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» Slight positive outcome
Today at 6:44 am by Jo44

» New and lost
Today at 6:15 am by Redhead23

» THERE IS HOPE I OVERCAME VULVODYNIA - IT WENT AWAY
Today at 5:43 am by mtaylor18

» My experience
Yesterday at 7:46 am by rosechar

» Severe pain after sitting??
Yesterday at 1:36 am by shope610

» V-Treatment Kit
Thu Apr 16, 2015 6:30 am by OBRN2007sms

» Discharge!Lyrica, inflammation, tests with no result
Thu Apr 16, 2015 6:26 am by OBRN2007sms

» Diagnosing Vulvodynia
Wed Apr 15, 2015 6:32 am by jen007

» is this normal after surgery? please comment.
Wed Apr 15, 2015 4:08 am by January

New and lost

Sat Apr 18, 2015 6:15 am by Redhead23

Hey ladies.

I'm at a stage in my life where my vulva pain has completely taken over. I'm depressed and even suicidal and after crying a ton today, decided to look for support.

I'm from the UK, I'm 31 and I've suffered with pain, burning and stinging of the vulva, clitoris and vestibule for 12years after a yeast infection and a bladder infection.

I've struggled over the last decade trying to …

Comments: 0

THERE IS HOPE I OVERCAME VULVODYNIA - IT WENT AWAY

Sat Mar 21, 2015 2:48 am by mtaylor18

Since 2009 I had suffered with terrible UTI's, kidney infections, cystitis, recurrent thrush and lots of gynecological and urological problems I became very depressed. December 2012 I had chronic pain in my vulva (AGAIN) but this time it felt different, it was there around a month and just didn't go away! I went to hospital and had an ultrasound where they saw two burst ovarian cysts. I thought …

Comments: 2

Diagnosing Vulvodynia

Thu Apr 09, 2015 11:06 am by amh521

Does anyone know if it's possible to definitively diagnose vulvodynia? From what I have read, it seems like doctors arrive on vulvodynia when tests for all other infections/skin diseases come back negative. I have yet to be diagnosed, but after all the research I've done, I firmly believe this is what it is.

After 7 months of stinging and itching, I had a vulvar biopsy last week. It hurt a LOT …

Comments: 1

Not sure what is wrong with me..

Sun Apr 12, 2015 2:43 am by FallingSlowly

Hello ladies- I am glad to have found this forum. Not that I want anyone else to be suffering like I am, but I do find comfort in knowing that I'm not alone, and even more comfort in the fact that success stories are shared to help others.

I've been suffering for a year and a half now, with no luck whatsoever on coming closer to a diagnosis. None of the 6 doctors (3 gyns, 2 gps, 1 infectious …

Comments: 1

Vulvodynia my whole life & Vestibulectomy results

Sun Apr 05, 2015 3:42 pm by nola218

Greetings from upstate NY...

I feel like an expert on the subject of Vulvodynia. So much so, that I have had doctors admit to me that I know more about it than them. I'm sure a lot of you have seen this. So little is know about this in the medical world that it can become very frustrating to find answers.

I'm 30 years old. Ever since I lost my virginity at the age of 17, I have had vaginal …

Comments: 0

Not sure what's wrong with me, but....

Tue Mar 31, 2015 7:15 pm by haybay

I'm so glad to have found a group of women experiencing similar symptoms! My symptoms have been progressing for at least five years now. I'm 27 years old, and I'm finding that I'm becoming more and more insecure and depressed as a result of my symptoms, as well as the uncertainty of any diagnosis. Some suggestions have been made by three doctors, but no one has been able to "cure" me or …

Comments: 6

HELP! Going for my first GYN visit

Wed Apr 01, 2015 7:25 am by stewie

Hi,

I just joined the forum today and I wanted to ask people who have been through this for a while if there is anything specific I should ask about or request during my office visit? I have 100% vulvodynia symptoms. I've had them for 5 months and its painful and depressing. I've read a lot of blogs and every time I learn a little more but it seems like different things work for different …

Comments: 0

New Member Here - I have VVS

Fri Mar 27, 2015 12:59 pm by srslyskwrrly

Hey everyone,

I am so glad to find a supportive online forum for those of us with Vulvodynia! I was diagnosed with Vulvar Vestibulitis about 14 years ago and back then there just wasn't much information to be found about Vulvodynia issues. Today I am glad to see more medical research is being devoted to it and far more information is available online. Moreover, it is a comfort to now be able …

Comments: 0

Just found this site.. thank god.

Sat Dec 27, 2014 1:59 pm by abbey5531

Hi everyone-
I have been struggling with my diagnosis of vulvodynia since February of this year, but problems have been going on for a long time. I was on the pill after I lost my virginity due to a pregnancy scare when I was about to turn 19, which was over two years ago now, and since then I have experienced pain while having sex. My boyfriend at the time and I ended up breaking up, and I …

Comments: 6


New Member about the Neogyn Cream

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New Member about the Neogyn Cream

Post  Aceladi on Tue Nov 01, 2011 3:55 am

I've read recently about the Neogyn Cream and saw a few of you have tried it, but all the posts were in July and August, and I am wondering if it has now made any improvment for the Vestibulitis in the vulva area? I've tried everything, I'm sure... even having a neurostimulator put in for a year and then had it taken out. I am on Neurontin, use Lidocaine 2% as well as 5% when needed. Also, take Percoset if I know I am going to be sitting for a long period of time... only take a half for fear of addiction. Aceladi

Aceladi

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Age: 72
Location: Arizona

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Neogyn.us

Post  florence1009 on Sun Nov 06, 2011 2:37 am

For me it worked out well. I am still using it but only once a week and my life changed completely. I had secondary vestibulodynia for 2 years and you know what it means. It tooks time: I needed about 8 weeks 2 times a day before it really worked. Now I use Neogyn once a week or just after a "hot" "hot" intercourse but my life is back to normal. There are more and more great testimonials about Neogyn, I really think it worth a try!

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Thank you Florence

Post  Aceladi on Sun Nov 06, 2011 3:09 am

To knowthis cream is working is a great help and I appreciate so much your reply as the cream is expensive and the posts I read were older ones. If you know of others that are using this cream I would love to hear there testimonies as well. Thanks again. Millie

Aceladi

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Re: New Member about the Neogyn Cream

Post  Rose86 on Sun Nov 06, 2011 3:55 am

Hi there,

I have also used the cream for more than the recommended period of time, and to be honest it hasn't had a noticeable effect. If it has caused an improvement then it it is very slight, and certainly not enough of an improvement to make me consider having intercourse with no lidocaine!

I'll be interested in reading any further studies published in this area, because reading the one that has already been conducted doesn't seem to have found a significant pain reduction in the participants.

I would order the free trial (if it's still available), and I hope it works for you, but don't pin your hopes on it!

Rose86

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Join date: 2011-06-24

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Just ordered!

Post  Aceladi on Sun Nov 06, 2011 5:35 am

Hi Rose, Guess I jumped too quickly reading some positive responses. I have searched for a few days and don't find there are any 'free' trials left. I don't regret ordering it though as we all have to find out for ourselves I believe, since we are all so different with Vulvodynia. I will post my results on here as I think it is important to have all reviews and comments. Thank you so very much for your reply Smile

Aceladi

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Re: New Member about the Neogyn Cream

Post  florence1009 on Mon Nov 07, 2011 4:41 pm

Millie;
I feel you made the right choice! Be patient: 6 to 8 weeks twice a day. Keep us posted!


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Re: New Member about the Neogyn Cream

Post  Zazu on Wed Nov 16, 2011 12:57 am

Yes, please post your experiences! I have vestibulodynia and generalized vulvodynia, as well as fibromyalgia, and I wonder about a topical cream when the underlying problem isn't dermatological but neuromuscular ... however I've been considering it for the vestibulitis. I know the skin down there has become drier and more easily irritated so maybe it would help even though I'll still need lyrica, naproxen and physio for the underlying issues.

Zazu

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Update on Neogyn Cream

Post  Aceladi on Sat Jan 14, 2012 4:22 am

I am so sorry to be so long in responding about my experience with the Neogyn Cream. Unfortunately, it did not work for me at all. In fact, it made the irritation much worse after trying just 3 days in a row, I couldn't even attempt to us it anymore. I will say, however, that I sent it back to the company, and they did issue me a full refund. I was very pleased about that. Millie

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