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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Newbie - ----

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Newbie - ----

Post  SimplyBelle on Thu Nov 03, 2011 2:44 am

Just a quick introduction, but I imagine for the most part I'll spend my next few weeks creeping the boards reading your stories.

Been spending some time with the Nurse regarding the issue, finally had my first appointment with my obgyn today, and off for another round of testing to rule out ALL pathogens. He suspects its vulvodynia.

I'm still young though, just turned 21, and only really been dealing with the issue for about a year (since the beginning).

Aside from that, I'm from Canada, a student, and getting married in 6 months! Very Happy

That's the hardest part... the wedding is in six months

- Simply Belle


PS. Why do titles need to be 10 characters?

SimplyBelle

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Location : British Columbia

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new too....

Post  joanna82 on Thu Nov 03, 2011 8:07 am

Hello Simply Belle,

i'm new here too. Was "formally" diagnosed yesterday after 5 years of going around in circles. I am so angry at all those doctors that kept telling me it was all in my head... I can't even beggin to explain what it did to my confidence in bed and to my relationship with my partner.
On the positive side, at least now what i have has a name!

Congratulations on your wedding, I hope your husband-to-be supports you all the way.

Joanna

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Re: Newbie - ----

Post  Aussie on Fri Nov 04, 2011 1:11 am

Congrats on the wedding Simply Belle!

My v started 6 weeks into my marriage. I married at 21 also! People think you are young. But when you know, you know! I have been lucky enough to have a very supportive husband. We work around any sexual pain I have but things are vastly improved after internal physical therapy and the herbal route. I have another post here listing my herbs. I also came off BCP as I felt it was contibuting to my symptoms. Since I have PCOS I now don't have periods which I suppose stops period induced vulva flares. The pill was making my vulva pain worse also. Sometimes it is just one one thing, but a few things that contribute to form the pain symdrome. I recently just found some more parts to my puzzle.

Muscles, nerves and skin irritation. I tired meds for the nerve part but the herbs work way better. Once I got the nerves settled my muscles have started to relax and it no longer hurts to sit! (sex hurts at first and then gets better after a minute or so, but if I am turned on we can go straight into it now, I'ts not like it was before, but I stopped hoping for 100% a while ago). It really is just finding YOUR treatment and I bet if you really put yourself into finding it over the next few months, you will improve! First port of call would be Physical Therapy, especially if your pain is only with sex.

Good luck in your journey and marriage - Sometimes having a partner, really can make it easier - mine does.

Claire xoxo

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Re: Newbie - ----

Post  SimplyBelle on Mon Dec 05, 2011 6:53 am

Just an update: Final diagnosis after a clear ultra sound last week, and now my gynaecologist is sending me off with a referral to the Multidisciplinary Vulvodynia Clinic in Vancouver. Anyone heard anything about it?

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