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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Pain Clinic

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Pain Clinic

Post  JemimaSurrender on Tue Dec 20, 2011 1:24 pm

So...

I went back to my GP yesterday with a massive list of things to talk about. As a result, I'm now on Pregabalin, she's in the process of checking out David Nunns in Nottingham, and I'm being referred to a Pain Clinic.

Apparently, I'll have to see someone at the pain clinic who will then pass me on to do Accupuncture, and psychotherapy.

So, I was just wondering if anyone has anymore information about psychotherapy in the UK? The sounds like a Sex Pistols B-Side!

Is it like the Biofeedback and muscle help stuff, or is it more therapy, like discussing how mental it sends you? Or is it a mixture of the two? I'd like to know so I don't look dumb when I turn up expecting the wrong thing, haha.

Thanks guys!

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Re: Pain Clinic

Post  Sarah001 on Tue Dec 20, 2011 8:51 pm

How weird, my vulvar specialist is also referring me onto David Nunns in Nottingham and I've been discussing him today with my new physio. Apparently he's very good and works with a team of physios specialised in vulvar pain treatments so it might not be a bad thing to see him.
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Re: Pain Clinic

Post  kirsty on Sat Dec 24, 2011 5:43 pm

I was referred to a psychosexual therapist in Oxford by my Vulval Doctor,. I was expecting it to be very "therapy-ey", mainly because I'd first been referred by the previous Dr who has told me the pain was psychological. I'm not great with talking about how I feel to anyone, so I was completely dreading it. However, it was very much practical advice, mainly focussing on muscular things. He explained a lot about the different muscles, and why the pain is where it is, and got me to practise positions that help your pelvic floor muscles do the right thing. He often gets women dilators on prescription and tells you how best to use them (I saw him at one of my best points, so thought everything was improving and did not get any - but may do next time.)

It sounded like he was in a position to do more talking-therapy, if you were someone for whom vulvodynia grew out of some past bad experience, but didn't in any way suggest that it was the case for most sufferers.

All in all, it was the most positive and helpful experience I've had with a doctor - although that's probably mainly because he gave me plenty of time and so everything was explained really well. I suspect any doctor would be great if they were allowed to spend a whole hour with you.

I have no idea if my experience is similar to what you'll be referred to by a pain clinic, I imagine there is a whole spectrum between talking about how you feel and talking about muscles and pain control. Would be interesting to hear about your experiences after you've been...

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