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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

how do i save my relationship?

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how do i save my relationship?

Post  joanna82 on Sun Nov 06, 2011 10:47 am

Hello girls,
i'm new here, and so glad I found this forum...
I have had pain during sex for 5 years now,at first i was told it was in my head, and i believed it, at least for a while... Then the pain got worse, started to affect me when using tampons etc, so i then realised no,it's not in my head. The damage in my relatioship was done though, as he was feeling more and more rejected and i started thinking perhaps i dont love him? that's why i dont wanna be intimate? etc...

I was formally diagnosed last tuesday although i had known for a while since i read on the net about Vulvodynia.... the problem is that the previous saturday my partner and i had a horrible fight, we said things and did things we both regret and that i am really embarrassed to even write about it... I dont know now how to recover, we have been really cold to each other, i know he is waiting for me to initiate sex to kind of "forget" about this fight (why do men always have to fix things with sex?!?!) but i cant bring myself to it..... WE have a mortgage and a small child, we've been toguether for so long, built a lovely life together, i really dont want to end it but i dont know what to do now, how to bring us both together again... The more i go without being intimate the coldest i feel towards him, it's like a vicious circle. And i'm not talking only sex, i cant bear the thought to even give him a hug... I really feel depressed. How do you know if it's just that i'm horribly depressed or i just dont have any more love left??

has anybody gone through this? how do you keep intimacy going through the pain (physical and emotional)?


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Re: how do i save my relationship?

Post  lolainslacks on Sun Nov 06, 2011 8:43 pm

I'm sorry you're having such a difficult time right now. How much about your actual condition does your partner know? It may help to really educate him about this as much as possible, so that he really realises that this is a legitimate medical thing, and not simply a personal rejection. Your lack of desire for any intimacy at all is absolutely understandable, and very common. Lots of women fear, even subconsciously, that something like hugging/kissing is a starter, something that will lead to sex. He needs to understand this as well. I think you should sit down and really have an in depth discussion, not only about the acutal mechanics of this disorder (so that he understands how much physical pain you are in and how it is not your fault), but also how it makes you feel about sex and intimacy. Then he may better understand that this 'coldness' is not a choice or a rejection.


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Re: how do i save my relationship?

Post  Aussie on Thu Nov 10, 2011 3:24 am

You also need to set a boundry. Set it at hugs. For a long time and let him know it can't go further because it hurts you. Then branch out a bit from there, and so on. This will help with the intamacy I am sorry you are having such a difficult time here. It might be worth couples releationship councelling? Or even just for yourself to sort your head out I know a lady on here (Mouse) who I haven't seen post for a while???? but she swears by therapy to sort her head out.



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Re: how do i save my relationship?

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