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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Newly Diagnosed and trying to cope

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Newly Diagnosed and trying to cope

Post  mars215 on Thu Nov 10, 2011 4:09 pm

Hi everybody...

I'm 24 years old, and for the past year I've been dealing with IC. Within the last 2 months, I've also been diagnosed with provoked vulvodynia. Not sure if the vulvodynia was a result of the IC, or if something else caused it... but I'm having a very hard time with the treatment options. They just seem very invasive....creams, suppositories, phys. therapy... and I'm trying to normalize them since they will now be part of my life. But it's very difficult for me.

Does anyone have any advice on how to cope?

Also, has anyone tried decreasing stress and eating low oxalate foods? Has that reduced symptoms at all?

Thanks....

mars215

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Re: Newly Diagnosed and trying to cope

Post  Sarah001 on Thu Nov 10, 2011 6:28 pm

Hi and welcome. I think we all just muddle along as best we can, I'm not sure nyone really copes as such. Definitely stick to the physio though as the pelvic floor is a big problem in V and IC. Claire (Aussie) will probably have some words of wisdom for you as she has both too and is doing very well at the moment so she's living proof things can be drastically improved, not quite Australian day time yet though! Have a good browse and see if anything helps you or interests you and although the forum's been a bit quiet recently there are other women with the same problem here to chat to.
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Re: Newly Diagnosed and trying to cope

Post  itchyandscratchy on Tue Nov 15, 2011 11:52 am

Hi mars, sorry but not surprised to hear you're having a difficult time coping right now.

I've never tried a low oxolate diet, I tried a candida diet a while back and found that it didn't have that much effect on my symptoms, for me it's my hormonal cycle and stress levels that have the biggest influence. I would say that making my diet healthier over all (and maybe losing some weight as a result of that) has helped me somewhat.

As far as advice on how to cope, I'm not too sure, when I was first diagnosed I was quite depressed for a while (constantly on verge of tears e.g.) but as I got used to managing it day to day, figured out what I could wear and what I could eat, when in my hormonal cycle I can expect it to get worse, I started feeling a lot better and my mood's pretty much back to normal now.

These sections might be of use to you - Physiotherapy and Biofeedback, Celebrating the Positive.

Hope this is of some help x
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Re: Newly Diagnosed and trying to cope

Post  mars215 on Wed Nov 16, 2011 3:17 am

Thank you Smile I really appreciate both of your comments and kind words.

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Re: Newly Diagnosed and trying to cope

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