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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


new member

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new member

Post  sadone on Mon Dec 12, 2011 4:12 pm

I just posted in one of the forums. I'm a new member, so I hope that's okay. I'd appreciate any responses. I'm really feeling pretty low. Sad

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Re: new member

Post  ButterflyLiz on Mon Dec 12, 2011 7:50 pm

Hi hun,

I read your post in the other thread & thought I’d reply here. I wanted to reply cos I really sympathise with you, honestly your post could have been from me 5 years ago. Big hugs to you.

There are no easy answers cos I know how crappy a situation this is. I know this is not at all what you want to hear but it does seem that you feeling low, desperate and like an object is a direct result of your boyfriend’s attitude towards you and your v problems. My ex said exactly with the same things & at the time I thought well I suppose that makes sense, that seems fair. But when you’re removed from the situation you realise that it’s really not. The sacrifice you are making is living your life with this horrible & unwanted problem. Nevermind adding to that your boyfriend pretty much forcing you into sexual activities that you don’t want to do. You don’t have to justify to anyone why you don’t want to do this or that activity. What he is doing is an out and out guilt trip.

Just think; what if he spontaneously developed erectile dysfunction or sexual pain? Would he put up with the same attitude & ultimatum from you that he is expecting you to accept from him now?

We are all worthwhile & loveable in our own right, v or no v. And painful as it might be in the short term to end things with him, could you put up with feeling this way for the rest of your life if you stayed with him?

I don’t say any of this lightly; I was with my ex for seven years and we were engaged too and owned a house together. But hand on heart, leaving was the best thing I ever did. I needed to be single for a while & get my head together & get my confidence back. And I did find someone who’s more understanding & doesn’t make me feel like crap over the v.

Keep your head held high, we’re all here for you.

Liz x
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Re: new member

Post  naomi on Tue Dec 13, 2011 5:51 pm

hi there!

i cant find your post! its not highlighting new posts for some stupid reason.

im so sorry no one replied. I'll be honest I havent been on here much of late, i have been stressed out with the government cutting my benefits and having to appeal etc.

Do you want to join the facebook group (secret one so not open to public, none of ur friends would know)?

if so, message me on here and i will send you a link to my facebook and add me. Then i can add you to the group. they are all lush ladies on there and we do have a giggle. and a good winge too!

tend to touch base in the facebook group most days...as i admit...i love keeping in contact with my friends on there!

anyways, PM me if you want.
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Re: new member

Post  naomi on Tue Dec 13, 2011 5:56 pm

just realised! did reply to ur post!! im loosing the plot! unless youve written another one?!

loooooooong day! (thats my excuse Smile

xxx
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Thank you, Liz

Post  sadone on Wed Dec 14, 2011 7:40 pm

I really appreciate your response. It really echoes my feelings about all of this. At this point in the game, he has apologized profusely and has asked me to forgive him. He also really wants to work on things and go to a sex/couples therapist together. My therapist has asked me to refrain from anymore discussion of this until we see the therapist. Thanks for your good thoughts. I am praying that some kind of agreeable solution is reached.

Thanks again, Liz... Smile

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No problem!

Post  ButterflyLiz on Sun Dec 18, 2011 10:29 am

No problem, honey! I'm glad to hear your b/f has apologised and wants to work on things. Best of luck to you. Just remember that despite the v, you still deserve to be happy x
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