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» Anyone have pain with urination?
Yesterday at 9:55 am by Gaby

» New member - just looking for feedback
Mon Oct 15, 2018 5:40 pm by mertzwl

» Will I ever be able to wear jeans?
Sun Oct 14, 2018 4:14 pm by Npage14

» Amitriptyline Success and new-found love
Thu Oct 11, 2018 8:29 pm by megaanx

» Diagnosed recently, looking for advice
Wed Oct 10, 2018 2:30 pm by wuhujen

» Dose HAVING VULVODYNIA MEANS YOU HAVE LUPUS?? HELP IM FREAKING OUT!
Wed Oct 10, 2018 2:01 pm by pussycat

» From a concerned husband
Wed Oct 10, 2018 1:46 pm by shope610

» Had this for 5 years, looking for people who understand
Wed Oct 10, 2018 1:55 am by Npage14

» 6 year sufferer but I’ve found some hope
Wed Oct 10, 2018 1:33 am by Npage14

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Met with specialist!

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Met with specialist!

Post  ilovebaxter1 on Mon Oct 31, 2011 11:21 pm

Hello everyone and happy Halloween ! As you might already know I have been havig vulvar irritation as pain for the past 4 months. Today I met with a wonderful specialist in dr. Elizabeth Stewart's office and things went great! I have been diagnosed with vulvitis which is a inflammation and irritatation of the vulva which can cause discomfort and pain. I was prescribed a topical cream to apply every day for a month and she said things should be looking better by then:) she said it just takes time to heal because some type of irritant caused it. I have no power right now because of a snowstorm and my drug store doesn't have power either so I can't get my prescription until they get it back but then I'll be able to tell you what I'm using! My dr. Was so helpful and showed me exactly how to apply the cream so I'll update you after ie been using it for a month. I'm happy to say someone finally knows what's wrong with me since for the past 4 months i thought I had vulvodynia. Stay strong everyone ! <3 finding the right doctor has finally given me relief so I can stop stressing about what could be wrong.

ilovebaxter1

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Age : 27
Location : Boston

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another question?

Post  Melissa777 on Thu Nov 03, 2011 10:16 pm

what cream did she prescribe?
your so lucky to see her, i wish i could

Melissa777

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betta val

Post  ilovebaxter1 on Sat Nov 05, 2011 12:30 am

its called betta val its a steriod cream i believe Smile. i also have to use vasaline down there when i get out of the shower and do sitz baths a few times a day!

ilovebaxter1

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Re: Met with specialist!

Post  Melissa777 on Sat Nov 05, 2011 2:50 am

I tried that before my Vulvar Vest. Dx.
It didnt work
=(
I hope it works for you
if not, go back to dr stewart

did she do a yeast culture on you?

Melissa777

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Re: Met with specialist!

Post  ilovebaxter1 on Tue Nov 08, 2011 3:56 am

Yes she tested me for yeast and also gave me yeast cultures to take home so I can do it myself ad send it in overnight so they can have a second look. She also preformed the q tip test and nothing bothered me besides the inflammation in the opening of my vagina. My next appointment is jan 4th for a follow up with my beta Val so I'll update everyone then Smile

ilovebaxter1

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Re: Met with specialist!

Post  stephsue on Thu Jan 05, 2012 6:33 am

He ilovebaxter! I also go to Dr. Stewart's clinic, but haven't gone back in a long time (other stuff going on in my life) but am planning to call to make a follow-up tomorrow. Anyway, nice to know there's someone from here around the Boston area! :-)

stephsue

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Re: Met with specialist!

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