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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7


Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Help Please I am O' so Confused

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Help Please I am O' so Confused

Post  Natty on Wed Dec 07, 2011 5:30 pm

I have Interstitial Cystitis which I have been dealing with nonstop since May. It is a condition where you have to pee all the time. In addition to this and I apologize for TMI but I have this awful arousal feeling in my clitoris and anus and I DO NOT want sex when this happens. It doesn't burn but it is so annoying it can make me cry. It is like those areas are over stimulated. Is this a form of volvodynia? My doctors don't know what to do with me... and to make it worse I have side effects to every anti depressant I take to help with this. Any idea what this is or how it could be related to VV?

Also, I am going on a low oxalate diet to see if that helps my Interstitial Cystitis. Do you have any suggestions on supplements to help reduce oxalate in my system?


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Re: Help Please I am O' so Confused

Post  Sarah001 on Thu Dec 08, 2011 12:06 pm

Most people with IC have very tight pelvic floors so it's possible your PF is pinching a nerve and causing this sensation. It isn't strictly V as it's not pain in the vulva but could still be coming from the same causes so I'd ask about seeing a Women's Health Physio about it to see if they can establish if that's the problem for you.

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Re: Help Please I am O' so Confused

Post  mars215 on Thu Dec 08, 2011 6:41 pm

Hi Natty,

I have IC, VV, and PFD... but I started with IC. In the beginning, I noticed a tingly but not painful sensation in my clitoris area as well. I thought it was a UTI, but the tests would come out negative. So, I understood it to be a type of flare from the IC. When I later saw a urologist, she diagnosed me with the VV and PFD. Not a clinician or anything, but I think that area can be related to IC or VV. Do you drink coffee often? I noticed that I would get that sensation the most in that area after drinking coffee.

I know this is prolly the last thing you wanna do, but maybe you can keep a log of foods that give you flares, and specify where the flares are. I know some types of foods trigger a flare in my left pelvic area, whereas other flares happen in my vulva area.

I am also on a low-ox diet... and it has eased me symptoms... I've also been taking fish oil capsules which can help with the inflammation...

Hope this was helpful...


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Re: Help Please I am O' so Confused

Post  Sarah001 on Thu Dec 08, 2011 8:33 pm

I do drink coffee yes with no increase in symptoms, mine isn't related to diet at all and nothing makes any difference in that respect. Done the low ox diet too along with calcium citrate and no reduction in symptoms from that, tried fish oil capsules with no effect and also had a try at the anti inflammation diet with no help whatsoever. Mine's very pelvic floor related and I start with a new physio in the next 2 weeks to work on that. I have lax ligaments so my muscles go loopy trying to stabilise and my pelvic floor is literally hanging on for dear life. I had a resting tone of 20 when I first had it checked and as it's supposed to be 2-3 mine's clearly waaaaay too high! Shocked There is another member here with IC who may be able to discuss it with you, look for posts by Aussie if you get time. There's also a discussion ongoing about Dr Robert Norse if you look for it and that's a diet related thread too. Some people notice a change from diet and others don't, I can eat or drink what I like and mine stays the same but the slightest tensing of my PF sends my pain levels through the roof.

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Re: Help Please I am O' so Confused

Post  Aussie on Thu Dec 08, 2011 8:40 pm

try the ic diet and give it 3 months. The diet can be found at the ic network website. I have most of the symptoms you describe. Arousal feeling etc. I am on herbs which has cut out clitoral pain and a large percentage of vulva pain. I have been dx with ic vulvodynia and pfd. Physio helped with sex pain now sex feels good. Daily pain i am targeting with herbs and diet. Low ox had no effect for me. Always here if you want to talk. Ic network has a sub forums for each treatment option. Xo


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Re: Help Please I am O' so Confused

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