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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

I Cry and Cry

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I Cry and Cry

Post  Peyton on Sun Oct 16, 2011 6:40 pm

Lately all I can do is cry. Ive been suffering for 9 months now, and it seems like every day just gets worse. Recently it got so bad that I couldn't wear pants, then it progressed and I couldn't even wear underwear, couldnt go to work or even walk. I just lay in bed, paralyzed by the pain until I was finally able to see a specialist who put me on medication that seems to help quite a bit with the constant burning and pain, but the good news stops there.

I was ordered off birth control, so with all of the changes in hormones, my face has started breaking out. Also, since going off the pill, I have been losing more and more hair. My medication has caused me to gain 15 lbs in my abdominal region. I have a very slender frame, so 15lbs shows quite a bit, and I look 3 months pregnant and cant fit into my clothes anymore. My medication causes me to be tired round the clock, and no amount of sleep seems to help.

My husband and I are newlyweds, and we havent had sex in 4-5 months! I'm not afraid that he will leave me, but it just adds to my pain that I cant give him what any wife should be able to, yet he is so supportive and kind. I hate my own body. I no longer feel like a woman, but just a box, no organs, no curves, no femininity, just suffering. And how can I even ever had children if this never goes away? Ive wanted to be a wife and mother more than anything in my life. Many I know are having children and I often hear "when are you going to get pregnant?" or "dont you want to finally start a family?" and I have to try my best not to burst into tears.

So I cry and cry daily. Cry for everything I once had, cry for everything I'm terrified of never having.

I'm a Christian, so I firmly believe that the Lord will never give you more than you can handle. I just wonder why I have to always be strong, when the weak live such easy and happy lives.


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Re: I Cry and Cry

Post  Sarah001 on Mon Oct 17, 2011 9:00 pm

Hi and welcome. Do you have hormonal issues? I'm just wondering as you're having such a bad reaction to stopping the pill, might be worth getting them tested to see what's happening with those, you shouldn't lose lots of hair because you've stopped the pill. You could also ask for different medication if it makes you tired all day, there are variations that don't (apparently, I'm on dopey makers too!). Get your pelvic floor checked too, that's another constructive step. I think you need to make a plan of action by writing down a few things you are going to ask your doctor about and things you are going to try such as physiotherapy then work your way through it. Some good reading is "When Sex hurts" or "Ending Female Pain" or "Heal Pelvic Pain". As harsh as it sounds you need to take charge and stop crying, it's fine to cry sometimes but if you're crying all the time you'll never get through all the various treatment options so start making plans for things to try, one of them might just be the cure for you. Good luck and keep us posted on your progress.

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Re: I Cry and Cry

Post  Aussie on Mon Oct 31, 2011 6:58 am

You don't realise how strong you are, until being strong is the only choice you have.

I have been there. I have had v and IC for one year. I thought I was never going to feel any improvment. What have you tried apart from meds? I tried meds for months then went down the natural route and it is the only thing that has given me relief! I was a newlywed when this started too. 6 weeks into our marriage it really kicked in but I had repeat yeast infections after our honeymoon from too much sex (had pain free sex prior to this).

Have you tried physio? If you like I can give you a list of my herbs. Meditation can only make you feel better, and if nothing else relax the mind and worrying thoughts. It downregulates the nervous system thus reducing pain naturally.

Thinking of you xox


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Re: I Cry and Cry

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