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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Newbie - ----

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Newbie - ----

Post  SimplyBelle on Thu Nov 03, 2011 2:44 am

Just a quick introduction, but I imagine for the most part I'll spend my next few weeks creeping the boards reading your stories.

Been spending some time with the Nurse regarding the issue, finally had my first appointment with my obgyn today, and off for another round of testing to rule out ALL pathogens. He suspects its vulvodynia.

I'm still young though, just turned 21, and only really been dealing with the issue for about a year (since the beginning).

Aside from that, I'm from Canada, a student, and getting married in 6 months! Very Happy

That's the hardest part... the wedding is in six months

- Simply Belle


PS. Why do titles need to be 10 characters?

SimplyBelle

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Location : British Columbia

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new too....

Post  joanna82 on Thu Nov 03, 2011 8:07 am

Hello Simply Belle,

i'm new here too. Was "formally" diagnosed yesterday after 5 years of going around in circles. I am so angry at all those doctors that kept telling me it was all in my head... I can't even beggin to explain what it did to my confidence in bed and to my relationship with my partner.
On the positive side, at least now what i have has a name!

Congratulations on your wedding, I hope your husband-to-be supports you all the way.

Joanna

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Re: Newbie - ----

Post  Aussie on Fri Nov 04, 2011 1:11 am

Congrats on the wedding Simply Belle!

My v started 6 weeks into my marriage. I married at 21 also! People think you are young. But when you know, you know! I have been lucky enough to have a very supportive husband. We work around any sexual pain I have but things are vastly improved after internal physical therapy and the herbal route. I have another post here listing my herbs. I also came off BCP as I felt it was contibuting to my symptoms. Since I have PCOS I now don't have periods which I suppose stops period induced vulva flares. The pill was making my vulva pain worse also. Sometimes it is just one one thing, but a few things that contribute to form the pain symdrome. I recently just found some more parts to my puzzle.

Muscles, nerves and skin irritation. I tired meds for the nerve part but the herbs work way better. Once I got the nerves settled my muscles have started to relax and it no longer hurts to sit! (sex hurts at first and then gets better after a minute or so, but if I am turned on we can go straight into it now, I'ts not like it was before, but I stopped hoping for 100% a while ago). It really is just finding YOUR treatment and I bet if you really put yourself into finding it over the next few months, you will improve! First port of call would be Physical Therapy, especially if your pain is only with sex.

Good luck in your journey and marriage - Sometimes having a partner, really can make it easier - mine does.

Claire xoxo

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Re: Newbie - ----

Post  SimplyBelle on Mon Dec 05, 2011 6:53 am

Just an update: Final diagnosis after a clear ultra sound last week, and now my gynaecologist is sending me off with a referral to the Multidisciplinary Vulvodynia Clinic in Vancouver. Anyone heard anything about it?

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