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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


New Member about the Neogyn Cream

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New Member about the Neogyn Cream

Post  Aceladi on Mon Oct 31, 2011 4:55 pm

I've read recently about the Neogyn Cream and saw a few of you have tried it, but all the posts were in July and August, and I am wondering if it has now made any improvment for the Vestibulitis in the vulva area? I've tried everything, I'm sure... even having a neurostimulator put in for a year and then had it taken out. I am on Neurontin, use Lidocaine 2% as well as 5% when needed. Also, take Percoset if I know I am going to be sitting for a long period of time... only take a half for fear of addiction. Aceladi

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Neogyn.us

Post  florence1009 on Sat Nov 05, 2011 3:37 pm

For me it worked out well. I am still using it but only once a week and my life changed completely. I had secondary vestibulodynia for 2 years and you know what it means. It tooks time: I needed about 8 weeks 2 times a day before it really worked. Now I use Neogyn once a week or just after a "hot" "hot" intercourse but my life is back to normal. There are more and more great testimonials about Neogyn, I really think it worth a try!

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Thank you Florence

Post  Aceladi on Sat Nov 05, 2011 4:09 pm

To knowthis cream is working is a great help and I appreciate so much your reply as the cream is expensive and the posts I read were older ones. If you know of others that are using this cream I would love to hear there testimonies as well. Thanks again. Millie

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Re: New Member about the Neogyn Cream

Post  Rose86 on Sat Nov 05, 2011 4:55 pm

Hi there,

I have also used the cream for more than the recommended period of time, and to be honest it hasn't had a noticeable effect. If it has caused an improvement then it it is very slight, and certainly not enough of an improvement to make me consider having intercourse with no lidocaine!

I'll be interested in reading any further studies published in this area, because reading the one that has already been conducted doesn't seem to have found a significant pain reduction in the participants.

I would order the free trial (if it's still available), and I hope it works for you, but don't pin your hopes on it!

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Just ordered!

Post  Aceladi on Sat Nov 05, 2011 6:35 pm

Hi Rose, Guess I jumped too quickly reading some positive responses. I have searched for a few days and don't find there are any 'free' trials left. I don't regret ordering it though as we all have to find out for ourselves I believe, since we are all so different with Vulvodynia. I will post my results on here as I think it is important to have all reviews and comments. Thank you so very much for your reply Smile

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Re: New Member about the Neogyn Cream

Post  florence1009 on Mon Nov 07, 2011 5:41 am

Millie;
I feel you made the right choice! Be patient: 6 to 8 weeks twice a day. Keep us posted!


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Re: New Member about the Neogyn Cream

Post  Zazu on Tue Nov 15, 2011 1:57 pm

Yes, please post your experiences! I have vestibulodynia and generalized vulvodynia, as well as fibromyalgia, and I wonder about a topical cream when the underlying problem isn't dermatological but neuromuscular ... however I've been considering it for the vestibulitis. I know the skin down there has become drier and more easily irritated so maybe it would help even though I'll still need lyrica, naproxen and physio for the underlying issues.

Zazu

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Update on Neogyn Cream

Post  Aceladi on Fri Jan 13, 2012 5:22 pm

I am so sorry to be so long in responding about my experience with the Neogyn Cream. Unfortunately, it did not work for me at all. In fact, it made the irritation much worse after trying just 3 days in a row, I couldn't even attempt to us it anymore. I will say, however, that I sent it back to the company, and they did issue me a full refund. I was very pleased about that. Millie

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Re: New Member about the Neogyn Cream

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