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» Not vulvodynia
Today at 6:04 pm by morgaan_xo

» I F***ing hate SKIRTS
Today at 5:53 pm by mrs.optimistic

» Not mad, just miserable.
Today at 5:49 pm by mrs.optimistic

» anyone from ireland please???
Today at 10:22 am by Zbrown

» burning mouth also
Yesterday at 10:06 pm by Zbrown

» burning mouth also
Yesterday at 10:05 pm by Zbrown

» Please help
Yesterday at 7:32 am by sailor_moon

» anyone from ireland please???
Mon May 25, 2015 11:13 pm by mcc

» anyone from ireland please???
Mon May 25, 2015 11:12 pm by mcc

Please help

Wed May 20, 2015 8:21 pm by LadyDi44

Hi, my name is Diana. I am SO grateful to have found this website. Thank you in advance to anybody who takes the time to read and/or respond to my post!

I'm a 19 year old girl who began feeling the effects of Vulvar Vestibulitis (VV) a little over a year ago. I had developed what would end up being a chronic yeast infection due to a change in Oral Contraceptive (OC) -- this alteration in hormone …

Comments: 20

Any advice on with amitrytline?

Mon Oct 06, 2014 8:00 pm by Sparkle

Hello,

Anyone tried this in pill form? What's it's like? What side effects have you had? This is next on the list for doc to percribe me for my vestibular vulvadynia but I'm worried about the side effects.

Also did it work with anyone with provoked pain?

Any advice is much appreciated. X



Comments: 24

New to forum, sadly not to vestibulitis. Questions about discharge!!

Mon May 11, 2015 1:38 am by marylynn

Hi everyone, new here. The gist of my story: A little over a year ago I took antibiotics after a routine surgery, developed a yeast infection (the first and only culture that tested positive!) and then basically never felt better. Last summer a treated with every -azole under the sun which did not help, lots of boric acid which did seem to help a little bit but never completely. I felt mostly …

Comments: 3

So happy i'm not the only one!

Sat May 16, 2015 7:42 pm by mrs.optimistic

I've been all over this website and can't stop reading! I am so grateful to find a place where I can reveal things other people wouldn't even understand. FINALLY! I have had vulvodynia/vulvar vestibulitis for 4 years now. Even though it feels like it, I haven't tried absolutely everything to cure this condition. I plan on changing my diet, taking supplements, using oils, attending yoga classes …

Comments: 1

Would love support

Fri Oct 03, 2014 9:04 am by katn7

I have been living with vulvodynia for a long as I can remember. I didn't get officially diagnosed until I was 17 and it has been getting worse ever since. I am 19 now and unable to have sex with my boyfriend of 4 years. I also suffer from endometriosis since I was in my early teens so I've been living with pelvic pain for a long time now. No one really understands how vulvodynia effects you …

Comments: 20

How did you find this forum?

Mon Aug 02, 2010 3:36 am by Sebby (Admin)

Please state which search engine, forum or directory you found this forum on...fanx!

Comments: 24

Allergic reaction to silicone lubricant AND polyesoprine condoms

Thu Apr 23, 2015 1:57 pm by Trees_trees

So I have the good fortune to be allergic to Latex AND Silicone (dimethicone -in a lot of lubricant, lotions, conditioners, gives a silky feel). I mistakenly thought an episode triggered in 2010 was from polyesoprine (latex with the chemical most people are allergic to) condoms after mistakenly being told I had a yeast infection, herpes, and being put on acyclovir and diflucan for months with no …

Comments: 3

New and lost

Sat Apr 18, 2015 6:15 am by Redhead23

Hey ladies.

I'm at a stage in my life where my vulva pain has completely taken over. I'm depressed and even suicidal and after crying a ton today, decided to look for support.

I'm from the UK, I'm 31 and I've suffered with pain, burning and stinging of the vulva, clitoris and vestibule for 12years after a yeast infection and a bladder infection.

I've struggled over the last decade trying to …

Comments: 6

Hope some of you can help me

Mon May 04, 2015 7:13 am by martinifaerie

Hi everyone, I am so glad i have found this site and have read through a few of the topics, I'm so happy we all have people we can talk to about this. I try and talk to my friends but they don't really understand and it can get a bit awkward. Here is my story...
I am 27 and have been with my current partner for 3 and a half years. Around a year into our relationship I started experiencing severe …

Comments: 2


New Member about the Neogyn Cream

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New Member about the Neogyn Cream

Post  Aceladi on Tue Nov 01, 2011 3:55 am

I've read recently about the Neogyn Cream and saw a few of you have tried it, but all the posts were in July and August, and I am wondering if it has now made any improvment for the Vestibulitis in the vulva area? I've tried everything, I'm sure... even having a neurostimulator put in for a year and then had it taken out. I am on Neurontin, use Lidocaine 2% as well as 5% when needed. Also, take Percoset if I know I am going to be sitting for a long period of time... only take a half for fear of addiction. Aceladi

Aceladi

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Age: 72
Location: Arizona

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Neogyn.us

Post  florence1009 on Sun Nov 06, 2011 2:37 am

For me it worked out well. I am still using it but only once a week and my life changed completely. I had secondary vestibulodynia for 2 years and you know what it means. It tooks time: I needed about 8 weeks 2 times a day before it really worked. Now I use Neogyn once a week or just after a "hot" "hot" intercourse but my life is back to normal. There are more and more great testimonials about Neogyn, I really think it worth a try!

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Thank you Florence

Post  Aceladi on Sun Nov 06, 2011 3:09 am

To knowthis cream is working is a great help and I appreciate so much your reply as the cream is expensive and the posts I read were older ones. If you know of others that are using this cream I would love to hear there testimonies as well. Thanks again. Millie

Aceladi

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Re: New Member about the Neogyn Cream

Post  Rose86 on Sun Nov 06, 2011 3:55 am

Hi there,

I have also used the cream for more than the recommended period of time, and to be honest it hasn't had a noticeable effect. If it has caused an improvement then it it is very slight, and certainly not enough of an improvement to make me consider having intercourse with no lidocaine!

I'll be interested in reading any further studies published in this area, because reading the one that has already been conducted doesn't seem to have found a significant pain reduction in the participants.

I would order the free trial (if it's still available), and I hope it works for you, but don't pin your hopes on it!

Rose86

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Just ordered!

Post  Aceladi on Sun Nov 06, 2011 5:35 am

Hi Rose, Guess I jumped too quickly reading some positive responses. I have searched for a few days and don't find there are any 'free' trials left. I don't regret ordering it though as we all have to find out for ourselves I believe, since we are all so different with Vulvodynia. I will post my results on here as I think it is important to have all reviews and comments. Thank you so very much for your reply Smile

Aceladi

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Re: New Member about the Neogyn Cream

Post  florence1009 on Mon Nov 07, 2011 4:41 pm

Millie;
I feel you made the right choice! Be patient: 6 to 8 weeks twice a day. Keep us posted!


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Re: New Member about the Neogyn Cream

Post  Zazu on Wed Nov 16, 2011 12:57 am

Yes, please post your experiences! I have vestibulodynia and generalized vulvodynia, as well as fibromyalgia, and I wonder about a topical cream when the underlying problem isn't dermatological but neuromuscular ... however I've been considering it for the vestibulitis. I know the skin down there has become drier and more easily irritated so maybe it would help even though I'll still need lyrica, naproxen and physio for the underlying issues.

Zazu

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Update on Neogyn Cream

Post  Aceladi on Sat Jan 14, 2012 4:22 am

I am so sorry to be so long in responding about my experience with the Neogyn Cream. Unfortunately, it did not work for me at all. In fact, it made the irritation much worse after trying just 3 days in a row, I couldn't even attempt to us it anymore. I will say, however, that I sent it back to the company, and they did issue me a full refund. I was very pleased about that. Millie

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