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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Help Please I am O' so Confused

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Help Please I am O' so Confused

Post  Natty on Wed Dec 07, 2011 5:30 pm

I have Interstitial Cystitis which I have been dealing with nonstop since May. It is a condition where you have to pee all the time. In addition to this and I apologize for TMI but I have this awful arousal feeling in my clitoris and anus and I DO NOT want sex when this happens. It doesn't burn but it is so annoying it can make me cry. It is like those areas are over stimulated. Is this a form of volvodynia? My doctors don't know what to do with me... and to make it worse I have side effects to every anti depressant I take to help with this. Any idea what this is or how it could be related to VV?

Also, I am going on a low oxalate diet to see if that helps my Interstitial Cystitis. Do you have any suggestions on supplements to help reduce oxalate in my system?


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Re: Help Please I am O' so Confused

Post  Sarah001 on Thu Dec 08, 2011 12:06 pm

Most people with IC have very tight pelvic floors so it's possible your PF is pinching a nerve and causing this sensation. It isn't strictly V as it's not pain in the vulva but could still be coming from the same causes so I'd ask about seeing a Women's Health Physio about it to see if they can establish if that's the problem for you.

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Re: Help Please I am O' so Confused

Post  mars215 on Thu Dec 08, 2011 6:41 pm

Hi Natty,

I have IC, VV, and PFD... but I started with IC. In the beginning, I noticed a tingly but not painful sensation in my clitoris area as well. I thought it was a UTI, but the tests would come out negative. So, I understood it to be a type of flare from the IC. When I later saw a urologist, she diagnosed me with the VV and PFD. Not a clinician or anything, but I think that area can be related to IC or VV. Do you drink coffee often? I noticed that I would get that sensation the most in that area after drinking coffee.

I know this is prolly the last thing you wanna do, but maybe you can keep a log of foods that give you flares, and specify where the flares are. I know some types of foods trigger a flare in my left pelvic area, whereas other flares happen in my vulva area.

I am also on a low-ox diet... and it has eased me symptoms... I've also been taking fish oil capsules which can help with the inflammation...

Hope this was helpful...


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Re: Help Please I am O' so Confused

Post  Sarah001 on Thu Dec 08, 2011 8:33 pm

I do drink coffee yes with no increase in symptoms, mine isn't related to diet at all and nothing makes any difference in that respect. Done the low ox diet too along with calcium citrate and no reduction in symptoms from that, tried fish oil capsules with no effect and also had a try at the anti inflammation diet with no help whatsoever. Mine's very pelvic floor related and I start with a new physio in the next 2 weeks to work on that. I have lax ligaments so my muscles go loopy trying to stabilise and my pelvic floor is literally hanging on for dear life. I had a resting tone of 20 when I first had it checked and as it's supposed to be 2-3 mine's clearly waaaaay too high! Shocked There is another member here with IC who may be able to discuss it with you, look for posts by Aussie if you get time. There's also a discussion ongoing about Dr Robert Norse if you look for it and that's a diet related thread too. Some people notice a change from diet and others don't, I can eat or drink what I like and mine stays the same but the slightest tensing of my PF sends my pain levels through the roof.

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Re: Help Please I am O' so Confused

Post  Aussie on Thu Dec 08, 2011 8:40 pm

try the ic diet and give it 3 months. The diet can be found at the ic network website. I have most of the symptoms you describe. Arousal feeling etc. I am on herbs which has cut out clitoral pain and a large percentage of vulva pain. I have been dx with ic vulvodynia and pfd. Physio helped with sex pain now sex feels good. Daily pain i am targeting with herbs and diet. Low ox had no effect for me. Always here if you want to talk. Ic network has a sub forums for each treatment option. Xo


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Re: Help Please I am O' so Confused

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