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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


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Post  sadone on Mon Dec 12, 2011 4:12 pm

I just posted in one of the forums. I'm a new member, so I hope that's okay. I'd appreciate any responses. I'm really feeling pretty low. Sad

sadone

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Post  ButterflyLiz on Mon Dec 12, 2011 7:50 pm

Hi hun,

I read your post in the other thread & thought I’d reply here. I wanted to reply cos I really sympathise with you, honestly your post could have been from me 5 years ago. Big hugs to you.

There are no easy answers cos I know how crappy a situation this is. I know this is not at all what you want to hear but it does seem that you feeling low, desperate and like an object is a direct result of your boyfriend’s attitude towards you and your v problems. My ex said exactly with the same things & at the time I thought well I suppose that makes sense, that seems fair. But when you’re removed from the situation you realise that it’s really not. The sacrifice you are making is living your life with this horrible & unwanted problem. Nevermind adding to that your boyfriend pretty much forcing you into sexual activities that you don’t want to do. You don’t have to justify to anyone why you don’t want to do this or that activity. What he is doing is an out and out guilt trip.

Just think; what if he spontaneously developed erectile dysfunction or sexual pain? Would he put up with the same attitude & ultimatum from you that he is expecting you to accept from him now?

We are all worthwhile & loveable in our own right, v or no v. And painful as it might be in the short term to end things with him, could you put up with feeling this way for the rest of your life if you stayed with him?

I don’t say any of this lightly; I was with my ex for seven years and we were engaged too and owned a house together. But hand on heart, leaving was the best thing I ever did. I needed to be single for a while & get my head together & get my confidence back. And I did find someone who’s more understanding & doesn’t make me feel like crap over the v.

Keep your head held high, we’re all here for you.

Liz x
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Re: new member

Post  naomi on Tue Dec 13, 2011 5:51 pm

hi there!

i cant find your post! its not highlighting new posts for some stupid reason.

im so sorry no one replied. I'll be honest I havent been on here much of late, i have been stressed out with the government cutting my benefits and having to appeal etc.

Do you want to join the facebook group (secret one so not open to public, none of ur friends would know)?

if so, message me on here and i will send you a link to my facebook and add me. Then i can add you to the group. they are all lush ladies on there and we do have a giggle. and a good winge too!

tend to touch base in the facebook group most days...as i admit...i love keeping in contact with my friends on there!

anyways, PM me if you want.
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Re: new member

Post  naomi on Tue Dec 13, 2011 5:56 pm

just realised! did reply to ur post!! im loosing the plot! unless youve written another one?!

loooooooong day! (thats my excuse Smile

xxx
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Thank you, Liz

Post  sadone on Wed Dec 14, 2011 7:40 pm

I really appreciate your response. It really echoes my feelings about all of this. At this point in the game, he has apologized profusely and has asked me to forgive him. He also really wants to work on things and go to a sex/couples therapist together. My therapist has asked me to refrain from anymore discussion of this until we see the therapist. Thanks for your good thoughts. I am praying that some kind of agreeable solution is reached.

Thanks again, Liz... Smile

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No problem!

Post  ButterflyLiz on Sun Dec 18, 2011 10:29 am

No problem, honey! I'm glad to hear your b/f has apologised and wants to work on things. Best of luck to you. Just remember that despite the v, you still deserve to be happy x
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