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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Hypnosis worked for me!

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Hypnosis worked for me!

Post  paula298 on Sun Nov 27, 2011 7:53 am

Hi, I just thought I would share my story. I have suffered from Vulvodynia for about 7 years. I only feel the pain when I have sex and I have been very lucky that my husband is extremely supportive. I went to see a psychologist/ hypo therapist to deal with sleep issues that I have had all of my life. I also explained to him about the issues I have with my vulvodynia. He cleared my insomnia and we have just dealt with my vulvodynia. I went home after the session with “home work” as he called it and for the first time in 7 years I have pain free sex with my husband. We couldn’t believe it! The fact that it was such a physical problem that I would bleed and have cuts every time we would have sex, it just amazes me that he has switched off something in my subconscious and we had normal pain free sex.
I live in Perth and the phycologist I saw has been practising hypnosis for 30 years and he is a leader in his field so I wouldn’t recommend going to just anyone to try this. Hope this helps someone like it did me.

paula298

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Re: Hypnosis worked for me!

Post  ButterflyLiz on Sun Nov 27, 2011 11:12 am

Hi Paula, that’s really interesting. Do you know what it was that he switched off / what directions he gave your subconscious? Really glad that you’re able to have pain free sex now  At my last appointment my consultant mentioned something called auto-hypnosis, basically where you learn to semi-hypnotise yourself, but I got the impression that was more to do with pain management than an out and out cure.

xx
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Re: Hypnosis worked for me!

Post  lolainslacks on Sun Nov 27, 2011 3:40 pm

Perth Australia or Perth Scotland?

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Re: Hypnosis worked for me!

Post  paula298 on Mon Nov 28, 2011 12:05 am

When he put me in a trance (sounds full on but its just listening to his voice and taking deep breaths) he told me that my Vulvodynia wasn’t going to cause me pain any more. He went into more detail than that but along those lines, I think he only spent about 15min with me in a trance.
The crazy thing is, is that I was freaking out thinking it was going to hurt just before my husband and I went to try. I think I built it up in my head so much and wanted it to work, that when we were about to try my conscious mind was freaking but then when we tried there was no pain at all. We couldn’t believe it.
To be honest I don’t think self-hypnosis would have worked for me. I have tried telling positive talk and telling myself before sex that it would be an enjoyable experience making sure there is no negative talk such as saying “this will not hurt” even saying that is classified as negative because the word “hurt” and “will not” is used. This would probably work for some people but I needed more than that.
I only had the hypnosis last week and we have only tested it out once but I am hoping that this is the end of my 7 year stint with Vulvodynia. I live in Perth, Australia so if either of you live here let me know and I’m happy to pass on the details of the guy I went to see.


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Re: Hypnosis worked for me!

Post  ButterflyLiz on Mon Nov 28, 2011 8:28 pm

Hey Paula thanks for the extra info. I do hope that's the end of your vulvodynia story. Thanks but I'm in the UK. It is definitely something to bear in mind though, I will do some digging and see if there is anyone reputable over here. I seem to be quite susceptible to hypnosis, I have a couple of tracks that I listen to, to help me sleep etc (I know the v's bit different though!). Anyway best wishes.

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Re: Hypnosis worked for me!

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