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» Anyone been to see Dr.Claire Bailey in Birmingham?
Yesterday at 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Yesterday at 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


New Member about the Neogyn Cream

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New Member about the Neogyn Cream

Post  Aceladi on Mon Oct 31, 2011 4:55 pm

I've read recently about the Neogyn Cream and saw a few of you have tried it, but all the posts were in July and August, and I am wondering if it has now made any improvment for the Vestibulitis in the vulva area? I've tried everything, I'm sure... even having a neurostimulator put in for a year and then had it taken out. I am on Neurontin, use Lidocaine 2% as well as 5% when needed. Also, take Percoset if I know I am going to be sitting for a long period of time... only take a half for fear of addiction. Aceladi

Aceladi

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Age : 74
Location : Arizona

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Neogyn.us

Post  florence1009 on Sat Nov 05, 2011 3:37 pm

For me it worked out well. I am still using it but only once a week and my life changed completely. I had secondary vestibulodynia for 2 years and you know what it means. It tooks time: I needed about 8 weeks 2 times a day before it really worked. Now I use Neogyn once a week or just after a "hot" "hot" intercourse but my life is back to normal. There are more and more great testimonials about Neogyn, I really think it worth a try!

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Thank you Florence

Post  Aceladi on Sat Nov 05, 2011 4:09 pm

To knowthis cream is working is a great help and I appreciate so much your reply as the cream is expensive and the posts I read were older ones. If you know of others that are using this cream I would love to hear there testimonies as well. Thanks again. Millie

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Re: New Member about the Neogyn Cream

Post  Rose86 on Sat Nov 05, 2011 4:55 pm

Hi there,

I have also used the cream for more than the recommended period of time, and to be honest it hasn't had a noticeable effect. If it has caused an improvement then it it is very slight, and certainly not enough of an improvement to make me consider having intercourse with no lidocaine!

I'll be interested in reading any further studies published in this area, because reading the one that has already been conducted doesn't seem to have found a significant pain reduction in the participants.

I would order the free trial (if it's still available), and I hope it works for you, but don't pin your hopes on it!

Rose86

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Just ordered!

Post  Aceladi on Sat Nov 05, 2011 6:35 pm

Hi Rose, Guess I jumped too quickly reading some positive responses. I have searched for a few days and don't find there are any 'free' trials left. I don't regret ordering it though as we all have to find out for ourselves I believe, since we are all so different with Vulvodynia. I will post my results on here as I think it is important to have all reviews and comments. Thank you so very much for your reply Smile

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Re: New Member about the Neogyn Cream

Post  florence1009 on Mon Nov 07, 2011 5:41 am

Millie;
I feel you made the right choice! Be patient: 6 to 8 weeks twice a day. Keep us posted!


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Re: New Member about the Neogyn Cream

Post  Zazu on Tue Nov 15, 2011 1:57 pm

Yes, please post your experiences! I have vestibulodynia and generalized vulvodynia, as well as fibromyalgia, and I wonder about a topical cream when the underlying problem isn't dermatological but neuromuscular ... however I've been considering it for the vestibulitis. I know the skin down there has become drier and more easily irritated so maybe it would help even though I'll still need lyrica, naproxen and physio for the underlying issues.

Zazu

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Update on Neogyn Cream

Post  Aceladi on Fri Jan 13, 2012 5:22 pm

I am so sorry to be so long in responding about my experience with the Neogyn Cream. Unfortunately, it did not work for me at all. In fact, it made the irritation much worse after trying just 3 days in a row, I couldn't even attempt to us it anymore. I will say, however, that I sent it back to the company, and they did issue me a full refund. I was very pleased about that. Millie

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Re: New Member about the Neogyn Cream

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