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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

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Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


HI EVERYONE THANKS FOR HAVING ME !!

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HI EVERYONE THANKS FOR HAVING ME !!

Post  joeyjojo on Wed Nov 30, 2011 10:58 pm

Hi my name is Joanne, I'm 23 and I was diagnosed with vulvodynia about 9 months ago. Before that I've been to various gynos and a dermatologist and they had all come up with various diagnosis including recurrent thrush !! !! When I was finally diagnosed I was put straight on an old form of anti ds and a steriod cream of some discription. The cream didnt work and the only thing the anti ds did was make it harder to get up in the morning. I had already been on 100mg of Zoloft to treat my depression and I really wanted to get off them, so the last thing I wanted to do was go on another lot. Needless to say I discontinued both these treatments and have been going it alone.

I have never experienced pain free sex before. I can't even insert a tampon, and when it was time for a pap smear to test it took about 3 attempts for it to actually happen !! it took a sleeping pill and my partner of 6 years to stand beside me and hold my hand for the test to actually happen !! It felt like something was pinching right up inside me and I thought I was going to die. When I told the gyno she said that feeling occures when the muscles arnt relaxed. And do you think I can get a penis inside me?? no way !! My bf and I are in a really bad way!! He doesnt want sex anymore and although he doesnt say anything I think it because he's frustrated cos I keep on wanting to stop because of the pain. Ben and I are each others first sexual partners.

My pain is a burning one which occures all around and in the the vulva and increases during intercourse, urnination and further more increases during my period. I solved the last one by skipping the white pills on my contraceptive pill (always a contriversal subject) and only letting myself get my period every few months or so. The other two I seem to have huge issues with. I have been experimenting with the food I eat and what I drink and it appears that foods and drinks which contain large amounts of sugar increase the pain, foods with large amounts of salt, tomato, red food and drink and strawberries and citrus fruits (anything thats acidic). If I am well hydrated and drink 8 glassses of water a day the symptoms won't be as bad. And just after I do some exercise the pain won't be there AT ALL whilst urinating.

If anyone could give me some drug free tips for reducing this or you have similar symptoms to mine I would really love to hear from you.

xxoo

joeyjojo

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Join date : 2011-11-30
Location : Newcastle, NSW, Australia

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Re: HI EVERYONE THANKS FOR HAVING ME !!

Post  Sarah001 on Thu Dec 01, 2011 11:56 am

Hi Joanne, your story is quite a familiar one to this site. As well as cutting out certain foods and drinks you could add calcium citrate to see if that helps, that's based on oxalates being a problem. To me though it sounds very much like your smear test experience has given you the answer and you need to start getting help from a Women's Health Physio to sort out those pelvic floor muscles. A tight PF can cause V and keep it going so it's vital you get going on that. You need to see one who has access to a biofeedback machine so you can see what the muscles are doing and get used to the feeling of relaxing them. Good luck and keep us informed.
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Sarah001

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pain free this is what I have been doing

Post  ria on Thu Dec 01, 2011 3:53 pm

Hello Everyone,

Its been a while since I have been on the site, the reason for this is that I have been trying to get better and now I want you all to know what I have been doing to be pain free from vulvodynia.

Please look at my past posts to see how bad I was and the different doctors and specialists I have seen. Well I have been following the advice from Dr Robert Morse you can look him up on you tube, he advises a detoxification programme. I have followed a grape juice fast and have turned my eating to raw food I know you are thinking oh noooo Shocked I did but I have never felt so well, I am pain free take no medication at all, I cannot believe it.

Dr Morse is a Naturopathic doctor who helps people with all kinds of problems. I waited until the pain had completely gone before sending this it worked for me. Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy

I know all of you can feel the same way good luck

Ria


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Re: HI EVERYONE THANKS FOR HAVING ME !!

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