Log in

I forgot my password

Latest topics
New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


My story with vulva pain and itching

View previous topic View next topic Go down

My story with vulva pain and itching

Post  time2reclaim on Thu Dec 15, 2011 9:09 pm

I don't know how long it has been going on any more, I've lost track. I don't know how many health care providers I've gone to, I've lost track. I've also lost my health insurance and most of my patience for health care professionals who do nothing but try to put me on the pill.

I started out with BV that was treated with the metrogel cream and led to a yeast infection that was treated with a cream. Well the problem is that the pain and itching just never stopped again since the BV. The creams made it worse and I had severe pain and swelling with that.

I've tested clean each time I've gone to the Dr. as far as yeast or BV goes. Now I have severe pain, dryness and itching all the time. I am also allergic now to paper like toilet paper. I have to use pads suring my period and I usually come out of that with a raised red stripe on the entire area the pad touches.

I use emu oil because it is the only thing I can find to give me any relief. My vulva is very dry while I still get vaginal moisture. I believe something is now wrong with the glands that supply moisture to the external genitalia. Once in a great while I may see some and find it thick and stick if anything and then nothing more.

I haven't found a Dr. who can help me and I feel like a good part of my life is just missing now. I'm married and our sex life was great and now it's painful and I don't get in the mood very often as a result. Not fair Sad

time2reclaim

Posts : 11
Join date : 2011-12-15

View user profile

Back to top Go down

Re: My story with vulva pain and itching

Post  Sarah001 on Fri Dec 16, 2011 5:51 pm

I have to say what you describe does sound like an allergic reaction, ask to see a vulvar dermotologist to rule out skin conditions and discuss your symptoms with them. Have you tried taking anti-histamines? They may help.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: My story with vulva pain and itching

Post  time2reclaim on Fri Dec 16, 2011 10:23 pm

I do definitely have some allergies now down there. I can't use much laundry soap or I itch really bad and one time even wiping with tp on a trip caused my labia to swell up. It all started around that infection and cream cycle from hell and I just can't get my body to function like normal again.

I tried cloth pads during my period to see if that would help during the month but they were either not absorbent enough or too abrasive, I tried the cup but that was a fail too.

My hubby is looking for work that has insurance and if I can get it back I'll definitely find a Dr. I can bring that up to because all they seemed interested in doing was a yeast and bv culture. I'm going to have them check into allergies and those glands to see why they don't seem to be producing moisture and lubrication properly.

Thanks for the reply!

time2reclaim

Posts : 11
Join date : 2011-12-15

View user profile

Back to top Go down

Re: My story with vulva pain and itching

Post  Sarah001 on Sun Dec 18, 2011 8:14 pm

Can you buy anti-histamines over the counter wherever you're from? If so look for one that covers skin rashes and give it a try, it's likely the first thing a Dr will give you anyway so if you try it and it works great you've saved a packet and if it doesn't work you'll already know to tell the Dr this.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: My story with vulva pain and itching

Post  time2reclaim on Sun Dec 18, 2011 10:19 pm

Sarah001 wrote:Can you buy anti-histamines over the counter wherever you're from? If so look for one that covers skin rashes and give it a try, it's likely the first thing a Dr will give you anyway so if you try it and it works great you've saved a packet and if it doesn't work you'll already know to tell the Dr this.

OMG I never even thought of that. My hubby takes oral benadryl all the time but I forgot creams exist. Thanks so much for the suggestion. Embarassed

time2reclaim

Posts : 11
Join date : 2011-12-15

View user profile

Back to top Go down

Re: My story with vulva pain and itching

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum