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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Help Please I am O' so Confused

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Help Please I am O' so Confused

Post  Natty on Wed Dec 07, 2011 5:30 pm

I have Interstitial Cystitis which I have been dealing with nonstop since May. It is a condition where you have to pee all the time. In addition to this and I apologize for TMI but I have this awful arousal feeling in my clitoris and anus and I DO NOT want sex when this happens. It doesn't burn but it is so annoying it can make me cry. It is like those areas are over stimulated. Is this a form of volvodynia? My doctors don't know what to do with me... and to make it worse I have side effects to every anti depressant I take to help with this. Any idea what this is or how it could be related to VV?

Also, I am going on a low oxalate diet to see if that helps my Interstitial Cystitis. Do you have any suggestions on supplements to help reduce oxalate in my system?


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Re: Help Please I am O' so Confused

Post  Sarah001 on Thu Dec 08, 2011 12:06 pm

Most people with IC have very tight pelvic floors so it's possible your PF is pinching a nerve and causing this sensation. It isn't strictly V as it's not pain in the vulva but could still be coming from the same causes so I'd ask about seeing a Women's Health Physio about it to see if they can establish if that's the problem for you.

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Re: Help Please I am O' so Confused

Post  mars215 on Thu Dec 08, 2011 6:41 pm

Hi Natty,

I have IC, VV, and PFD... but I started with IC. In the beginning, I noticed a tingly but not painful sensation in my clitoris area as well. I thought it was a UTI, but the tests would come out negative. So, I understood it to be a type of flare from the IC. When I later saw a urologist, she diagnosed me with the VV and PFD. Not a clinician or anything, but I think that area can be related to IC or VV. Do you drink coffee often? I noticed that I would get that sensation the most in that area after drinking coffee.

I know this is prolly the last thing you wanna do, but maybe you can keep a log of foods that give you flares, and specify where the flares are. I know some types of foods trigger a flare in my left pelvic area, whereas other flares happen in my vulva area.

I am also on a low-ox diet... and it has eased me symptoms... I've also been taking fish oil capsules which can help with the inflammation...

Hope this was helpful...


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Re: Help Please I am O' so Confused

Post  Sarah001 on Thu Dec 08, 2011 8:33 pm

I do drink coffee yes with no increase in symptoms, mine isn't related to diet at all and nothing makes any difference in that respect. Done the low ox diet too along with calcium citrate and no reduction in symptoms from that, tried fish oil capsules with no effect and also had a try at the anti inflammation diet with no help whatsoever. Mine's very pelvic floor related and I start with a new physio in the next 2 weeks to work on that. I have lax ligaments so my muscles go loopy trying to stabilise and my pelvic floor is literally hanging on for dear life. I had a resting tone of 20 when I first had it checked and as it's supposed to be 2-3 mine's clearly waaaaay too high! Shocked There is another member here with IC who may be able to discuss it with you, look for posts by Aussie if you get time. There's also a discussion ongoing about Dr Robert Norse if you look for it and that's a diet related thread too. Some people notice a change from diet and others don't, I can eat or drink what I like and mine stays the same but the slightest tensing of my PF sends my pain levels through the roof.

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Re: Help Please I am O' so Confused

Post  Aussie on Thu Dec 08, 2011 8:40 pm

try the ic diet and give it 3 months. The diet can be found at the ic network website. I have most of the symptoms you describe. Arousal feeling etc. I am on herbs which has cut out clitoral pain and a large percentage of vulva pain. I have been dx with ic vulvodynia and pfd. Physio helped with sex pain now sex feels good. Daily pain i am targeting with herbs and diet. Low ox had no effect for me. Always here if you want to talk. Ic network has a sub forums for each treatment option. Xo


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Re: Help Please I am O' so Confused

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