Vulvodynia Support
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» Hope to all my suffering ladies
Finding it hard to deal with it.. EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Finding it hard to deal with it.. EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Finding it hard to deal with it.. EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Finding it hard to deal with it.. EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Finding it hard to deal with it.. EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Finding it hard to deal with it.. EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Finding it hard to deal with it.. EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Finding it hard to deal with it.. EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Finding it hard to deal with it.. EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Finding it hard to deal with it..

2 posters

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Finding it hard to deal with it.. Empty Finding it hard to deal with it..

Post  emmakatesf Thu Oct 13, 2011 3:04 pm

I am new to the forum however I am really struggling to deal with how the vulydonia is making me feel.

I used to have a brilliant sex life with my partner and then suddenly sex became so painful, it would burn etc. After a while I plucked up the courage to go to the doctor and was told it was psychological and to give it a week or two and it would be fine...4 months later I was still experiencing the symptoms and returned to the doctor and that’s when I was referred to a gyno and finally was diagnosed with Vovlydonia at the age of 19. I have now been living with the pain for 2.5 years and I am still struggling to find what medication etc is good for me. Me and my partner are unable to have sex completely now, and I think it is due to me being scared of knowing it will hurt. My partner is being very supportive however I am struggling to come to terms with it and am scared I will be stuck with it for the rest of my life.

I don't know if anyone has nay success stories....

emmakatesf

Posts : 1
Join date : 2011-10-13

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Finding it hard to deal with it.. Empty Re: Finding it hard to deal with it..

Post  Sarah001 Thu Oct 13, 2011 8:29 pm

Hi, welcome to the forum. We all know how you feel and while the pain is there it's best to avoid sex anyway. I suggest having a womens health physio hook you up to a biofeedback machine and test your pelvic floor for tightness, painful sex usually results in spasmed pelvic floor muscles as does any type of vulvar pain. Some women find relaxing those tight muscles resolves their pain so it's worth every single woman with any type of V giving it a go. There are topical things that might help, have you tried lidocaine? Some women find that helpful, especially before sex. I totally empathise on the medication front, I'm now on Ami and Lyrica and still not getting much relief, i keep thinking they're just seeing how much medication I can take before my liver pops. Definitely get your pelvic floor tested though.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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