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» Please tell me this can get better
Today at 2:10 am by anon99

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Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


CONFUSED !!!!!!!!!

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CONFUSED !!!!!!!!!

Post  helpme123 on Fri Oct 14, 2011 6:21 pm

I am not sure if I do have vulvodynia, I need to rule out everything , my story ....

I was taking Nytol , OTC sleep aid for years every nite for sleep, and back in July 2009 , for the entire mth of August and I stopped taking the Nytol , 2 weeks after I started to have burning/itching on outside of vulvo area close to the urthea area , I didnt pay too much attention why it was dng this , by the end of August I was back home from my vacation and my family Dr gave me a steriod cream , I applied it one day and it was gone away , but at the same time I started back the Nytol , and nevcer had a promblem after, UNTIL went back on vacation to Florida this time for all winter , I just quit my job and was now semi retiring so I decided to stop taking the Nytol for good, this was Dec 2009 , again same thing happened to me after 2 weeks, by the end of the Mth it got really bad , I was in extreme pain , I couldnt wear any clothes at all , it was as if I was sitting on top a stove and someone threw acid on an open womb , I couldnt sit on it , it burned/iched, and at times it stung. I went to see at least 5 GYN , went to ER , seen other Drs at Medical clinics , while I was on Vaction , they did every test under the sun , ruled out anything and everything , I never once thought Nytol was the culprit . At every Vaginal examine it was extremly painful by any touch , I was given antibiotics for no reason , only by assumptions , they thought it was vaginitis , etc.. , I was given several types of steriod creams, Hydrocodone (80 pills) , I tried Estrogen cream for 7 weeks, I was on Gabapetin for 2 weeks, and a Benzo Klonopin , well as time went by I was finally able to wear jeans , had no problems sitting , walking as b4 I couldnt even walk it was so bad. It was abt 2-3 mths later it seemed to get better , I had no problems getting a pelvic exam , touching that area , BUT was getting a different kind of pain as I was on Bnezo Klonopin and was getting now burning sensations off and on from one location to another , come and go , but no stinging , but was still itching and at that time I had NO problems scratching that area when needed . Fast forwarding now , I was told to stop the Benzo Cold Turkey after taking it for 4 1/2 mths , and things hit the ceiling , I was in severe withdrawl, well now its 18 mth slater and I still have withdrawl symptoms as I seen a neruologist he said Benzo deplete the GABA and changes the Brain Chemistry. Well heres my confusion now , since Decemeber of 2010 I started to get that stinging back down there and its so bad that when I wipe with Toilet paper , just by a slight touch it triggers stinging , but it triggers stinging all over my body NOT just there , it also triggers a headache, weakness, pressure around my throat , and burninging all over my body , as these symptoms are not always cuased by any triggers its mostly like this on my body all over as its caused from Beno Withdrawl, or its part of my recovery. So my Question is this do having Vulvodynia cause your entire body to sting or burn by any sense of touch on the vulvo area, I dont have any internal issues as I did the first time , its all around the surrounds of the vulvo area. I am worried I had vulvodynia the first time and I recovered from it and now its back again , or its caused from what the Benzo did to me. Any thoughts , I would appreciate it . A final note I dont have any problems sitting , wearing tight jeans , or internal problems , but my worst symptom is stinging extremly bad , it does come and go with intensity , and a few times its hardly noticable unless its triggered !!!! at times its nothing at all but until I scratch anywhere that area or wipe with Toilet paper it triggers the symptoms. Is it Vulvodynia? Thank you for reading this .

Sincerly
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Re: CONFUSED !!!!!!!!!

Post  Sarah001 on Sun Oct 16, 2011 1:13 pm

Hi and welcome, no vulvodynia doesn't usually cause full body pain but something else causing full body pain can cause V. It's best to get more advice about the full body problem and see if that's the source of V for you.
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