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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


My story with vulva pain and itching

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My story with vulva pain and itching

Post  time2reclaim on Thu Dec 15, 2011 9:09 pm

I don't know how long it has been going on any more, I've lost track. I don't know how many health care providers I've gone to, I've lost track. I've also lost my health insurance and most of my patience for health care professionals who do nothing but try to put me on the pill.

I started out with BV that was treated with the metrogel cream and led to a yeast infection that was treated with a cream. Well the problem is that the pain and itching just never stopped again since the BV. The creams made it worse and I had severe pain and swelling with that.

I've tested clean each time I've gone to the Dr. as far as yeast or BV goes. Now I have severe pain, dryness and itching all the time. I am also allergic now to paper like toilet paper. I have to use pads suring my period and I usually come out of that with a raised red stripe on the entire area the pad touches.

I use emu oil because it is the only thing I can find to give me any relief. My vulva is very dry while I still get vaginal moisture. I believe something is now wrong with the glands that supply moisture to the external genitalia. Once in a great while I may see some and find it thick and stick if anything and then nothing more.

I haven't found a Dr. who can help me and I feel like a good part of my life is just missing now. I'm married and our sex life was great and now it's painful and I don't get in the mood very often as a result. Not fair Sad

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Re: My story with vulva pain and itching

Post  Sarah001 on Fri Dec 16, 2011 5:51 pm

I have to say what you describe does sound like an allergic reaction, ask to see a vulvar dermotologist to rule out skin conditions and discuss your symptoms with them. Have you tried taking anti-histamines? They may help.
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Re: My story with vulva pain and itching

Post  time2reclaim on Fri Dec 16, 2011 10:23 pm

I do definitely have some allergies now down there. I can't use much laundry soap or I itch really bad and one time even wiping with tp on a trip caused my labia to swell up. It all started around that infection and cream cycle from hell and I just can't get my body to function like normal again.

I tried cloth pads during my period to see if that would help during the month but they were either not absorbent enough or too abrasive, I tried the cup but that was a fail too.

My hubby is looking for work that has insurance and if I can get it back I'll definitely find a Dr. I can bring that up to because all they seemed interested in doing was a yeast and bv culture. I'm going to have them check into allergies and those glands to see why they don't seem to be producing moisture and lubrication properly.

Thanks for the reply!

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Re: My story with vulva pain and itching

Post  Sarah001 on Sun Dec 18, 2011 8:14 pm

Can you buy anti-histamines over the counter wherever you're from? If so look for one that covers skin rashes and give it a try, it's likely the first thing a Dr will give you anyway so if you try it and it works great you've saved a packet and if it doesn't work you'll already know to tell the Dr this.
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Re: My story with vulva pain and itching

Post  time2reclaim on Sun Dec 18, 2011 10:19 pm

Sarah001 wrote:Can you buy anti-histamines over the counter wherever you're from? If so look for one that covers skin rashes and give it a try, it's likely the first thing a Dr will give you anyway so if you try it and it works great you've saved a packet and if it doesn't work you'll already know to tell the Dr this.

OMG I never even thought of that. My hubby takes oral benadryl all the time but I forgot creams exist. Thanks so much for the suggestion. Embarassed

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Re: My story with vulva pain and itching

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