Vulvodynia Support
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» Hope to all my suffering ladies
I Cry and Cry EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
I Cry and Cry EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
I Cry and Cry EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
I Cry and Cry EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
I Cry and Cry EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
I Cry and Cry EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
I Cry and Cry EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
I Cry and Cry EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
I Cry and Cry EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


I Cry and Cry

3 posters

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I Cry and Cry Empty I Cry and Cry

Post  Peyton Sun Oct 16, 2011 6:40 pm

Lately all I can do is cry. Ive been suffering for 9 months now, and it seems like every day just gets worse. Recently it got so bad that I couldn't wear pants, then it progressed and I couldn't even wear underwear, couldnt go to work or even walk. I just lay in bed, paralyzed by the pain until I was finally able to see a specialist who put me on medication that seems to help quite a bit with the constant burning and pain, but the good news stops there.

I was ordered off birth control, so with all of the changes in hormones, my face has started breaking out. Also, since going off the pill, I have been losing more and more hair. My medication has caused me to gain 15 lbs in my abdominal region. I have a very slender frame, so 15lbs shows quite a bit, and I look 3 months pregnant and cant fit into my clothes anymore. My medication causes me to be tired round the clock, and no amount of sleep seems to help.

My husband and I are newlyweds, and we havent had sex in 4-5 months! I'm not afraid that he will leave me, but it just adds to my pain that I cant give him what any wife should be able to, yet he is so supportive and kind. I hate my own body. I no longer feel like a woman, but just a box, no organs, no curves, no femininity, just suffering. And how can I even ever had children if this never goes away? Ive wanted to be a wife and mother more than anything in my life. Many I know are having children and I often hear "when are you going to get pregnant?" or "dont you want to finally start a family?" and I have to try my best not to burst into tears.

So I cry and cry daily. Cry for everything I once had, cry for everything I'm terrified of never having.

I'm a Christian, so I firmly believe that the Lord will never give you more than you can handle. I just wonder why I have to always be strong, when the weak live such easy and happy lives.

Peyton

Posts : 1
Join date : 2011-10-16

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I Cry and Cry Empty Re: I Cry and Cry

Post  Sarah001 Mon Oct 17, 2011 9:00 pm

Hi and welcome. Do you have hormonal issues? I'm just wondering as you're having such a bad reaction to stopping the pill, might be worth getting them tested to see what's happening with those, you shouldn't lose lots of hair because you've stopped the pill. You could also ask for different medication if it makes you tired all day, there are variations that don't (apparently, I'm on dopey makers too!). Get your pelvic floor checked too, that's another constructive step. I think you need to make a plan of action by writing down a few things you are going to ask your doctor about and things you are going to try such as physiotherapy then work your way through it. Some good reading is "When Sex hurts" or "Ending Female Pain" or "Heal Pelvic Pain". As harsh as it sounds you need to take charge and stop crying, it's fine to cry sometimes but if you're crying all the time you'll never get through all the various treatment options so start making plans for things to try, one of them might just be the cure for you. Good luck and keep us posted on your progress.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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I Cry and Cry Empty Re: I Cry and Cry

Post  Aussie Mon Oct 31, 2011 6:58 am

You don't realise how strong you are, until being strong is the only choice you have.

I have been there. I have had v and IC for one year. I thought I was never going to feel any improvment. What have you tried apart from meds? I tried meds for months then went down the natural route and it is the only thing that has given me relief! I was a newlywed when this started too. 6 weeks into our marriage it really kicked in but I had repeat yeast infections after our honeymoon from too much sex (had pain free sex prior to this).

Have you tried physio? If you like I can give you a list of my herbs. Meditation can only make you feel better, and if nothing else relax the mind and worrying thoughts. It downregulates the nervous system thus reducing pain naturally.

Thinking of you xox

Aussie

Posts : 230
Join date : 2011-03-15
Age : 35
Location : Queensland, Australia

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