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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


new member

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new member

Post  sadone on Mon Dec 12, 2011 4:12 pm

I just posted in one of the forums. I'm a new member, so I hope that's okay. I'd appreciate any responses. I'm really feeling pretty low. Sad

sadone

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Re: new member

Post  ButterflyLiz on Mon Dec 12, 2011 7:50 pm

Hi hun,

I read your post in the other thread & thought I’d reply here. I wanted to reply cos I really sympathise with you, honestly your post could have been from me 5 years ago. Big hugs to you.

There are no easy answers cos I know how crappy a situation this is. I know this is not at all what you want to hear but it does seem that you feeling low, desperate and like an object is a direct result of your boyfriend’s attitude towards you and your v problems. My ex said exactly with the same things & at the time I thought well I suppose that makes sense, that seems fair. But when you’re removed from the situation you realise that it’s really not. The sacrifice you are making is living your life with this horrible & unwanted problem. Nevermind adding to that your boyfriend pretty much forcing you into sexual activities that you don’t want to do. You don’t have to justify to anyone why you don’t want to do this or that activity. What he is doing is an out and out guilt trip.

Just think; what if he spontaneously developed erectile dysfunction or sexual pain? Would he put up with the same attitude & ultimatum from you that he is expecting you to accept from him now?

We are all worthwhile & loveable in our own right, v or no v. And painful as it might be in the short term to end things with him, could you put up with feeling this way for the rest of your life if you stayed with him?

I don’t say any of this lightly; I was with my ex for seven years and we were engaged too and owned a house together. But hand on heart, leaving was the best thing I ever did. I needed to be single for a while & get my head together & get my confidence back. And I did find someone who’s more understanding & doesn’t make me feel like crap over the v.

Keep your head held high, we’re all here for you.

Liz x
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Re: new member

Post  naomi on Tue Dec 13, 2011 5:51 pm

hi there!

i cant find your post! its not highlighting new posts for some stupid reason.

im so sorry no one replied. I'll be honest I havent been on here much of late, i have been stressed out with the government cutting my benefits and having to appeal etc.

Do you want to join the facebook group (secret one so not open to public, none of ur friends would know)?

if so, message me on here and i will send you a link to my facebook and add me. Then i can add you to the group. they are all lush ladies on there and we do have a giggle. and a good winge too!

tend to touch base in the facebook group most days...as i admit...i love keeping in contact with my friends on there!

anyways, PM me if you want.
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Re: new member

Post  naomi on Tue Dec 13, 2011 5:56 pm

just realised! did reply to ur post!! im loosing the plot! unless youve written another one?!

loooooooong day! (thats my excuse Smile

xxx
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Thank you, Liz

Post  sadone on Wed Dec 14, 2011 7:40 pm

I really appreciate your response. It really echoes my feelings about all of this. At this point in the game, he has apologized profusely and has asked me to forgive him. He also really wants to work on things and go to a sex/couples therapist together. My therapist has asked me to refrain from anymore discussion of this until we see the therapist. Thanks for your good thoughts. I am praying that some kind of agreeable solution is reached.

Thanks again, Liz... Smile

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No problem!

Post  ButterflyLiz on Sun Dec 18, 2011 10:29 am

No problem, honey! I'm glad to hear your b/f has apologised and wants to work on things. Best of luck to you. Just remember that despite the v, you still deserve to be happy x
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Re: new member

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