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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


HI EVERYONE THANKS FOR HAVING ME !!

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HI EVERYONE THANKS FOR HAVING ME !!

Post  joeyjojo on Wed Nov 30, 2011 10:58 pm

Hi my name is Joanne, I'm 23 and I was diagnosed with vulvodynia about 9 months ago. Before that I've been to various gynos and a dermatologist and they had all come up with various diagnosis including recurrent thrush !! !! When I was finally diagnosed I was put straight on an old form of anti ds and a steriod cream of some discription. The cream didnt work and the only thing the anti ds did was make it harder to get up in the morning. I had already been on 100mg of Zoloft to treat my depression and I really wanted to get off them, so the last thing I wanted to do was go on another lot. Needless to say I discontinued both these treatments and have been going it alone.

I have never experienced pain free sex before. I can't even insert a tampon, and when it was time for a pap smear to test it took about 3 attempts for it to actually happen !! it took a sleeping pill and my partner of 6 years to stand beside me and hold my hand for the test to actually happen !! It felt like something was pinching right up inside me and I thought I was going to die. When I told the gyno she said that feeling occures when the muscles arnt relaxed. And do you think I can get a penis inside me?? no way !! My bf and I are in a really bad way!! He doesnt want sex anymore and although he doesnt say anything I think it because he's frustrated cos I keep on wanting to stop because of the pain. Ben and I are each others first sexual partners.

My pain is a burning one which occures all around and in the the vulva and increases during intercourse, urnination and further more increases during my period. I solved the last one by skipping the white pills on my contraceptive pill (always a contriversal subject) and only letting myself get my period every few months or so. The other two I seem to have huge issues with. I have been experimenting with the food I eat and what I drink and it appears that foods and drinks which contain large amounts of sugar increase the pain, foods with large amounts of salt, tomato, red food and drink and strawberries and citrus fruits (anything thats acidic). If I am well hydrated and drink 8 glassses of water a day the symptoms won't be as bad. And just after I do some exercise the pain won't be there AT ALL whilst urinating.

If anyone could give me some drug free tips for reducing this or you have similar symptoms to mine I would really love to hear from you.

xxoo

joeyjojo

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Join date : 2011-11-30
Location : Newcastle, NSW, Australia

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Re: HI EVERYONE THANKS FOR HAVING ME !!

Post  Sarah001 on Thu Dec 01, 2011 11:56 am

Hi Joanne, your story is quite a familiar one to this site. As well as cutting out certain foods and drinks you could add calcium citrate to see if that helps, that's based on oxalates being a problem. To me though it sounds very much like your smear test experience has given you the answer and you need to start getting help from a Women's Health Physio to sort out those pelvic floor muscles. A tight PF can cause V and keep it going so it's vital you get going on that. You need to see one who has access to a biofeedback machine so you can see what the muscles are doing and get used to the feeling of relaxing them. Good luck and keep us informed.
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Sarah001

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pain free this is what I have been doing

Post  ria on Thu Dec 01, 2011 3:53 pm

Hello Everyone,

Its been a while since I have been on the site, the reason for this is that I have been trying to get better and now I want you all to know what I have been doing to be pain free from vulvodynia.

Please look at my past posts to see how bad I was and the different doctors and specialists I have seen. Well I have been following the advice from Dr Robert Morse you can look him up on you tube, he advises a detoxification programme. I have followed a grape juice fast and have turned my eating to raw food I know you are thinking oh noooo Shocked I did but I have never felt so well, I am pain free take no medication at all, I cannot believe it.

Dr Morse is a Naturopathic doctor who helps people with all kinds of problems. I waited until the pain had completely gone before sending this it worked for me. Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy Very Happy

I know all of you can feel the same way good luck

Ria


ria

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Re: HI EVERYONE THANKS FOR HAVING ME !!

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