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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

how do i save my relationship?

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how do i save my relationship?

Post  joanna82 on Sun Nov 06, 2011 10:47 am

Hello girls,
i'm new here, and so glad I found this forum...
I have had pain during sex for 5 years now,at first i was told it was in my head, and i believed it, at least for a while... Then the pain got worse, started to affect me when using tampons etc, so i then realised no,it's not in my head. The damage in my relatioship was done though, as he was feeling more and more rejected and i started thinking perhaps i dont love him? that's why i dont wanna be intimate? etc...

I was formally diagnosed last tuesday although i had known for a while since i read on the net about Vulvodynia.... the problem is that the previous saturday my partner and i had a horrible fight, we said things and did things we both regret and that i am really embarrassed to even write about it... I dont know now how to recover, we have been really cold to each other, i know he is waiting for me to initiate sex to kind of "forget" about this fight (why do men always have to fix things with sex?!?!) but i cant bring myself to it..... WE have a mortgage and a small child, we've been toguether for so long, built a lovely life together, i really dont want to end it but i dont know what to do now, how to bring us both together again... The more i go without being intimate the coldest i feel towards him, it's like a vicious circle. And i'm not talking only sex, i cant bear the thought to even give him a hug... I really feel depressed. How do you know if it's just that i'm horribly depressed or i just dont have any more love left??

has anybody gone through this? how do you keep intimacy going through the pain (physical and emotional)?


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Re: how do i save my relationship?

Post  lolainslacks on Sun Nov 06, 2011 8:43 pm

I'm sorry you're having such a difficult time right now. How much about your actual condition does your partner know? It may help to really educate him about this as much as possible, so that he really realises that this is a legitimate medical thing, and not simply a personal rejection. Your lack of desire for any intimacy at all is absolutely understandable, and very common. Lots of women fear, even subconsciously, that something like hugging/kissing is a starter, something that will lead to sex. He needs to understand this as well. I think you should sit down and really have an in depth discussion, not only about the acutal mechanics of this disorder (so that he understands how much physical pain you are in and how it is not your fault), but also how it makes you feel about sex and intimacy. Then he may better understand that this 'coldness' is not a choice or a rejection.


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Re: how do i save my relationship?

Post  Aussie on Thu Nov 10, 2011 3:24 am

You also need to set a boundry. Set it at hugs. For a long time and let him know it can't go further because it hurts you. Then branch out a bit from there, and so on. This will help with the intamacy I am sorry you are having such a difficult time here. It might be worth couples releationship councelling? Or even just for yourself to sort your head out I know a lady on here (Mouse) who I haven't seen post for a while???? but she swears by therapy to sort her head out.



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Re: how do i save my relationship?

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