Log in

I forgot my password

Latest topics
» wheelchairs
Today at 4:25 am by SinclairSassy

» I don't know what to do anymore
Sat May 26, 2018 5:21 pm by Aquaben

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Newbie - ----

Go down

Newbie - ----

Post  SimplyBelle on Thu Nov 03, 2011 2:44 am

Just a quick introduction, but I imagine for the most part I'll spend my next few weeks creeping the boards reading your stories.

Been spending some time with the Nurse regarding the issue, finally had my first appointment with my obgyn today, and off for another round of testing to rule out ALL pathogens. He suspects its vulvodynia.

I'm still young though, just turned 21, and only really been dealing with the issue for about a year (since the beginning).

Aside from that, I'm from Canada, a student, and getting married in 6 months! Very Happy

That's the hardest part... the wedding is in six months

- Simply Belle


PS. Why do titles need to be 10 characters?

SimplyBelle

Posts : 17
Join date : 2011-11-03
Location : British Columbia

View user profile

Back to top Go down

new too....

Post  joanna82 on Thu Nov 03, 2011 8:07 am

Hello Simply Belle,

i'm new here too. Was "formally" diagnosed yesterday after 5 years of going around in circles. I am so angry at all those doctors that kept telling me it was all in my head... I can't even beggin to explain what it did to my confidence in bed and to my relationship with my partner.
On the positive side, at least now what i have has a name!

Congratulations on your wedding, I hope your husband-to-be supports you all the way.

Joanna

joanna82

Posts : 3
Join date : 2011-11-01

View user profile

Back to top Go down

Re: Newbie - ----

Post  Aussie on Fri Nov 04, 2011 1:11 am

Congrats on the wedding Simply Belle!

My v started 6 weeks into my marriage. I married at 21 also! People think you are young. But when you know, you know! I have been lucky enough to have a very supportive husband. We work around any sexual pain I have but things are vastly improved after internal physical therapy and the herbal route. I have another post here listing my herbs. I also came off BCP as I felt it was contibuting to my symptoms. Since I have PCOS I now don't have periods which I suppose stops period induced vulva flares. The pill was making my vulva pain worse also. Sometimes it is just one one thing, but a few things that contribute to form the pain symdrome. I recently just found some more parts to my puzzle.

Muscles, nerves and skin irritation. I tired meds for the nerve part but the herbs work way better. Once I got the nerves settled my muscles have started to relax and it no longer hurts to sit! (sex hurts at first and then gets better after a minute or so, but if I am turned on we can go straight into it now, I'ts not like it was before, but I stopped hoping for 100% a while ago). It really is just finding YOUR treatment and I bet if you really put yourself into finding it over the next few months, you will improve! First port of call would be Physical Therapy, especially if your pain is only with sex.

Good luck in your journey and marriage - Sometimes having a partner, really can make it easier - mine does.

Claire xoxo

Aussie

Posts : 227
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

View user profile

Back to top Go down

Re: Newbie - ----

Post  SimplyBelle on Mon Dec 05, 2011 6:53 am

Just an update: Final diagnosis after a clear ultra sound last week, and now my gynaecologist is sending me off with a referral to the Multidisciplinary Vulvodynia Clinic in Vancouver. Anyone heard anything about it?

SimplyBelle

Posts : 17
Join date : 2011-11-03
Location : British Columbia

View user profile

Back to top Go down

Re: Newbie - ----

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum