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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Newly Diagnosed and trying to cope

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Newly Diagnosed and trying to cope

Post  mars215 on Thu Nov 10, 2011 4:09 pm

Hi everybody...

I'm 24 years old, and for the past year I've been dealing with IC. Within the last 2 months, I've also been diagnosed with provoked vulvodynia. Not sure if the vulvodynia was a result of the IC, or if something else caused it... but I'm having a very hard time with the treatment options. They just seem very invasive....creams, suppositories, phys. therapy... and I'm trying to normalize them since they will now be part of my life. But it's very difficult for me.

Does anyone have any advice on how to cope?

Also, has anyone tried decreasing stress and eating low oxalate foods? Has that reduced symptoms at all?

Thanks....

mars215

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Re: Newly Diagnosed and trying to cope

Post  Sarah001 on Thu Nov 10, 2011 6:28 pm

Hi and welcome. I think we all just muddle along as best we can, I'm not sure nyone really copes as such. Definitely stick to the physio though as the pelvic floor is a big problem in V and IC. Claire (Aussie) will probably have some words of wisdom for you as she has both too and is doing very well at the moment so she's living proof things can be drastically improved, not quite Australian day time yet though! Have a good browse and see if anything helps you or interests you and although the forum's been a bit quiet recently there are other women with the same problem here to chat to.
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Sarah001

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Re: Newly Diagnosed and trying to cope

Post  itchyandscratchy on Tue Nov 15, 2011 11:52 am

Hi mars, sorry but not surprised to hear you're having a difficult time coping right now.

I've never tried a low oxolate diet, I tried a candida diet a while back and found that it didn't have that much effect on my symptoms, for me it's my hormonal cycle and stress levels that have the biggest influence. I would say that making my diet healthier over all (and maybe losing some weight as a result of that) has helped me somewhat.

As far as advice on how to cope, I'm not too sure, when I was first diagnosed I was quite depressed for a while (constantly on verge of tears e.g.) but as I got used to managing it day to day, figured out what I could wear and what I could eat, when in my hormonal cycle I can expect it to get worse, I started feeling a lot better and my mood's pretty much back to normal now.

These sections might be of use to you - Physiotherapy and Biofeedback, Celebrating the Positive.

Hope this is of some help x
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Re: Newly Diagnosed and trying to cope

Post  mars215 on Wed Nov 16, 2011 3:17 am

Thank you Smile I really appreciate both of your comments and kind words.

mars215

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Re: Newly Diagnosed and trying to cope

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