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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Pain Clinic

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Pain Clinic

Post  JemimaSurrender on Tue Dec 20, 2011 1:24 pm

So...

I went back to my GP yesterday with a massive list of things to talk about. As a result, I'm now on Pregabalin, she's in the process of checking out David Nunns in Nottingham, and I'm being referred to a Pain Clinic.

Apparently, I'll have to see someone at the pain clinic who will then pass me on to do Accupuncture, and psychotherapy.

So, I was just wondering if anyone has anymore information about psychotherapy in the UK? The sounds like a Sex Pistols B-Side!

Is it like the Biofeedback and muscle help stuff, or is it more therapy, like discussing how mental it sends you? Or is it a mixture of the two? I'd like to know so I don't look dumb when I turn up expecting the wrong thing, haha.

Thanks guys!

JemimaSurrender

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Age : 28
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Re: Pain Clinic

Post  Sarah001 on Tue Dec 20, 2011 8:51 pm

How weird, my vulvar specialist is also referring me onto David Nunns in Nottingham and I've been discussing him today with my new physio. Apparently he's very good and works with a team of physios specialised in vulvar pain treatments so it might not be a bad thing to see him.
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Sarah001

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Re: Pain Clinic

Post  kirsty on Sat Dec 24, 2011 5:43 pm

I was referred to a psychosexual therapist in Oxford by my Vulval Doctor,. I was expecting it to be very "therapy-ey", mainly because I'd first been referred by the previous Dr who has told me the pain was psychological. I'm not great with talking about how I feel to anyone, so I was completely dreading it. However, it was very much practical advice, mainly focussing on muscular things. He explained a lot about the different muscles, and why the pain is where it is, and got me to practise positions that help your pelvic floor muscles do the right thing. He often gets women dilators on prescription and tells you how best to use them (I saw him at one of my best points, so thought everything was improving and did not get any - but may do next time.)

It sounded like he was in a position to do more talking-therapy, if you were someone for whom vulvodynia grew out of some past bad experience, but didn't in any way suggest that it was the case for most sufferers.

All in all, it was the most positive and helpful experience I've had with a doctor - although that's probably mainly because he gave me plenty of time and so everything was explained really well. I suspect any doctor would be great if they were allowed to spend a whole hour with you.

I have no idea if my experience is similar to what you'll be referred to by a pain clinic, I imagine there is a whole spectrum between talking about how you feel and talking about muscles and pain control. Would be interesting to hear about your experiences after you've been...

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Re: Pain Clinic

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