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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 0

vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


New Member about the Neogyn Cream

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New Member about the Neogyn Cream

Post  Aceladi on Mon Oct 31, 2011 4:55 pm

I've read recently about the Neogyn Cream and saw a few of you have tried it, but all the posts were in July and August, and I am wondering if it has now made any improvment for the Vestibulitis in the vulva area? I've tried everything, I'm sure... even having a neurostimulator put in for a year and then had it taken out. I am on Neurontin, use Lidocaine 2% as well as 5% when needed. Also, take Percoset if I know I am going to be sitting for a long period of time... only take a half for fear of addiction. Aceladi

Aceladi

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Age : 75
Location : Arizona

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Neogyn.us

Post  florence1009 on Sat Nov 05, 2011 3:37 pm

For me it worked out well. I am still using it but only once a week and my life changed completely. I had secondary vestibulodynia for 2 years and you know what it means. It tooks time: I needed about 8 weeks 2 times a day before it really worked. Now I use Neogyn once a week or just after a "hot" "hot" intercourse but my life is back to normal. There are more and more great testimonials about Neogyn, I really think it worth a try!

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Thank you Florence

Post  Aceladi on Sat Nov 05, 2011 4:09 pm

To knowthis cream is working is a great help and I appreciate so much your reply as the cream is expensive and the posts I read were older ones. If you know of others that are using this cream I would love to hear there testimonies as well. Thanks again. Millie

Aceladi

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Re: New Member about the Neogyn Cream

Post  Rose86 on Sat Nov 05, 2011 4:55 pm

Hi there,

I have also used the cream for more than the recommended period of time, and to be honest it hasn't had a noticeable effect. If it has caused an improvement then it it is very slight, and certainly not enough of an improvement to make me consider having intercourse with no lidocaine!

I'll be interested in reading any further studies published in this area, because reading the one that has already been conducted doesn't seem to have found a significant pain reduction in the participants.

I would order the free trial (if it's still available), and I hope it works for you, but don't pin your hopes on it!

Rose86

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Join date : 2011-06-23

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Just ordered!

Post  Aceladi on Sat Nov 05, 2011 6:35 pm

Hi Rose, Guess I jumped too quickly reading some positive responses. I have searched for a few days and don't find there are any 'free' trials left. I don't regret ordering it though as we all have to find out for ourselves I believe, since we are all so different with Vulvodynia. I will post my results on here as I think it is important to have all reviews and comments. Thank you so very much for your reply Smile

Aceladi

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Re: New Member about the Neogyn Cream

Post  florence1009 on Mon Nov 07, 2011 5:41 am

Millie;
I feel you made the right choice! Be patient: 6 to 8 weeks twice a day. Keep us posted!


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Re: New Member about the Neogyn Cream

Post  Zazu on Tue Nov 15, 2011 1:57 pm

Yes, please post your experiences! I have vestibulodynia and generalized vulvodynia, as well as fibromyalgia, and I wonder about a topical cream when the underlying problem isn't dermatological but neuromuscular ... however I've been considering it for the vestibulitis. I know the skin down there has become drier and more easily irritated so maybe it would help even though I'll still need lyrica, naproxen and physio for the underlying issues.

Zazu

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Update on Neogyn Cream

Post  Aceladi on Fri Jan 13, 2012 5:22 pm

I am so sorry to be so long in responding about my experience with the Neogyn Cream. Unfortunately, it did not work for me at all. In fact, it made the irritation much worse after trying just 3 days in a row, I couldn't even attempt to us it anymore. I will say, however, that I sent it back to the company, and they did issue me a full refund. I was very pleased about that. Millie

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Re: New Member about the Neogyn Cream

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