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» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
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» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Hypnosis worked for me!

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Hypnosis worked for me!

Post  paula298 on Sun Nov 27, 2011 7:53 am

Hi, I just thought I would share my story. I have suffered from Vulvodynia for about 7 years. I only feel the pain when I have sex and I have been very lucky that my husband is extremely supportive. I went to see a psychologist/ hypo therapist to deal with sleep issues that I have had all of my life. I also explained to him about the issues I have with my vulvodynia. He cleared my insomnia and we have just dealt with my vulvodynia. I went home after the session with “home work” as he called it and for the first time in 7 years I have pain free sex with my husband. We couldn’t believe it! The fact that it was such a physical problem that I would bleed and have cuts every time we would have sex, it just amazes me that he has switched off something in my subconscious and we had normal pain free sex.
I live in Perth and the phycologist I saw has been practising hypnosis for 30 years and he is a leader in his field so I wouldn’t recommend going to just anyone to try this. Hope this helps someone like it did me.

paula298

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Re: Hypnosis worked for me!

Post  ButterflyLiz on Sun Nov 27, 2011 11:12 am

Hi Paula, that’s really interesting. Do you know what it was that he switched off / what directions he gave your subconscious? Really glad that you’re able to have pain free sex now  At my last appointment my consultant mentioned something called auto-hypnosis, basically where you learn to semi-hypnotise yourself, but I got the impression that was more to do with pain management than an out and out cure.

xx
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Re: Hypnosis worked for me!

Post  lolainslacks on Sun Nov 27, 2011 3:40 pm

Perth Australia or Perth Scotland?

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Re: Hypnosis worked for me!

Post  paula298 on Mon Nov 28, 2011 12:05 am

When he put me in a trance (sounds full on but its just listening to his voice and taking deep breaths) he told me that my Vulvodynia wasn’t going to cause me pain any more. He went into more detail than that but along those lines, I think he only spent about 15min with me in a trance.
The crazy thing is, is that I was freaking out thinking it was going to hurt just before my husband and I went to try. I think I built it up in my head so much and wanted it to work, that when we were about to try my conscious mind was freaking but then when we tried there was no pain at all. We couldn’t believe it.
To be honest I don’t think self-hypnosis would have worked for me. I have tried telling positive talk and telling myself before sex that it would be an enjoyable experience making sure there is no negative talk such as saying “this will not hurt” even saying that is classified as negative because the word “hurt” and “will not” is used. This would probably work for some people but I needed more than that.
I only had the hypnosis last week and we have only tested it out once but I am hoping that this is the end of my 7 year stint with Vulvodynia. I live in Perth, Australia so if either of you live here let me know and I’m happy to pass on the details of the guy I went to see.


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Re: Hypnosis worked for me!

Post  ButterflyLiz on Mon Nov 28, 2011 8:28 pm

Hey Paula thanks for the extra info. I do hope that's the end of your vulvodynia story. Thanks but I'm in the UK. It is definitely something to bear in mind though, I will do some digging and see if there is anyone reputable over here. I seem to be quite susceptible to hypnosis, I have a couple of tracks that I listen to, to help me sleep etc (I know the v's bit different though!). Anyway best wishes.

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Re: Hypnosis worked for me!

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