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Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

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Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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how do i save my relationship?

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how do i save my relationship?

Post  joanna82 on Sun Nov 06, 2011 10:47 am

Hello girls,
i'm new here, and so glad I found this forum...
I have had pain during sex for 5 years now,at first i was told it was in my head, and i believed it, at least for a while... Then the pain got worse, started to affect me when using tampons etc, so i then realised no,it's not in my head. The damage in my relatioship was done though, as he was feeling more and more rejected and i started thinking perhaps i dont love him? that's why i dont wanna be intimate? etc...

I was formally diagnosed last tuesday although i had known for a while since i read on the net about Vulvodynia.... the problem is that the previous saturday my partner and i had a horrible fight, we said things and did things we both regret and that i am really embarrassed to even write about it... I dont know now how to recover, we have been really cold to each other, i know he is waiting for me to initiate sex to kind of "forget" about this fight (why do men always have to fix things with sex?!?!) but i cant bring myself to it..... WE have a mortgage and a small child, we've been toguether for so long, built a lovely life together, i really dont want to end it but i dont know what to do now, how to bring us both together again... The more i go without being intimate the coldest i feel towards him, it's like a vicious circle. And i'm not talking only sex, i cant bear the thought to even give him a hug... I really feel depressed. How do you know if it's just that i'm horribly depressed or i just dont have any more love left??

has anybody gone through this? how do you keep intimacy going through the pain (physical and emotional)?


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Re: how do i save my relationship?

Post  lolainslacks on Sun Nov 06, 2011 8:43 pm

I'm sorry you're having such a difficult time right now. How much about your actual condition does your partner know? It may help to really educate him about this as much as possible, so that he really realises that this is a legitimate medical thing, and not simply a personal rejection. Your lack of desire for any intimacy at all is absolutely understandable, and very common. Lots of women fear, even subconsciously, that something like hugging/kissing is a starter, something that will lead to sex. He needs to understand this as well. I think you should sit down and really have an in depth discussion, not only about the acutal mechanics of this disorder (so that he understands how much physical pain you are in and how it is not your fault), but also how it makes you feel about sex and intimacy. Then he may better understand that this 'coldness' is not a choice or a rejection.


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Re: how do i save my relationship?

Post  Aussie on Thu Nov 10, 2011 3:24 am

You also need to set a boundry. Set it at hugs. For a long time and let him know it can't go further because it hurts you. Then branch out a bit from there, and so on. This will help with the intamacy I am sorry you are having such a difficult time here. It might be worth couples releationship councelling? Or even just for yourself to sort your head out I know a lady on here (Mouse) who I haven't seen post for a while???? but she swears by therapy to sort her head out.



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Re: how do i save my relationship?

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