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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Newbie - ----

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Newbie - ----

Post  SimplyBelle on Thu Nov 03, 2011 2:44 am

Just a quick introduction, but I imagine for the most part I'll spend my next few weeks creeping the boards reading your stories.

Been spending some time with the Nurse regarding the issue, finally had my first appointment with my obgyn today, and off for another round of testing to rule out ALL pathogens. He suspects its vulvodynia.

I'm still young though, just turned 21, and only really been dealing with the issue for about a year (since the beginning).

Aside from that, I'm from Canada, a student, and getting married in 6 months! Very Happy

That's the hardest part... the wedding is in six months

- Simply Belle


PS. Why do titles need to be 10 characters?

SimplyBelle

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Location : British Columbia

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new too....

Post  joanna82 on Thu Nov 03, 2011 8:07 am

Hello Simply Belle,

i'm new here too. Was "formally" diagnosed yesterday after 5 years of going around in circles. I am so angry at all those doctors that kept telling me it was all in my head... I can't even beggin to explain what it did to my confidence in bed and to my relationship with my partner.
On the positive side, at least now what i have has a name!

Congratulations on your wedding, I hope your husband-to-be supports you all the way.

Joanna

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Re: Newbie - ----

Post  Aussie on Fri Nov 04, 2011 1:11 am

Congrats on the wedding Simply Belle!

My v started 6 weeks into my marriage. I married at 21 also! People think you are young. But when you know, you know! I have been lucky enough to have a very supportive husband. We work around any sexual pain I have but things are vastly improved after internal physical therapy and the herbal route. I have another post here listing my herbs. I also came off BCP as I felt it was contibuting to my symptoms. Since I have PCOS I now don't have periods which I suppose stops period induced vulva flares. The pill was making my vulva pain worse also. Sometimes it is just one one thing, but a few things that contribute to form the pain symdrome. I recently just found some more parts to my puzzle.

Muscles, nerves and skin irritation. I tired meds for the nerve part but the herbs work way better. Once I got the nerves settled my muscles have started to relax and it no longer hurts to sit! (sex hurts at first and then gets better after a minute or so, but if I am turned on we can go straight into it now, I'ts not like it was before, but I stopped hoping for 100% a while ago). It really is just finding YOUR treatment and I bet if you really put yourself into finding it over the next few months, you will improve! First port of call would be Physical Therapy, especially if your pain is only with sex.

Good luck in your journey and marriage - Sometimes having a partner, really can make it easier - mine does.

Claire xoxo

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Re: Newbie - ----

Post  SimplyBelle on Mon Dec 05, 2011 6:53 am

Just an update: Final diagnosis after a clear ultra sound last week, and now my gynaecologist is sending me off with a referral to the Multidisciplinary Vulvodynia Clinic in Vancouver. Anyone heard anything about it?

SimplyBelle

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Re: Newbie - ----

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