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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


HI EVERYONE THANKS FOR HAVING ME !!

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HI EVERYONE THANKS FOR HAVING ME !!

Post  joeyjojo on Wed Nov 30, 2011 10:58 pm

Hi my name is Joanne, I'm 23 and I was diagnosed with vulvodynia about 9 months ago. Before that I've been to various gynos and a dermatologist and they had all come up with various diagnosis including recurrent thrush !! !! When I was finally diagnosed I was put straight on an old form of anti ds and a steriod cream of some discription. The cream didnt work and the only thing the anti ds did was make it harder to get up in the morning. I had already been on 100mg of Zoloft to treat my depression and I really wanted to get off them, so the last thing I wanted to do was go on another lot. Needless to say I discontinued both these treatments and have been going it alone.

I have never experienced pain free sex before. I can't even insert a tampon, and when it was time for a pap smear to test it took about 3 attempts for it to actually happen !! it took a sleeping pill and my partner of 6 years to stand beside me and hold my hand for the test to actually happen !! It felt like something was pinching right up inside me and I thought I was going to die. When I told the gyno she said that feeling occures when the muscles arnt relaxed. And do you think I can get a penis inside me?? no way !! My bf and I are in a really bad way!! He doesnt want sex anymore and although he doesnt say anything I think it because he's frustrated cos I keep on wanting to stop because of the pain. Ben and I are each others first sexual partners.

My pain is a burning one which occures all around and in the the vulva and increases during intercourse, urnination and further more increases during my period. I solved the last one by skipping the white pills on my contraceptive pill (always a contriversal subject) and only letting myself get my period every few months or so. The other two I seem to have huge issues with. I have been experimenting with the food I eat and what I drink and it appears that foods and drinks which contain large amounts of sugar increase the pain, foods with large amounts of salt, tomato, red food and drink and strawberries and citrus fruits (anything thats acidic). If I am well hydrated and drink 8 glassses of water a day the symptoms won't be as bad. And just after I do some exercise the pain won't be there AT ALL whilst urinating.

If anyone could give me some drug free tips for reducing this or you have similar symptoms to mine I would really love to hear from you.

xxoo

joeyjojo

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Location : Newcastle, NSW, Australia

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Re: HI EVERYONE THANKS FOR HAVING ME !!

Post  Sarah001 on Thu Dec 01, 2011 11:56 am

Hi Joanne, your story is quite a familiar one to this site. As well as cutting out certain foods and drinks you could add calcium citrate to see if that helps, that's based on oxalates being a problem. To me though it sounds very much like your smear test experience has given you the answer and you need to start getting help from a Women's Health Physio to sort out those pelvic floor muscles. A tight PF can cause V and keep it going so it's vital you get going on that. You need to see one who has access to a biofeedback machine so you can see what the muscles are doing and get used to the feeling of relaxing them. Good luck and keep us informed.
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Sarah001

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pain free this is what I have been doing

Post  ria on Thu Dec 01, 2011 3:53 pm

Hello Everyone,

Its been a while since I have been on the site, the reason for this is that I have been trying to get better and now I want you all to know what I have been doing to be pain free from vulvodynia.

Please look at my past posts to see how bad I was and the different doctors and specialists I have seen. Well I have been following the advice from Dr Robert Morse you can look him up on you tube, he advises a detoxification programme. I have followed a grape juice fast and have turned my eating to raw food I know you are thinking oh noooo Shocked I did but I have never felt so well, I am pain free take no medication at all, I cannot believe it.

Dr Morse is a Naturopathic doctor who helps people with all kinds of problems. I waited until the pain had completely gone before sending this it worked for me. Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy

I know all of you can feel the same way good luck

Ria


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Re: HI EVERYONE THANKS FOR HAVING ME !!

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