Log in

I forgot my password

Latest topics
Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


New Physio

Page 3 of 3 Previous  1, 2, 3

Go down

Re: New Physio

Post  Sarah001 on Tue Aug 28, 2012 6:15 pm

Aww Claire that's great news, congratulations on the baby and keep us posted on that! I'm pleased you're doing well still it gives me hope I can get a normal kind of life going on eventually. So nice of you to check up on me especially when you're doing well and don't visit here often. Do keep me up to date with your baby and how well you feel and I'm really really happy for you. x
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 45
Location : UK

View user profile

Back to top Go down

Re: New Physio

Post  Aussie on Thu Aug 30, 2012 2:56 am

Thanks Sarah. Having a 4 day flare up so far of the vuvlodynia. God knows. I'm sure it will die down again. Are you on Facebook at all? I rarely visit here. xxx

Aussie

Posts : 230
Join date : 2011-03-15
Age : 29
Location : Queensland, Australia

View user profile

Back to top Go down

Re: New Physio

Post  Rose86 on Tue Sep 04, 2012 8:10 pm

Hi Sarah (and all),

Sorry, i've been offline for a while too! Been in the middle of exams and stressful times at work, so that took over! I have in this time also started a new relationship, so obviously that comes with a whole range of V thoughts and feelings!

I'm due to see my gynae again at the beginning of October, after another unsuccessful lidocaine/steroid injection. She was open to the idea of botox, but said it's expensive (she's private) and that i'd have to get insurance to cover it. I think it's considered an experimental treatment, and for a chronic condition, so I really don't think the insurance companies will pay for it.

Does anyone have any evidence of anyone having botox on the NHS? I know they do it for overactive bladders, but i'm not sure about V.

Hope everyone is doing well. x

Rose86

Posts : 51
Join date : 2011-06-23

View user profile

Back to top Go down

Re: New Physio

Post  Sarah001 on Thu Sep 06, 2012 7:02 pm

Hi Rose, nice to see you and a new relationship too!! Shame about the injections you had not working but at least it's edging you closer to botox. I have no idea if the NHS cover them, like you I've only heard of them for overactive bladders on the NHS. I'm not sure who would know, perhaps the gynae department of a hospital? Or urology since they use them for bladders? I'm sure someone in one of those departments would likely know the answer and one thing I've learnt from all my hospital trips for various ailments is they don't usually mind a quick call to ask questions even if you're not seeing anyone in that department! Hope you find the answer and keep us posted! x
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 45
Location : UK

View user profile

Back to top Go down

Re: New Physio

Post  Sponsored content


Sponsored content


Back to top Go down

Page 3 of 3 Previous  1, 2, 3

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum