Log in

I forgot my password

Latest topics
I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Pain Clinic

Go down

Pain Clinic

Post  JemimaSurrender on Tue Dec 20, 2011 1:24 pm

So...

I went back to my GP yesterday with a massive list of things to talk about. As a result, I'm now on Pregabalin, she's in the process of checking out David Nunns in Nottingham, and I'm being referred to a Pain Clinic.

Apparently, I'll have to see someone at the pain clinic who will then pass me on to do Accupuncture, and psychotherapy.

So, I was just wondering if anyone has anymore information about psychotherapy in the UK? The sounds like a Sex Pistols B-Side!

Is it like the Biofeedback and muscle help stuff, or is it more therapy, like discussing how mental it sends you? Or is it a mixture of the two? I'd like to know so I don't look dumb when I turn up expecting the wrong thing, haha.

Thanks guys!

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 28
Location : Staffordshire, UK

View user profile

Back to top Go down

Re: Pain Clinic

Post  Sarah001 on Tue Dec 20, 2011 8:51 pm

How weird, my vulvar specialist is also referring me onto David Nunns in Nottingham and I've been discussing him today with my new physio. Apparently he's very good and works with a team of physios specialised in vulvar pain treatments so it might not be a bad thing to see him.
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 45
Location : UK

View user profile

Back to top Go down

Re: Pain Clinic

Post  kirsty on Sat Dec 24, 2011 5:43 pm

I was referred to a psychosexual therapist in Oxford by my Vulval Doctor,. I was expecting it to be very "therapy-ey", mainly because I'd first been referred by the previous Dr who has told me the pain was psychological. I'm not great with talking about how I feel to anyone, so I was completely dreading it. However, it was very much practical advice, mainly focussing on muscular things. He explained a lot about the different muscles, and why the pain is where it is, and got me to practise positions that help your pelvic floor muscles do the right thing. He often gets women dilators on prescription and tells you how best to use them (I saw him at one of my best points, so thought everything was improving and did not get any - but may do next time.)

It sounded like he was in a position to do more talking-therapy, if you were someone for whom vulvodynia grew out of some past bad experience, but didn't in any way suggest that it was the case for most sufferers.

All in all, it was the most positive and helpful experience I've had with a doctor - although that's probably mainly because he gave me plenty of time and so everything was explained really well. I suspect any doctor would be great if they were allowed to spend a whole hour with you.

I have no idea if my experience is similar to what you'll be referred to by a pain clinic, I imagine there is a whole spectrum between talking about how you feel and talking about muscles and pain control. Would be interesting to hear about your experiences after you've been...

kirsty

Posts : 11
Join date : 2011-11-24
Location : UK

View user profile

Back to top Go down

Re: Pain Clinic

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum