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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


HI EVERYONE THANKS FOR HAVING ME !!

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HI EVERYONE THANKS FOR HAVING ME !!

Post  joeyjojo on Wed Nov 30, 2011 10:58 pm

Hi my name is Joanne, I'm 23 and I was diagnosed with vulvodynia about 9 months ago. Before that I've been to various gynos and a dermatologist and they had all come up with various diagnosis including recurrent thrush !! !! When I was finally diagnosed I was put straight on an old form of anti ds and a steriod cream of some discription. The cream didnt work and the only thing the anti ds did was make it harder to get up in the morning. I had already been on 100mg of Zoloft to treat my depression and I really wanted to get off them, so the last thing I wanted to do was go on another lot. Needless to say I discontinued both these treatments and have been going it alone.

I have never experienced pain free sex before. I can't even insert a tampon, and when it was time for a pap smear to test it took about 3 attempts for it to actually happen !! it took a sleeping pill and my partner of 6 years to stand beside me and hold my hand for the test to actually happen !! It felt like something was pinching right up inside me and I thought I was going to die. When I told the gyno she said that feeling occures when the muscles arnt relaxed. And do you think I can get a penis inside me?? no way !! My bf and I are in a really bad way!! He doesnt want sex anymore and although he doesnt say anything I think it because he's frustrated cos I keep on wanting to stop because of the pain. Ben and I are each others first sexual partners.

My pain is a burning one which occures all around and in the the vulva and increases during intercourse, urnination and further more increases during my period. I solved the last one by skipping the white pills on my contraceptive pill (always a contriversal subject) and only letting myself get my period every few months or so. The other two I seem to have huge issues with. I have been experimenting with the food I eat and what I drink and it appears that foods and drinks which contain large amounts of sugar increase the pain, foods with large amounts of salt, tomato, red food and drink and strawberries and citrus fruits (anything thats acidic). If I am well hydrated and drink 8 glassses of water a day the symptoms won't be as bad. And just after I do some exercise the pain won't be there AT ALL whilst urinating.

If anyone could give me some drug free tips for reducing this or you have similar symptoms to mine I would really love to hear from you.

xxoo

joeyjojo

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Location : Newcastle, NSW, Australia

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Re: HI EVERYONE THANKS FOR HAVING ME !!

Post  Sarah001 on Thu Dec 01, 2011 11:56 am

Hi Joanne, your story is quite a familiar one to this site. As well as cutting out certain foods and drinks you could add calcium citrate to see if that helps, that's based on oxalates being a problem. To me though it sounds very much like your smear test experience has given you the answer and you need to start getting help from a Women's Health Physio to sort out those pelvic floor muscles. A tight PF can cause V and keep it going so it's vital you get going on that. You need to see one who has access to a biofeedback machine so you can see what the muscles are doing and get used to the feeling of relaxing them. Good luck and keep us informed.
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Sarah001

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pain free this is what I have been doing

Post  ria on Thu Dec 01, 2011 3:53 pm

Hello Everyone,

Its been a while since I have been on the site, the reason for this is that I have been trying to get better and now I want you all to know what I have been doing to be pain free from vulvodynia.

Please look at my past posts to see how bad I was and the different doctors and specialists I have seen. Well I have been following the advice from Dr Robert Morse you can look him up on you tube, he advises a detoxification programme. I have followed a grape juice fast and have turned my eating to raw food I know you are thinking oh noooo Shocked I did but I have never felt so well, I am pain free take no medication at all, I cannot believe it.

Dr Morse is a Naturopathic doctor who helps people with all kinds of problems. I waited until the pain had completely gone before sending this it worked for me. Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy

I know all of you can feel the same way good luck

Ria


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Re: HI EVERYONE THANKS FOR HAVING ME !!

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