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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

I Cry and Cry

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I Cry and Cry

Post  Peyton on Sun Oct 16, 2011 6:40 pm

Lately all I can do is cry. Ive been suffering for 9 months now, and it seems like every day just gets worse. Recently it got so bad that I couldn't wear pants, then it progressed and I couldn't even wear underwear, couldnt go to work or even walk. I just lay in bed, paralyzed by the pain until I was finally able to see a specialist who put me on medication that seems to help quite a bit with the constant burning and pain, but the good news stops there.

I was ordered off birth control, so with all of the changes in hormones, my face has started breaking out. Also, since going off the pill, I have been losing more and more hair. My medication has caused me to gain 15 lbs in my abdominal region. I have a very slender frame, so 15lbs shows quite a bit, and I look 3 months pregnant and cant fit into my clothes anymore. My medication causes me to be tired round the clock, and no amount of sleep seems to help.

My husband and I are newlyweds, and we havent had sex in 4-5 months! I'm not afraid that he will leave me, but it just adds to my pain that I cant give him what any wife should be able to, yet he is so supportive and kind. I hate my own body. I no longer feel like a woman, but just a box, no organs, no curves, no femininity, just suffering. And how can I even ever had children if this never goes away? Ive wanted to be a wife and mother more than anything in my life. Many I know are having children and I often hear "when are you going to get pregnant?" or "dont you want to finally start a family?" and I have to try my best not to burst into tears.

So I cry and cry daily. Cry for everything I once had, cry for everything I'm terrified of never having.

I'm a Christian, so I firmly believe that the Lord will never give you more than you can handle. I just wonder why I have to always be strong, when the weak live such easy and happy lives.


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Re: I Cry and Cry

Post  Sarah001 on Mon Oct 17, 2011 9:00 pm

Hi and welcome. Do you have hormonal issues? I'm just wondering as you're having such a bad reaction to stopping the pill, might be worth getting them tested to see what's happening with those, you shouldn't lose lots of hair because you've stopped the pill. You could also ask for different medication if it makes you tired all day, there are variations that don't (apparently, I'm on dopey makers too!). Get your pelvic floor checked too, that's another constructive step. I think you need to make a plan of action by writing down a few things you are going to ask your doctor about and things you are going to try such as physiotherapy then work your way through it. Some good reading is "When Sex hurts" or "Ending Female Pain" or "Heal Pelvic Pain". As harsh as it sounds you need to take charge and stop crying, it's fine to cry sometimes but if you're crying all the time you'll never get through all the various treatment options so start making plans for things to try, one of them might just be the cure for you. Good luck and keep us posted on your progress.

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Re: I Cry and Cry

Post  Aussie on Mon Oct 31, 2011 6:58 am

You don't realise how strong you are, until being strong is the only choice you have.

I have been there. I have had v and IC for one year. I thought I was never going to feel any improvment. What have you tried apart from meds? I tried meds for months then went down the natural route and it is the only thing that has given me relief! I was a newlywed when this started too. 6 weeks into our marriage it really kicked in but I had repeat yeast infections after our honeymoon from too much sex (had pain free sex prior to this).

Have you tried physio? If you like I can give you a list of my herbs. Meditation can only make you feel better, and if nothing else relax the mind and worrying thoughts. It downregulates the nervous system thus reducing pain naturally.

Thinking of you xox


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Re: I Cry and Cry

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