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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


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Post  sadone on Mon Dec 12, 2011 4:12 pm

I just posted in one of the forums. I'm a new member, so I hope that's okay. I'd appreciate any responses. I'm really feeling pretty low. Sad

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Re: new member

Post  ButterflyLiz on Mon Dec 12, 2011 7:50 pm

Hi hun,

I read your post in the other thread & thought I’d reply here. I wanted to reply cos I really sympathise with you, honestly your post could have been from me 5 years ago. Big hugs to you.

There are no easy answers cos I know how crappy a situation this is. I know this is not at all what you want to hear but it does seem that you feeling low, desperate and like an object is a direct result of your boyfriend’s attitude towards you and your v problems. My ex said exactly with the same things & at the time I thought well I suppose that makes sense, that seems fair. But when you’re removed from the situation you realise that it’s really not. The sacrifice you are making is living your life with this horrible & unwanted problem. Nevermind adding to that your boyfriend pretty much forcing you into sexual activities that you don’t want to do. You don’t have to justify to anyone why you don’t want to do this or that activity. What he is doing is an out and out guilt trip.

Just think; what if he spontaneously developed erectile dysfunction or sexual pain? Would he put up with the same attitude & ultimatum from you that he is expecting you to accept from him now?

We are all worthwhile & loveable in our own right, v or no v. And painful as it might be in the short term to end things with him, could you put up with feeling this way for the rest of your life if you stayed with him?

I don’t say any of this lightly; I was with my ex for seven years and we were engaged too and owned a house together. But hand on heart, leaving was the best thing I ever did. I needed to be single for a while & get my head together & get my confidence back. And I did find someone who’s more understanding & doesn’t make me feel like crap over the v.

Keep your head held high, we’re all here for you.

Liz x
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Re: new member

Post  naomi on Tue Dec 13, 2011 5:51 pm

hi there!

i cant find your post! its not highlighting new posts for some stupid reason.

im so sorry no one replied. I'll be honest I havent been on here much of late, i have been stressed out with the government cutting my benefits and having to appeal etc.

Do you want to join the facebook group (secret one so not open to public, none of ur friends would know)?

if so, message me on here and i will send you a link to my facebook and add me. Then i can add you to the group. they are all lush ladies on there and we do have a giggle. and a good winge too!

tend to touch base in the facebook group most days...as i admit...i love keeping in contact with my friends on there!

anyways, PM me if you want.
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Re: new member

Post  naomi on Tue Dec 13, 2011 5:56 pm

just realised! did reply to ur post!! im loosing the plot! unless youve written another one?!

loooooooong day! (thats my excuse Smile

xxx
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Thank you, Liz

Post  sadone on Wed Dec 14, 2011 7:40 pm

I really appreciate your response. It really echoes my feelings about all of this. At this point in the game, he has apologized profusely and has asked me to forgive him. He also really wants to work on things and go to a sex/couples therapist together. My therapist has asked me to refrain from anymore discussion of this until we see the therapist. Thanks for your good thoughts. I am praying that some kind of agreeable solution is reached.

Thanks again, Liz... Smile

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No problem!

Post  ButterflyLiz on Sun Dec 18, 2011 10:29 am

No problem, honey! I'm glad to hear your b/f has apologised and wants to work on things. Best of luck to you. Just remember that despite the v, you still deserve to be happy x
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