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» Sex after vulvodynia (husband edition)
Yesterday at 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Did going off antidepressants cause this?
Wed Aug 08, 2018 7:30 pm by Nancylee

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

» Hi girls! New in this forum
Thu Aug 02, 2018 11:11 am by Taylor1

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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New Physio

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New Physio

Post  Sarah001 on Thu Nov 10, 2011 6:24 pm

I've been to see an NHS WH Physio today and I really rate her, she's having a word with another physio at a different hospital to see if they can treat me between them as the local hospital doesn't have biofeedback. I'm really excited about this but have any of you other UK girls found a way to get round the rule of 6 sessions on the NHS only then you're discharged whether you're better or not? I'm not going to get much done in 6 sessions with all the accompanying SI and pelvic problems, especially as my consultation counts as 1 session already gone! Anyone have any experience with getting round this?
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Re: New Physio

Post  lolainslacks on Thu Nov 10, 2011 9:07 pm

Six sessions?! I had no idea there were only six. Oh God, that's depressing. I'm not going to be better by then, and I can't do biofeedback on my own. Oh no...

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Re: New Physio

Post  Sarah001 on Fri Nov 11, 2011 12:41 pm

I know, I had a vague recollection there was a limit on sessions but I couldn't remember how many and 6 isn't many at all. By the time I've had one more session where we discuss what the other physio said and probably one with the other physio herself to look at pelvic floor tension I'll be halfway through mine and got nowhere. I said I was really worried about this aspect because I've got a pelvis to stabilise before I can do much with my pelvic floor and apparently it's a limit they impose because there's such a long waiting list. I hoped it wouldn't apply to all cases but it does. I've waited a couple of months to get to see this physio and she's said we can spread them out so it's one a month to make it a long term treatment plan but it's still not going to be anywhere near enough for me. Useless NHS rules.
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Re: New Physio

Post  Sarah001 on Fri Nov 11, 2011 1:20 pm

I've asked on another health forum I belong to where they're all very treatment savvy and it seems there isn't a way round the 6 sessions rule, in fact in some areas it's only 5 sessions including the consultation so it seems that's it for all us UK based girls, for those of you who can pay to go private it's the better option. For those who can't, like me, looks like we're stuck with it if the handful of sessions doesn't help. How utterly depressing.
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Re: New Physio

Post  lolainslacks on Fri Nov 11, 2011 5:18 pm

This is completely ridiculous. You wouldn't limit chemotherapy treatments because of long waiting lists. Just because a condition can't kill you doesn't mean it's not serious. This is something that a lot of women NEED. And the sessions only last half an hour, they can fit in lots of people in one day, so why such a need to limit? This doesn't make any sense and is appalling. I absolutely can't afford to go private.

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Re: New Physio

Post  Sarah001 on Fri Nov 11, 2011 6:07 pm

I'm gutted, I was so thrilled to finally get an appointment on the NHS after a year with no physio due to financial problems and now I'm realising it isn't going to be anywhere near enough for me. At least my physio is booking me in for double slots so I get an hour because of all my other complicating factors but it still isn't going to be enough appointments to help me. It's outrageous that physios can't decide how many sessions you get for your condition and have to use a one size fits all approach. I just can't afford to go private and feel like I'm going to be stuck with very limited function plus V forever. The only thing I can suggest to UK girls is ask for double slots so you get 6 hours as opposed to 3 hours but it's still not going to do the trick for most of us.
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Re: New Physio

Post  Rose86 on Fri Nov 18, 2011 7:46 pm

Hi Sarah,

I also have a new physio, and went to see her today. It's private, but she said I should probably only have 4-6 sessions. But then I am only seeing her about my pelvic floor muscles and nothing else, so if you have other things you may need more time. She just said that the main benefits come from what you do at home. There's no point her releasing my pelvic floor in each session, if i'm just going to go home and tense it up all the time, and undo her good work, which makes sense. So I have to learn to release it myself.

It was the first time i'd had my pelvic floor muscles assessed and I was relieved that she found a problem. That may sound strange, but at least I know that there is something I can work on to change. She said the left side is really short and the right side is really knotted, so both sides are dysfunctional in different ways. She said my first task is to work on 'dropping' it whenever I can, whenever it pops into my mind. Because I seem to have it pulled up all the time.

Sarah, what does your PT say about your pelvic floor muscles, and what do you have to do at home in between sessions?

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Re: New Physio

Post  Sarah001 on Sun Nov 20, 2011 1:01 pm

Hi Rose,
I do the same thing and tense my pelvic floor all the time, unfortunately because mine is in spasm due to loose pelvic joints I can only relax it down to a resting tone of 12 which is obviously way too high! I do find it helps though if I can stop tensing it for a few days in a row so it's definitely a factor if not the cause of my V. I have VVS and generalised unprovoked V but as my pelvis is loose and dysfunctional it probably accounts for both. I have a similar thing to you with very tight left side and very knotty right, are you sure you don't have a looser SI joint on the right? I find some days when I feel the muscles in there I can barely fit a finger in because of how tight they are but on days where the pain isn't as bad they're much more relaxed.

The private WH physio I saw estimated it would take one session a month over at least a year to get anywhere with mine and the NHS physio I saw recently did say the 6 sessions I'm allowed probably wouldn't be enough and she planned on spreading them over months to do the best she could. I can't have the trigger points removed at this stage because they hold me together so can't overdo the internal work but I should know more when I see her again. Have you been given internal work to do or are you just at the drop the pelvic floor stage? Do you know what your resting tone is? That's just a geeky interest!
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Re: New Physio

Post  Rose86 on Sun Nov 20, 2011 7:29 pm

Hi Sarah,

Yeah it seems I have mine pulled up all the time. When you say if you can stop tensing it for a few days in a row, do you actually mean have it relaxed constantly? Because at this stage, I can only drop it for a matter of seconds, when i'm focused on it, if i'm distracted doing other things then it's right back up there again! Is there supposed to come a point in time where it's always dropped? It's just hard to imagine, as I'm so used to have it pulled up, although that's not a conscious decision. I've noticed that when i'm stressed, or for example when i'm driving and I have to stop quickly or swerve for something, then I really pull it up a lot. The thing is I can't remember my pelvic floor feeling any different to this, it feels normal to me. Relaxing it feels like the exertion, if that makes sense.

I haven't had my resting tone measured my this phsyio, but i'll see if she can measure it next time - i'm hoping to go monthly. She's actual had vulval pain herself which is really useful that she knows what she's talking about. I don't actually know what an SI joint is... But I find the right side of my neck and shoulder are always knotty from driving quite a lot (more so than the left), so she said that may be why, because it's all linked.

She found some external trigger points on the outside (again more on the right), and the knotted right side internally was a lot more sore. Interestingly though my vestibule pain is worse on the left.

I'm just supposed to be working on dropping the pelvic floor and general relaxation/breathing at this stage. But can I really lengthen my pelvic floor muscles simply by dropping it whenever I remember, and only for a few seconds at a time? I just doesn't feel like enough! She did say I could try some internal massage, but actually on the left I would struggle to reach the muscle (I didn't realise it was so high up until she had her finger in there and was trying to 'encourage it down' - weird feeling!), but I could try and work out some of the knots on the right.

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Re: New Physio

Post  Sarah001 on Mon Nov 21, 2011 12:30 pm

Yes mine only improves a bit when I have it relaxed constantly for a few days, it's totally normal to only be able to manage a few seconds at the start, I was the same and you just have to continuously keep checking to see what you're doing and relax it whenever you do that until your brain starts to remember how it should feel. I find doing anything at speed makes me really tense mine too and things that involve needing stability makes me really bad too. I've only managed a couple of days in a row before I've started clenching again so I'm a long way from doing it all the time too! You just have to get through the frustrating early stage of it feeling normal to have it clenched, I used to grip with my glutes too but don't do that much now I've got used to it but I do still stand with all my weight through my right leg despite both feet being on the ground and me looking like I'm spreading my weight equally between the two, it's just a case of correct it over and over until the brain feels a relaxed PF is normal.

As for that being the only thing needed the answer is no, the idea behind biofeedback and teaching us to relax the PF is so that if they do any trigger point work we don't go away and tense the muscles up again and undo what they've done. And if you get given kegels at any point you know how to relax the muscles in between so they don't make matters worse etc. It's the first stage of treatment I suppose.

If the knots are high up you could press into them with a dilator to get a bit of internal work done in between sessions, now you know where they are it's easier to treat them. The SI joints join the pelvis to the spine by attaching each pelvic wing (ilium) to the sacrum at the back of the pelvis. They are commonly dysfunctional in women and in my case have my PF spasming to support them. The upper back pain could easily be connected, the body has a continuous web of fascia and if you get a problem in one area it distorts other areas and fascia is packed with nerves so can easily cause burning. You just have to start with the dropping which will feel wrong to begin with, get your brain used to that and then move on to the trigger point work etc. I find keeping the pelvic floor relaxed as I can get it then strengthening muscles around the pelvis helps but everyone's different and you may not need to do all that. Just keep dropping!
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Re: New Physio

Post  Rose86 on Tue Nov 22, 2011 7:35 pm

Thanks for the reply Sarah. I'm trying my best to keep dropping it, and hopefully it'll get easier the more I do it. I also think I hold my glutes pretty tight, so i'm trying to relax those too. It's easier to do it standing though. Harder when I'm sitting down for such long periods of time.
I may try with a dilator. It might work on the right (knotted) side. But on the left she had to actually pull the muscle down, so not sure I can really do that myself. I suppose I have to hope that by dropping it more regularly that it comes down a bit on it's own. I had no idea it had shortened so much. What I previously thought was my pelvic floor muscle on the left, clearly wasn't! I'm going back on the 15th Dec, so I hope I can get a bit of an improvement by then. I know it's going to be a long road though. And when i'm stressed, or exercise, or drive, it seems I can't stop it pulling right back up on its own! I'm starting to think i've been doing this my whole life, because it feels so unatural to have it dropped!

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Re: New Physio

Post  Sarah001 on Tue Nov 22, 2011 8:05 pm

I think I've done it for a long time too and it just reached breaking point and caused the V. The glute gripping does make me really wonder about how stable your pelvis is though, I'm sure the physio will look at some point. I've had a really stressful couple of weeks so I'm clenching like crazy again. You can use fingers or the dilator just to press into the muscles and stretch them outwards which should help a bit too, any bit of stretching and releasing adds up but don't go mad because alot more pain will make you clench again. Make sure you spend a bit of time each day breathing into the stomach to help relax the muscles a bit. I think my next appointment is the 8th Dec when I should find out what my treatment plan is.
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Re: New Physio

Post  ButterflyLiz on Sun Nov 27, 2011 10:34 am

Hi guys,

I’ve just had a read through this thread & am finding it really interesting. So much of what has been said mirrors my experience. I have just started seeing a physio at the Royal Free (referred by Wendy Reid) and she has got me massaging out trigger points in my thighs (which I didn’t even know I had!), stretching out the vaginal muscles and dropping my pelvic floor as often as I can. This has been a revelation. Like others have said, I must have been doing this *all the time*. It does not feel normal! I keep thinking..you mean all those pain-free girls walk around with their pelvic floor constantly this relaxed?! I just can’t imagine it. I can feel a difference in pain level already, though I don’t want to speak too soon.

I have had physio sessions before which consisted of biofeedback, inserting dilators & doing kegels and I was pretty hesitant to go back for more as none of that helped very much. BUT the big difference with this lady is in how she explained things, especially saying its important to relax the muscles first before doing strengthening exercises like kegels. She told me to look at this website - http://www.pelvicphysiotherapy.com/ as all the things she will teach me are on there. A lot of it seems to be similar to the content of the book “Heal pelvic pain” too. I’m quite hopeful this time around.

I’m not sure about the 6 sessions rule, no-one’s actually said this to me before but I have had several “batches” of physio in the past – I guess generally about a year apart – but thinking about it I guess none of them were more than 6 sessions long. But I have definitely had more than 6 sessions overall.

Lying on my back and breathing into my pelvis seems to help too (once she showed me how to do it properly), and it’s so relaxing I just want to do it all the time. Again, so different to how I normally operate. Being eternally inquisitive, I asked my physio how all this would help the pain. She said the theory is that there is not enough blood flow to the pelvic region when the muscles are all contracted like this and nerves that do not get enough blood flow get agitated and fire out pain signals. I had not heard that before so found it quite interesting.

I’ve also been doing the “off the bed” stretch that Ria invented (http://vulvodyniasupport.forumotion.net/t458-something-interesting-to-read) cos it seemed to make sense and I’m sure that is helping too.

Anyway, take care everyone xx
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Re: New Physio

Post  Sarah001 on Wed Nov 30, 2011 12:07 pm

A new development, the physio I saw recently has had a talk with the physio from the large hospital 30 miles away and they've decided I need to go there and see what's going on with my resting tone, pelvic alignment, trigger points etc so it's going to take a while before I get any help but at least I'm not wasting appointments out of my 6 in the meantime. So for now my physio treatment is on hold pending a new appointment so I'm back on the waiting list. I wanted to get started straight away but I did want to go to this other physio from the beginning so it's a good thing even if it's going to take a while to get there. In the meantime I'm going to carry on trying to stop clenching which I've started doing again due to stress so I'll try and get on top of that before I go. Hope it isn't going to be months again before I get there though. Sigh.
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Re: New Physio

Post  Sarah001 on Thu Dec 01, 2011 4:07 pm

Not sure if anyone is still reading this thread but another update, amazingly I've got my next appointment and it's for December 20th so I'm thrilled it happened so fast. Will update once I've been.
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Re: New Physio

Post  Rose86 on Fri Dec 02, 2011 9:39 pm

Hi Sarah, that's very quick indeed for an NHS appointment! Well done! Not long to wait now at all. I have one around the middle of December (as long as I can get the time off work). I have been trying to stop clenching, but like you i've been going through a bit of stress, and it just seems to go out the window then. I'll start trying again. I've been putting post-its around to remind me to do it. But the worst place seems to be the car, any change of direction or breaking or change of gear seems to cause a clench! It's something I really need to work on anyway. The dilator/trigger point work hasn't been going well again, I was doing quite well, then the yeast infection strikes again! I just think it was doing a few days of dilator work (with lubricant) in a row. I'm going to try and do it twice a week and see if that is ok.

Liz thanks for that website - it looks excellent! I know what you mean about the girls who walk around relaxed. I'm unsure how relaxed they actually are though. I wish I could understand what it's like for them, so I can see what it's supposed to be like! Ah well, for now I need to keep remembering to 'drop'!

Good luck all :-)

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Re: New Physio

Post  ButterflyLiz on Sun Dec 04, 2011 9:18 pm

I know, it still feels freakishly weird when I manage to stay "dropped" for any length of time! I keep hoping that eventually that will become the norm for me..must keep diligently at it I guess. I'm quite impatient with these things but I'm determined to keep trying. I'm starting to see how constantly clenching like this could transform pain on touch to pain all the time (the pattern that my pain developed in).

No probs on the website, thought it would be helpful for anyone wanting to try physio but not able to actually get to one, or even to learn stuff in between sessions, which is what I intend to do.

It's great that your ap is so soon, Sarah. Best of luck and let us know how you get on.

xx
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Re: New Physio

Post  Sarah001 on Mon Dec 05, 2011 12:02 pm

That's what happened with mine too, mild pain upon initial penetration only turned into constant diffuse pain. Apparently if your pelvic floor is very, very tight it can go that way. I think it's definitely worth everyone getting their SI joints checked out too because problems with them and/or a weak core can cause the PF to spasm in an attempt to stabilise the pelvis which is precisely what's happening to me. I'm trying really hard not to get my hopes up but failing and finding I'm really looking forward to the appointment. I'm currently trying to stop clenching the PF and strengthen my glutes too as the glutes are a major stabiliser of the pelvis so weak glutes are another thing to look at. I still can't believe how much more Women's Health Physios know about pelvic problems than standard physios, I've had over 6 years of physio for my SI joints and got nowhere but I realise now normal physios just don't understand what needs to be done. Wish me luck!
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Re: New Physio

Post  Sarah001 on Tue Dec 20, 2011 9:02 pm

So I've had my appointment today with my new physio and she's astounded at how loose my pelvis is. Even in a belt I moved far more than most women who've just given birth so I'm really, really unstable. Rather than try and reduce my PF right now she wants to start with trying to get more pelvic stability which means my PF will be able to stand trigger point work and relaxing exercises which it can't right now. I've been banned from all exercises except one she's given me to try and get the Transversus Abs and Multifidus working without the PF so I've just got to do that over and over again all day long. For now she isn't going to approach my PF because as she rightly said without it holding my pelvis together I would literally come apart at the seams. That's lovely Hypermobility Syndrome for you. Evil or Very Mad However she seems confident she can help me with both issues and isn't phased by my tremors and weirdly loose joints like alot of other physios have been. She also makes sense by saying we need to go back to basics and get everything working as and when it should rather than trying to do hard core stabilty exercises.

On the plus side she confirmed PFD does cause VVS with all the delightful inflamed skin and generalised V too in severe cases which is always good to know. And she's told me not to worry about the 6 session rule as she won't apply it to my case because of the HMS and Fibromyalgia being permanent conditions so at least I don't have to worry about that anymore! I go back mid January to see where this little basic exercise has left me. In her words "it's going to be a long time before your PF can be relaxed at all because of your pelvic instability" so looks like I'm stuck with the V for a while yet. Sad
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Re: New Physio

Post  lolainslacks on Wed Dec 21, 2011 12:55 pm

Bad news about how much work you have to do, but FANTASTIC news that you have found someone who is willing and able to help you in exactly the way that you need, and that you will be able to have indefinate sessions!! That must feel like such a relief, knowing you don't have such a limited amount of time, and that the woman you're seeing is totally qualified. Smile

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Re: New Physio

Post  Rose86 on Fri Dec 23, 2011 3:25 pm

Hi Sarah,

Yeah it is definitely good when you see someone who actually knows about the condition. I think it's going to be a long road for all of us. But I'm sure the physio will help, even the pelvic problems didn't cause it in the first place, they are definitely a contributing factor. My update: I went back for a second appointment to my women's health physio and she did a bit of internal work, pulling my pelvic floor muscles down. Such a weird feeling. But something i'm going to try at home using dilators, now I know what it feels like it should help me be sure i'm doing the right thing. She also mentioned a Gynae in London who she thinks I should see. I'm going to see her privately for a consultation and then apparently I can get onto her NHS list if I think she might be able to help me. I'm going to ask whether she thinks botox might be something to consider. Because i'm struggling to relax the pelvic floor muscles all the time, and that may help. I really haven't heard much about botox for VVS though, or what the risks are. I'm really reluctant to take any medication at this point because i'm pretty sensitive to the side effects. But I would consider botox if it's something she does. I'm also waiting on some blood test results, I forced by GP to send me for hormone tests! I just really want to rule it out.

Here's to 2012 being the year this improves!!

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Re: New Physio

Post  Sarah001 on Fri Dec 23, 2011 8:21 pm

I seem to think a poster called husband took his wife for botox somewhere in the world and it didn't work out, I seem to think he mentioned it works better on provoked as opposed to unprovoked but it might be worth a go.

I'm not sure if I feel good or bad about my appointment knowing it's going to take so long to be anything like normal, I think my pelvis has got even worse over the last year because I couldn't afford a physio and I was just as shocked at how little the SI belt is doing, especially since I've just invested in a new one. I'm practising relaxing the pelvic floor as much as I can and doing the little exercise she gave me lots of times through the day but I can just see years of pain and dysfunction both behind me and in front of me so I feel a bit down about it to be honest. Maybe I'll feel a bit better after my next appointment, I just so badly want to do normal things. Sad
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Re: New Physio

Post  Sarah001 on Tue Jan 10, 2012 8:19 pm

Just updating this thread for you girls also doing the physio route. Been back today and had my transversus abs and multifidus contractions retested and I'm making a bit of headway, both sides are a bit stronger after my regular practice sessions so that's a plus. I've been given some very basic paraspinal exercises as they are very closely linked to the pelvic floor so it's all baby steps but probably better than all the previous physios who rushed me through core exercises. Got to carry on with the trans abs and multifidus work and practice breathing into the sides and back of the ribcage while holding it. I've been doing what I suspect others have too and breathing into the abdomen all day for pelvic floor relaxation but that's only supposed to be an exercise while laying and not to be used while moving around or the deep stabilisers can't work so I'm glad she told me that! I'm a long long way from having any pelvic floor trigger points taken out etc so for now I just have to try my best to keep it relaxed and not drag it into my exercises too much, all very frustrating but I told the physio this is my last shot at physiotherapy so I'm really anxious for it to work and she seemed to think it would but we'll see, I've raised my hopes before only to plummet back to reality when it didn't help. Hope you others on the physio track are doing well.
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Re: New Physio

Post  ButterflyLiz on Thu Jan 12, 2012 8:19 pm

Hi Sarah, glad to hear you’ve made some progress. Sometimes baby steps are the best way forward. Thanks for the tip about the deep breathing, I’ll make sure I just do that while lying down from now on. I had another physio ap on Tuesday and it went pretty well, apparently my muscles are looser, too. Still ultra-responsive though. But we started doing some internal work, which was sore but interesting. I just need to find the impetus to keep going with it as I know it is going to hurt to start with each time I do it. Can’t believe how much conscious effort it takes to get my body under control.
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Re: New Physio

Post  Sarah001 on Thu Jan 12, 2012 9:11 pm

I did wonder how the deep stabilisers were supposed to work with that kind of breathing because it's such a relaxing way to breathe and I have my answer now! One of the paraspinal exercises has flared up my SI pain so I've had to stop it for now, it takes so little to set it off and then it sets everything off with it. I'm still doing lots of trans abs and multifidus work though because I'm sure that's the way forward for me. Keep having a little feel of how my PF is doing and at times it's not too bad (by my usual clamped like a vice standard Rolling Eyes anyway) but at other times it's very tight again. I have learned how to contract it without alot of PF activity though which I was struggling with, I can only say to people trying to separate them it's very difficult and practice makes perfect! I'm disappointed one exercise set things off though because I did mention I thought it would at the time I was given it, I'm so worried she won't be any better than the other physios I've seen that I'm kind of obssessed with rating her if you see what I mean! I've had to learn so much myself through my pelvic pain hell that I often know better than the person treating me and I really want a physio who can teach me and not the other way round. It's only one exercise though so I suppose it's early days yet and at least she checks my core progress properly each time I see her which is a first. I'll just skip that one and see what she says next time.

I've been pretty good at keeping the PF quite relaxed recently though and I'm trying to retrain my brain not to clench it in times of stress, needing more stability or speed during everyday activities and every time I fail and hit the PF I stop and change it to a trans ab and multifidus contraction then carry on what I'm doing. For a couple of days when I managed this regularly my inflamed vestibule even calmed down a bit and looked much less red so it's definitely going to help if I can manage to get it right all the time. Onwards and upwards girls.

P.S. Any typos in this are red wine induced, apologies. Embarassed
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