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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


New Member about the Neogyn Cream

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New Member about the Neogyn Cream

Post  Aceladi on Mon Oct 31, 2011 4:55 pm

I've read recently about the Neogyn Cream and saw a few of you have tried it, but all the posts were in July and August, and I am wondering if it has now made any improvment for the Vestibulitis in the vulva area? I've tried everything, I'm sure... even having a neurostimulator put in for a year and then had it taken out. I am on Neurontin, use Lidocaine 2% as well as 5% when needed. Also, take Percoset if I know I am going to be sitting for a long period of time... only take a half for fear of addiction. Aceladi

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Neogyn.us

Post  florence1009 on Sat Nov 05, 2011 3:37 pm

For me it worked out well. I am still using it but only once a week and my life changed completely. I had secondary vestibulodynia for 2 years and you know what it means. It tooks time: I needed about 8 weeks 2 times a day before it really worked. Now I use Neogyn once a week or just after a "hot" "hot" intercourse but my life is back to normal. There are more and more great testimonials about Neogyn, I really think it worth a try!

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Thank you Florence

Post  Aceladi on Sat Nov 05, 2011 4:09 pm

To knowthis cream is working is a great help and I appreciate so much your reply as the cream is expensive and the posts I read were older ones. If you know of others that are using this cream I would love to hear there testimonies as well. Thanks again. Millie

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Re: New Member about the Neogyn Cream

Post  Rose86 on Sat Nov 05, 2011 4:55 pm

Hi there,

I have also used the cream for more than the recommended period of time, and to be honest it hasn't had a noticeable effect. If it has caused an improvement then it it is very slight, and certainly not enough of an improvement to make me consider having intercourse with no lidocaine!

I'll be interested in reading any further studies published in this area, because reading the one that has already been conducted doesn't seem to have found a significant pain reduction in the participants.

I would order the free trial (if it's still available), and I hope it works for you, but don't pin your hopes on it!

Rose86

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Just ordered!

Post  Aceladi on Sat Nov 05, 2011 6:35 pm

Hi Rose, Guess I jumped too quickly reading some positive responses. I have searched for a few days and don't find there are any 'free' trials left. I don't regret ordering it though as we all have to find out for ourselves I believe, since we are all so different with Vulvodynia. I will post my results on here as I think it is important to have all reviews and comments. Thank you so very much for your reply Smile

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Re: New Member about the Neogyn Cream

Post  florence1009 on Mon Nov 07, 2011 5:41 am

Millie;
I feel you made the right choice! Be patient: 6 to 8 weeks twice a day. Keep us posted!


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Re: New Member about the Neogyn Cream

Post  Zazu on Tue Nov 15, 2011 1:57 pm

Yes, please post your experiences! I have vestibulodynia and generalized vulvodynia, as well as fibromyalgia, and I wonder about a topical cream when the underlying problem isn't dermatological but neuromuscular ... however I've been considering it for the vestibulitis. I know the skin down there has become drier and more easily irritated so maybe it would help even though I'll still need lyrica, naproxen and physio for the underlying issues.

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Update on Neogyn Cream

Post  Aceladi on Fri Jan 13, 2012 5:22 pm

I am so sorry to be so long in responding about my experience with the Neogyn Cream. Unfortunately, it did not work for me at all. In fact, it made the irritation much worse after trying just 3 days in a row, I couldn't even attempt to us it anymore. I will say, however, that I sent it back to the company, and they did issue me a full refund. I was very pleased about that. Millie

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Re: New Member about the Neogyn Cream

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