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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Hypnosis worked for me!

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Hypnosis worked for me!

Post  paula298 on Sun Nov 27, 2011 7:53 am

Hi, I just thought I would share my story. I have suffered from Vulvodynia for about 7 years. I only feel the pain when I have sex and I have been very lucky that my husband is extremely supportive. I went to see a psychologist/ hypo therapist to deal with sleep issues that I have had all of my life. I also explained to him about the issues I have with my vulvodynia. He cleared my insomnia and we have just dealt with my vulvodynia. I went home after the session with “home work” as he called it and for the first time in 7 years I have pain free sex with my husband. We couldn’t believe it! The fact that it was such a physical problem that I would bleed and have cuts every time we would have sex, it just amazes me that he has switched off something in my subconscious and we had normal pain free sex.
I live in Perth and the phycologist I saw has been practising hypnosis for 30 years and he is a leader in his field so I wouldn’t recommend going to just anyone to try this. Hope this helps someone like it did me.

paula298

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Re: Hypnosis worked for me!

Post  ButterflyLiz on Sun Nov 27, 2011 11:12 am

Hi Paula, that’s really interesting. Do you know what it was that he switched off / what directions he gave your subconscious? Really glad that you’re able to have pain free sex now  At my last appointment my consultant mentioned something called auto-hypnosis, basically where you learn to semi-hypnotise yourself, but I got the impression that was more to do with pain management than an out and out cure.

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Re: Hypnosis worked for me!

Post  lolainslacks on Sun Nov 27, 2011 3:40 pm

Perth Australia or Perth Scotland?

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Re: Hypnosis worked for me!

Post  paula298 on Mon Nov 28, 2011 12:05 am

When he put me in a trance (sounds full on but its just listening to his voice and taking deep breaths) he told me that my Vulvodynia wasn’t going to cause me pain any more. He went into more detail than that but along those lines, I think he only spent about 15min with me in a trance.
The crazy thing is, is that I was freaking out thinking it was going to hurt just before my husband and I went to try. I think I built it up in my head so much and wanted it to work, that when we were about to try my conscious mind was freaking but then when we tried there was no pain at all. We couldn’t believe it.
To be honest I don’t think self-hypnosis would have worked for me. I have tried telling positive talk and telling myself before sex that it would be an enjoyable experience making sure there is no negative talk such as saying “this will not hurt” even saying that is classified as negative because the word “hurt” and “will not” is used. This would probably work for some people but I needed more than that.
I only had the hypnosis last week and we have only tested it out once but I am hoping that this is the end of my 7 year stint with Vulvodynia. I live in Perth, Australia so if either of you live here let me know and I’m happy to pass on the details of the guy I went to see.


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Re: Hypnosis worked for me!

Post  ButterflyLiz on Mon Nov 28, 2011 8:28 pm

Hey Paula thanks for the extra info. I do hope that's the end of your vulvodynia story. Thanks but I'm in the UK. It is definitely something to bear in mind though, I will do some digging and see if there is anyone reputable over here. I seem to be quite susceptible to hypnosis, I have a couple of tracks that I listen to, to help me sleep etc (I know the v's bit different though!). Anyway best wishes.

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Re: Hypnosis worked for me!

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