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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
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» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


My story with vulva pain and itching

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My story with vulva pain and itching

Post  time2reclaim on Thu Dec 15, 2011 9:09 pm

I don't know how long it has been going on any more, I've lost track. I don't know how many health care providers I've gone to, I've lost track. I've also lost my health insurance and most of my patience for health care professionals who do nothing but try to put me on the pill.

I started out with BV that was treated with the metrogel cream and led to a yeast infection that was treated with a cream. Well the problem is that the pain and itching just never stopped again since the BV. The creams made it worse and I had severe pain and swelling with that.

I've tested clean each time I've gone to the Dr. as far as yeast or BV goes. Now I have severe pain, dryness and itching all the time. I am also allergic now to paper like toilet paper. I have to use pads suring my period and I usually come out of that with a raised red stripe on the entire area the pad touches.

I use emu oil because it is the only thing I can find to give me any relief. My vulva is very dry while I still get vaginal moisture. I believe something is now wrong with the glands that supply moisture to the external genitalia. Once in a great while I may see some and find it thick and stick if anything and then nothing more.

I haven't found a Dr. who can help me and I feel like a good part of my life is just missing now. I'm married and our sex life was great and now it's painful and I don't get in the mood very often as a result. Not fair Sad

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Re: My story with vulva pain and itching

Post  Sarah001 on Fri Dec 16, 2011 5:51 pm

I have to say what you describe does sound like an allergic reaction, ask to see a vulvar dermotologist to rule out skin conditions and discuss your symptoms with them. Have you tried taking anti-histamines? They may help.
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Re: My story with vulva pain and itching

Post  time2reclaim on Fri Dec 16, 2011 10:23 pm

I do definitely have some allergies now down there. I can't use much laundry soap or I itch really bad and one time even wiping with tp on a trip caused my labia to swell up. It all started around that infection and cream cycle from hell and I just can't get my body to function like normal again.

I tried cloth pads during my period to see if that would help during the month but they were either not absorbent enough or too abrasive, I tried the cup but that was a fail too.

My hubby is looking for work that has insurance and if I can get it back I'll definitely find a Dr. I can bring that up to because all they seemed interested in doing was a yeast and bv culture. I'm going to have them check into allergies and those glands to see why they don't seem to be producing moisture and lubrication properly.

Thanks for the reply!

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Re: My story with vulva pain and itching

Post  Sarah001 on Sun Dec 18, 2011 8:14 pm

Can you buy anti-histamines over the counter wherever you're from? If so look for one that covers skin rashes and give it a try, it's likely the first thing a Dr will give you anyway so if you try it and it works great you've saved a packet and if it doesn't work you'll already know to tell the Dr this.
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Re: My story with vulva pain and itching

Post  time2reclaim on Sun Dec 18, 2011 10:19 pm

Sarah001 wrote:Can you buy anti-histamines over the counter wherever you're from? If so look for one that covers skin rashes and give it a try, it's likely the first thing a Dr will give you anyway so if you try it and it works great you've saved a packet and if it doesn't work you'll already know to tell the Dr this.

OMG I never even thought of that. My hubby takes oral benadryl all the time but I forgot creams exist. Thanks so much for the suggestion. Embarassed

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Re: My story with vulva pain and itching

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