Sometimes it becomes really red I've noticed after it is rubbing all day but sometimes it isn't. A tampon doesn't bother me. I tried putting my finger in the entry of the vagina to see if there was pain and there wasn't. I haven't had sex since this has all been happening, I kind of just want to find out what the problem is before I do. I've tried all the creams, all the meds, blah blah that same old story.
I received great news yesterday that i've been waiting for. I FINALLY have an appt. with a specialist on halloween ! (happy halloween to me lol) I read The V Book by Elizabeth Stewart (The specialist i'm seeing is one in her office!!) and realized theres soo many thinngs that could be wrong with me that I had NO idea about and realized my gyno really hasn't done much ruling out like she should be. She literally has only checked me for infections/stds/bv with a culture and checked for herpes. My dermatologist helped me more than my GYN did. But my derm. also told me she doesn't think this will be a long term thing but my gyno mentioned vulvodynia to me. My gyn also told me she could start me on ami but I think i'm just going to wait to see what the specialist has to offer because what if it's not even vulvodynia?? But ugh i dont know. I just want comfort!!!
So, i'm just waiting patiently but i'm confused/lost/annoyed/frustrated/sad/hopeless. Halloween cannot come soon enough.
ilovebaxter1- Posts : 47
Join date : 2011-09-13
Age : 32
Location : Boston
hello
Hi, I'm cindy. I read the v book.(love it) I am so excited for you! oh my, it sounds to me like you will be in good hands! maybe you are on your way to finding some real help!!!!! please keep us posted!
I have been checked for herpes(long shot), bv, bacterias, uti's. But NO doc will run a test for what started my problem.YEAST! so i just guess. It got so bad with the doctors and their lack of helping, i bought my own medicines! had too.
Had to laugh at your post, because i live in a very cold place(maine) and have been wondering how to keep warm, and wear clothes that wont set it off! me too!! what am i going to sleep in? Hope you feel better! But on a positive note for you. I am so JEALOUS you got in to see a co worker of the v book lady! You are lucky! cindy
I have been checked for herpes(long shot), bv, bacterias, uti's. But NO doc will run a test for what started my problem.YEAST! so i just guess. It got so bad with the doctors and their lack of helping, i bought my own medicines! had too.
Had to laugh at your post, because i live in a very cold place(maine) and have been wondering how to keep warm, and wear clothes that wont set it off! me too!! what am i going to sleep in? Hope you feel better! But on a positive note for you. I am so JEALOUS you got in to see a co worker of the v book lady! You are lucky! cindy
grassy- Posts : 52
Join date : 2011-07-04
Re: Not a good day
haha i know! i'm from massachusetts so it's just as cold lol i'm so excited to go to my appointment! I'll be sure to post something here when I find out what's going on:)
ilovebaxter1- Posts : 47
Join date : 2011-09-13
Age : 32
Location : Boston
dont forget!
Dont forget. Post as soon as it happens. Your lucky to go there!!!!!! I have hope for you! cindy
grassy- Posts : 52
Join date : 2011-07-04
Re: Not a good day
Yes do let us know how it goes, unfortunately we don't seem to have any experts here in the UK, typical! As for keeping warm it's a bit of a problem here too, we're just starting to get some temperature drops at night and a bit of a chill in the air during the day so it won't be long before it's bloody freezing. I used to always wear jeans but haven't been able to since V so I always have the warmth problem each year too.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Re: Not a good day
Ill keep everyone posted!
Sadly, this will be my first winter hopefully I start to feel better by the time the cold weather is here all the way
Sadly, this will be my first winter hopefully I start to feel better by the time the cold weather is here all the way
ilovebaxter1- Posts : 47
Join date : 2011-09-13
Age : 32
Location : Boston
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer